Author: Sorting Last Post on Top ↓ Message:
GOANNA2's Photo GOANNA2 Posts: 11,204
9/22/14 8:00 A

My SparkPage
Send Private Message
Reply
I hope the Synthroid helps. I always ask for the name brand and the chemist thinks I'm crazy.l

 current weight: 180.0 
 
198
192.5
187
181.5
176
FERALAUNTIE's Photo FERALAUNTIE SparkPoints: (3,784)
Fitness Minutes: (3,015)
Posts: 378
9/20/14 7:04 P

My SparkPage
Send Private Message
Reply
MzzChief, need to check out the sites you cited soon. Finally got my Synthroid yesterday. Today first day taking. I'm giving it 3 mos. to help. Still not losing weight no matter what I do.
Thanks for your help. PS The pharmacist thinks I'm crazy for paying out of pocket for name brand. Guess she does't know how bad thyroid problems can make you feel. emoticon

Linda


 Pounds lost: 2.6 
 
0
39
78
117
156
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/20/14 11:09 A

My SparkPage
Send Private Message
Reply
Good morning ladies!
Thx for the feedback!

: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
GOANNA2's Photo GOANNA2 Posts: 11,204
9/20/14 6:29 A

My SparkPage
Send Private Message
Reply
I always love reading your findings Mzz.

 current weight: 180.0 
 
198
192.5
187
181.5
176
UNICORN212's Photo UNICORN212 Posts: 9,332
9/19/14 11:45 P

My SparkPage
Send Private Message
Reply
I managed to get to it! Thanks!

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/19/14 11:27 P

My SparkPage
Send Private Message
Reply
Arrgh!
I am not sure why the medscape article does that on the hyperlink.
But here's a way to read it... just go to this page, its the first article, they don't ask you to sign up. I've signed up before bc they have good articles, but I am on another computer and don't remember my passwords.

Here's that link, its the first one on the page!

https://search.yahoo.com/yhs/search?
hs
part=avg&hsimp=yhs-fh_lsonsw&type=chR>.37.w7._.18-01.us.avg._._¶m1=rVB
Lj
9MwEP4rXOKbI78dH3xomy5CWonVUliuT
jxJgzY
P7Da7_HsmhYUrByTL883rm5mvHaI
vbMMs29dcK
Kp3taDq7nigVVUbquReMbtTh
yNXhY0kei4tN1X
FK8UYIzH73Zf35DlMvYe
JjMjWBtk1RrqotVU2M
mfbKujGiUaAtlLTW
OlgrFFRhQ4HO9ExcLx1gYc
oTaOh0o5Fzcm
CbDl00F9DimRJvksk956R1fOq5
KUrrXPkc
E0JpstD6OHz470_Xy5LIUMhOnzjjww
htec
yrH3ZziOGFqzLaN8SeXktZAd5WQsZRSFMO

0REhdB2_0-qYGGNbeOt7b8dj4ybqEgJE-KYEaH

SCJeEsEtbcNuYcUmZodzhIuhYvF04_BRuZ
rab_
kq1Nd-2_CMqRvI2gyH4viXgGabhOt6
4whRv9vT
w8bd_GZo5DpDJJ0grpA-1P-0Fv
d99pU93R27Is
HiLs0ypbakUmbN_GqY4v-R
3ljT-cE7zCKRZvbQ
lIy34U7oC-ZZ_gZ81&
param2=unknown¶m3=ch.37.w7._.18-01.us.avg._._&p=selenium+and+TPO+antibodies


If you like that book on the thyroid by the pharmacist, please create a thread in the Things we Like forum on our team. You never know who you can help!

: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
UNICORN212's Photo UNICORN212 Posts: 9,332
9/19/14 10:32 P

My SparkPage
Send Private Message
Reply
The Medscape site requires a log in.

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
UNICORN212's Photo UNICORN212 Posts: 9,332
9/19/14 10:29 P

My SparkPage
Send Private Message
Reply
Thanks, Mzz! I know Hashis killed my thyroid 5 years ago - just no one ever tested for it before. I ordered a book that is supposed to be good - it came in Wednesday. I need to find some time for reading. Written by a pharmacist with Hashis. I'll check out those links, too. I changed from dessicated porcine to Armour about 4 months ago, but I am not sure if it is an improvement or not.

Off to check your links. Good luck with your blood tests! It might be easier to order your own - at least you get the tests that are needed! Does your doc have a problem with that?

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/19/14 10:26 P

My SparkPage
Send Private Message
Reply
Hey team members!
Anyone wanting to learn a bit more about our thyroids, here's a link I wrote on a number of thyroid essentials.

Please don't leave any comments on that thread!


www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=261x732x571R>88259


: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/19/14 10:04 P

My SparkPage
Send Private Message
Reply
HI Unicorn!

Your TPO is crazy high!

Here's the deal with Hashi's (autoimmune low thyroid).
You might know this already, if so, sorry for the repetition!

The first thing we've got to realize, is that the cause of our disease is autoimmunity.
That two substances in our thyroid, that put thyroid hormone together are the TARGET.

Those two substances are TPO (thyroid peroxidase, an enzyme) and Tg, ( Thyroglobulin, which is a tyrosine protein to which iodine is added to form T1,T2, T3, T4... thyroid hormones and their metabolites).

Autoimmunity is the cause of plenty of nasty diseases.
Diabetes 1, some forms of adrenal dysfunction, Lupus, Sjorgen's, scleroderma, rheumatoid athritis, celiac disease, HIV, AIDS are a few that come to mind.
Each one of these autoimmune diseases targets a different organ, range of organs, or body part.

But the cause of ALL these diseases is a defective immune system,
The difference is the target.

The way our immune system fights disease is thru detection of foreign proteins on the membranes of bacteria or the protein envelop around viruses. In most situations, this works out nicely...antibodies are created to these proteins to rid the body of their presence. Each antibody is like a key. Its created just for that particular protein molecule. Otherwise the antibodies would attack all protein molecules which wouldn't work since that's what we're mostly made of... proteins!

So with Hashi's, the body mistakes TPO and Thyroglobulin as foreign, creates antibodies against them. The march of antibodies to these substances found in the lumen of the thyroid, causes destruction of the surrounding thyroid tissue. Otherwise known as Inflammation.


Unfortunately scientists haven't discovered how to fix the root of our disease, or ANY autoimmune disease. All they can do is try to control the symptoms.

In our case, one way they do it is to provide enough thyroid hormone in a pill to take the thyroid's production of thyroid hormone off line, shut the thyroid down.
The pituitary gland, (along with the hypothalamus) which regulates how much thyroid hormone is produced, lowers TSH as a result.

TSH stands for Thyroid Stimulating Hormone.... cuz that's what it does, it prompts the thyroid to make hormone. A lot of TSH (high TSH) means your thyroid isn't producing.

THe pituitary doesn't care where the thyroid hormone is coming from, just that the proper level of it is in the blood. So when you have plenty in your blood from a pill, the pituitary sends out less TSH, effectively shutting the thyroid down.

When the thyroid isn't creating TPO and Thyroglobulin anymore, bc it doesn't have TSH prompting it to produce hormone, there's less for these antibodies to attack. So your TPO titers drop.

There a a few theories about how the immune system comes to identify these two as enemies.

1. Leaky gut or celiac disease lets in proteins that are similiar in structure.

2. A viral or bacterial illness. There's one bacteria called Yersina that's been implicated in triggering Autoimmune thyroid disease.

3. A genetic tendency, since it seems to run in families along maternal lines.

4. Too much or too little iodine or selenium in the diet.

5. Pregnancy with fetal cells crossing the placenta into the mother's blood.

I hope some of this was helpful in explaining what's going on in our bodies.

Selenium for people who don't have it in their diet is often helpful in lowering TPO antibodies.
But you have to be careful bc there seems to be a correlation between diabetes 2 and excessive selenium in the diet.

Here's a couple of articles for you to read on that topic, to provide a jumping off point for your own research:

Lowering TPO antibodies:
www.medscape.com/viewarticle/777483_
5


Diabetes and selenium intake:
www.bloomberg.com/news/2012-02-28/hi
gh
-levels-of-selenium-may-raise-risk-oR>f-diabetes-review-finds.html


Thanks for sticking in there to the end of this post... long I know!
Be well!
; )
Mzzchief


Edited by: MZZCHIEF at: 9/19/2014 (22:21)
Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/19/14 9:04 P

My SparkPage
Send Private Message
Reply
hey Mama!
Yes, your endo is correct, we femmes make our testosterone in the adrenal glands!
Interestingly enuf, all the steroid hormones (adrenal and gonad) are made from cholesterol as is DHEA and vitamin D. My theory why cholesterol rises at menopause, is bc its not being used to make progesterone and estrogen in as much quantity anymore, and somehow the liver doesn't get the clue... but I digress!

LOL about the New Zealand cows on Organic Grass, but I think that's bc of Mad Cow scare... as far as I know that disease hasn't spread there.

Magnesium is in short supply in our diets, its great for aches and pains, its a part of over 400 enzymes in our body. And great for moving things along the digestive track! I LOVE epson salt baths.

I've heard Licorice is good for adrenals, also for digestion. The dgl form, please don't ask me how to spell or pronounce what Dgl is short for! hahahaha

The L tyrosine is a non-essential amino acid which means it can be made by a healthy body, and is common in foods. Its a part of in thyroglobulin, which is one of the targets of autoimmune attack... one of the "ingredients" of thyroid hormone.

When I first found out I needed thyroid hormone, I thought I might avoid going on thyroid replacement, be able to heal myself with herbs. Tyrosine was one of the things I took.

About adrenals, they are pretty much like an EMS crew in that they tend to balance all areas of the body. But just like an EMS crew, they aren't meant to maintain health for long periods of time. Adrenals get exhausted when they have to "cover" for a failing thyroid or the lowered estrogen and progesterone of menopause. At least that's how I've come to understand their function and importance in our bodies.

Thx for the tip on Standup Process!

I will have to see if I am making more testosterone now that I am fully menopausal.
I just ordered my labs, for my yearly checkup, just a thyroid panel, CBC and CMP.
Thought about running a full sex hormone profile but stopped when I saw the price!
I pay out of pocket for these things.

Thx again!
: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
UNICORN212's Photo UNICORN212 Posts: 9,332
9/18/14 3:47 P

My SparkPage
Send Private Message
Reply
Mzz - On my last blood work, my TPO was 480, even though I was taking desiccated porcine thyroid at the time. Can you help on interpreting TPO?

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/18/14 2:19 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
A thought for you to maybe look into on the testosterone. If what my endocrinologist says is accurate we women get our testosterone through our adrenals. You might try a desiccated adrenal (Standup process is what he told me to get at the health food store because their adrenal is from cows from New Zealand farms that are allowed to graze on organic grass - OK if that's not taking it to the extreme a bit I don't know what is lol). I do not know if the DHEA, magnesium, and L-tyrosine he recommended are for thyroid or adrenals but I can find out. I've also read somewhere that licorice is helpful and there is even a bottle that I saw at a local Sprouts called Adrenal Support. All of this, of course, depends on if this is really how we create testosterone.

Lucy
USA Central Time
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/18/14 2:04 P

My SparkPage
Send Private Message
Reply
Well all the stuff you did prior to turning 50 worked bc you look Maaaahvelous, Dahhhling!

Thx for the testosterone info!
Learn something new here everyday.

Will be interesting to see how things pan out for you with all the support you are getting from your doctors. Wish we all had access to the same!

Incidentally the K2 also works for the skin as well as bones and testosterone.

Be well!
: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/18/14 1:56 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
I WISH I was 35 LOL. That was before all this bad junk hit! Sadly, I turned 51 this past weekend. 50 bothered me really bad. Several months before I turned 50 did the whole teeth whitening, hair coloring, expensive night repair serum stuff on my face routine. To say I went down kicking and screaming would be an understatement :-).

But then I realized that no matter what I do time is not going to stop for me and that is when I decided I would make 50 be the best year ever. It's not been a bad year but 35 was much better!

I do get testosterone but I get the implants into my hip called Sottopelle. They are the bio-identical form of Testosterone. Two very small (think grain of rice) pellets last me between 5-6 months. My gynecologist loves them. My new endocrinologist not so much. His exact words were, "we fix the adrenals, they will again make testosterone, and you won't need testosterone in your butt". My reply was "Baby if you fix me with your cocktails of vitamins and Armour and I'll be happy to save the money on testosterone my insurance does not pay for". If I were to get a cream from a compounding pharmacy they would but the pellets are so much easier. Even with all of that my hair is still very dry and brittle.

I will look into the K2 but at this point I have plenty of "store bought" testosterone. I do take my thyroid Armour first thing in the morning right after I get out of the shower with a glass of water. Then I get ready for work and don't eat breakfast until about 1-1/2 hours later when I get to my office. I've now added the desiccated adrenal, DHEA, L-tyrosine, and fish oil to my morning routine with the Armour. At night I'm only taking Magnesium, Iron, and Vitamin C to help with the iron. Once a week I take a prescription D capsule that is 50,000 mg at night. My iron is also a prescription because I was having problems with absorption. It's not slow fe but some kind of chelated iron.

I had no idea the strenuous exercise was possibly hindering my recovery until a week ago but then I didn't know I had adrenal burnout until then either lol. It feels really weird to not workout but I've decided to take a few weeks rest from everything until I can wrap my brain around all of this. Even though I have a desk job I'm pretty active the rest of the time, running teenagers all over the place.

I'm trying really hard to track everything here but I also purchased a pretty journal book that I'm using to write down notes and my reactions to things.

It's really weird to me that I went all this time tired, and after a year on 30 mg upped my thyroid to 60 and then all hell seemed to break loose. My throat and fingers started swelling to the point that I can see the butterfly shape of my thyroid when I tilt my head back. Because of this I was very nervous a week ago to increase the Armour again to 90 but my new endocrinologist just looked at me and said "trust". I had been on the 60 mg for 8 weeks prior to this so I know enough time had passed for me to increase it. I do have to say for the first time in a long time I've actually lost a couple of pounds and I am finally sleeping through the night (once I get to sleep anyway).

Lucy
USA Central Time
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/18/14 1:01 P

My SparkPage
Send Private Message
Reply
Mama
51? WHAT?
Girl I am shocked you are 51, I guessed 35 at most!

I had the non-existent testosterone thing, too.
Discovered when my hair loss was severe, treated myself to the Dermatologist.
One of the tests she prescribed was an androgen test, thinking perhaps I was experiencing testosterone driven alopecia. I had zero free testosterone.

My diagnosis was telogen effluvium, driven by the fluctuating hormones in perimenopause and autoimmune thyroid.

Boron is supposed to help raise Testosterone.
So is vitamin K2.
I couldn't afford to get another testosterone test, but I do know that both Boron and K2 (different from K1, the form found in leafy greens)are great along with calcium, magnesium, A and D for bones.

Vitamin K2 helps calcium go to bone, it works synergistically with A and D. It takes calcium out of soft tissues, so its good for bone spurs, arterial calcification. It also makes your teeth feel smooth.

You might consider looking for this combo in one pill if you can, it makes things so much easier!

I agree with Unicorn, backing off the strenuous exercise is usually a good thing until you get yourself straightened out, until your adrenals heal. Which takes time unfortunately!
I've got to get back to weights myself... it really helps firm you up and burns some calories... muscle has a higher metabolic rate. With low T you won't be growing much muscle though.
In my experience too high T3 will catabolize muscle tissue, too, reduce your aerobic endurance.

Just been doing yoga and heavy yard work.

One thing to remember about taking your thyroid hormone is to take it on an empty stomach. Wait an hour before eating. If you are havig problems with absorption, take it with a glass of distilled water (no minerals to bind your hormone), and a pinch of vitamin C (helps with absorption). ALWAYS take it with a full 8 oz glass of water so it gets to the middle intestine, where its absorbed most efficiently.

If you are having problems with absorption of iron, then you might talk to your doctor about the possibility of low stomach acid. There are supplements available to help raise it, but its not a DYI project in my opinion! So I will leave that with "Ask your Doc" bc its sounds like you have a good one.

TPO antibodies usually go down when you are on a full replacement dose of thyroid medication. If you have Hashi's then as long as your thyroid is making hormone, you will have TPOs higher than normal, bc its the substance needed to make thyroid hormone, that's being attacked. If your diet is deficient in selenium, this will cause elevated TPOs as well. You might try a brazil nut a day if you don't have nut allergy as they are very high in this mineral.

Some people do better by avoiding certain foods. You might want to keep a food diary and see if there's a correlation between you eating certain foods and aches and pains, bad sleeping patterns, sore throat, mucous.... also if you have better days and what you ate the day before.

Did your doctor actually prescribe you testosterone?
Or did he give you supplements to help your body naturally raise testosterone?
If so, what did he suggest?

Merry day!
: )
Mzzchief




Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
UNICORN212's Photo UNICORN212 Posts: 9,332
9/16/14 10:52 P

My SparkPage
Send Private Message
Reply
LOL - Do I sound like someone going thru the same thing? I've been doing mu homework. I even have a book on Hashi's coming from Amazon tomorrow.

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/16/14 8:42 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
Thank you Nancy. The new endocrinologist said the same thing so once again you are right on! He said I could fast walk but nothing more strenuous than that for now. The kettle bell classes are weights only but they are part of the Zumba membership and it's kind of high just for the one class so I may try and find a yoga class once or twice a week and walk maybe 3 or 4 times after work.

It's really hard for me but I think that is because I remember a time when running meant more energy, easy weight loss, and happy hormones. That was 40, this is 51 I guess lol.

Lucy
USA Central Time
UNICORN212's Photo UNICORN212 Posts: 9,332
9/16/14 3:31 P

My SparkPage
Send Private Message
Reply
Lucy - You may want to back off on the cardio until your adrenals are doing better. Maybe replace with strength training?

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/16/14 2:07 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
Oh wow Mzzchief you really ARE a fantastic resource :-).

Thank you for your reply to my questions. Just so you know:

I had struggled for years, had two doctors prescribe anti-depressants, one give me HRT packs, and another just look at me and say, "what - are you self diagnosing yourself" when I asked her if my thyroid could be causing me to be tired all the time. Not one of the doctors did a blood work up. A very dear friend at jazzercise (oh yeah, I work out like a fiend - jazzercise, zumba, jog 5k races because I love them, kettlebells and flexibility classes) told me I should go back to my gynecologist. Long story short, he delivered both of my kids over 15 years ago. She works in his office and has for 22 years. I moved away from him because my insurance changed. Anyway, I'm back on a plan he takes and she was telling me how he helps lots of women with bioidentical hormones. I went back to him and he did a full blood workup. Yes, I was anemic, vitamin D deficient, had no testosterone at all (can you say estrogen dominance) and my thyroid was slightly out of whack with a TSH of around 4.3. I forget the FREE T3 and overall T4 but they were both good. His hope at the time was if we could fix the deficiencies the thyroid might kick in. A few months later I felt better but was still tired/fatigued. Looking back I now know I probably had no testosterone because my adrenals weren't working but we did not know that then. Because I was still feeling fatigued he agreed to try a low dose Armour of 30 mg. It worked like a charm for about 4-5 months and the fatigue started to return. I thought it was because I had allowed my testosterone to run out. I got more testosterone, thinking in a few weeks all would be well again. That was in May. I never got better. I increased my workouts, thinking I could kick my metabolism into place. I switched to a mostly paleo type diet. I did away with as many toxins as I possibly could. We buy most of our products from Jessica Alba's Honest Company and I love them. In July we did another full blood workup and after a year of taking all those vitamins and Armour my TSH was up to 8.4, my D was lower than before, and my iron was still low. I think my iron was around 22 and my D level was 5. We upped my thyroid to 60 mg, and I switched to a prescription strength D of 50,000 mg and Iron. I got a series of 6 weeks of B12 shots, and also added 1000 mg/day of Vitamin C with my iron to help absorption. 6 weeks later we re-ran the blood work but he added the thyroid antibodies to the mix. I was more tired than before, my hair was breaking off, my face was like sandpaper, my fingers and ankles were very swollen and I was basically ready to just lay it down as they say. When the results came back he told me I had Hashimoto's. My TSH was .6, and I forget the T3 and T4 (one was 4.2 and the other was 7.something, maybe). My TPO antibodies were 197 and he expected them to be under 9. He knew enough to test for it, and to diagnose it but beyond giving me Armour he admitted he was out of his element and suggested we call in a few other doctors for consulting.

So, off to the endocrinologist I went. I spent hours online searching for one who believes in Armour, and knows about Hashimoto's and possible adrenal fatigue (if it was real). This is the endo who confirmed yes, I have Hashimoto's, yes, adrenal fatigue is real and I've got it, and no there are no nodules on my thyroid per the sonogram but that it is still very swollen and ugly. His recommendation for the next 6 months:

Increase Armour to 90 mg
Keep taking D at 50,000 1x/week
Keep taking Iron and Vitamin C
Keep taking fish oil
And add to the above:
Desicated Adrenal (Standard Process)
DHEA
L-tyrosine
Magnesium 500 mg

I forget the amounts of the adrenal, DHEA, and l-tyrosine but can look them up when I get home. I take everything in the morning 1 hours before eating except the iron, C, D, and magnesium. I was taking the fish oil at night but something is keeping me up and I'm wondering if it might be that so I'm trying them in the morning now.

The endocrinologist said to give it 3 weeks to feel a difference and 6 months to heal the adrenals and thyroid inflammation. We are going to re-test blood levels in 2 months. His hope is that some day in the future, everything can be healed to the point of not needing the thyroid or adrenal meds any longer. One can hope . . . . .

Now, to completely cover all my bases I have one more appointment next week with an Ear, Nose & Throat guy who is a very well known thyroid surgeon. I suspect some of my sore throat is actually mucus caused by allergies and he will be able to confirm/help with that and he will be a third set of eyes on my throat.

Sorry for the long post but this will give you a little bit of my background :-).

Edited by: BAND_MAMA at: 9/16/2014 (14:16)
Lucy
USA Central Time
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/16/14 1:12 P

My SparkPage
Send Private Message
Reply
Hi Feral!

Frankly...I think that your efforts might be better spent in finding another doctor, rather than trying to explain yourself repeated to this one.

New blood work was prolly suggested by the pharmacist, to see it there's been a change in your blood levels of thyroid hormone on the generic.
But with your current doctor ignoring both you and the pharmacist, AND calling in a generic again, I think you've got your answer.

Your doctor doesn't want to be be bothered.

: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
FERALAUNTIE's Photo FERALAUNTIE SparkPoints: (3,784)
Fitness Minutes: (3,015)
Posts: 378
9/16/14 12:59 P

My SparkPage
Send Private Message
Reply
Mzzchief, still having problems getting my Synthroid. Dr. did not call into pharmacy even after 2 calls from pharmacy and 2 emails from me. Today I heard that she called in generic again. Pharmacist did not understand me wanting the name brand back and said I should probably get blood test again. She did not think my swollen feet/ankles had anything to do with genetic. Oh, well. Guess I'll get appointment with doc and explain face to face. I'll also see if I can get a cheaper price at Wal-Mart. Seems like the price went up for brand name recently. Oh well, if it was not difficult to do, it probably would not be worth doing.

Linda


 Pounds lost: 2.6 
 
0
39
78
117
156
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/16/14 11:47 A

My SparkPage
Send Private Message
Reply
Mama

Specific to this in your post:

" I was on Armour 30 mg for a year before getting the Hashi's diagnosis. My gynecologist increased it to 60 mg about a month ago and the endocrinologist increased it to 90 mg last week, and added desiccated adrenal. I'm trying to be patient but I'm not one to sit on my hands and wait".

I have not seen your lab results (Free T3,Free T4, TSH) but unless you had minimal problems with your thyroid, 30 mgs of Armour is a very low starting dose.

That said, if you have adrenal burn out, you WANT to start out low and gradually increase to your optimal dose, bc increasing your thyroid replacement without adrenal support can cause you problems. Adrenals are like the body's EMS team, they're suppose to help out for emergencies, they're not there for long term care. They become exhausted when they have to do long term care, which is what happens to a lot of people who have been undiagnosed for a long time.

So yes, you need patience to let your entire body adjust to the new dose.
Which is why I am thinking your endo suggested the dessicated adrenal.

I don't recall your vitamin list, but a multi B vitamin, vitamin C or fruits and veggies that are high in C, are great for adrenals. Also take magnesium at the same time as the D to help your body assimulate it.

Keep all your vitamins and minerals 4 hours away from your thyroid replacement hormone.

Be well!
: )
Mzzchief


Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/16/14 11:35 A

My SparkPage
Send Private Message
Reply
Hi Band Mama

Hmm you asked what I think... ha... you know what they say... be careful what you ask for!

emoticon

I think we live in a toxic world.
That these toxins didn't exist pre-industrial age.
That some of the diseases we are seeing nowadays are as a result of chronic, low dose exposure to substances that our immune systems have not evolved to handle... but which make our lives more convenient and less expensive to live.
Couple that with stress, lack of exercise and sleep, 24/7 access to food, and it creates a perfect storm.

The short list of "the toxins of convenience" would be:
nuclear power (nuclear waste disposal, reactor meltdowns),
nuclear tests ( radiation),
coal burning (releases mercury into the air)
"silver" amalgams which are half mercury and release mercury thruout the fillings lifetime,
pesticides,
herbicides, (in farming as well as in our homes and gardens),
plastics (BPA ,estrogenic activity ),
coatings on fabrics to make them fireproof ( interferes with thyroid),
lead from old paint, leaded gas, battery manufacture,
leaks of perchlorate (most notably the accidental leak in Las Vegas, into the Colorado River, which feeds the Imperial Valley were much of our produce is farmed),
fluoride added to our water, fluoride tooth pastes, fluoride rinses (fluoride is a thyroid antagonist, and weakens older people's bones),
chlorine in the water which antagonizes the thyroid and combines with organic matter to form chloramines, a carcinogen,
GMO crops where interspecies genetic splicing as occurred in food crops, in order that they be resistant to whole field spraying for weeds and have built in insect protection as they generate a toxin that kills insects.

That as a result we have seen a meteoric rise in cancer and autoimmune disease.
There's more to add to the list, but those are the ones that come immediately to mind.

I also know that a menopausal body does not have the same hormones that a fertile one does. That from the perspective of evolution, once you can no longer have the option of reproduction, that you are simply taking resources away from those who can and your days are numbered. So your body isn't as primed for health the way a younger person's is. You become more um..."eligible" for autoimmunity. ha

Anyways, its not all doom and gloom!

But I do think that once you start with an autoimmune disease like Hashi's its time to clean up your exposure to chemicals and pay careful attention to what you put in your mouth. Control what you can and don't let what you can't make you crazy!

Keep a food diary, even if you don't use the Spark Tracker.
See what mornings you tend not to have joint stiffness, when you wake.
Note which mornings you feel your best.
Then look at your food diary and see what you did or didn't eat 24 hours earlier.
If you start seeing a certain food appear on your bad days, and not on your good ones, try eliminating that food for 2 weeks. How do you feel when you wake

Then eat it like crazy and see how you feel in the next 48 hours.

You are your own best detective.
Bc everytime you turn around, there you are... you can't hide from yourself!

Be well!
: )
Mzzchief




Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/15/14 9:40 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
Thanks Mzzchief. I feel very, very fortunate to have two different doctors run blood work and test for TPO antibodies to confirm Hashimoto's. My gynecologist found it and from there I found an endocrinologist known for treating Hashi's and adrenal fatigue. I thought I was going to cry when he confirmed both Hashi's and adrenal burnout. Between these two amazing doctors I've got quite a mix of am and pm vitamin cocktails to go with my Armour.

Neither of them seemed to think dietary changes such as a gluten free diet would help. I see from your sparkpage you also have Hashi's. What is your opinion? I probably put on 30 pounds in one year and another 30 over 3 more years and no matter what I've done I have not been able to lose weight. Prior to this I've never been overweight in my life. I'm hoping with the new vitamins and increased Armour I will be able to finally lose it. I was on Armour 30 mg for a year before getting the Hashi's diagnosis. My gynecologist increased it to 60 mg about a month ago and the endocrinologist increased it to 90 mg last week, and added desiccated adrenal. I'm trying to be patient but I'm not one to sit on my hands and wait.

Lucy
USA Central Time
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
9/14/14 3:42 P

My SparkPage
Send Private Message
Reply
Hi Sparkers!

Sorry I am just seeing all your posts now!
Not only am I on this team, but I've been one of three Team Leaders since 2007.

I kinda look at this forum as a part time volunteer job.
Which is why I have spend countless hours educating myself so that I can be an informed source.

Its also why you will see me making comments on just about every post!

I'm not sure why Spark took the team leaders off the forum headings, but I'd really like to see it put back, as it can be confusing for the Team. Perhaps they are heading in the direction of eliminating Team Leaders altogether, which would be a shame. Don't know.

Anyways, I am always happy to help and point people in the right direction.

One of the things I would like to clear up now, is that in the States, the vast majority of low thyroid cases, is as a result of Hashi's.

So much so, that doctor's don't even bother to test for it.

The test is for anti-TPO and anti-Thyroglobulin antibodies.
It costs about $120 -$160.

Because the treatment is the same, and the cause of low thyroid is usually autoimmune, its hard to justify the cost of the TPO and TgAB test to either the patient or the insurance company.

What this means is that most of us have a defective immune system.
In our case, the target is the thyroid.

The cause of our disease, auto-immunity, ie a defective immune system, is never addressed. They just treat the symptom, which is low thyroid, by replacing the hormone our thyroids should be making, with replacement hormones.

Hope that helps.
: )
Mzzchief



Edited by: MZZCHIEF at: 9/14/2014 (15:45)
Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/12/14 6:06 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
Thanks again Linda and Nancy!

You were right on with the Magnesium. Whew. What a doctor's visit! Long story short is I do have confirmed Hashimoto's, and I also have confirmed Adrenal Fatigue. A sonogram of my thyroid showed no suspicious nodules but he said I still have one ugly thyroid. He's increasing my Armor to 90mg, and he has added desiccated adrenal, l-tyrosine, DHEA, and magnesium to my mix of D3, Iron, C, and fish oil that I already take. My cabinet is starting to look like a pharmacy shelf lol. He said it will take about 3 weeks to really start feeling a difference, and a full six months to heal the adrenal glands and thyroid swelling. I have to go back in 2 months to repeat blood work. Dare I hope?

Lucy
USA Central Time
FERALAUNTIE's Photo FERALAUNTIE SparkPoints: (3,784)
Fitness Minutes: (3,015)
Posts: 378
9/12/14 12:15 P

My SparkPage
Send Private Message
Reply
Lucy, You were in the thyroid group, I had been going back and forth in groups via email and had a senior moment. Sorry! emoticon

Edited by: FERALAUNTIE at: 9/12/2014 (12:16)
Linda


 Pounds lost: 2.6 
 
0
39
78
117
156
UNICORN212's Photo UNICORN212 Posts: 9,332
9/11/14 9:45 P

My SparkPage
Send Private Message
Reply
Lucy - Add magnesium and stress B's for your adrenals. You are already taking D3 and fish oil. How's your calcium?

Mzz is in this group, too.

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/11/14 9:21 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
Thanks Linda. I sort of thought I was in the thyroid group lol.

I think I know everything I want to ask tomorrow. It has been a long time since I saw a new doctor and I'm just a little nervous. I've got copies of my last 3 blood tests spanning this past year, a list of all of my symptoms, a list of everything I'm taking, eating, and my exercise, and a list of questions. I'm not messing around huh :-).

Lucy
USA Central Time
FERALAUNTIE's Photo FERALAUNTIE SparkPoints: (3,784)
Fitness Minutes: (3,015)
Posts: 378
9/11/14 10:58 A

My SparkPage
Send Private Message
Reply
Lucy, check with Mzzchief in thyroid group. She is very knowledgeable about many health issues. Worth a try.

Linda


 Pounds lost: 2.6 
 
0
39
78
117
156
BAND_MAMA's Photo BAND_MAMA SparkPoints: (4,815)
Fitness Minutes: (11,091)
Posts: 126
9/10/14 10:27 P
Online Now  • ))
My SparkPage
Send Private Message
Reply
Jennifer my bloodwork was high a couple of months ago too. As a matter of fact it looked just like it had a year ago before starting to take Armour. My doctor doubled my dose and 6 weeks later my TSH went from 8.4 to .6! Better yet I am finally not hungry anymore. Dare I hope lol.

I was diagnosed with Hashimoto's several weeks ago at the same time though. When I asked my doctor what he knew about diet changes such as going gluten free, dairy free (God I hoped not) and soy free along with maybe testing for adrenal fatigue he looked at me as if I had 3 heads. I love him and after all these years he was the one smart enough to find this stuff but he's sort of new to dealing with autoimmune issues. He's my gynecologist and found it while testing all of my other hormones for um, menopause.

I have an appointment with an internist/endocrinologist this Friday. I am working on a list of things I would like answers to. Aside from the dietary changes I'd like to know if he will test for adrenal fatigue because I'm still so tired after doubling my Armour and giving up Gluten. I also want to know about exercise recommendations because I've heard you can over-stress with Hashimoto's so is switching from Zumba to Yoga really recommended? I'm taking Vitamin D, Iron, C, and Fish Oil now but wonder if selenium would be advised.

Are there any questions those of you who have been through this before think I should add to my list?

If any of you have given up Gluten did you feel better and how long do you think it took before you noticed a difference? How about dairy?

Lucy
USA Central Time
JENNIFER2578's Photo JENNIFER2578 Posts: 63
9/10/14 11:55 A

My SparkPage
Send Private Message
Reply
So I had my blood work done this week and they are telling me my level is at 12.780....REALLY HIGH. They asked if I have been taking my meds and I have. I forget sometimes on the weekend but for the most part I take them like I am supposed to. They are raising my dosage to 250mcg.




 current weight: 301.0 
 
301
298.5
296
293.5
291
FERALAUNTIE's Photo FERALAUNTIE SparkPoints: (3,784)
Fitness Minutes: (3,015)
Posts: 378
8/25/14 12:26 P

My SparkPage
Send Private Message
Reply
Yes, Jan I feel like I I'm running on 2 flat tires since changing. But, Medicare does not cover name brand. Found out from Mzzchief that it might be why my ankles have become kankles since the change. Going to ask doctor for 1 month of synthroid to see.

Linda


 Pounds lost: 2.6 
 
0
39
78
117
156
JANROIG SparkPoints: (12)
Fitness Minutes: (0)
Posts: 2
8/24/14 4:02 P

Send Private Message
Reply
Nancy, thanks for sharing. I'm due for blood work & am actually hoping the numbers prove I need to be on Synthroid. I hope your pooch is feeling better, as well as yourself! Janis

Edited by: JANROIG at: 8/24/2014 (16:04)
UNICORN212's Photo UNICORN212 Posts: 9,332
8/24/14 3:21 P

My SparkPage
Send Private Message
Reply
I used to take the generic levothyroxine and it did nothing for me. I switched to compounded thyroid and now take Armour. My dog had low thyroid and she used to have seizures. They had her on the generic and she developed licking sores (like hot spots) on her legs. We switched her to the name brand (Soloxine is the Synthroid for dogs) and not only did the sores vanish, but she went 3 years without a seizure. So for some, they need the name brand.

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
JANROIG SparkPoints: (12)
Fitness Minutes: (0)
Posts: 2
8/24/14 11:54 A

Send Private Message
Reply
I was on Synthroid for over 20 years, after having malignant nodules therefore total removal of thyroid. Last few months, my pharmacy has substituted it for generic brand and I haven't been feeling well, tired, weight gain, etc. anyone else experienced this? thanks

FERALAUNTIE's Photo FERALAUNTIE SparkPoints: (3,784)
Fitness Minutes: (3,015)
Posts: 378
8/18/14 12:10 P

My SparkPage
Send Private Message
Reply
My name is Linda. I have had nodules in my thyroid since 1985. I'm 67 and very overweight,. Have a hard time losing weight. Took synthroid until last yr. On Medicare they will only help with non brand prescriptions. My aunt had thyroid problem, but she was downright skinny. Guess I got the family flaw, but it was the bad one. Just joined SparkPeople last month. Love it.

Linda


 Pounds lost: 2.6 
 
0
39
78
117
156
UNICORN212's Photo UNICORN212 Posts: 9,332
8/12/14 3:50 P

My SparkPage
Send Private Message
Reply
Hashi's makes you go up and down and up and down until there is nothing else but down. A lot of people think they are bipolar or moody but it is the hypo - hyper swing that is happening.

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
MEGHANSTASIUK's Photo MEGHANSTASIUK Posts: 14
7/29/14 11:13 A

My SparkPage
Send Private Message
Reply
Thank you so much for the information! I really appreciate your feedback!

I have been on that dose for almost two years... and the last time I had blood work done was a year ago. I do have Hashimoto's, my apologies for not mentioning that. I was diagnosed with it 2 years ago...I never even thought to look into Hashimoto's and what effects my weight loss could be having on my body!

Thank you so much for your post and sharing your information with me! I will definitely be discussing this with my doctor when I see her in a few weeks!! Thank you!!!


 current weight: 178.0 
 
240
211.25
182.5
153.75
125
UNICORN212's Photo UNICORN212 Posts: 9,332
7/29/14 1:02 A

My SparkPage
Send Private Message
Reply
Meg - How long have you been on that dose and how long has it been since you had blood work? It is possible that you have Hashimotos and your med dose is too high now, making you hyPERthyroid. Only more blood work will tell. Many who are hyPERthyroid lose weight. The hyPOthyroid folks like me usually struggle to lose a pound. Make sure your doc knows about the bleeding. Definitely not normal!

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
MEGHANSTASIUK's Photo MEGHANSTASIUK Posts: 14
7/28/14 10:37 A

My SparkPage
Send Private Message
Reply
Hi!

First off, I am glad to hear that you are feeling human again Unicorn! I remember how crappy I felt before they finally diagnosed me with hypothyroidism years ago. Hopefully you continue on this path! :)

I was wondering if anyone else has experienced a similar issue with losing weight while taking medication for their hypothyroidism...I was diagnosed at age 16 with hypothyroidism (am now 25) and my current prescription is 125 mg a day.

I have currently lost just shy of 50 pounds and have been having spotting/periods between my periods for the last two months. The first one I thought nothing of as I believed it to only be spotting as it was fairly light, but the second time around, it has been much heavier and lasted for a longer period of time. I did some research and came up with that it may be caused by my thyroid. Has anyone else experienced something of this nature?

I am going to see my doctor the second week of August, but I was just wondering if anyone else has experienced anything like this with their thyroid or if this could have nothing to do with my thyroid at all...I can't seem to find anything on-line about it...

 current weight: 178.0 
 
240
211.25
182.5
153.75
125
UNICORN212's Photo UNICORN212 Posts: 9,332
6/22/14 4:08 P

My SparkPage
Send Private Message
Reply
Well, my doc washed her hands of my thyroid care and told me I would have to go to an endo. I made lots of phone calls and ended up going to an endo all the way on the other side of town (30 miles in traffic - ugh!) but he prescribed 60 mg (1 grain) Armour twice a day. Within 2 days my 24/7 hot flashes were gone. I get blood work done in another 10 days and go back on the 10th. Hopefully he will continue this dose. I actually feel human again!

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
GOANNA2's Photo GOANNA2 Posts: 11,204
5/31/14 5:54 A

My SparkPage
Send Private Message
Reply
I use Sorbolene with Vitamin E. Helps keep the moisture in.

 current weight: 180.0 
 
198
192.5
187
181.5
176
NGCHILD's Photo NGCHILD SparkPoints: (94,914)
Fitness Minutes: (50,688)
Posts: 7,543
5/27/14 8:53 A

Community Team Member

My SparkPage
Send Private Message
Reply
I also use a hemp oil spray in the summer. Gives that glistening glow of healthy skin!! Also helps with bug bites! LOL

emoticon

 Pounds lost: 66.9 
 
0
30
60
90
120
MIAMIRN's Photo MIAMIRN Posts: 501
5/23/14 10:21 P

My SparkPage
Send Private Message
Reply
Unicorn: I think you should make an appointment with the doc and discuss your concerns.

I use baby oil gel. It works for me. I think it's a good idea to add vitamin E. oil. I'm going to try it.

emoticon emoticon



Edited by: MIAMIRN at: 5/23/2014 (22:21)


Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


 current weight: 172.0 
 
179
176.75
174.5
172.25
170
ANTIGONAKI's Photo ANTIGONAKI SparkPoints: (16,366)
Fitness Minutes: (10,829)
Posts: 836
5/22/14 3:05 P

My SparkPage
Send Private Message
Reply
I use Olivia olive oil hand lotion... I have one in my gym bag, one in my weekend/family outing bag and one in my purse.... as well as a large sized one in my bathroom, works better than body cream, especially on knees and elbows.

 current weight: 244.4 
 
244.4
222.05
199.7
177.35
155
NGCHILD's Photo NGCHILD SparkPoints: (94,914)
Fitness Minutes: (50,688)
Posts: 7,543
5/22/14 10:50 A

Community Team Member

My SparkPage
Send Private Message
Reply
Dry skin here too but I have been making my own lotion and LOVE it!!

1 large bottle of any lotion (I prefer anything coconut)
1 large tub of vasoline
1 small tub of vitamin E lotion (found a 2 pack at Walmart Fruit of the Earth brand)

Mix all together and store in above containers. (I mix it with a hand held mixer)

emoticon

Edited by: NGCHILD at: 5/27/2014 (08:50)
 Pounds lost: 66.9 
 
0
30
60
90
120
MOMMY445's Photo MOMMY445 SparkPoints: (138,479)
Fitness Minutes: (97,923)
Posts: 8,494
4/15/14 5:28 P

My SparkPage
Send Private Message
Reply
i find that my skin is drier than it used to be. so i keep a good supply of lotion with me whenever i go out.

 current weight: 352.0 
 
356
339.5
323
306.5
290
UNICORN212's Photo UNICORN212 Posts: 9,332
4/14/14 10:45 P

My SparkPage
Send Private Message
Reply
Sigh. I thought I had a good doc. Now I am not so sure. She had increased my NDT to 1 grain BID but now says my TSH is too low and she wants me to go back to .88 grains BID. This, after telling me the last time I was in there that she prescribed to how the patient feels, not to the numbers. All the office left is a message on my machine so I will call tomorrow to have them fax a copy to me.

And I was hoping the eyebrows were going to come back. I was only on the new dose for 2 1/2 months....

And she wants me back on statins, too. If I refuse will that make me a difficult patient and no one will treat me for anything after that?

~Nancy

"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


 current weight: 148.6 
 
165
156.25
147.5
138.75
130
GOANNA2's Photo GOANNA2 Posts: 11,204
3/29/14 4:47 A

My SparkPage
Send Private Message
Reply
Welcome back. Good luck. I have been hypo for
about that long and I seem to be playing with
the same 5 kilos - on and off. When I turned fifty
I decided to get healthy and got down to 55 kg
but it was too low. Now I struggle between 80
& 85. Good luck to us both. Eat healthy and
Exercise. Should be so simple.

 current weight: 180.0 
 
198
192.5
187
181.5
176
NYCALIGIRL's Photo NYCALIGIRL Posts: 477
2/25/14 12:15 P

My SparkPage
Send Private Message
Reply
Hi I am just posting to say hello to everyone...i have come back to spark people to do a restart for myself and my goals...I have been hypothyroid for 18 yrs next month...and I am 40 so weight loss is not too easy for me unless i become super obssessive which i wass several years ago ...just looking back on things i realized this with the wieghtloss that was achieved of 55 pounds in 3 months...i 'm striving for a different route this time and just trying to figure it all out...thanks for listening

 Pounds lost: 36.0 
 
0
9
18
27
36
GOANNA2's Photo GOANNA2 Posts: 11,204
2/10/14 5:39 A

My SparkPage
Send Private Message
Reply
Good blog. Have a great week.

 current weight: 180.0 
 
198
192.5
187
181.5
176
MIAMIRN's Photo MIAMIRN Posts: 501
2/7/14 6:12 P

My SparkPage
Send Private Message
Reply
Hey!

I'm not writing about Thyroid in this post. I just wanted to say a few things.

I've read several posts where insurance wouldn't cover medications or procedures. I used to be a case manager in my RN days. I'm now on straight Medicare. I may be able to answer or find you resources on Medicare if you are interested. Just post or PM me. I would be glad to try to help :)

I'm new here and think this forum is utterly amazing! The positive support and knowledge base here is enormous.

Thank you all for your questions. They inspire me. Thanks for your answers. They are so helful to this newbie :)

If you get a chance and like swimming you can read my blog I wrote today. I'm new at blogging so forgive me if it appears a little awkward. I guess you can't go wrong sharing your thoughts.

I heart SparkPeople. Isn't this a great place?


Have a great evening!


www.sparkpeople.com/mypage_public_jo
ur
nal_individual.asp?blog_id=5617953


emoticon emoticon



Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


 current weight: 172.0 
 
179
176.75
174.5
172.25
170
SMILEY3826's Photo SMILEY3826 Posts: 2,695
12/28/13 6:30 P

My SparkPage
Send Private Message
Reply
have a great january!

 current weight: 140.0 
 
172
162.25
152.5
142.75
133
GOANNA2's Photo GOANNA2 Posts: 11,204
12/1/13 3:05 A

My SparkPage
Send Private Message
Reply
emoticon Have a great December.

 current weight: 180.0 
 
198
192.5
187
181.5
176
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
11/25/13 6:00 P

My SparkPage
Send Private Message
Reply
You're most welcome!

: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
MOMMY445's Photo MOMMY445 SparkPoints: (138,479)
Fitness Minutes: (97,923)
Posts: 8,494
11/24/13 6:43 P

My SparkPage
Send Private Message
Reply
thanks for the tips and suggestions!

 current weight: 352.0 
 
356
339.5
323
306.5
290
MZZCHIEF's Photo MZZCHIEF Posts: 9,198
10/27/13 2:27 P

My SparkPage
Send Private Message
Reply
Hi Wife!

This team is plenty active, its just that sometimes I don't see all the threads and get a chance to respond.

I've got lots of information in my blogs, from recipes, to articles, general information.

If you have a specific question, pls start your own thread.
that will get you a much faster response... questions asked on these longer threads often get lost.

You can also look thru archived files.

Thyroid disease and over 50, that's two hits to hair growth and thickness.

Making sure you're optimized on your thyroid medication, getting good nutrition (protein, bvitamins, biotin, iron, silica, etc), checking your sex hormones, treating your hair gently (not over processing it, using harsh styling methods like curling irons and heat, are all tips you might be able to use.

I color my hair twice a year, and use a gentle shampoo and conditioner.
Brush then comb it to get rid of knots before I go in. Giovanni Shampoo and Condition.
Comb it out when I'm rinsing out my conditioner under the falling shower water, starting from the ends and working up. The water and conditioner allow knots the hair to slide out.
Yet it air dry naturally, and use a silicone product "sleek and shine" made by Fructis to tame frizz and add body.

: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
1WIFE2MOM's Photo 1WIFE2MOM Posts: 3,674
10/25/13 8:12 A

My SparkPage
Send Private Message
Reply
Morning Friends,

I posted on the tips thread and have not heard back. Is this site just not active? I used to post on her some, but it has been a while.

Looking for information about hair, mine seems to be very thin and fine now. I am over 50 and have hypo. I have for 20 plus years. Any suggestions?

Blessings,
Ali emoticon

Miss no single opportunity of making some small sacrifice, here by a smiling look, there by a kindly word; always doing it all for love.
St. Therese of Lisieux


 Pounds lost: 11.6 
 
0
8.25
16.5
24.75
33
GOANNA2's Photo GOANNA2 Posts: 11,204
9/30/13 3:48 A

My SparkPage
Send Private Message
Reply
Congratulations on the weight loss ladies. I am
back to getting serious again as I had let my emotions
control my eating.

 current weight: 180.0 
 
198
192.5
187
181.5
176
MOMMY445's Photo MOMMY445 SparkPoints: (138,479)
Fitness Minutes: (97,923)
Posts: 8,494
9/29/13 8:15 P

My SparkPage
Send Private Message
Reply
i am down a pound this week! all of my hard work and efforts are paying off!

 current weight: 352.0 
 
356
339.5
323
306.5
290
KSTONYA's Photo KSTONYA Posts: 327
9/26/13 11:33 A

My SparkPage
Send Private Message
Reply
Finally I have gotten down to my Doctor's Goal of 135 by my last appointment on the 4th. I talked to him about trying to get another 5 pounds off and he said that was good as I get older the more weight I can keep off the better. With the less weight I am having my "hypoglycemia symptoms again. This is because my metabolism is working again so the hardest thing I have to watch is that I do not over eat to get rid of the hypoglycemia symptoms and start gaining weight again. I am having to find the balance between the metabolism burn and the hypoglycemia symptoms.

emoticon keep up the good work everyone. I found I had to do the fast metabolism diet to get the pounds off. Now just have to keep them off.

www.fitbit.com/user/2653DJ
http://www.fastmetabolismdiet.com/


 current weight: 0.0  under
 
5
2.5
0
-2.5
-5
JMBARRAGAN's Photo JMBARRAGAN Posts: 12
9/22/13 12:08 P

My SparkPage
Send Private Message
Reply
When I startled the medication for hypothyroidism I really didn't feel or start to see any results for about 3 months. It is great that you r exercising because that is a battle in itself. Keep it up! I recently discovered from a SP article that I need to put the scale away. I found through the years that if I saw a good weight loss it was as is my brain said good job now you can eat a little more. And if I saw no weight loss or a gain I was get frustrated to the point of giving up many times. Try looking at how your clothes fit and feel and limit the scale to monthly. Do the tracking to keep yourself accountable. I wish you the best while your doctor works with you.


With God all things are possible.


 Pounds lost: 12.6 
 
0
13.5
27
40.5
54
KSTONYA's Photo KSTONYA Posts: 327
9/15/13 1:52 P

My SparkPage
Send Private Message
Reply
Goanna2 keep going. Did the doctor get the rest of your tests scheduled. I have my headache under control some but need to keep taking the meds every 12 hours. As it is a controlled meds I can only have about a 15 day supply at a time. Each box is a 10 day supply of 20 pills. It is difficult as that is the only med that I can take for allergy and sinus` headaches that does not give me an ear infection.

keep going emoticon

www.fitbit.com/user/2653DJ
http://www.fastmetabolismdiet.com/


 current weight: 0.0  under
 
5
2.5
0
-2.5
-5
GOANNA2's Photo GOANNA2 Posts: 11,204
9/14/13 3:39 A

My SparkPage
Send Private Message
Reply
I hope your headache goes away soon. It is good that you
got you flu shot nice and early. I also went to my GP today
and he saw the x- ray of the CT chest but could not find the
results. Told him I was feeling tired and he saw that I'd had
thyroid test 2 months ago and ordered new ones so had some
Today and some for frolic acid, iron, and full blood count. I
left and got on bus to go shopping and the receptionist phoned
me on my mobile phone to go back as the doctor wanted to
talk to me. Went back and said he found the CT report and it is
suggested I go back do a second CT scan to have the liver
checked as there are lesions that are unexplainable. That of
course worried me a little and could not do anything. So I had a
nap for a few hours. Just have to wait and see and hope it is
nothing to be concerned about. My doctor's words on the request
form we're ' metastasis'?'? So can you blame for feeling down?
I know, I know, I have to be positive. My sister had liver cancer
5 years ago and my mum died from that as well.
Say a prayer for me- the good thing with the liver is that it can
regenerate if caught and treated early enough.

 current weight: 180.0 
 
198
192.5
187
181.5
176
KSTONYA's Photo KSTONYA Posts: 327
9/6/13 12:09 P

My SparkPage
Send Private Message
Reply
I had my Doctor visit Wednesday. I weigh in on Wednesday and was 136 my Doctors goal is 135. I told him I wanted to try and get down to 130 and he was fine with that. I asked about the pancreas disorder the pharmacy said the script code came back as and he ordered a test to check that and has no idea why the pharmacy would not issue a meter on a Diabetic code. Somewhere there is a coding error. I also had a bad sinus headache and my husband said he could tell and everyone asked me if I was in pain. Very much so. Also as the Flu shots were in I got mine so on top of the headache I had about 24 hours of cold issues. Still just the headache now so hope to be on the mend soon.

www.fitbit.com/user/2653DJ
http://www.fastmetabolismdiet.com/


 current weight: 0.0  under
 
5
2.5
0
-2.5
-5
GOANNA2's Photo GOANNA2 Posts: 11,204
9/2/13 8:13 P

My SparkPage
Send Private Message
Reply
Survived the procedures. I am really disgusted
as I was really discriminated at this private hospital.
I was there on time for 9am admission and didn't get
taken in for prep till 11.40 am because I am not in any
'private fund' but had to pay for using the hospital my-
self. I was first and my file lay in the tray while others
who came after me got taken in right away. Then they
gave me a blue robe and everyone else was wearing white,
so I stood out like a sore thumb. Even the surgeon didn't
look me in the eye when he asked me a few questions
while on the OR table. Made me feel like a pariah...
Anyway the one good thing the receptionist pointed out
was that they only charge $320 and I paid the surgeon's
office $375 for the hospital and suggested that I ask about
this. When I asked was told no, that is what it is for 2 procedures.
I feel as though I have been diddled out of $55 and nothing much
I can do about it. Anyway, said everything was fine and they 'took
samples' whatever that means. Will have to wait for the results
to go to my GP. Ah, the joys of getting old. What you said about
having to be diagnosed - I have been since 1999...

 current weight: 180.0 
 
198
192.5
187
181.5
176
KSTONYA's Photo KSTONYA Posts: 327
8/31/13 11:28 A

My SparkPage
Send Private Message
Reply
I found that some of the tests will not be available if you are not "diagnosed" with a problem. IE I have been having hypoglycemia symptoms and be cause I am not diabetic I can not get a meter script. My Doctor says it is a pancreas disorder. I have my regular doctor visit next week so I will be getting that checked when I go in. I have found that some doctors because they are specialist can get the codes that will be approved where non specialist can not. You might try only paying for it when you can and do with the other tests the rest of the time. I cannot afford non-covered tests either. I used the flavors that I got for my test that I did not use in other water so I did not waste them. I hope your test Monday goes good.

emoticon

www.fitbit.com/user/2653DJ
http://www.fastmetabolismdiet.com/


 current weight: 0.0  under
 
5
2.5
0
-2.5
-5
GOANNA2's Photo GOANNA2 Posts: 11,204
8/31/13 8:15 A

My SparkPage
Send Private Message
Reply
No, this is something I'll have to pay. Our Medicare is bulk
billed and anything that is not listed is extra. We used to
have pathology for cholesterol and thyroid every 3 months
and now doctors tell us it is every 6 months. I just keep
asking. There has been a big change in our health system
and a lot of cuts make it hard for pensioners and people
needing Medicare the most. Change in the name of progress
I suppose. We are still very lucky to have the system we do have.

 current weight: 180.0 
 
198
192.5
187
181.5
176
KSTONYA's Photo KSTONYA Posts: 327
8/30/13 9:08 P

My SparkPage
Send Private Message
Reply
American you might check with your endo if you cannot get it covered in Australia I sometimes get the different countries mixed up you might also check your doctors different ones might be able to get it covered. You might also might contact your medicare help line

Edited by: KSTONYA at: 8/30/2013 (21:11)
www.fitbit.com/user/2653DJ
http://www.fastmetabolismdiet.com/


 current weight: 0.0  under
 
5
2.5
0
-2.5
-5
KSTONYA's Photo KSTONYA Posts: 327
8/30/13 9:03 P

My SparkPage
Send Private Message
Reply
For one thing getting upset about the food is not helping. Drink your water and tea and other Clear liquid items you want to clean out the bowel so water and clear liquid is the best. Tea and coffee are considered Clear liquid for that test if I remember right. They should have given you a list of foods and drinks you can have space out the water etc until so you do not get bloated but feel full.

www.fitbit.com/user/2653DJ
http://www.fastmetabolismdiet.com/


 current weight: 0.0  under
 
5
2.5
0
-2.5
-5
GOANNA2's Photo GOANNA2 Posts: 11,204
8/30/13 7:04 A

My SparkPage
Send Private Message
Reply
All the good work I have accompished in the last 3 months
by giving up white carbs seems to have been undone.
I started the 'lite diet' yesterday to prepare for my
procedure on Monday and most of it is white carbs
and I am hungry all the time. Can't believe this is happening.
Any advice? I have Saturday left and then Sunday I will drink
the cleansing stuff.

 current weight: 180.0 
 
198
192.5
187
181.5
176
GOANNA2's Photo GOANNA2 Posts: 11,204
8/29/13 6:51 A

My SparkPage
Send Private Message
Reply
Are you talking about American or Australian Medicare Tonya?
Anyway, just checked and saw that I do have the lemon flavour
of the mixture to drink, so shouldn't be too bad.

 current weight: 180.0 
 
198
192.5
187
181.5
176
KSTONYA's Photo KSTONYA Posts: 327
8/28/13 10:33 A

My SparkPage
Send Private Message
Reply
Goanna I am on medicare I get it all the time. your doctor just has to order it. I remember the prep to I was able to add flavors to mine which helped. If your doctor will not order it then find another doctor.!

www.fitbit.com/user/2653DJ
http://www.fastmetabolismdiet.com/


 current weight: 0.0  under
 
5
2.5
0
-2.5
-5
Page: 1 of (86)   1 2 Next Page › Last Page »

Report Innappropriate Post

Other Thyroid Community General Team Discussion Forum Posts

Topics: Last Post:
mzzchief temporarily offline! 3/15/2014 11:08:16 AM
On a morning when you forget to take your meds... 4/5/2014 11:49:21 AM
LDN success stories? 11/11/2013 12:03:35 PM
help! got test back 6/27/2013 11:08:43 PM
Suppressed TSH 11/3/2013 11:05:03 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x732x2044878

Review our Community Guidelines