Author: Sorting Last Post on Top ↓ Message:
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/18/08 8:31 P

My SparkPage
Send Private Message
Reply
I just came across this blog: "Gluten Free Steve," where he asks his readers if they would take a pill to deal with gluten if such a thing were developed...the link is below. It is very interesting, but neither he nor his readers that I can tell actually seem to have a heads up on the actual research and development going on...just thought I'd throw it out for general interest, since Jessica has brought up the subject.

http://glutenfreesteve.wordpress.com/200
8/08/25/a-magic-pill/

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
JESSICABESSICA Posts: 43
9/18/08 5:39 P

My SparkPage
Send Private Message
Reply
no i do not but there is a doctor who is helping us with all this stuff. i can try to find a link

Edited by: JESSICABESSICA at: 9/18/2008 (17:37)
huh?


 current weight: 130.0 
 
130
127.5
125
122.5
120
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/18/08 10:14 A

My SparkPage
Send Private Message
Reply
Jessica, you must be refering to Armour. That was actually the very first treatment for hypothyroidism. do you have some links to info about how it will help Celiacs?

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
JESSICABESSICA Posts: 43
9/18/08 12:44 A

My SparkPage
Send Private Message
Reply
its a pig thyroid. it helps your thyroid improve, wich is supposed to help celiacs.

huh?


 current weight: 130.0 
 
130
127.5
125
122.5
120
DOTSLADY's Photo DOTSLADY Posts: 10,018
9/17/08 9:56 P

My SparkPage
Send Private Message
Reply
Okay, JB - what's the "pill" or "stuff" anyway? You still haven't said. emoticon

(You need to check out our recipe forum - there may be some cookie recipes/links there!) Feel free to share your sis' recipe there, too.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


3,095 Days since:  gluten
 
0
775
1550
2325
3100
JESSICABESSICA Posts: 43
9/17/08 8:16 P

My SparkPage
Send Private Message
Reply
ok, so i did go a lil crazy with the pill thing but there is stuff that can help you, and like my sis. said, im just young and hyper, atleast i think thats wat she said! hehe. wats youre guys fave recipe gluten free? my sis. makes amazing cookies! yum!

huh?


 current weight: 130.0 
 
130
127.5
125
122.5
120
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/17/08 1:43 P

My SparkPage
Send Private Message
Reply
Jessica, I think you might be referring to the pills that have apparently been helpful to people who have allergies to wheat rather than actual Celiac disease. Although both must eat a gluten free diet, the 2 conditions are different. As DOTS says, many of us have lived with one, both, or more of these conditions for years and are aware of nearly everything out there. But since we're all human, we can't know everything, and we always appreciate new info and perspective. Welcome to the group and the forums. Best wishes on your journey!

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
DOTSLADY's Photo DOTSLADY Posts: 10,018
9/17/08 10:13 A

My SparkPage
Send Private Message
Reply
JessicaBessica - sorry, but your msg/delivery was suspect because you didn't have a page, nor did you have a story we could relate to on that page. We couldn't tell where you were coming from. Many of us have studied/researched and lived gf for years and this is where WE'RE coming from.

You came out of nowhere with "miracle cure/pill" story -- and really, knowing you must be new to the gf diet/celiac I can understand now your naivety. I appreciate your sister explaining. I'm glad you found some gf places to eat in Utah - would you mind checking/posting it in our "Resources" forum under the "Utah" thread? This could be helpful for those traveling to Utah and those newly diagnosed (such as yourself?) :) Welcome btw :).

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


3,095 Days since:  gluten
 
0
775
1550
2325
3100
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/17/08 8:48 A

My SparkPage
Send Private Message
Reply
The best "cure" I have found is nutrition. It is making the healthy choices to heal myself through food. I actually had to drop my dose of thyroid medication and confused the doctor who refused to admit that going gf had helped "cure" me. Now, I wouldn't say cure is the right word maybe heal me a little. The problem is food, but the answer is food also. Dots has see me post the link to my nutritionists before and I will post it again here. They have shows on GF, they have shows on Cholesterol. I love these gals. If you want to hear my story, they had me on as a guess on Dec 29th. 2007

~melissa

www.weightandwellness.com/dun_radio.
ht
ml


Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
JJERTMANN's Photo JJERTMANN SparkPoints: (11,298)
Fitness Minutes: (1,852)
Posts: 771
9/17/08 1:20 A

My SparkPage
Send Private Message
Reply
Jessica's not spam! She's my little sister and she's just young and hyper. I THINK (don't know what she's referring to for sure) but I THINK she's talking about her thyroid pill. I don't know. I get all confused. I'm pretty sure she doesn't have much research to support anything since she probably doesn't know what research is. Right Jess? Haha. Just kidding. Chill. All I know is that no one knows everything and no one's word is final. Its good to be optimistic and proactive! Although I wouldn't know.

 current weight: 206.0 
 
216
198.25
180.5
162.75
145
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
9/17/08 12:44 A

My SparkPage
Send Private Message
Reply
Jessica,
I am excited to see others with unique ideas that are from “thinking outside the box”. The average doc wants the patients to just get well enough to keep them in prescription profit and the insurance companies and the FDA support this strategy. I have proven this one to myself more than 10 times with different docs; when I can find a doc. Share the web sites, books, theories, and articles from the doctors that back these fabulous results so we may follow the trail too! Sounds real-sounds great! Blog big on your own spark page and send us fact leads under new posts to research.

I like the emotional element in this thread. The GF diet is like every other diet of my life in that no-no’s are not just for two year olds. I have been on some kind of diet since I was 12yrs old! Just two years before my thyroid weakened. But sharing facts with the world to gently inform them may benefit other people they meet from their knowing. Pay it forward can be a great motto.

My own illness goes beyond GF. I can not eat corn, oats, any preservatives, especially MSG, etc… So a diet is designed to be a positive choice. It is thought work not just in physical actions. Do I choose a headache or a growling tummy? Neither, I too will plan ahead; try to call the host to make adjustments and even use plan “c” eat something I brought or ate before anyway because I know how a slip-up can harm my diet and my health. REWARD OFTEN MENTALLY, SPIRIUALLY, AND/OR PHYSICALLY!!!!!!


The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
JESSICABESSICA Posts: 43
9/17/08 12:22 A

My SparkPage
Send Private Message
Reply
ok so if you guys live in utah theres plenty of places! were do you guys live! the gluten free pizza is only in pier 49 in slc. and there is a gluten free store that only sells gluten free stuff wich is in wvc. need more information just say so!

huh?


 current weight: 130.0 
 
130
127.5
125
122.5
120
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/17/08 12:17 A

My SparkPage
Send Private Message
Reply
Jessica,

Well, feel free to share your ideas. Afterall, SP is all about sharing.

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
JESSICABESSICA Posts: 43
9/17/08 12:07 A

My SparkPage
Send Private Message
Reply
i figured u guys wouldnt really believe me, but its true and its not like there pills that are bad for you, they are all natural. no i am not a spam! well if you dont believe me then i will still help you out to get some good food, i know most places were you can really find the right kind of good food. and there is a glueten free pizza! thats taste JUST like a regular one, thank goodness!
and p.s there is alot more to celiacs then you think!

huh?


 current weight: 130.0 
 
130
127.5
125
122.5
120
CROTTY's Photo CROTTY Posts: 122,361
9/16/08 11:52 A

Send Private Message
Reply
Melissa, do be sorry I am use to it. All I want to find is a couple of foods that don't bother me.

There Are No Accidents!
Tucson, Arizona
co-leader of:
Living With Bipolar & Losing Weight and Disabled

Take time to laugh - it is the music of the soul.
-- From an old English prayer.


 current weight: 164.0 
 
183
174.25
165.5
156.75
148
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/16/08 10:37 A

My SparkPage
Send Private Message
Reply
I am sorry you get it too. i have tried other lettuces.....but same reaction. no offense, I am glad I am not the only one in the world like this. people think I am nutty when I tell them I can't eat lettuce.

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
CROTTY's Photo CROTTY Posts: 122,361
9/16/08 1:11 A

Send Private Message
Reply
MELISSA-I have the same reaction to lettuce as you do. Spinach I am not to sure about, but I love it. If I eat a spinach salad, I must find the restroom within 10 minutes.

There Are No Accidents!
Tucson, Arizona
co-leader of:
Living With Bipolar & Losing Weight and Disabled

Take time to laugh - it is the music of the soul.
-- From an old English prayer.


 current weight: 164.0 
 
183
174.25
165.5
156.75
148
GFNOMAD's Photo GFNOMAD Posts: 1,498
9/16/08 12:58 A

My SparkPage
Send Private Message
Reply
Melissa, if it's any comfort, I have the same reaction as you to head lettuce although luckily I can eat any other kind.
Barb

Edited by: GFNOMAD at: 9/16/2008 (00:56)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


 current weight: 134.4 
 
151
144.5
138
131.5
125
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/15/08 11:59 P

My SparkPage
Send Private Message
Reply
Dots,

I don't know if my "allergy" to lettuce is an allergy or not. I haven't intentionally eaten lettuce in at least 10-15 years. When I accidentally get it, I get stomach cramps and diarrhea. It makes for an uncomfortable 24 hours. Think food poisoning reaction. It usually starts 2-4 hours after I have eaten it. I last had a little about 3 years ago.

The fact that I can't eat gluten or lettuce, really limits my selection if we eat out. I can eat spinach....and I eat a lot of that!

~melissa

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
DOTSLADY's Photo DOTSLADY Posts: 10,018
9/15/08 11:41 P

My SparkPage
Send Private Message
Reply
Chico - have been there, done that just like you; didn't have a chance to take that extra bar for the purse, didn't have a chance to eat prior. Now I try to keep a bar (depending on heat) in the glove box.

At the banquet, while everyone was being served I ran back and asked for the chef (who was kinda busy!) who said I could eat nothing! I was fortunate in that the event also had a chocolate fountain with fresh strawberries and pineapple ... so my plate was loaded with fruit while everyone else wanted my roll, potatoes, meat, etc. :0P It was a long evening, but also, it wasn't about me, so I tried to redirect my focus, too. Still. It was looong. I hate when that happens.
-----------

Sun_Clay - allergic to lettuce? I've only heard that once and I can't imagine.

-----------

Re: "celiac" pill - hmmm, JessicaBessica. No such animal. What OutOfIdeas says is what I understand as well. Celiac is KING of autoimmune problems, and so often is the last to be diagnosed.
****

On the other hand, I went to my local celiac support group meeting and there're trial tests for a pill to help close the junctions between cell walls to "help" prevent accidental exposure to gluten. I don't know if it's related to what Dr. Fassano is doing. Apparently 20+ cities are participating. My neighbor is going to sign up - I hope she's not a placebo participant (she's having bleeding problems). I'm too overweight.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


3,095 Days since:  gluten
 
0
775
1550
2325
3100
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/15/08 9:42 P

My SparkPage
Send Private Message
Reply
Like you, SUN, My sister and I are also hypothyroid...my doctor and my sister's doctor both said they think the Celiac is the underlying cause for both of us. I also have several other autoimmune conditions...Doc says the same thing...it was likely the undiagnosed and untreated Celiac that messed up my systems! How can our bodies function, after all, if we can't absorb the nutrients necessary for operation? emoticon

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/15/08 9:35 P

My SparkPage
Send Private Message
Reply
gfnomad,

My BF always throws out that it would be nice if there was a pill we could take to prevent the gluten issues. He doesn't get it. He doesn't get that it effects our entire body. I would rather eat right then take a pill anyway.

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
GFNOMAD's Photo GFNOMAD Posts: 1,498
9/15/08 9:30 P

My SparkPage
Send Private Message
Reply
I agree that jessica is spam. I worry that some poor soul will contact her in a misguided hope for the magic 'cure'.
We already have a cure - a gf diet!

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


 current weight: 134.4 
 
151
144.5
138
131.5
125
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/15/08 9:25 P

My SparkPage
Send Private Message
Reply
outofideas, I am with you about celiac and hypothyroid. the 2 diseases are both auto immune. I am hypothyroid. My nurse practitioner suspects that I might have a weak form of celiac. Neither of us wants me to eat wheat again just to find out. It is not worth it. I am guessing that jessica is just spam. Sure sounds like it if she isn't

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
VELMOOSE's Photo VELMOOSE Posts: 688
9/15/08 8:20 P

My SparkPage
Send Private Message
Reply
Price Chopper supermarket it sponsoring an event in Burlington on Wednesday. Elizabeth Barbone, author of Easy Gluten Free baking is going to speak as well as the store nutritionist. I didn't bake before I was GF but a friend and I are going just to see what we can learn. Her mom in GF. There will be samples to try too so that should be interesting!

Tammy (Vermont)

Oh, yes I CAN!


 current weight: 220.0 
 
220
207.5
195
182.5
170
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/15/08 8:07 P

My SparkPage
Send Private Message
Reply
Sigh...I'm sorry to be a wet blanket, but Thyroid disease "can" be caused by underlying Celiac Disease, (among other things) but not the other way around. Read some medically relevant information on sites like Mayo, Johns Hopkins, the NIH and CDC, etc. as well as the world wide Celiac support sites. Intelligent information is our best defense in learning to heal ourselves.

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
JESSICABESSICA Posts: 43
9/15/08 7:59 P

My SparkPage
Send Private Message
Reply
hey all you gf people.
So you might think im crazy but there is a way to cure celiacs, and celiacs is all caused by a thyroid problem. I have all of the answers (well some) that you will need to know so please if you have any questions and are curious with all this stuff just ask!

huh?


 current weight: 130.0 
 
130
127.5
125
122.5
120
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/15/08 1:06 P

My SparkPage
Send Private Message
Reply
CA...get copies of "Gluten Free Baking" by Rebecca Reilly, "The Gluten Free Gourmet" by Bette Hagman, and "Living Gluten Free For Dummies" by Danna Korn. You can find these books new or used, "el cheapo" on Amazon.com or probably find them in your local library. Rebecca Reilly gives a good all purpose baking mix flour recipe on pg. 16 of her book that I use for all kinds of things. (like brownies!) It is: 2 cups brown rice flour, 2/3 cup potato starch and 1/3 cup tapioca starch. To this, I add 1 tsp. Xanthum gum which helps replace some of the elasticity provided by the gluten protein. I store this in a container in my fridge and use it just like any other baking flour. You can also add things like a Tbsp. of almond meal or flax seed meal for protein, flavor, or fiber. Happy baking!

P. S. You'll find that some recipes call for "sweet rice flour". This is a finely ground white rice flour that is difficult to find except over the web or in Oriental markets. I haven't used it yet, but want to try it, since the "Gluten Free Girl" recommends using it in some of her recipes. She also uses sweet sorghum flour in her bread. I just got some of that the other day, but haven't had a chance to try out her bread recipes yet.

Edited by: OUTOFIDEAS at: 9/15/2008 (13:07)
"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
CAHANIM8R's Photo CAHANIM8R SparkPoints: (44,689)
Fitness Minutes: (14,283)
Posts: 3,740
9/15/08 12:35 P

My SparkPage
Send Private Message
Reply
I didn't know that they made GF cake mixes. Thanks for that information. When I was getting some food from the food bank the other day, they actually had Tapioca and Rice flour available. I snagged both of them up. Now the only problem is trying to figure out how to use them or what to make with them.

"And this above all, To Thyne Ownself Be True" Hamlet/Shakespeare

Co-Leader of Panther Pride
Leader of St. Augustine Sparkies


 current weight: 263.0 
 
263
234.75
206.5
178.25
150
GOLDENANGELFISH's Photo GOLDENANGELFISH SparkPoints: (14,747)
Fitness Minutes: (1,328)
Posts: 3,548
9/15/08 12:13 P

My SparkPage
Send Private Message
Reply
Amen to the cake mixes! Put a great frosting and Voila!

Good snack ideas here, too!

I agree to not go starving to the event -
A couple of weeks ago we were going to a luncheon banquet and I knew I'd have to pass on the rolls and the cake and who knows what else? And I was feeling a bit 'left out" even before the day came...this surprised me because I've been GF for 6 years and I thought I was "over it."

Anyway - I finally realized I was feeling deprived because I'd been dieting -so I was already deprived, so tot speak.

So I decided to through a gourmet breakfast for my DD and SIL and my husband and myself. It was a Sunday morning on my deck - beautiful...Luscious...Diet be damned...

It did the trick...I was able to eat some of the things at the banquet and i was pleasantly surprised at that..and I was then GLAD that I didn't have the cake - because I was now back in diet land...And after the banquet I didn't eat another bite..so in the end, the day didn't hurt my diet, either.

In general though - I find my best defense is a good offense and then pack a snack when you need it...

Mostly I don't pack snacks though - I'd rather eat what I can and then drink water or whatever, and then make something really good at home (before or after the event - before often works better for me...)
Learning to fast for part of a day has been a godsend even for the GF issue - never mind weight loss. It can make food a non-issue. And then be a decent GF gourmand at home.

Mary









Mary

PS To my old SP friends - It's been a very rough journey... My beloved, healthy, athletic, tall, dark and handsome husband died in August 2012 from a very aggressive cancer... In the many months caring for him I was stressed and didn't "care" anymore, and put back on 30 pounds I had just finished losing... And then I gained even more...

A short, but very sweet, video tribute to this beautiful man:
youtu.be/i2-_1IJdPww


 current weight: 192.2 
 
195.6
184.2
172.8
161.4
150
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/15/08 11:25 A

My SparkPage
Send Private Message
Reply
I have this problem a lot since I travel for my writing job, and I'm faced with things like restaurants, church pot-lucks, art gallery openings, and so on. I've started taking a small cooler with me in the car with sliced cheese, fruit, nuts, veggies, hummus, etc....even prepared breakfast cereal like grits, cream of rice, CTF oatmeal that can be warmed in a motel microwave. I love Blue Diamond Nut Thins crackers and Mary's Gone Crackers Original crackers. I try to include some sort of treat to take along like GF brownies or cake, so that I am not tempted on the spur of the moment...I know I can go back to the car and grab a mouthful of chocolate to comfort myself if I start to feel frustrated or sorry for myself! It's extra work, but it saves me from resentment and/or the gruesome aftermath of slipping up!

And CA...try some of the GF cake mixes from GF Pantry, Kinnickinnick, Pamela's, etc. They are actually pretty good...especially warm, which helps keep the texture "tender". (a slice can be popped into the microwave for 15-20 seconds) People who aren't Gluten sensitive always say they are delish and they don't know there is anything "special diet" about them.

Edited by: OUTOFIDEAS at: 9/15/2008 (11:32)
"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


 current weight: 166.0 
 
193
176.75
160.5
144.25
128
SUN_CLAY's Photo SUN_CLAY Posts: 16,255
9/15/08 10:53 A

My SparkPage
Send Private Message
Reply
I try to plan ahead. I almost always have some nuts or dried fruit with me. I got caught at a wedding last month with no food that I could eat. I figured, at least I could eat the meat and veggies, so I didn't bring anything. Guess what, they had a local Italian restaurant cater it. I talked with the servers and they did a little research for me and there was nothing I could eat. The offered me the salad without croutons, but I am allergic to lettuce. Thank goodness I knew the area we were in and went to a deli. I got something I could eat, then went back to the reception.

I always try to assume there is nothing I can eat if I go to a party. I don't want to 20 question my friends to find out what is in everything.

We have to always be prepared. one of the only safe things in a convenience store is sometimes they sell an ounce of cheese or a packet of nuts.

Good Luck,

~melissa

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
GFNOMAD's Photo GFNOMAD Posts: 1,498
9/15/08 10:32 A

My SparkPage
Send Private Message
Reply
Chicoyaya, your experience is the most difficult situation to encounter and the most difficult to deal with. Who wants to sit there while everyone else enjoys the food. And you describe the emotional feelings so well. Congratulations! to you that you are attending these events as I have given up. Others break down and eat the offending foods.
So, to strategies. I do encourage you to contact the caterer ahead of time if possible. Then you will know what you will be faced with. Some celiacs are very bold about this but I understand any reluctances. If that is not possible, speak to a server as soon as you arrive to find out what the situation is.
The major recommendation (by professionals) for these types of events is to eat something before you go. Seems redundant and I then worry about overeating.
I always carry something in my purse or in the car. My favourite is Trader Joe's Mini Sesame Crackers - they are a one bite size and inconspicuous. If there are appetizers, there is usually cheeses or cold meats I feel are safe. I have developed a sixth sense about what is safe after 27 years of GF living. As to the dinner, in this situation, there's not much to be done about the extra sauces, etc. that make a dinner more tasty.
A note of irony, early on in my gf world, when I went to a restaurant with my my older sister, she would get upset with me asking questions to the waiter/waitress. Last year she discovered her digestive problems are caused by gluten and can't even get a crumb now! She wasn't tested for an official diagnosis as she had been gf for several months before seeing her doctor. Recently I asked her what she would have done if she had gone ahead with the blood tests and they had come back negative? She said she probably wouldn't have stayed on the gf diet. Go figure!!
Good Luck, Barb

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


 current weight: 134.4 
 
151
144.5
138
131.5
125
ILLINITEACHER52 Posts: 7,256
9/15/08 10:00 A

My SparkPage
Send Private Message
Reply
I try to keep an organic gluten free food bar in my purse. It fills me up and I don't feel deprived. (It has worked when all others are ordering pizza during a quilt-a-thon and at other times.) As for the birthday cake - make a cake for yourself using Barbara's gluten free white cake mix. It is wonderful and can be made into lots of other flavors. I have made it into carrot cake or pumpkin spice cake or even chocolate cake. - no need to feel deprived or have to deal with after effects of gluten for days afterward. (It does take a little planning ahead.) Sometimes others even like the gluten free cake better! :-)

 current weight: 158.0 
 
171
163.25
155.5
147.75
140
CAHANIM8R's Photo CAHANIM8R SparkPoints: (44,689)
Fitness Minutes: (14,283)
Posts: 3,740
9/15/08 9:01 A

My SparkPage
Send Private Message
Reply
Whenever I go out and don't know what is going to be served, I like snacking on air popped popcorn, rice or corn chex, or a handful of nuts.

I'm going through a bout of it myself right now. This past Tuesday was my husbands birthday and I threw him a surprise party on Saturday. I ate a piece of cake last night and have been paying for it ever since. This isn't the first time I've had this problem with cake, but I wish I could figure out what to do to make cake enjoyable for me.

"And this above all, To Thyne Ownself Be True" Hamlet/Shakespeare

Co-Leader of Panther Pride
Leader of St. Augustine Sparkies


 current weight: 263.0 
 
263
234.75
206.5
178.25
150
CHICOYAYA's Photo CHICOYAYA Posts: 165
9/15/08 12:29 A

My SparkPage
Send Private Message
Reply
It is (slowly) beginning to dawn on me that I need to have a plan of attack for whenever we are invited to dinner with friends.
Last night we attended a fundraiser banquet for a local charitable organization. For one split second before we left, it crossed my mind that I might want to throw something in my purse... but I was in a hurry and promptly forgot.
So we got there and of course there was a basket of rolls on the table... and a lovely Caesar salad complete with croutons, cheese, and already dressed. I quietly asked one of the servers if there might be any "plain lettuce" left in the kitchen, but there was not... so I sat smiling politely while everyone else enjoyed their salad and rolls.
And wouldn't you know it, our table was closest to the kitchen and thus we were served LAST. It was almost 8 pm before I got to eat! And that, only a few green beans, a small serving of potatoes, and a huge slab of prime rib which was nearly impossible to cut with the butter knife we were supplied...
ah, well... my own fault I suppose.
No point in getting angry but I certainly did struggle with feeling left out and tired of "being special."
Does anyone here have any ideas for a quick baggie of edibles that we can throw in our purse when attending functions like this?

Edited by: CHICOYAYA at: 9/15/2008 (00:28)
~Deborah
Living out Hebrews 10:24-25

Diagnosed Gluten and Casein Intolerant 4/18/08.


 current weight: 156.0 
 
180
170
160
150
140
Page: 1 of (1)  

Report Innappropriate Post

Other Celiac Disease and Gluten-Free General Team Discussion Forum Posts

Topics: Last Post:
Has anyone's infant/toddler been diagnosed? 9/11/2013 11:51:16 AM
Teff Flour 3/4/2014 12:28:55 PM
Celiac disease and now prediabetes 8/15/2013 11:31:04 AM
Relationship to sinus pain 5/3/2013 11:04:32 AM
Pls share your 'glutened' symptoms 7/6/2013 9:04:45 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x948x18483106

Review our Community Guidelines