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MZZCHIEF's Photo MZZCHIEF Posts: 9,135
5/17/13 9:32 A

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Good to know, Glady!
Lots of info to sort thru... sometimes we throw too much stuff at people!
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: )
Mzzchief

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5/17/13 7:23 A

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Thanks! I saw the link about going to the dentist. I was just referring to the fact really that it was timely that I was going to have to go anyway. This all is a 'first' to me. You have helped a lot with information! Thanks again. :)

MZZCHIEF's Photo MZZCHIEF Posts: 9,135
5/16/13 3:32 P

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thanks for the price quote on Thyrogen, Suepers!
WOW. I've got sticker shock!

Glady~
Ya it can be troublesome when doctors disagree.
The thing is, medicine isn't math, it rare there is one clear cut answer that applies 100% of the time.
There are as many different approaches to a given situation as there are doctors offering them... there are some doctors that are up on the latest things and others who aren't.
Just like any other profession.

I sent you to this link on RAI and dental health back on 5/4/13, here's that link again.. doesn't sound like you saw it, since you said that your dentist's office was the first time you'd heard about dental issues with RAI:
www.thyca.org/dental.htm

and here's that entire thread which has a lot of links in it:

www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=261x732x532R>14647



Vinegar can be followed by a baking soda and water rinse, negating the acidity. Baking soda is a alkaline, Vinegar is an acid, put together they cancel each other out.

There's also some products you may be interested in.
Trident Xtra Care Gum, and MI paste both which has a form of calcium in it that helps re-mineralize teeth.
Spry, a Xylitol gum that helps with getting rid of dental caries.
Biotene Rinse for dry mouth.


None of these are magic,that is to say they are not going to turn a mouth full of soft teeth and cavities into perfect teeth, but they do help.

Have a fun day!
: )
Mzzchief


Edited by: MZZCHIEF at: 5/16/2013 (15:33)
Never underestimate the value of getting out of your own way.

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SUEPERSTARS's Photo SUEPERSTARS SparkPoints: (33,424)
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5/16/13 2:06 P

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That's great that they got it all and that it hadn't metastasized!

Since your surgery was a month ago, I think you were right in getting a synthroid prescription.

Edited to add:
The workaround to doing RAI and not having to go off your medications is to get Thyrogen injections. I live in Canada, so most of my medical procedures are covered, but Thyrogen was not. It was going to cost me $1600 for the two injections - thankfully my husband's benefits covered that. I didn't end up getting the Thyrogen, though, because they had a shortage 2 years ago when I was dealing with this, so I had to go off my medication.

Edited by: SUEPERSTARS at: 5/16/2013 (14:08)
If I choose to not do anything differently today, tomorrow is going to be exactly the same as yesterday.

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5/16/13 1:48 P

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I already had the surgery April 17th. The surgeon said that he got all the thyroid. The pathology report said it was a well behaved cancer and there was no sign of it anywhere else.

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5/16/13 1:35 P

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When are you supposed to do your RAI? Or maybe the better question is: how long between surgery and RAI?

I had surgery first. During the surgery, they examined nearby lymph nodes and only because they were found to have thyroid tissue did I do RAI. If they had been clear of thyroid tissue, I wouldn't have had to do that. So I was definitely sent home from the hospital with synthroid.

I had to go off my medication before RAI, but being off for 2 1/2 weeks ahead of time was plenty. Instead of my TSH being around 0.5, it was at 72. I felt awful after the RAI not because of it, but because of going off my medication for a total of 3 weeks.

This is my first question - unless you're having surgery, followed almost immediately by RAI (ie within a month at the longest), I can't imagine not having replacement hormones.

Did you know ahead of having surgery that you would also be doing RAI?

If I choose to not do anything differently today, tomorrow is going to be exactly the same as yesterday.

"Shoot for the moon. Even if you miss, you’ll land among the stars!" ~ Les Brown


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5/16/13 12:18 P

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So I went to my oncologist yesterday and he told me that my surgeon should not have put me on synthroid before my RAI. But then the oncologist said there was a workaround, so I wouldn't have to be off my synthroid. He also told me I only had a 10% chance of my cancer recurring. I've toyed with the idea of not even doing the RAI. I get frustrated with conflicts among doctors. I seem to be doing very well with the 75mcg that my surgeon sent me home with. Then I had a problem with a crown and had to go to the dentist in the midst of things. lol. That was good timing though as the dentist talked to me about drymouth which is caused by the RAI and the meds that I am taking for my BP. Nobody ever mentioned it to me before. I'm holding off on the Apple Cider Vinegar til I'm better informed and because of the risk to my tooth enamal. Forgot to ask the dentist about that, but I'm going back in a couple of weeks to have the new crown placed. I'd enjoyed opinions anyone has about all of t his

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