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DOTSLADY's Photo DOTSLADY Posts: 10,019
9/12/08 4:21 P

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VELMOOSE/Tammy:

www.glutenfreeforum.com/lofiversion/
in
dex.php/t7628.html


I was talking to the blood lab doc on the phone and we got to talking more than the subject I called about. His wife has Sjogren's ... and I asked if he'd heard of a connection w/celiac. No. Anyway, so I looked up "Sjogren's gluten" on google and this was the first link. One of the reasons I gave up the only gluten grained product I liked (Glutino's Cracker Bread much like WASA bread crackers) was because they stuck in my throat. I really had to chew it down to a mush.

Anyway, didn't know if you'd read this before and I thought of you.
emoticon
(I don't know how often you get to visit here, but if I don't hear from you, I'll just PM you).

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,019
9/1/08 11:34 P

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I've heard the same thing about the "autoimmune cluster" incl fibro Tammy. I sure wish you well with that -

I tried fresh aloe and that was a shocker, so I can relate to your thoughts about taste.

I stopped by the bookstore today and saw/picked up a book about probiotics -- which are great for the sm. and large intestines (specific strains being better for one than another and vice-versa), not so much for the stomach acids like I'd written - I was clumping it together. They ARE good for your stomach if you have h. pylori ulcers though, and the author went into great detail about that.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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VELMOOSE's Photo VELMOOSE Posts: 688
9/1/08 8:46 A

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I take an acidophilus supplement and I eat yogurt. Cabot cottage cheese also has live cultures. I have some aloe vera juice but I keep forgetting to take it at night. It's supposed to balance the ph in your digestive tract. Tastes pretty yucky but can be mixed in juice.

The reason I wonder about the esophogeal spasms and fibro is because they feel like it's the tube or muscles or something are clenching. Since fibro is a soft tissue (muscles, tendons, ligaments) problems, I though maybe that was part of it. I didn't start having the problem until my fibro became full blown 17 years ago. I'm beginning to think that fibro isn't a disease all on it's own but that it's a symptom of many other diseases that manifests in some people. It seems like everyone I hear of who has fibro also has something else like celiacs, MS, IBS and a host of others.
Tammy


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CAHANIM8R's Photo CAHANIM8R SparkPoints: (44,689)
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8/31/08 9:39 P

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The bone healed pretty well, but when I broke my ankle I also sheared the ligament from the bone, so in March they had to go in and reattach the ligament. I'm still healing from the surgery, I'm able to walk now, but not for a long time or distance.

I've had a problem with acidic foods my whole life. I have a high level of acidic juices in my system, which probably doesn't help my GERD at all.

"And this above all, To Thyne Ownself Be True" Hamlet/Shakespeare

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DOTSLADY's Photo DOTSLADY Posts: 10,019
8/31/08 8:18 P

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Ah well - it was a thought (ankle). Did you heal well?

My D's historically been low, but when I scrubbed the floors last time it took my knees about 4-6 months to not feel bruised anymore. Another time I fell down the stairs and bunged my lower back - another 6 months before I couldn't feel it. I'm hoping the D helps that.

Maybe changing your gut environment will help you stand those acidic foods again (probiotics and more alkaline foods? ...not knowing what your diet is and all)???

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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CAHANIM8R's Photo CAHANIM8R SparkPoints: (44,689)
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8/31/08 6:51 P

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I broke my ankle labor Day weekend 2007. I live in St. Augustine, Fl, so we really don't get "winter", just not as hot weather. No, I don't know what my Vitamin D level was when it happened.

I do know that acidic foods, like tomatoes, pickles, and oranges really aggravate my reflux. I have to mainly cut all of these foods out to avoid the reflux, I can only eat a little a week or I'm miserable the rest of the week.

Edited by: CAHANIM8R at: 8/31/2008 (18:50)
"And this above all, To Thyne Ownself Be True" Hamlet/Shakespeare

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DOTSLADY's Photo DOTSLADY Posts: 10,019
8/31/08 4:40 P

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CAHANIM8R - sorry, I started my post before your post, but didn't enter it til hours later.

What you say is interesting too - could be the enzymes in those foods. Enzymes are not talked about enough. When I lived in Vegas I remember a friend telling me her trick when she overate at the great buffets: end the meal with pineapple! That works for me, too.

So, if your ankle broke -- do you know *your* vitamin D level? Was it in the winter (when D is lowest)? Just wondering.


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,019
8/31/08 4:23 P

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emoticon point Tammy - CHEWING is KEY KEY KEY! This also helps my satiety cause it takes longer to eat and I get full faster. I find that I have trouble with ground beef and gf grains - they get stuck and I need liquid also. You shared some great tips.

...esophageal spasm doesn't sound so good.

You take acidophilus (in dairy or supplement?); I take probiotics - another good idea - whether or not a person has GERD.

Haven't put together the fibro-GERD connection, but will remember that when I'm reading around. Unless the GERD exaccerbates the fibro because of sleep deprivation. I know I've mentioned www.vitality101.com before, and though I haven't ordered or visited his office, what compels me about much of his protocol is that there are supplements for nutrient losses (however you're malnourished be it celiac or bad diet). I never saw a doctor for fibromyalgia, but I've since read that vitamin D deficiency (and B's, etc) contribute to bone and muscle pain ...

So the 'curious me' wonders if your levels are good and what other treatments are you trying for it?

Here's a site for alkaline vs acidic food www.itsmyownhealth.com

I'm also reading The Vitamin D Cure and this doc says to eat 3 servings alkaline to 1 serving acid/protein. (I like him: he DOES talk about celiac disease/malabsorption!)
tinyurl.com/5hkpbg

P.S. BTW, the bed elevated at the top trick? Didn't work for me.

Edited by: DOTSLADY at: 8/31/2008 (16:31)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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CAHANIM8R's Photo CAHANIM8R SparkPoints: (44,689)
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8/31/08 12:18 P

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I hadn't heard about the garlic working to help GERD, which I guess is good, since I'm allergic to it. I have heard that Ginger root and papaya extract are natural remedies for helping get rid of the indigestion/heartburn, but I've not tried it yet. Overeating is one of the worst things that cause the GERD, as well as, eating too fast. It is a lot better to eat smaller meals and not to eat within 2 hours of going to bed. Drinking milk will also help ease the discomfort of the GERD. Something about the milk helps to ease the reflux.

I also didn't know that about the Nexium causing hip fractures. I wonder if that's partially what lead to me breaking my ankle about 1 year ago. I was on Nexium for over 2 years. Maybe it is a good thing that our new insurance doesn't cover it.

"And this above all, To Thyne Ownself Be True" Hamlet/Shakespeare

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VELMOOSE's Photo VELMOOSE Posts: 688
8/31/08 9:57 A

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I just recently stopped taking Nexium (about a week before the news came out that long term use seriously ups your chances for hip fracture) I haven't had any reflux during the night buy my stomach has been unhappy at times, especially if I'm eating something fairly dry like chicken. I've had one bad bout and a couple of mild bouts of esophageal spasm. I'm taking acidophilus every day and making sure to chew my food a lot before swallowing. It also seems to help if I sip cool liquid while I eat. I used to use a garlic supplement (don't know why I stopped) so maybe I'll try that again. I also have fibromyalgia so I think that has something do do with my having gerd even when I'm not ingesting any gluten.
Tammy

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DOTSLADY's Photo DOTSLADY Posts: 10,019
8/31/08 1:46 A

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I had heartburn when I was pregnant 19+ yrs ago, and just thought it was the weight of the baby on my stomach. It went away, or so I thought. Four years later I was giving her a bath therefore leaning over the tub. When I stood up I felt like a mack truck was on my chest. I gasped for air and couldn't catch a breath for what seemed like the longest minute of my life. It hurt terribly. When I went to the doctor he said it was GERD, which I always associated with eating spicy foods - and I hadn't eaten a thing cause I hadn't gone downstairs for bfast. Nothing was done about it.

Fast forward to before celiac diagnosis about 3 yrs ago, and I was having frequent bouts of indigestion - acid in my throat (gastro'd asked me what I ate last time I got indigestion: Panera whole grain bread!). AFTER diagnosis and trying all the gf food substitutes I gained 22 lbs and was totally GERD M I S E R A B L E!

Doc gave me Rx for Nexium and it worked great, but I read it ALSO blocks absorption of nutrients and thought I couldn't afford that loss, and also messes with your stomach acid. DH made blocks to raise the head of the bed and we felt like we were falling out - it was the worst! But we stayed that way for three months or so waiting for me to get better. It wasn't working, so I started researching ...

What worked for me was changing from an "acid" to a more "alkaline" diet - and eating smaller meals. After going gf I found that part much easier cause never before had I had the feeling of satiety that I now enjoy.

Once in a while I'll overeat something - esp popcorn and butter. Last time I did that I wanted to barf (not literally, but the GERD was AWFUL again). I got up in the middle of the night to take leftover Nexium, and it worked, which surprised me because you're "supposed" to take it 30 mins before a meal. I was grateful.

Anyway, leaning over continued to be a "heart pain" problem for a long few years and then went away. I can't attribute it to anything either. I have cardiomyopathy, and wonder if that's why? Maybe it WAS the GERD, I don't know.

Faithfulsoldier - that's interesting about the garlic! I've read that sometimes people have either too much acid or not enough, and both contribute to GERD - what you've shared probably plays into that. I do take garlic as much as possible - crushing it and letting it stand for 5-10 mins per George Matlejan - the allicin compound is most healthful. I take it for my heart/blood, but didn't realize the connection you shared! www.whfoods.com/genpage.php?t
name=food
spice&dbid=60


(Note: I'd copy and paste those links, but when I copy the second line, the first line erases, so I can't without a lot of writing/trouble. Hint: there's an "add a link" button between the "add an emoticon" and "spell check" when you post a message. If you click it, you can copy/paste them and then they'll be "activated" links ... also,

You can also manually type the word "link" and "/link" between those bracketed icons above the comma and period on your keyboard. (wish I knew the name of them - the pointy brackets? lol) I can't type them because of SP's program. Hope that makes sense - I like Mercola though - I agree with a lot of his info.

I hate GERD.

Oh, and you're right CAHANIM8R - when I overeat the popcorn .. it's probably the butter!

Edited by: DOTSLADY at: 8/31/2008 (01:47)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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FAITHFULSOLDIER's Photo FAITHFULSOLDIER Posts: 81
8/31/08 12:19 A

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I don't have personal experience..well except for some heartburn being taken away...but my sister had really really bad gerds and wanted to go off her meds for her pregnancy. So she did some research and found that fresh garlic chopped up and taken by mouth 2xs a day cleared hers us. She has not taken meds in almost 2 years now. It also boosts your immune system and lowers your blood pressure. I take it when I have really bad heart burn and it takes it away immediately. My sister can now sleep in her bed with her husband.

http://www.healingdaily.com/conditions/a
cid-reflux.htm

http://articles.mercola.com/sites/articl
es/archive/2003/07/30/recognize-heartb
urn.aspx

http://articles.mercola.com/sites/articl
es/archive/2002/07/03/prilosec-part-on
e.aspx

HTH:)

Laurie

"By the mile it's a trial, by the yard, it's hard, but by the inch, it's a cinch."


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CAHANIM8R's Photo CAHANIM8R SparkPoints: (44,689)
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8/30/08 10:08 P

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Nexium has worked the best for me, but our new insurance doesn't cover it, so I've switched to Prilosec and it is working ok so far. Also, avoiding greasy and spicy foods helps me. It helps if you figure out what foods are your triggers and try to avoid them or atleast limit the amount that you eat of that food.

"And this above all, To Thyne Ownself Be True" Hamlet/Shakespeare

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DOTSLADY's Photo DOTSLADY Posts: 10,019
8/30/08 9:13 P

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If so, what has helped you? Books? Helpful websites? Maybe it'll help a newbie; please share.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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