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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
1/8/09 12:37 P

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Hey, After you get that food out of your rear-end and that bum dent is popping back up, stick out your tongue and say 'yes' to food. Only this time plan some fun rewards for gaps of low sugar that cause the craving for naughty stuff. Put great sweet things in the car, drawer at work and
Special-Me fancy glass jar in the kitchen; sweet notes, smells good scents like lotion and candles, and those 'I can't live-with-out' snack treats you have been depriving yourself of. That's right go ahead, turn those double negatives into rewarding positives for next time emoticon

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
GFNOMAD's Photo GFNOMAD Posts: 1,498
12/24/08 6:41 P

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I'm coming late to this discussion. I've been out of the loop for more than a month.
Sometimes we do need a good kick in the pants.
I never realized the extent the gluten was having on me until I went 100% gluten free. What a difference. Now I notice it the most emotionally and I do not want to be that person again. It is not worth it.
Unfortunately due to a lack of information, I did not realize the full impact of cheating for many years.
My strategies:
reseach and know the restaurants and grocers in your area where you can get something if you get hungry when you are out and about.
Always have extras or leftovers in the freezer.
Thai Kitchen noodles are great for quick meals (check the ingredients) and add frozen peas and a small can of gf chicken to make a really full meal.
Always carry something in your purse or car.
Try and make it nutritious rather than empty calories.
GF rice crackers and a good aged cheese is a daily staple snack for me.
And of course everything everyone else has said.
Barb (dx 1981)

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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HEALTHY2B's Photo HEALTHY2B Posts: 168
12/20/08 12:32 P

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I like the calendar X idea! I am a very visual learner- I am kind of like a child in that regard :). So that will help. Thanks!

I am going to try the plan thing also. That is right up my alley as well.

I'm not afraid of storms, for I'm learning to sail my ship. - Louisa May Alcott
May my storm be a gentle one, Aisha


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DOTSLADY's Photo DOTSLADY Posts: 10,018
12/17/08 9:22 P

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Okay, my turn :).

JJenney - hate to say it, but a negative sm bowel biopsy doesn't mean you don't have celiac: though it might have made you sigh a breath of relief at the time. You didn't mention if you had the biopsy - just that the gastro did an endoscopy. And I mention it because I've read too many times that's what they'll do: "look" but not "biopsy!" Granted, you can visually see scalloping with a scope (my gastro gave me photos of mine) sometimes, often the damage is spotty and/or the biopsy wasn't taken from a damaged spot. How far down did the gastro go and how many biopsies were taken? How experienced was the pathologist? There are so many variables. There are people positive by blood, negative to biopsy and vice-versa. There are people negative to both and who still respond to diet. Forgive me, I'm not sure where you're coming from in bringing this up.

I know it seems that celiac is the new fibro but that's because nutrient deficiencies cause so many of our symptoms - fibro being one actually. Nutrient deprivation causes stress on our body and this causes a chain reaction with all the autoimmune diseases. The thing is that you don't have to be celiac to be nutrient deficient, but it's good that awareness is growing so our choices will be greater in mainstream-land/the real world - then shopping at fast food places will be less of a problem?

HEALTHY2B: Another thought would be to take it day by day and congratulate yourself for accomplishing your goal. One thing I did was take a hint from Sparkguy as he was inspired to exercise daily from a co-worker: every day he exercised he crossed the day off on his calendar with a big "X" -- some days were easier to do than others, but I never wanted to NOT see an "X" on a calendar day and undo my efforts/healing to START OVER?!

I like what someone else said (kitchofdngr?): make a plan!

... and I didn't know about the buns at Carl's Jr. - thanks for that info!

Let us know how you're making out.

Edited by: DOTSLADY at: 12/17/2008 (21:32)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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HEALTHY2B's Photo HEALTHY2B Posts: 168
12/16/08 12:47 P

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Thank you all SO much. All of your advice was very helpful. Some of the things I have tried and others I was unaware of. I have a good friend who is gf/cd as well and we compare notes all the time. That does help. You are right about it not being the worst thing that there is to deal with. My health has come a long way and I refuse to turn back now for something so over whelming avoidable. Thank you all again. I am glad to know the support is there and I can really feel the love!

I'm not afraid of storms, for I'm learning to sail my ship. - Louisa May Alcott
May my storm be a gentle one, Aisha


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NORMAMURIEL Posts: 106
12/15/08 7:07 A

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I will chime in with the rest of the group that is advising you not to cheat. This disease, which is what it really is, will give you intestinal cancer if you continue to cheat. If that doesn't do it for you I am afraid nothing will, except maybe visiting a ward of end stage cancer patients.
I don't mean to preach, but I was so mad at my husband one night I had a KC biscuit in my hand put it up to my mouth, and then just set it back down. The only gluten I get now is by cross contamination which is just as bad, but I don't do it on purpose. My diet power sucks!!!!!!!!!!!!! But I would never thing of cheating on the GF thing. I will speak out loud why don't we all go for some White Castle Hamburgers and I will have about 30 my treat, but everyone just laughs at me, I get it out of my system and have salad instead. I guess the only thing I can say to you is stay true to yourself, and stay away from things you know is destructive. There are enough good GF food out there, that makes this doable, you just have to experiment and stick with what you like. Search the internet for restaurants that have GF Menu's and go there instead. I guess it is all a matter of perspectives.
Good Luck I will be praying for you.

KTCHNOFDNGR SparkPoints: (0)
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12/14/08 3:56 P

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IF you can stick with it and eliminate all gluten for about a month, it WILL get easier. The reason for this is that you will begin to feel better from the healing and nutrients your body is getting. Then, have a buddy go with you as you begin to go places that you used to eat at a lot....My husband was a really big help in this respect. When we would go to Chick-Fil-A, he would make sure that I didn't buy those chicken nuggets (very glutenized)and instead get the grilled chicken salad (both healthier and gf). Some places are just no longer on our radar because I can't eat there--KFC, Arby's, Subway, etc. I've also gotten used to eating hamburgers and hot dogs without the bun at different places....I don't even miss the crappy buns that places like McDonald's and Burger King use, and the low carb diets make it so that most fast food places no longer even blink when you ask for it that way. Just make sure you emphasize to them that it is a food allergy that requires you to do this or they may start with a bun and then take it off. I like going in because I can watch them make the food at most fast food joints. Carl's Jr. actually has a burger that is served without the bun (and you can get all of their burgers served that way), but you have to be careful, because some of their stores have the bun warmer directly over their grill, so that ALL of their burger patties are cross-contaminated.

While this should help when you can decide to stick to the diet, the reality is that it has to be YOUR CHOICE! Researchers say that all of us have a guage of pain that is from one to ten inside us, and we do not choose to change until we reach 10. At 9, it won't work because we still don't hurt enough to overcome our fear of change. You have a diagnosis of Celiac disease, and you got that because you finally went to the dr because you felt so crappy and you wanted that changed. So, try to examine why you do not want to follow the diet--why you don't want to make the final step to change. Is it convenience? Not wanting to feel conspicuous? Feeling restricted? Not trusting the dr's diagnosis? Afraid of feeling well? Wanting to continue to play the martyr because of being sick? etc? Once you know why you are cheating, it will be a lot easier to be pro-active and change your attitude.

The diet isn't easy, even if it is getting easier because of society awareness. And yet, I personally would never go back to the way I felt when I was eating gluten. After 5 years of eating GF, I am not tempted to cheat anymore, even the things that I miss. Do I miss some glutenized foods? Sometimes, but that is when I go looking for a GF alternative--I was so excited when I found a GF ravioli about 2 months ago (my favorite Italian dish and I hadn't had it since I went GF in 2003!) Do I get discouraged when I go to a pot-luck and can only eat the dish I brought? Absolutely, but I can't fathom actually eating that other stuff because I NEVER want to be that sick and mean again. Gluten is equal to rat poison in my system. Would you willingly eat rat poison or a food that had touched rat poison? I know I wouldn't, but you have to come to that conclusion yourself.

Sorry to be preachy, but that is my 2 cents about the whole thing.

Ruth

Ruth



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JJENNEY's Photo JJENNEY Posts: 5
12/14/08 3:13 P

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A couple of years ago, my doctor did a blood test and determined that I had Celiac Disease. As I studied it, I found out that CD is the number one diagnosis from my doctor and a few other doctors in my area -- according to them EVERYBODY has it! (or at least everyone that goes to them). I am also an ACE Certified Personal Trainer, so began to research it. CD is also the number one "go to" diagnosis, just like Fibromyalgia was a few years ago. Now, I am aware that it can be life-threatening and very serious; however, I had gastro-enterologist do the absolute test of an Endoscopy, specifically looking for Celiac. He told me that there absolutely no evidence that I had it. Praise the Lord!

All this to say, that I certainly understand where you are coming from. My grocery bills went up tremendously, bread was hard to find and it all had to be toasted. I, too, love a good hamburger. I make my own patties with nothing added, and we found a great hamburger bun in the Whole Foods Bakery. If you have a Whole Foods in your area, they have a lot of good GF foods. Also, I found Kinnickinick breads to be really good. You can order online at: www.kinnikinnick.com

Also, a good flour I found online at www.domatalivingflour.com

Good luck and God Bless you!

"I praise you Lord, for I am fearfully and wonderfully made; Marvelous are your works, and that my soul knows very well."

Psalm 139:14 www.advocarebuildschampions.com
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
12/13/08 4:26 P

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I find it easier to focus on the foods I can eat, rather than the foods I can't. This is the only way I don't miss those other foods. I hate when I am contaminated by accident. I avoid it at all costs. I know those places are the worst. Not only are they full of Gluten, but HFCS and trans fats. You have done so well with your weightloss. I think what the other people said is true, keep stuff nearby so that if you get hungry you can have a GF treat. Also, I don't know if you already do this, but make sure you are eating every 2-3 hours. AND make sure you are getting a lot of protein in each day. Protein will help with cravings. Good luck!!!

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
VEGGIEGATOR's Photo VEGGIEGATOR Posts: 17
12/13/08 9:45 A

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I think about how sick (caught every cold that went around and took forever to get rid of it) and weak (not absorbing nutrients)I was back when I didn't know I had CD and I don't ever want to go back to that. Cheating for me has led to psoriasis outbreaks and bad headaches. I rarely cheat now. I have an occasional strange craving for mozzarella sticks, but after reading about the body stress that the other user posted, I think I will be able to resist my craving next time.
This is your life now, and just be thankful you don't have to shoot insulin into your body or that you don't have to get rushed to the hospital due to a food allergy. This is much easier to handle and you can do it!
You need to be prepared with GF foods in your purse or car in case you can't get food somewhere. When I go to parties, I bring a baggie of GF crackers because there is always cheese or dip, but I can't put it on a regular cracker.
Get to know your local grocery stores and find out from the manager if they can order more GF foods.
I enjoy reading "Living Without" magazine (for dietary restricted people). You are not alone, and this world is quickly adapting to our disease. Hang in there!

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BRUIN2's Photo BRUIN2 SparkPoints: (27,391)
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12/13/08 9:14 A

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The best thing I ever read since my diagnosis was:

"This is not a diet you can cheat on. This is your life now."

That was enough for me... Cheating is not even an option in my books....

Good luck!



Those are not my feet. The scale aptly says: Go Run.

Attitude + Effort = Success

Baby Bruin born April 29, 2010. (Highest weight during pregnancy - 178. Working to get back to the low 140s. 160 represents my highest weight before pregnancy).


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SWIMLOVER SparkPoints: (86,393)
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12/13/08 8:18 A

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I will be praying for you. I don't know if there is
a Trader Joe's near you but they have some delicous
GF foods that might help you not want to do fast foods. Some resturants and even some fast foods have
GF foods--you can either check their websites or check with the managers of the places. We are lucky that we have two gluten free pizza places near us. Maybe you can check out your area and see if there are any. Also, I agree with the suggestion of planning our your meals. It has helped me. We are here to support each other. You can do this! We are here for you. GOD BLESS!

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LUCASWE's Photo LUCASWE Posts: 29
12/13/08 7:44 A

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Our medical advisor just spoke to our support group about cheating on the GF diet. She said that Celiac ia an autoimmune disorder. When you aggravate the immune system, you are putting stress on the heart, liver and other organs in your body. Even a "little" cheating, even if you do not have a reaction, triggers an autoimmune response which stresses you body. Also, if you cheat, and damage is done to the villi, you are not absorbing all the nutrients that your body need which in turn can cause additional damage (like osteoporosis).

 
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YVONNE2001's Photo YVONNE2001 SparkPoints: (55,202)
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12/13/08 2:20 A

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emoticon Hi HEALTHY2B, I found two secrets to staying with my GF diet. 1. Find GF foods I love and 2. Be prepared with a game plan. Did you know there are GF weiners and weiner buns that you can purchase at a supermarket? Keep some handy in your freezer and you can have your hot dog and remain true to your gluten free diet too! Try making up a menu for the week, then follow it. Double every dish you you cook that you love and freeze half. This gives you a convenient, quick dinner. For motivation there are excellent articles on the Motivational section of Sparks. Just expand the advice to include GF. Don't give up. You can do this, and we are all rooting for you.

Yvonne
British Columbia

At times our own light goes out and is rekindled by a spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us. A. Schwietzer.

BLC 17, 18, 19, 20, 21
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HEALTHY2B's Photo HEALTHY2B Posts: 168
12/13/08 12:52 A

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Hello all,

I am in desperate need of some help here. I am running into many hills to climb that are preventing me from sticking to my gf diet. I have read to very helpful 25 ideas post. That is really wonderful. I think I just need a swift kick in the pants and a reminder of what negative repercussions my body endure by not adhering to my proper eating plan. I am feeling so many physical repercussions, but that doesn't seem to serve as a deterrent. Help, please help. How do I keep from going to my fav fast food joint and downing some great tasting burgers or yummy hot dogs. Will power, yea I know. I need a reality check and I now that is primarily comes form within, but a little outside support and love sure will help. Desperately seeking peace and answers...
All I know is that I can not keep going like this. I am destroying my body. Does any one have any literature or helpful facts that I can digest of simply some motivational words that you care to share? Looking forward to feedback. Thanks everyone.

I'm not afraid of storms, for I'm learning to sail my ship. - Louisa May Alcott
May my storm be a gentle one, Aisha


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