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LUVINFUN_F SparkPoints: (3)
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5/19/14 3:50 P

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I take that amount for my Multiple Sclerosis, low thyroid and fibromialigia and it has changed my life.. I take 250mcg synthroid daily. I actually have a life now! Not only was I physically exhausted, but I could not wake up or stay awake. I constantly felt like I hadn't slept in 3 days...kinda like when I was a kid and stayed up satudying for finals. Originally I was given 4,000 IU per day. After spending 2 years on the couch with intense vertigo, they realized it was from the vitamin D. After changing insurance and doctors, my new physician wanted me to take 50,000 IU once a week. After two years of horrible nausea, I did not want anything to do with vitamin D supplements. I broke out in tears at his office and I am NOT a crier by any stretch of the imagination. Since it was a new doctor I knew if I didn't try it I would have a hard time getting other medications, so I agreed to try it. It was a miracle! I used to take an entire day's worth of amphetamines just to wake up, then only had 4-5 hours before I would sleep for the rest of the day. After 2 weeks (i cried when I took the first dose!!!) I started waking up on my own and only need the amphetamines for energy, and only need half of what I had been prescribed previously. I feel human again! The doctor explained that vitamin D is stored in your body's fat and when given weekly and it s released slowly. I haven't felt this good in about 10 years and actually have a life now!!!!! My earlier labs showed only a slight low vitamin D deficiency.

CARLA-BELGIUM's Photo CARLA-BELGIUM Posts: 73
6/7/13 6:20 A

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My endo discovered my vit D deficiency in 2009 and I've been taking vit D monthly ever since. I always have them test it when I get my bloodwork done. So far, I'm doing OK but I will check the amounts !

Thanks for all the info !

Carpe diem !


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MYKIDSRSWEET's Photo MYKIDSRSWEET SparkPoints: (12,017)
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6/6/13 1:36 P

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I have taken 50,000 IU by prescription for awhile...first three times a week, then twice a week, now I take 2000 IU over the counter every day and the 50,000 about twice a month. I find I need to get my levels checked and take it more in the winter. I am fine in the summer. My levels in the winter have been as low as 12.




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HPSANDDOLLAR Posts: 518
5/25/13 10:41 A

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This is a 10 year longitudinal study on Vitamin D, Osteoporosis, and Calcium. I believe it is a high level study. The outcome was mortality...an added benefit for us who are treating osteopenia.

jcem.endojournals.org/content/early/
20
13/05/22/jc.2013-1516.abstract


They found it didn't matter the source of calcium, but up to a 1000 mg a day by pill was probably beneficial for women. Fortunately, with the Spark's food entry and Mzz suggestion for titrating we can adjust the amount of calcium taken by pill.





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CLASSY76's Photo CLASSY76 SparkPoints: (30,973)
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3/30/10 1:31 A

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I was diagnosed with vitamin D deficiency in 2003. At that time, I was put on 50,000 IU of vitamin D (ergocalciferol) daily for about 3 months. Then it was reduced to 50,000 IU once a week. I was told that 50,000 IU is the only dose available in prescription. I would still be on that if my insurance covered it. But my insurance stopped covering so I went to over the counter vitamin D (cholecalciferol). Between my calcium pills and multivitamin, I get 1500 IU of vitamin D daily. That brings my levels to the low normal range. As someone pointed out, the prescription medication is different than the over the counter medication. Prescription vitamin D medication is ergocalciferol and over the counter vitamin D medications is choleclciferol. I don't know how dosages between the two different vitamin D's correlate.

Becky

"How does one become a butterfly? You must want to fly so much that you are willing to give up being a caterpillar."
- Trina Paulus

"I am not judged by the number of times I fail, but by the number of times I succeed; and the number of times I succeed is in direct proportion to the number of times I can fail and keep on trying." - Tom Hopkins


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MAUITN's Photo MAUITN Posts: 12,879
3/28/10 10:17 A

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Thanks HIPPIEGURL. So, my Hypo should have been caught a year earlier.

At least I am feeling better now, my skin issue have cleared up, nails getting a tiny bit stronger and I am not losing hair like I was. Things are better for me. Now if I could just get this weight to move.

Earnie - Monteagle, TN
“I would love to live like a river flows, carried by the surprise of its own unfolding.” -John O'Donohue

www.flickr.com/photos/8894287@N06/

If something is holding us back, today is the day to begin to push back. Today is always the best day to end the fears and begin being the best you.

At the end of every road there is something worth seeing.


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KAT100's Photo KAT100 Posts: 566
3/28/10 9:55 A

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My doctor prescribed 50,000 of vit D once a month for 6 months and I take 3,000 of D3 nightly. It will be interesting what my next labs show.

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GOANNA2's Photo GOANNA2 Posts: 11,194
3/28/10 6:49 A

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Thanks for the Vitamin D info. I have been prescribed Vitamin D for Osteo and had no idea it was also needed for Hypo. I have since started taking it again and am actually feeling better.

Thank you all for the great information.
emoticon

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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,942
3/28/10 2:50 A

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Since 2002, the American Academy of Clinical Endocrinologists have recommended that the old values of .5-5.0 be changed to .3-3.0 so that more borderline cases of hypothyroidism may be caught and treated. See the link below for the article.

Sandy

thyroid.about.com/cs/testsforthyroid
/a
/newrange.htm


Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

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MAUITN's Photo MAUITN Posts: 12,879
3/27/10 11:09 P

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The Adventist doctor did run the thyroid test. Those tests showed T4, free was 0.08, TSH, 3rd generation was 4.22, and T3, free was 250 (all showing within the “normal rates” at that time. The normal TSH levels now have lower norms. But I don’t know when they changed. That test was run at the beginning of July 08. The TSH test that was run toward the end of February 10, showed a TSH of 5.18. The T4 and T3 either weren’t run or don’t show on the results I have.

Does any of that make any sense? Or answer any questions?


Earnie - Monteagle, TN
“I would love to live like a river flows, carried by the surprise of its own unfolding.” -John O'Donohue

www.flickr.com/photos/8894287@N06/

If something is holding us back, today is the day to begin to push back. Today is always the best day to end the fears and begin being the best you.

At the end of every road there is something worth seeing.


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TIMETOLOSE2013's Photo TIMETOLOSE2013 Posts: 212
3/27/10 9:53 P

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It's weird the adventist didn't check your Thyroid at the same time as the vit D. what he prescribed was the correct amount to correct a vitamin D deficiency. I assume he did blood test to see if your were deficient. Hypothyroid and low vit D have the same symptoms of sluggishness, depression and muscle aches. Hypothyroid can cause dry skin and if your prone to eczema, dry skin can make your skin more sensitive and then cause an eczema out break. does that make sense? if not feel free to email me. Overall,I hope your feeling better.

Life is what you make of it.


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MAUITN's Photo MAUITN Posts: 12,879
3/4/10 2:29 P

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In November of 08, I developed Rosasa. In December 08, I developed a blister like rash, then dry, cracked, burning sensation as if scalded on hands. Dermatologist said it was contact dermatitis (eczema). Over the next eight months, this intensified and spread to all parts of my body and was mixed with hives. I went to more than one dermatologists, an allergist, my GP, and a 7th Day Adventist hospital that did the allergy blood test. The Adventist ( am not Adventist) doctor determined that I was low on Vit. D and prescribed 50,000iu per week for two months and 3,000iu per day for the next two months. After that I discontinued the D, but was in Hawaii so was out in the Sun daily. When I returned to the frozen South, I began to see a few spots and began taking 4,000iu daily. Since then I have lowered the dose to 2,000iu and my skin is fine. A week ago, my blood work showed that I had Hypothyroidism and my doctor has started me on a low dose of Levothyroxine.

I have to believe the two are somehow connected.


Earnie - Monteagle, TN
“I would love to live like a river flows, carried by the surprise of its own unfolding.” -John O'Donohue

www.flickr.com/photos/8894287@N06/

If something is holding us back, today is the day to begin to push back. Today is always the best day to end the fears and begin being the best you.

At the end of every road there is something worth seeing.


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LGAL614's Photo LGAL614 Posts: 77
2/5/10 3:18 P

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Thanks purrballs, you guys are great!! The instant feedback on questions is wonderful. Have a great weekend everyone!!

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PURRBALLS's Photo PURRBALLS Posts: 7,964
2/5/10 10:47 A

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I take OTC D3. My doc checks my levels every time. I found it cheaper OTC is all...

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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JOVANB77's Photo JOVANB77 Posts: 953
2/5/10 10:38 A

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Wow, thanks so much LGAL614. I'll get back on my Vitamin D. Woohooo!

Jovan


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LGAL614's Photo LGAL614 Posts: 77
2/5/10 10:20 A

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Jovan, if you look down the older posts, I posted something on Feb 3rd I believe about taking vitamin D and overdosing. I got it from a very good medical website source.
Purrballs do you take script D or OTC D? Just curious.

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JOVANB77's Photo JOVANB77 Posts: 953
2/5/10 7:47 A

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I used to be on 10,000 a day because my D was so low back in 2008. I felt much better but then again I was on a ton of different vitamins at the same time. So who knows. I might take 10,000 a week now. I just don't want to take too much - I need to google and see if you can overdose on it. Maybe if I increase it, I'll feel better.

Jovan


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PURRBALLS's Photo PURRBALLS Posts: 7,964
2/4/10 8:20 P

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ods.od.nih.gov/factsheets/vitamind.a
sp
#h8


As you see here this is common for short spurts. My doc has me on 5000 daily and I do better on it!

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
Bloated, Forgetful and Psycho


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LESLEYJ2 Posts: 113
2/4/10 7:50 P

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Hi, My vit. d levels were very low too. I am on 50,000 iu vit. d per week indefinitely. No side effects or good effects either. I feel the same.

HIPPIEGURL's Photo HIPPIEGURL Posts: 4,942
2/4/10 6:48 P

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Another thing for friends and family with osteoporosis. If your Vitamin D levels are too low, you WILL NOT properly absorb your Boniva, or whatever meds you take for osteoporosis properly. My Mom was taking Fosamax for several years with no improvement then switched to Boniva with no improvement, then her endo finally checked her Vitamin D levels, which were so low she was put on 50,000 units twice! Now she supplements with 4000 units daily with her calcium.

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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LIVEN2BPINK's Photo LIVEN2BPINK Posts: 4,156
2/3/10 7:08 P

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This is the best team for help, support and info that I have ever been on.
GO SPARK TEAM!

In giving we receive...so give to yourself.


Be the Pursuer of Your Own Happiness

There will come a time when you believe everything is finished. Yet that will be the beginning."


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KERLYNP Posts: 22
2/3/10 5:45 P

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Thank you for info. I knew I did not know anything. Now I know how much I didn't know.To all who found info. good for you, to be sharing.Who knows who could be a life saver. Sounds like Spark People to me.

HIPPIEGURL's Photo HIPPIEGURL Posts: 4,942
2/3/10 4:42 P

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Here's a very good article on Vitamin D that everyone should read!

articles.mercola.com/sites/articles/
ar
chive/2009/10/10/Vitamin-D-Experts-RR>eveal-the-Truth.aspx


Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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TVINCENT3 Posts: 1
2/3/10 3:28 P

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I also have hypothyroidism and was told recently by my endocrinologist that my vit d levels were low. I am taking a liquid form of Vit d from the health food store. I was wondering how to get a meal plan for people with hypothyroidism on Spark. Due to having to cut back on the carb levels.

SAUNDRELLA's Photo SAUNDRELLA Posts: 845
2/3/10 2:55 P

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Let us know when you find out.

Saundrella

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SSTURMAN's Photo SSTURMAN Posts: 63
2/3/10 2:24 P

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I may not have my numbers correct, but I listen to a health talk show daily, hosted by a Medical Doctor. He was reading an article that stated in ?Italy? they give either and injection or a implantable version of Vitamin D in the range of 60,000. Supposedly, you get it once a year and you good!
I will have to look into it!

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LGAL614's Photo LGAL614 Posts: 77
2/3/10 12:06 P

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Just wanted to give a little imput on how much is to much on the vitamin d. Got this from a medical site I frequent.
It is very rare to have a vitamin D overdose. Vitamin D toxicity induces abnormally high serum calcium levels (hypercalcemia), which could result in bone loss, kidney stones, and calcification of organs like the heart and kidneys if untreated over a long period of time. When the Food and Nutrition Board of the Institute of Medicine established the tolerable upper intake level (UL) for vitamin D, published studies that adequately documented the lowest intake levels of vitamin D that induced hypercalcemia were very limited. Because the consequences of hypercalcemia are severe, the Food and Nutrition Board established a very conservative UL of 2,000 IU/day (50 mcg/day) for children and adults.28 (see table below)

Research published since 1997 suggests that the UL for adults is overly conservative and that vitamin D toxicity is very unlikely in healthy people at intake levels lower than 10,000 IU/day. Vitamin D toxicity has not been observed to result from sun exposure.



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MKROSSMAN78's Photo MKROSSMAN78 Posts: 1,468
2/3/10 11:27 A

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Thanks for all the input. I honestly don't know the difference between D3 & D2 and since I live 30mins away from my pharmacy, I haven't picked up my prescription yet to look at it.

I'm not one who likes to take meds if I can help it, but if this can help me feel better & potentially get my weight to a healthier level, I have no problem doing it. Thanks again!

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KERLYNP Posts: 22
2/3/10 11:23 A

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wow do not know anything about those amounts,sure am going to get educated on this.On behalf of myself, and likely others WOW best of health to you and thank you

MINXXA Posts: 380
2/3/10 10:49 A

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Mine was low too, and 2,000 iu a day wasn't working, so I started taking 10,000 iu a day for 30 days, then back to 4,000 iu. Raised my levels up from 29 to 80 in 4 months. And I feel TONS better. Now I do 4,000 iu every day to maintain, and my Dr. checks me every time to make sure the levels are staying up. For me it was the last step in getting my energy back... (I take over the counter D3-- Carlson's).

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
2/3/10 10:36 A

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My son suffered with debilitating tendonitis to the point where he could do much of nothing. After 2 years, they discovered he was very low in vitamin D. He started taking it and he began to heal from the tendonitis. He's almost back to his old self, now. It was good to hear about your nails growing back. Mine were, too, and then I stopped taking it. I'm getting back on it, now, because my nails are right back to where they were.

Saundrella

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LGAL614's Photo LGAL614 Posts: 77
2/3/10 9:32 A

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MKRossman78, I to was told I had low D levels about 6 months ago and got put on the script for a few weeks. No side effects, actually liked it. My nails were growing long and strong and my hair. Wish I could of stayed on it. I do xtra supplements now but not the same effect as the script. He told me it's the new buzz amoung doctors getting everyone tested for D because we aren't getting enough from sun or foods so there are alot of us out there that are deficient.

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SEJO3773's Photo SEJO3773 SparkPoints: (4,188)
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2/3/10 8:10 A

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I am starting my 9th week. When i had my physical i felt fine, but then i started the vit d and I have never felt better! I have not noticed any negative side effects.

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DIXIE_AMAZON's Photo DIXIE_AMAZON SparkPoints: (11,505)
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2/3/10 7:57 A

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I've taken it my D3 was low. Even with it I only got in to the low end of the normal range. I now take OTC D daily.

Dennise with 2 n's

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LIVEN2BPINK's Photo LIVEN2BPINK Posts: 4,156
2/3/10 7:47 A

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Whatever kind it is...I am on this prescription for 3 months. Up until this point I would say I have had no noticable side affects except feeling better!
Deb

In giving we receive...so give to yourself.


Be the Pursuer of Your Own Happiness

There will come a time when you believe everything is finished. Yet that will be the beginning."


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,942
2/3/10 4:15 A

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My Mom was prescribed this when hers was low. Just a side note - the 50,000 prescription vit D is not the D3 that you usually supplement with. It is almost always synthetic D2!

Sandy

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


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MKROSSMAN78's Photo MKROSSMAN78 Posts: 1,468
2/3/10 12:11 A

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At my annual check-up last friday, my dr decided to check my vitamin D levels since some of my hypothyroid sympt had come back even though I was taking my meds regularly. I got a call with the results Mon that my Vit D level was very low & they were prescribing me 50,000IU suppliment to take 1x/wk for 8 weeks. I'm wondering if anyone has been prescribed this before? And if so is there any side effects?


Edited by: MKROSSMAN78 at: 2/3/2010 (11:28)
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