hey girl! This is going to sound a bit kooky, but please keep an open mind.
I think what may have happened, is that your gut bacteria profile changed from one that was working for you, to one that's causing your symptoms.
One of the clues ... other than the obvious one which is you your weight gain... that points in this direction is that you've got high levels of T4... which is what you're putting into your body when you take Synthroid, or generic(aka levothyroxine).
And that you've got low levels of T3.
Its seems as if your liver and gut bacteria aren't doing a good job converting your medication to T3... which is why you need Cytomel.
As I mentioned in my other reply, T3 is made from T4. This is done by an enzyme called de-iodenase, which contains selenium. So its a good idea to eat some every day, particularly if your are on a diet that doesn't contain a lot of whole grains.
I've found fortified nutritional yeast to be a good source of selenium, ( I use Kal brand)as well as of B vitamins for trace minerals like chromium. Alternately a brazil nut a day provides adequate selenium. Its like everything else, though, you don't want to overdo, too much isn't better, its excess.
What you may want to try is: 1. A source of probiotics. I use Kefir... this is a probiotic drink you can grow at home. There's two types, milk and water. IMO the water kefir is super easy to grow and with its apple juice taste, can be put in smoothies or chilled with a meal. 2. A source of gelatin and minerals... bone broth is great for this. Sounds exotic, but its simply about stewing a chicken (preferably organic) until the meat falls off the bones, with vegetables like onion, garlic, celery and carrot and taking a cup or so of this gelatinous broth per day. If you can't watch it all day an alternative is a crock pot.... or Knox unflavored gelation. Gelatin is a rich source of glycine and proline, two amino acids we don't get much of in our contemporary diets. The calcium and minerals in the chicken bones are easily absorb-able. 3. Greens like Kale (organic)... which can be chopped and put in the broth.. for fiber and nutrients. 4. Make sure you're getting some iodine, 150 mcgs per day.
Stay away from sugars, refined carbs and starches, soda, artificial sweeteners, fast foods. Choose organic whenever you can... those with thyroid problems seem to be more sensitive to chemicals than normals.
Why not try this for the 4 weeks while you are taking the Cytomel/Synthriod combination and see if anything changes?
Hey we all can relate here about carrying extra weight. 18 pounds is a lot of extra work for your heart, plus fat puts out hormones of its own which makes things worse.
Never underestimate the value of getting out of your own way.
I have noticed since having my thyroid out I am sleeping alot better! I have also noticed that I am more achy and sore when I wake up but not as cold all the time like was prior to thyroidectomy (not sure if that is due to the fact I am now 40) or related to the thyroidectomy. I am also experiencing feeling tired at different times throughout the day but not as chronic as prior to surgery. I am ready to hit the bed around 8:30pm but I do get up around 5:30am every morning. Otherwise, I am not noticing any other symptoms except weight gain. Weight gain is the most consistent symptom I have since my surgery. I am 12 weeks post thyroidectomy.
My blood work 6 weeks after the thyroidectomy taking and 112 synthroid is listed below and I experienced about 8 lbs weight gain prior to blood test. TSH 0.303 Triiodothyronine (T3) 103
next blood work will be done in December however I have gained another 10 lbs since having blood work. The new doctor that I saw a couple of days ago has me taking the 112synthroid in addition to 25 Cytomel everyday. She also told me to incorporate the phentermine, however I am not going to do that at this time. I think I will wait until my next bloodwork up and see where I am after four weeks of taking both the synthroid and cytomel every day.
Thanks for responding. I am beginning to feel depressed about this situation. I ride horses regularly and have 5 kids. It is amazing how 18 lbs can affect a person trying to mount a horse or keep up with kids. I am in fear of continuing the weight gain and passing a point of not being able to turn back. =-(
Sounds like you've been thru the mill with your thyroid woes.
You can be hyperthyroid and gain weight.
Synthroid AND "generic" is a form of thyroid hormone known as T4 or levothyroxine. It has to be changed from T4 to T3 by an enzyme known as deiodinase, in order for your cells to use it. Since your T4 levels are good, I don't see how switching from generic to Synthroid is going to help.
One of the "ingredients" in deiodinase is the element selenium. So make sure you're getting an adequate amount daily to help with this.
Taking some Cytomel (T3) directly as your doctor prescribed, may help with your weight issues.
If it doesn't, you might ask him to put you on Armour, Naturethryoid or Acella... one of the porcines.
These are more complete thyroid medications, as they are sourced from pig thyroids and contain a full complement of thyroid hormones (T4 and T3) as well as metabolites (T1 and T2), plus iodine and calcitonin(helps with bones).
Many people do well on them, particularly those who have no thyroid tissue whatsoever.
I'm thinking that the phentermine is not the best idea as its an amphetamine which can stress out your adrenals and tax your liver. With your super low TSH, both these organs have been working overtime.
Do you have any other symptoms besides the weight gain? : ) Mzzchief
Edited by: MZZCHIEF at: 11/29/2012 (10:48)
Never underestimate the value of getting out of your own way.
I am looking for any help out there regarding a throidectomy. I just turned 40 this year, and have felt seemingly okay except a little worn. I had a routine physical and I was told I had a nodule on my thyroid. Due to my family history (mother with thyroid cancer) I was sent to have an ultrasound. Ultrasound showed that there was an 80% chance that they thryroid nodule was beneign, but due to the family history my doctor scheduled me for a partial throidectomy, however once he cut me open he ended up taking my entire thyroid. My diagnosis while on the table was that I had matastasized thryoid cancer unless patholgy could prove otherwise. (One side of thyroid was very enlarged and the other side had a extra thryoid outside of its domain with blood supply etc.)
After a week of waiting on thyroid pathology results I was diagnosed with a multinodular goiter and a parasitic thyroid, or something like that. He said it was very rare, and although I do not have cancer that my thyroid would have had to be removed eventually due to the goiters.
At any rate...I have always been very healthy and at a healthy weight. Since having surgery I have gained 18lbs and do not know what to do! I was put on 112 of levothyroxine and when I went back to my 6wk post checkup my bloodwork indicated that I am hyperthyroid because my TSH was so low that it wasn't even on the chart.!?! I am confused on how I am picking up weight with Low TSH of 0.303 and normal T4?
My doctor switched me to brand synthroid from the generic to see if that made any difference and told me to substitute 2 days of synthroid with 2 days of 25 Cytomel each weak to see if I notice any difference in my weight. Nothing has changed other than my steady increase of weight. Prior to surgery I was 5'3 weighing 145. My current weight is 163.3!
I went to a new doctor based on my weight yesterday and she told me to continue with the Synthroid 112 and take the 25 Cytomel with the synthroid every day. She additionally added phentermine 37.5 to add into the equation gradually.
Has anyone had similar issue to mine? I don't eat many carbs, and never been real big into sugar. I am willing to do anything to get this weight off and get my body back to normal. I don't like the way my clothes are fitting, and I feel hopeless. I just want to be healthy and get my body back to where it was....any advice is greatly appreciated.
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