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ILLINITEACHER52 Posts: 7,256
5/3/08 6:57 A

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Wishing you the best, especially a return to glowing health and the joy of living!

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GLITTERATA's Photo GLITTERATA Posts: 120
5/3/08 6:08 A

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Thanks again all... As i'm only going to be in Italy another couple of months, I think I'll go gluten free and see what happens. GF food in the UK (where I'm headed in August) isn't much more expensive than normal food, I think it must already be state subsidised (My family has been researching for me!). If I DO come back to Italy to live, I'll see what I can do. I suppose I can stick to naturally GF foods, as that'll save cash anyway. Thanks for all of your help and support - wish me luck!

Skinny isn't beautiful. Healthy is!


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DOTSLADY's Photo DOTSLADY Posts: 10,018
5/3/08 12:51 A

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I hope you can get the tax break without the biopsy. Look at the ad that I found above, here on SP, for "gluten free in Italy" .. there's a $25 fee for the guide, but it may be worth it for you! I can't say I've seen this before. Good luck on your results and feeling better. That's the goal.

www.gfguideitaly.com/?gclid=CJTki_jC
iZ
MCFQNEPAodenl4FQ


Edited by: DOTSLADY at: 5/3/2008 (00:50)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
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5/2/08 9:18 P

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Taxes are similar in the US, but most of my family feels like the extra work is not worth the tax break....From what I understand, the paperwork is phenomenal for very little return. I haven't actually looked into it myself because of what other family members have said, so it is entirely possible that it is similar in Italy as well.

Regarding tests and waiting....have you thought of paying for a test privately through a lab here in the states or Canada? I got my testing done through enterolab (www.enterolab.com), and because I got the genetic testing done with the stool test, I didn't have to keep on gluten while I was waiting for the results. Also, since I know I have the gene and I had some damage according to my stool test, it means I don't have to do the biopsy (woo hoo). It took a little longer for the turnaround (about a week), but it might be better than waiting a month for your test results.

Ruth

Ruth



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5/2/08 9:00 P

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Here in Canada we can claim the "difference" of our gluten free foods on our income taxes, so check it out in Italy. What I mean by differences is if for instance a loaf of "regular" bread in Italy is $2.99 (canadian $'s) and a loaf of GF is $5.99, I can claim $3.00 per loaf. I claim all my GF products each year on income tax under "medical".

Keep us posted. If you go GF, you will notice a difference within a week or two. Watch for hidden ingredients.

pye

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GRAMSIECAKES2's Photo GRAMSIECAKES2 Posts: 17,624
5/2/08 8:20 P

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Hi, My hubby had the endoscopy and a biopsy with the blood test and they all come back positive. He has been "gluten free" now for three weeks today and feels so much better in such a short time eating the right things and avoiding breads,oats and wheat. Merri emoticon

MERRI



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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
5/2/08 7:40 P

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I am so sorry you have to endure this! Perhaps you can try cutting way back on any potential gluten containing foods between now and receiving the test results and see what happens. You certainly sound like you're a candidate for having it...those symptoms plus a lot more are classic as well as skin eruptions and itching, chest pains, headaches, aching joints...but the digestive tract upset, pain, and anemia and fatigue, and mouth blisters are all things I had on a constant basis. I went through this for years and developed hypothyroidism, Chronic Fatigue and Immune Deficiency Syndrome, (CFIDS), Fibromyalgia, asthma and chronic respiratory distress, and arthritis before finally discovering that Celiac was very likely the underlying causative factor for all of it. I hope this will be an "answer" to your health problems. I know what it is to need financial help to pay for the more expensive gluten free foods. Please keep us posted on your progress.

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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GLITTERATA's Photo GLITTERATA Posts: 120
5/2/08 7:27 P

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thanks for the responses... Unfortunately I live in Italy, and they've told me it'll be 28 days before I hear anything. The hospital in my area is overcrowded and understaffed, which would explain alot... For when I go beck to the UK it's not a big deal, but here the state give you 99Euros a month towards buying gluten free food if you have an official diagnosis. In answer, I believe I may be coeliac because I get terrible cramps after eating gluten, my stomach blows up like I've eaten a football, I have intermittent poo troubles, nausea, anaemia that doesn't respond to treatment fatigue, recurrent mouth ulcers,gas... lol! I half hope it is that, at least then I'll be sure... but I can't be in pain for another month (and waiting lists for biopsies are bound to be looooooong...)

Skinny isn't beautiful. Healthy is!


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SUN_CLAY's Photo SUN_CLAY Posts: 16,255
5/2/08 7:10 P

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I have only had bloodwork, and like the others have said, that only took like 3 days.

Life isn't about how to survive the storm, but how to dance in the rain.

"Even on the days you just don't feel like going to work, you still go, right? It's the same with exercise." -Professional Volleyball Player Gabrielle Reece

Remember, we all stumble, every one of us. That's why it's a comfort to go hand in hand. - Emily Kimbrough

The cure for anything is salt water - sweat, tears, or the sea. --Isak Dinesen
OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
5/2/08 7:06 P

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Yeah...the thing with going off gluten before all the tests come back in, especially with the bloodwork, is that your body will not show up the antibodies in the bloodstream that would indicate that it is mounting a war against the offending gluten protein. With the biopsy, the celia in the intestinal wall may begin to heal, and the inflammation and smoothing out of the tissues may fail to yeild an accurate result. But I agree that a month to get results back on these tests is ridiculous. When I had my bloodwork done, the lab reported back within 48 hours. Surely your doctor can do better by you than this??!! Do you need this confirmed diagnosis for insurance or disability purposes? (none of my business...just wanting you to assess whether the actual medical diagnosis is crucial...sometimes it is, doctors, insurance companies, and government agencies being what they are.)

Edited by: OUTOFIDEAS at: 5/2/2008 (19:08)
"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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ILLINITEACHER52 Posts: 7,256
5/2/08 7:01 P

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I think I would go along with the nutritionists advice and see what happens by going gluten-free. I know it affects my moods, my skin, my immune system, my digestive system and much more. I don't have a professional diagnosis. I just know I am gluten sensitive by recording my reactions in a journal. My doctor was trying to find out a solution to my skin problems but she passed away at the age of 38. I wish SO much that I could tell her that I figured it out.

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5/2/08 6:58 P

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what other tests have you had? why do you think you are celiac? how long have you had symptoms? What are you eating on a regular basis - ie, what does your everyday diet include?

A month to get results seems like a very long time. Not sure where you are, but I'm in Ontario, Canada, and tests come back within 3 days. Seems like you have a lot of symptoms so going off the gluten until you get the results won't hurt that's for sure. It is important to continue to eat gluten until you get tested, which you did. If you are thinking of getting the biopsy though, it might be a good idea to stay on the gluten until then.

Keep us informed.

Pye

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GLITTERATA's Photo GLITTERATA Posts: 120
5/2/08 6:50 P

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I had blood tests today for coeliac, but have to wait a month for the results. I read that many people have false negatives and if it's negative should request the biopsy. I have to say that I can't cope with waiting a month for results then maybe another God knows how long for a biopsy. My nutritionist suggested simply going gluten free and seeing what happens. Is it so important to have a diagnosis, or is the main thing knowing yourself not to eat gluten? It means the state won't help me, but I'm a mess, and in addition to all of the symptoms listed in my blog I also have a rash now. Advice please!

Skinny isn't beautiful. Healthy is!


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