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LITTLEPEEPS's Photo LITTLEPEEPS SparkPoints: (5,199)
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4/30/13 6:06 P

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Thanks for all the info. :)

I had thought my most recent blood work included a test for Graves', but the doctor didn't say anything about it when he called with the results. From what I understand it's the most common cause of hyperthyroidism. (He did say, though, that I absolutely couldn't have thyroid cancer, as my thyroid hormone tests would have come back normal.) Yeah, they definitely push RIA before surgery here, seemingly because there are no scars. Thyroid surgery seems to be considered antiquated for anyone other than cancer patients. I just wanna be informed before I go rushing into any decisions. Anti-thyroid meds can be awful for the long-term, but on a low enough dose, that shouldn't be a problem. For the time being I'll keep monitoring my liver function and thyroid levels (as my dr orders) and see what happens.

"Laughter makes the bitter swallowing of truth, for some, a little easier."
--Bill Hicks

"Isn't it enough to see that a garden is beautiful without having to believe that there are fairies at the bottom of it too?"
--Douglas Adams

"In the beginning the universe was created. This has made a lot of people very angry and has been widely regarded as a bad move."
--Douglas Adams, HHGTTG


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SUEPERSTARS's Photo SUEPERSTARS SparkPoints: (33,560)
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4/30/13 3:12 P

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Hi there,

Do you have Graves'?

I had (have) Graves' and was on methimazole. I don't remember the dosage, though, but it wasn't very high, since it was caught pretty early. At the time, I did lots of online searching and I found a couple of message boards specifically for people with Graves'... sorry, but unfortunately I don't remember the site. But one woman on there had been on methimazole for close to 20 years. It gave me hope, you know, that I wouldn't have to take the drastic measure of removing or destroying my thyroid.

However, that was not the case. I was found to have cancer, and so I had a total thyroidectomy. And then when they found thyroid tissue on a nearby lymph node, I then had RAI (as a last resort, AFTER surgery) to make sure there was no thyroid tissue left.

I am glad that you are thinking now about your options and figuring out which is the best solution for you.

Finally. as to your comment about the surgery - from my research, whether or not surgery is a first or last thought depends on where you are. From what people said, in the USA, the doctors tend to push RAI as an immediate solution, whereas in Europe and Canada (where I live) RAI is a last resort, and even surgery is performed before doing RAI.

Good luck, and if you have any specific questions about any of those procedures, please don't hesitate to ask!

Sue

If I choose to not do anything differently today, tomorrow is going to be exactly the same as yesterday.

"Shoot for the moon. Even if you miss, you’ll land among the stars!" ~ Les Brown


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JOYFUL711's Photo JOYFUL711 Posts: 1,625
4/27/13 8:57 P

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I had the RAI, but it was due to thyroid cancer, so I never even considered not doing it. I am five years out, and 'cured', they call it NED No Evidence of Disease. There were some side effects, my worse problem was with my teeth long term....I have mouth full of root canals and pretty porcelain crowns now.

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LITTLEPEEPS's Photo LITTLEPEEPS SparkPoints: (5,199)
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4/26/13 8:34 P

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First off, let me say that I'm NOT jumping into doing RIA. It is not something I plan on doing in the near future, but rather something I want to be informed on for further down the road.

That said, I'm curious if any of you have had it done, and what your experience was/thoughts are. I've only been dealing with an overactive thyroid for a little over a month, and I feel that I should give the medication (Tapazole) a fair chance. I'm currently on 10mg Tapazole daily, and my endocrinologist is hoping to drop it to 5mg eventually. (I started out at the highest dose, 30mg.) The medicine does seem to be controlling my symptoms well, but I'm worried about long-term effects. It's baaaad for the liver.

My cousin had an overactive thyroid many years ago and did RIA. When I mentioned it to her, she very emphatically said "DO IT!!!" But I'm not so sure about doing something so permanent and destroying an entire gland, especially such an important one, if it can be controlled with meds. My Aunt also had an overactive thyroid, but that was when RIA had just come out. She had her thyroid surgically removed, which is rarely done nowadays.

Anyhow, I'd love to know members' experiences from either side.

"Laughter makes the bitter swallowing of truth, for some, a little easier."
--Bill Hicks

"Isn't it enough to see that a garden is beautiful without having to believe that there are fairies at the bottom of it too?"
--Douglas Adams

"In the beginning the universe was created. This has made a lot of people very angry and has been widely regarded as a bad move."
--Douglas Adams, HHGTTG


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