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JOYFUL711's Photo JOYFUL711 Posts: 1,625
6/4/12 6:27 P

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No you don't sound like a dummy!!!

LID = Low Iodine Diet...if you have RAI (Radioactive Iodine) treatment to ablate yout thyroid, or in advance of a full body thyroid scan (part of thyroid cancer after care), you have to go on the low iodine diet.

Answer..is it possible to lose weight on this? (and going hypo), yes it is possible, but you have to be laser-focused on what you are eating, mostly fresh veggies and lean meat, not a lot of fruits and grains. I lost a tiny bit the last time I did the LID, but ws doing the Thyrogen protocol, so while I felt like utter dog poop, I was not actually hypo, and it was only for two weeks. It is always 'possible', but we have to really stick to the right foods for our condition, we cannot eat like 'normal people'...ever...... not and maintain if not lose weight...*sigh*

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SUNNYARIZONA's Photo SUNNYARIZONA SparkPoints: (182,520)
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4/25/12 4:04 P

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Hate to sound like a dummy....but WHAT IS LID????

MY NEW saying: (borrowed from Delila)

"If you want to do something, you'll find a way, if you don't, you'll find an excuse."


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FIERCESTCALM's Photo FIERCESTCALM SparkPoints: (30,806)
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4/24/12 6:44 P

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maybe I don't eat enough on LID, but I generally lose between 7-14 lbs doing it. seems to be one of the few things that my body actually responds to. I've had to do the LID 4 diff times now. I also had a TT in October 2009 due to papillary carcinoma.

you're just an empty cage girl, if you kill the bird....Tori Amos.


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BADUREKL Posts: 606
4/16/12 9:52 P

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Positive thoughts heading your way!
Best wishes for regaining your health and getting thru this!
Hugs, Linda emoticon

SUEPERSTARS's Photo SUEPERSTARS SparkPoints: (33,078)
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4/16/12 9:04 P

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Hi there, Karen,

I'm sorry you have to go through this.

I had a TT in Jan 2011 because of papillary carcinoma, and then RAI at the end of June 2011 because they found thyroid tissue in my lymph nodes, so I kinda know what you're going through.

However, I hadn't begun trying to lose weight until about a month after RAI, so I can't answer your question about whether or not I was able to maintain or lose because I wasn't trying.

What I will say is - without trying to scare you (sorry) but I was much much more tired AFTER the RAI than before. My TSH levels were obviously very high, and even once you start taking your meds again (I'm on synthroid) it takes a few weeks for everything to get back to normal. Before the RAI, I was so worried about what I was going to do in the hospital for 2 days and then in isolation, and stocking up on books from the library, and the LID, and all that, that I think it just kept me going. Afterwards, though, when I didn't have so many concerns, was when I had no energy. I had to nap at least once per day, and I was dead to the world when sleeping, and no motivation to do anything other than lie in the hammock and read (although that was pretty nice, too! lol).

I hope for you that it'll be different. At least you have the motivation of already being on a weight loss journey, of already having healthy eating habits and already exercising regularly. From my personal experience - just get yourself through the next few weeks. Keep your healthy habits, but rest when you can, and know that once you feel strong again, your healthy habits will still be there. And hopefully you'll have maintained, but even if you've gained a bit, you should still be proud that you were able to come through the other side with your habits maintained.

Good luck! You'll be alright! Its a pain, but its over pretty quick.

Sue

If I choose to not do anything differently today, tomorrow is going to be exactly the same as yesterday.

"Shoot for the moon. Even if you miss, you’ll land among the stars!" ~ Les Brown


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5WHITEROSES's Photo 5WHITEROSES SparkPoints: (24,716)
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4/16/12 6:16 P

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Tailbone bruising is not something I ever want to do again. I did it back in 1989 but on a freak landing off a high dive. Instead of going in feet first, my legs bent up and I hit the water with my butt (legs at a 90 angle to my body). I don't remember how long that took to heal but it hurt just as bad as this time.

TT is total thyroidectomy. I had half taken out Jan 24 when they thought it was negative for cancer (just to remove the mass) but final pathology reports came back positive so I had the other half taken out March 6.




~Karen




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MZZCHIEF's Photo MZZCHIEF Posts: 9,058
4/16/12 6:08 P

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Hey Girl...

So sorry about that fall!
gah...

AS IF you didn't have enough on your plate... so lucky you did not have a concussion or worse! You have my sympathies, as I had a tailbone issue for over a year. Not as dramatic as yours... all it took was flopping down too forcefully on a wooden chair... freak accident.

Its totally up to you, but frankly the RAI challenge is going to be one of the biggest challenges you'll face... BUT you'll have boasting rights once you get to the other side of it. I'd say keep all that good stuff in your sig to remind you of where you're heading after the RAI. But for now... be kind to yourself.

What's a TT?

Sounds like something I'd have a fit over if my pups did it in the house!
You're welcome for the reply... happy to be here.... welcome to our Team!

: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
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5WHITEROSES's Photo 5WHITEROSES SparkPoints: (24,716)
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4/16/12 5:41 P

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Thanks for your reply!

Yes, I'm making my LID low carb, but not super low. I have been watching carbs since September, but it took it down a bit more while my metabolism slows down. I'm recovering from a fall down the basement stairs (uncarpeted) that really bruised my tailbone, so I'm currently not exercising. My goal for this LID/hypo/RAI time isn't to lose weight, but to just maintain. In my siggy I have goals for another team and was hoping that this diet would help weight loss, but am prepared to modify my goals or just drop out of the challenge until after I'm done with RAI, isolation, back on meds, and feeling better. I did have a TT for cancer, so I'll resume Synthroid after RAI.

I've been on LID for one week now. The first 3 days I lost 2 pounds, today it's back. I'm not really worried about 2 pounds, unless it turns into another 2 pounds and another and another, etc.

Thanks again!

Edited by: 5WHITEROSES at: 4/16/2012 (17:42)

~Karen




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MZZCHIEF's Photo MZZCHIEF Posts: 9,058
4/16/12 5:07 P

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Best of luck with your RAI...

RAI is tough but necessary in some cases.
During this time, I would suspend weight loss efforts, concentrate on your low iodine diet and taking care of yourself. RAI is a pretty big deal...getting thru that comes first.

If you are on a super lo-carb diet, you will loose a lot of weight initially as the liver and muscles clear glycogen stores. Glycogen holds quite a bit of water, so when it goes... so does the water. LoCarbers can lose anywhere from 5 -10 pounds right off the bat. Is your low iodine diet is locarb ?

After RAI you'll be given tests to determine your thyroid hormone and TSh levels. Most people need thyroid replacement hormone after RAI.

There are other Team Members that have gone thru the LID and RAI procedure, hopefully they will chime in with their experience and advice. I only know about it from what I've read or heard here on the Thyroid Community Team.

Take care of youse...
: )
Mzzchief

Oopsie... forgot to answer your questions about a 2 pound gain. Could be a few things... four 8 oz glasses of water is 2 pounds... food has weight, so do the bacteria in your gut... with different foods, could be bacteria bloom. If you're not taking thyroid hormone, this will slow food transit, so it could be 2 pounds of food that haven't made it out of your system yet. In any case 2 pounds it nothing, really in the grand scheme of things. My weight can vary as much as 5 pounds over the course of the day.




Edited by: MZZCHIEF at: 4/16/2012 (17:18)
Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


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5WHITEROSES's Photo 5WHITEROSES SparkPoints: (24,716)
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4/16/12 4:01 P

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I'm going hypo for my upcoming RAI, I've been off cytomel for 4 days and on LID for 1 week. Last fall I completely overhauled my diet and have been successful keeping it that way and losing weight. I'm being very strict on LID and keeping it low carb. The first 3 days of LID I lost 2 pounds. Today I am up 2 pounds. I am hoping it's just water retention, but worried that hypo weight gain may be starting. Other than keeping LID low carb, there's nothing else I can change about it.

Has anyone been successful in losing weight on LID, esp if you had healthy eating habits prior to starting LID?


~Karen




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