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MZZCHIEF's Photo MZZCHIEF Posts: 10,047
9/1/12 1:18 P

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LOL
yes, pink... thats some trigger!
you are definitely a unique case here... wish i had some advice but ....

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mzzchief

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PINKCLOUD's Photo PINKCLOUD Posts: 18
9/1/12 7:41 A

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Hi Mizzchief!

We have discussed the gluten thing before! Last summer I saw a gastro and had all types of tests. I was negative for celiac, but he thought perhaps a non celiac intolerance. I went off it for months but still had symptoms...

The Ana being high isn't a false positive, because, according to the doctor, I have symptoms to go with it. Just no specific antibodies yes. The Ana took a few years to turn positive, so he thinks something may still develop.

And this should trigger your memory- I'm the girl who grew up near Chernobyl!

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CHIBIKARATE's Photo CHIBIKARATE Posts: 12,872
9/1/12 12:49 A

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i also love einsteen and the way he got his ideas I love to travel on the spur of the moment and i love portland oregon, hawaii. I enjoy all forms of art and the galleries


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MZZCHIEF's Photo MZZCHIEF Posts: 10,047
8/31/12 8:07 P

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hi pink

Well it sounds like you are filling in some of the pieces of your puzzle... good work!
I usually think of lupus for those with high ANA scores, but there are a host of autoimmune pathologies it can be... including false positives.

I'm sorry but i don't remember your particulars... were you ever tested for gluten intolerance?
here's a good link for your own education, or for those who want to learn a bit more...


labtestsonline.org/understanding/ana
ly
tes/ana/tab/test


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Mzzchief

New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

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VICKIEANN82350 SparkPoints: (7,351)
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8/31/12 10:10 A

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Dealing with thyroid can be very frustrating. Has your doctor done a biopsy on your thyroid? I am a nurse and work at a university hospital so I have been very lucky with my endocrinologists. My primary care doctor tried to follow me but when I started having problems I switched back to and endocrinologist. I have Hashimoto's and take Synthroid and Cytomel. Good luck with your new doc.

PINKCLOUD's Photo PINKCLOUD Posts: 18
8/31/12 10:03 A

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hello,

last December i was sharing my frustrating experiences with my endo, and my 100% thyroid symptoms and my perfect blood test results.

well, i've been going to a Rheumatologist since then, and have a high positive ANA. unfortunately no disease-specific anti-bodies are positive--not thyroid, not Sjogren's, nothing. just the symptoms and the ANA.

so i am trying a new endo next week. i am hoping he will figure me out! at least my nodules and my symptoms. please cross your fingers for me!

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