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DOTSLADY's Photo DOTSLADY Posts: 10,016
2/1/08 11:00 A

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Well, Annie - support your system with antioxidants to ward off the evil-doers of your immune system! You don't have to be the same. I'm sure your folks' diets were different than yours COULD be, right?

What I've learned is it's not just about being gluten-free, but also stepping up our nutrition with the veggies and fruits. Prevent DNA damage and subsequent ill health. :)

I feel for all those involved in the WTC - I've seen the stories about the lung problems, depression, etc; so it doesn't surprise me about your dad's thyroid. Very likely. Just depends on where your DNA weakness is where it hits, too.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ANNIEFANNIE75's Photo ANNIEFANNIE75 Posts: 79
1/31/08 11:33 P

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uggh don't even talk about hypothyroidism...it seems i am doomed to get that too , my mom has been hypo for years now and my dad was just diagnosed with hashimotos . They said his hashi was caused by chemicals and stuff in the air when he was down at the world trade center after the bombing.Scary stuff


Smile...It's makes people wonder what your up to!!!!!


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DOTSLADY's Photo DOTSLADY Posts: 10,016
1/31/08 11:20 P

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Leigh - you would not be the first to feel 'WONDERFUL' on the low carb diet! I've read this many times in others' "road to diagnosis" stories.

I, too, went on two (unbenownst to me) gluten-free diets and both times I felt fantabulous! I had no idea why.

age 18ish: 10-day liquid protein fast, popular in late 70s. I was up at 5:30am sweeping the basement of construction dust from a remodeling job at our house, and other weird non-teenager things because of all the energy I had. I swear I even remember commenting on how shiny my hair was ... but how could that be?! I lost between 10-20 lbs, I can't remember exactly, but quickly gained it back + some, once I went off. When Oprah did the same diet in 2005, I winced knowing what would happen. It's too ironic that now she's been diagnosed with hypothyroidism ... and yes, I've bothered to write the producers about gluten :).

age 34ish after my hypothyroid diagnosis I did a wheat and sugar free diet and lost weight readily also. I felt great AGAIN. I got stressed as we moved and fell off that wagon.

It's too ironic, isn't it?

Barb - thanks for your opinion on the anaphylactic shock statement. I would really love it if people would ask their docs this. I've not read this on any autism boards - some are not diagnosed celiac either.

Edited by: DOTSLADY at: 1/31/2008 (23:21)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GFNOMAD's Photo GFNOMAD Posts: 1,498
1/31/08 9:58 P

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I, like outofideas, was thinking how to answer the question. I'm glad Dots did it. There is a lot of ignorance amongst doctors as demonstrated by the comment of testing after a gluten free diet.
Also, with " I asked her pediatric gastroenterologist if her going gluten-free would be a good idea anyway. He strongly discouraged me. He said she could develop an anaphylactic shock reaction to inadvertant wheat/gluten ingestion (or cheats)". I have NEVER heard of anyone going into anaphylactic shock by ingesting gluten. It is not an allergy like peanuts. However, those who have tried a gluten challenge after having been gluten free, generally find they react more strongly.

Given the list of symptoms, I would definitely be tested. Why put yourself or your son through years of ill health, misery and not being your best by resistance to a solution?

Barb (gf 26 yrs)


Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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ANNIEFANNIE75's Photo ANNIEFANNIE75 Posts: 79
1/31/08 9:26 P

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you know i can't say i have done a GF diet before but a couple years ago i did do low carb just not a lot of bacon or anything like that. but nothing with wheat in it or real carby and i felt better than i had in years and then we went on a road trip and i let the junk food monster attack me and i gave in. I had lost 30 pounds in 6 weeks and everything was great and guess what my tummy problems disappeared

Leigh

Edited by: ANNIEFANNIE75 at: 1/31/2008 (21:29)
Smile...It's makes people wonder what your up to!!!!!


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DOTSLADY's Photo DOTSLADY Posts: 10,016
1/31/08 6:55 P

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emoticon OOI!

Wait! I'm not done! ;)

I wanted to share that after the "mainstream" testing for DD, I had her tested via "non-mainstream" enterolab.com; she was positive to gluten, casein and soy antibodies (neg. to yeast and egg).

She tried *gfcfsf, but it was difficult "in the real world" so decided to go with the flow instead. *She did an elimination diet via an allergist and she responded by having a happy demeanor and weight loss.

The enterolab test was not proof enough for her - or it was convenient to say as much. It's frustrating for me because of how much I've read about gluten, casein, soy and food allergies.

Another thought: maybe it's not celiac, but leaky gut, parasites, candida, ulcerative colitis, Crohn's, etc. (or multiple dx). Often relatives will have 'sister' or associated conditions (which often also do well on gf or special diets).

I learned from reading a bit of the book, How Doctors Think, to always ask the doctor: "What else could it be?"

Edited by: DOTSLADY at: 1/31/2008 (18:57)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
1/31/08 6:00 P

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Dots...While I was still pondering how to cogently answer Annie's question you came up with all the right thoughts...on the ball again! Thanks. This was an encouragement and reminder to me as well.

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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DOTSLADY's Photo DOTSLADY Posts: 10,016
1/31/08 5:33 P

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Leigh - I want to give a response to your first question about getting an actual celiac diagnosis. The pros for getting a "mainstream" medical diagnosis:

1. The motivation is higher to maintain STRICT dietary compliance. This is esp important for kids/teens.

2. Doctors/hospitals will take an actual diagnosis more seriously than if you tell them you're gf for health reasons only. e.g. I went to a hematologist for my hair loss and he couldn't believe my diagnosis (because of my weight? I don't know) until I showed him blood AND biopsy! As awareness increases this may not be such an issue.

3. An actual diagnosis may encourage relatives with symptoms (or not!) to get tested. (This has not been the case for me though - ironically, my own MIL, though not a relative, was diagnosed 7 months before me and I totally did not understand what she was going through other than she couldn't (gasp, the horror!) eat bread or pasta anymore!

4. Depending on your tax situation/medical expenses, you can write off your gf food.

I got this info from www.glutenreactivity.net . See the Primer - which will probably help you get ready for your appt also. Lots to read there - but it'll only help you make decisions.

Also, as for CONS: here's what I've encountered: I hate having to list one more medical malady on my medical health history forms. It's not about vanity, it's about how great I feel gf vs non-gf! lol Okay, seriously, what I'm saying is I'm trying to get life insurance and it's one more chicken scratch against me.

One more thought, and I have never run across this discussion before.

My DD has many of my pre-dx symptoms, so I obviously and responsibly had her tested via blood and biopsy. Both were negative. I asked her pediatric gastroenterologist if her going gluten-free would be a good idea anyway. He strongly discouraged me. He said she could develop an anaphylactic shock reaction to inadvertant wheat/gluten ingestion (or cheats). Something to ask your gastro.

Oh, and another (perceived) con (for some patients, but for most it's worth it) from doctors: the diet is difficult in the real world.

The test: they should take a few vials of blood! If positive, then possibly the endoscopy/biopsy to confirm/seal the deal. Not everyone gets the endoscopy. This is something to discuss with your doc.

Happy reading! And let us know how it shakes out. Good luck.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ANNIEFANNIE75's Photo ANNIEFANNIE75 Posts: 79
1/31/08 11:20 A

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ok well i made an appointment with the gastro doctor for myself and my son. Myself because i have had constant D and stomach pains since i had my gall bladder removed 5 years ago, now teeth are going bad hair falling out( thank goodness i have tons) and depression and the list goes on. If nothing else happens maybe he can help my tummy issues. She said it was a good idea since my cousin has celiacs and my son was diagnosed with a wheat allery, My appointment is on Tuesday what i can expect?

Leigh

Smile...It's makes people wonder what your up to!!!!!


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BIGBONES4 Posts: 93
1/30/08 8:52 P

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I wondered that same thing, but came to realize that having a documented diagnosis is essential for dealing with insurance companies, etc.

In the long run, I think it is worth the time and effort.

Good Luck !!!

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ANNIEFANNIE75's Photo ANNIEFANNIE75 Posts: 79
1/30/08 8:04 P

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Does the test really matter in the scheme of things other than diagnoses if i chose to feed him wheat& gluten free just to be on the safe side?

I am loving all these links and i am reading them carefully i saw we have like 4 branches of the childrens group just in the Houston are yippee

Thanks so much ladies
Leigh

Smile...It's makes people wonder what your up to!!!!!


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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
1/30/08 7:00 P

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Just wanted to agree with the comment that the test for Celiac should be done while still eating wheat and gluten containing products. Otherwise the antibodies which the body produces as a reaction against the gluten protein are likely to be "all quiet on the western front" and unable to be detected in the blood test.

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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SLHALSTEAD's Photo SLHALSTEAD SparkPoints: (4,345)
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1/30/08 4:46 P

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Whether celiac or just allergic, there is a great group you can tap into. It is called Raising out Celiac Kids (ROCK). They have all kinds of support for you. Also, there are some fun cereals and cereal bars out there for kids - look for the Envirokids Brand. :)

SHalstead

*Without you I have no business in the kitchen - because I love Pampered Chef.


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KJEANNE's Photo KJEANNE SparkPoints: (39,116)
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1/30/08 4:04 P

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Hi Leigh:

Instead of trying to adapt regular recipes to the GF or wheat-free type, I have tried to gravitate towards foods that a naturally GF. For example, instead of buying very expensive and not very flavorful GF bread, I use a corn tortilla for my “bread.” I use that corn tortilla for sandwiches but instead call then tacos: so when my family is having tuna sandwiches I use the same ingredients (except the bread of course!) and make a tuna taco.

My dinners are usually some type of grilled meat (chicken, fish or beef) with no breading but great seasonings, steamed veggies (or a green salad), a starch – rice, potatoes or corn. This approach makes it easier to cook because everyone can eat the same meal and no one feels left out.

If you have a Whole Foods nearby they have a lot of GF products.


Do not look where you fell, but where you slipped.
African proverb


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GFNOMAD's Photo GFNOMAD Posts: 1,498
1/30/08 4:00 P

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Leigh,
Your son needs to be tested BEFORE!!!, not after, going off wheat otherwise the blood tests will likely be negative, and even while consuming wheat they are only 75% accurate. Some people are gluten intolerant, not celiac but consumption of gluten is just as harmful to one's health.

There are many, many postings already on this team that will answer your questions so please take the time to read them through. You will find many suggestions, information and recommendations.

Specifically for Celiac kids -
www.glutenfreedom.net/page.asp?itemid=15

You may benefit from reading this article
http://ezinearticles.com/?id=715504

Also go to www.celiac.com

Good luck! Barb (gf 26yrs)

Edited by: GFNOMAD at: 1/30/2008 (16:02)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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ANNIEFANNIE75's Photo ANNIEFANNIE75 Posts: 79
1/30/08 3:31 P

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I know that a wheat allergy is not the same as celiacs. But my cousin was dianosed with celiacs lasst year and y'all were such a great help. My son ( 7yo)yesterday was diagnosed with a wheat allergy I am going crazy on what all to feed him. Dr said to take him off of wheat and if he doesn't do any better by then they will test him for celiacs since my cousin has it and i have had years of IBS digestional issues.
What i need is places with good kid friendly wheat -free recipes and sources . thanks for helping me

Leigh

Smile...It's makes people wonder what your up to!!!!!


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