Here is something I joined when I was first diagnosis with Celiac Disease. They are and advocate for "EDUCATE * INFORM * ADVOCATE"
TAKE ACTION for Celiac Awareness - ONE VOICE CAN MAKE A DIFFERENCE
Educate about the numbers -- 1 in 133 Americans with celiac disease;
Inform about the common symptoms missed by physicians and waiting almost a decade to be properly diagnosed; and
Advocate for insurance coverage of dietitian services, better labeling for medications, and the availability of gluten-free foods for school kids with CD.
Be a Celiac Advocate -- Ask your representative to support H.Con.Res. 70 -- Celiac Disease Awareness Legislation
I am attaching the link, and suggest everyone sign on and do your part. We need congress to understand the dangers there are to us with disease. Medication is a big issue, and even the pharmacy or doctors don't know off hand. I will never forget the first time I had to get my high blood pressure medicine and asked if it contained gluten, I got that deer in the head light look and after 20 minutes or so they said they needed to contact the drug maker to find out. How many of you here have even thought to have your medicine check? Keep in mind my medicine is prescribe by the same doctor who diagnosed me, and even he didn't say anything.
So lets all lend our voices and tell congress to get this right once and for all.
Thanks. I will get off my soap box now. www.americanceliac.org/advocacy.htm