How've you all done on follow-up tTG or other antibody testing? If your goal is to have a negative reading and it's not, why do you think that is, ie cross-contamination or do you occasionally indulge in gluten? Is this even a goal for you? Do you think the numbers "feel" accurate?
My diagnosis tTG was 19. My 6-month and 2-yr follow up the tTG was less than 3 (can't find my 1-yr at the moment, but I'm sure it was the same as the 2-yr).
(tTG reference range:
neg: less than 5
positive: over 8)
At dx, my Gliadin Antibody (IGA) was 50, at the 6-month it was 5, and they didn't do the test at my 2-yr (don't know why as it was supposed to be the same "comprehensive celiac panel", but many of the tests said "testing not required".
(Gliadin Antibody (IGA) reference range:
negative: under 11
positive: over 17)
My IGA serum was 207, 212, then 198. (Ref range: 81-463).
If you got tested, do you always ask for copies of the labwork (recommended!)? If you got tested, did they do the "comprehensive" celiac panel so you know if you're IGA deficient so the test is accurate?
I finally got my dad to test, but they only did a tTG and he could have been IGA deficient, so the test was inaccurate and a waste of time - booo.
Just wonderin' ...
Edited by: DOTSLADY at: 7/4/2009 (14:01)
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Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
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|2,868 Days since: gluten