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ILLINITEACHER52 Posts: 7,256
11/2/08 12:49 P

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I'm glad that you have stayed faithful to being your own health advocate. It would be nice if the health care really did practice preventative medicine but I'm not sure they know how for amny of us. I have a friend who is VERY sensitive to sulfites and it is very hard for her to eat anywhere but home (even then it is sometimes challenging!). Keep coming back here for support. We understand.

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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,509
11/2/08 10:50 A

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I knew when I went to a doctor with a diarrhea and low grade fever problem for 2 weeks long at the time; the "doc” did not know what to do for me.
I was on my own!
After 3 years of self searching and researching my issues myself I finally knew some if the questions to ask and a real someone to ask them to… My beliefs are confirmed by nutrition specialists with decades of people helping experience. I get better everyday. My fatigue and weakened immune system are the next hurdles to take on. The lifestyle I try to live now has become a 180 turn around from the old me. There is poison (to me) on 90% of the foods in the avg grocery store shelf. I was amazed that the common doc could pass me off as a ‘weirdo’ and my 8 minutes of their time was up. My last doc, I thought was loyal, actually shredded 12 yrs of my medical record and passed it off as innocently an -oops- a mechanical malfunction at the records saving facility!
The attorneys are mandatory for SSI filing to succeed. The calls I have made to over 25 local attorneys-at-law so far are not taking my case. They want to stay open for the next lucrative case that that wallet fat, rich doctor/corporation will pay. In the Katrina hit homeowner rich region they say, "I'm sorry, my case load is full and your needs can not be met here, or conflict of interest.", but this issue needs a new thread, Right?
I actually ‘GF’ed a few months prior to a anti-gliaden testing that show a clean score of a normal 3, but I know I am better and I feel better when I avoid gluten laden foods and all nasty preservatives additives and FD&C colors. I have been in training and gluten reduces then free for 6 months.
It takes fortitude and determination to keep hitting my head against the establishment walls but that is what I must do. My domestic environment was shattered when my support team kicked me out of my home and threatened worse if I did not to comply with my necessary steps that result in the wall banging efforts! I know your road is hard. I wish to stay connected to you and SP to get the wonderful support and feedback only you could understand and provide!
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The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
ILLINITEACHER52 Posts: 7,256
10/30/08 9:23 P

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Thanks for the link. It doesn't seem to be correlated to blood type but the blood type diet has been helpful for me. I think it has really made me tune in to which foods are good for my system. I said - I know avocados are good for me but they were an O avoid. Then I found out that I was a non-secretor and avocados are good for me. It pays to pay attention to your body but that can sometimes be tricky. (I'm getting way off topic so... a topic for another time)

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DOTSLADY's Photo DOTSLADY Posts: 10,015
10/30/08 3:08 P

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Thanks for the followup ITeacher. I started reading the Blood Type Diet and was enthused by his work. However, after reading more about it online and speaking with different people, I've come to not believe. The premise is very interesting though. JMHO; and how wonderful that it led you to better health!

The blood type question was brought up, maybe you'd be interested then: www.sparkpeople.com/myspark/t
eam_messa
geboard_thread.asp?board=0x94
8x432
6343


Edited by: DOTSLADY at: 10/30/2008 (16:17)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ILLINITEACHER52 Posts: 7,256
10/29/08 9:07 P

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I think I probably did have DH but it was not diagnosed as such. The Dr. just kept treating me with one ointment after another which did not help at all. I am Blood Type O and do better without gluten. I think Blood Type B is also supposed to avoid gluten. It would be interesting to find out the Blood Types of the people on this forum.

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DOTSLADY's Photo DOTSLADY Posts: 10,015
10/29/08 8:55 P

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ITeacher - Thank you for your story. What blood type is supposed to stay away from wheat? What skin condition is relieved by gf diet for you? You didn't have DH, right? Was it eczema, psoriasis, rash? Re: friend's willingness to try gf diet. I mentioned he should try while his dad was visiting and he pretty much agreed, but it ended there. I think the spouse was pretty stressed out preparing dinners the week with FIL visiting and said, "No way!" (kinda rude and short-sighted if you ask me.) I can tell he's thinking about it anyway.

SHalstead, UC. oh dear. Do you use gf diet for that and how does it go? Did husband's sis have celiac also? Re: testing: it's good you're persistent. Thank you, too.

Tami, so many times I've read where celiac's or gluten sensitive people attribute their problem to something other than the gluten: the sauce or cheese on the pizza, the sauce on the spaghetti ... we culturally/collectively think pasta and bread is so innocuous, huh?

I wasn't even smart enough to know I had IBS (I knew someone with a 'spastic colon' which I thought was more IBS and that wasn't me). Thank you all. I appreciate it - this will be helpful (as mud when I try to explain - lol. Heck, he's smart, what am I thinking?!)
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Edited by: DOTSLADY at: 10/29/2008 (21:03)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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RAJAMO3's Photo RAJAMO3 Posts: 9
10/28/08 8:31 P

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Dots,
The funny thing was that what I thought were my triggers were things like coffee and too much sugar. I never noticed having diffuculty with gluten. Stress would always make the symptoms worse. Thankfully, with learning about Celiac, I can have some things that would make me sick before now! Tami

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SLHALSTEAD's Photo SLHALSTEAD SparkPoints: (4,345)
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10/28/08 7:15 P

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Oddly enough, my husband who is a celiac (and who now also gets DH too) was orginally diagnosed with IBS and lactose intolerance. That was in 96; he started getting the DH in 2006 after suffering obvious celiac symptoms (illness, tiredness, etc.) for over three years. The GI doc he saw never tested for celiac. He only did a colonoscopy. My husband's sister was also wrongly diagnosed with IBS.
On the other hand, so was I. But I didn't have celiac, instead I have ulcerative colitis. Again, the docs assume that stress causes all the problems. It took me two years to get a doctor to run a colonscopy and biopsy to diagnose the UC. Very frustrating.

SHalstead

*Without you I have no business in the kitchen - because I love Pampered Chef.


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ILLINITEACHER52 Posts: 7,256
10/28/08 6:52 P

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Eighteen years ago I was diagnosed with IBS after a colonoscopy. I was under a LOT of stress at that time. One Doctor asked me to learn to say "No". I did try to cut back on activities but would still have flare ups. What helped me the most was trying the Blood Type diet because it basically eliminated wheat from my diet. (I would eat rice bread but no other grains). It was at that point that my skin started to clear up and I can now get somewhat stressed without any flare ups. So, though I have not been officially diagnosed I know I am definitely gluten sensitive. Any gluten can make my joints ache as well as cause major internal problems. Would your friend be willing to try being gluten free for a month to see what happens? (A Dr. would certainly be willing to do a scientific experiment, right?)

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DOTSLADY's Photo DOTSLADY Posts: 10,015
10/28/08 2:51 P

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Boy Barb, I have to agree and I know what you mean about anecdotal stories and doctors. There's good reason, but as WE know, there's also good reason for our side as well. I'll be doing EVERYTHING I can including scouring the web for info, don't worry. I just wanted some anecdotal too. :) (It's why I've treaded lightly on this subject with them ... they're REALLY into their world-view and they're slow to change. I did get them to give their ADD kids fish oil, so there's hope!) ;0)

Thanks SO much Tami - this will be helpful. I REALLY appreciate it. More questions: did you ever identify your triggers during your IBS years? Were you told to look for any? Did you try any food elimination? What DID help you, if anything? He thinks stress is his trigger (not saying it isn't); was this true for you?

Edited by: DOTSLADY at: 10/28/2008 (15:00)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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RAJAMO3's Photo RAJAMO3 Posts: 9
10/28/08 2:19 P

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Hi Dots,
I don't know if this will help. I've had stomach problems for many years. One doctor told me that it was IBS. So, for the next 10 years, I would tell doctors that I had IBS and they would accept that. I still had the symptoms with no change at all. However, I was informed that it was because I was overweight with IBS. Then one day, I went to a new OBGYN, he told me not to accept the initial diagnoses. He said they didn't do the proper tests and that I shouldn't have these symptoms for so long. That led me down the long path of many tests until I was referred to my Gastorologist who tested for Celiac Disease right away. Which I proved a definite positive for, within 6 months of following the gluten-free diet, my IBS symptoms were mostly gone. Tami

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GFNOMAD's Photo GFNOMAD Posts: 1,498
10/28/08 11:50 A

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Hi Dots,
If this person is a doctor, they are not going to listen to anecdotal evidence. My suggestion is to go to www.celiac.com and research the medical posts there. Scott has an amazing collection. The doctor is more likely to pay attention to those.
Barb

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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DOTSLADY's Photo DOTSLADY Posts: 10,015
10/28/08 1:20 A

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I don't have time to check the INTRO thread for diagnosis/stories of team members who had or were treated for IBS for years before getting diagnosed with celiac ... OR went gf without formal diagnosis with positive results.

I'm wanting to share these stories with a neighbor who has IBS. This person flares when stressed, has a father with DH, uncle or aunt with Crohn's (if you have/had Crohn's and gf diet helps, I'd appreciate knowing that also), tested negative for celiac with bloodtest.

I plan to suggest www.Enterolab.com , but this person's a doctor ... soo, let's see if there's some open-mindedness (not :-P). I've been workin on them for months. They really don't even know my own story and upon hearing that my lifelong anxiety and depression were alleviated at dinner the other night, were surprised. The Dad with (recently diagnosed) DH is also a doctor (nephrologist/kidneys, retired). I told them I'd find stories - can you all help?
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KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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