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AURA18's Photo AURA18 Posts: 8,017
11/22/17 10:14 A

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emoticon emoticon Blessed with a supportive emoticon community emoticon

I'm finding more answers. Reading several of the latest thyroid books. Thyroid Connection, Amy Myers *** Hashimoto's Protocol, Izabella Wentz *** Thyroid Healing, Anthony William.
I have Autoimmune Hypothyroidism --- Hashimoto's. I read enough to trace the root cause to Epstein-Barr virus (EBV). Back in college, 1982, several people had mono and I wasn't as sick but exposed. My thyroid wasn’t tested until 2009.
Finding the root cause helps with treatments of diet and lifestyle changes. This summer I had leaky gut symptoms - palpitations and numbness. Digestion has improved by avoiding food on Plant Paradox lists gundrymd.com/plant-paradox-shopping-
li
st/

Link to Thyroid Healing free course to find recommended foods. www.medicalmedium.com/healingpath
Next combine PP lists with Thyroid Healing foods to prevent further symptoms of hypothyroidism. Main goal is to reduce the need for medication and digestion supplements.

Edited by: AURA18 at: 11/22/2017 (10:14)
Maribeth - MN(CT) Goals-healthy eating, drinking glacier water, strengthening muscles and sleep Mind/Body www.sparkpeople.com/resource/mind_ov
er_body_fat.asp
100 planks www.youtube.com/watch?v=nDNOZCoBFqg
YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (196,877)
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11/15/17 9:37 P

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Yes, I have Hashimoto. The tech that did my ultra sound told me this but what you said makes more sense.

Thanks,

Jane



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UNICORN212's Photo UNICORN212 Posts: 12,708
11/15/17 9:07 P

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Jane - I really doubt that is the case. I know people who have been taking Synthroid (or the generic) for 30 years and they still have a thyroid. Do you have Hashimoto's? Even if you are taking meds, the Hashi's can continue to attack your thyroid.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (196,877)
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11/15/17 6:50 A

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I found out recently that because I have taken Synthroid for years that my thyroid is almost non existent. No one ever mentioned this would happen.

Jane on Guam



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UNICORN212's Photo UNICORN212 Posts: 12,708
11/9/17 11:31 P

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Your TSH has improved (July looks better than March), but I would ask them if they would at least test Free T3 and Free T4.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RMUL2013's Photo RMUL2013 Posts: 21,150
11/9/17 8:24 P

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TSH 3rd Gen taken 7/14/17.......... 1.790 and the range is 0.358 - 3.740
" " 3/02/17............2.826 " "

I do not know what the T3 or T4 is. Something I need to ask the Dr.





Edited by: RMUL2013 at: 11/9/2017 (20:25)
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UNICORN212's Photo UNICORN212 Posts: 12,708
11/9/17 8:03 P

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TSH is actually the measurement of the pituitary hormone that is telling the thyroid to produce more T4. The cells convert T4 to T3 which is used to power the metabolism and body functions. Free T4 and Free T3 would measure the availability of these hormones in the blood for the cells to use. Free T3 is more important to look at than TSH.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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UNICORN212's Photo UNICORN212 Posts: 12,708
11/9/17 8:00 P

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What was your result and what was the range? Did they do any other thyroid tests? Free T3 and Free T4?

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RMUL2013's Photo RMUL2013 Posts: 21,150
11/9/17 1:08 P

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My last TSH 3rd Gen test showed that my numbers were within the allotted range. Is that what you mean? Because of the numbers,the doctor did not change my dosage.

I'm going to look up Selenium and read about it.

Thanks in advance for your help.


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UNICORN212's Photo UNICORN212 Posts: 12,708
11/8/17 10:23 P

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I have always been told (by Spark articles and mt endo) men should not eat less than 1,500 calories a day, and women should not eat less than 1,200 a day. How are your Free T3 and Free T4 levels? You could try adding selenium - it is supposed to help you convert T4 to T3 and metabolize the meds better. Also, if you build more muscle it will help increase your metabolism.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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RMUL2013's Photo RMUL2013 Posts: 21,150
11/6/17 1:46 P

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My thyroid has been totally removed because of cancer. The only med I have been on is Synthroid and the dosage presently is 112Mcg.

My endocrinologist has stated that my metabolism is REAL slow and says that 900 calories per day is what I may need to lose weight. I have read somewhere that 1000 calories per day should be the least amount. Any information would be appreciated.

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MZZCHIEF's Photo MZZCHIEF Posts: 10,353
10/31/17 4:32 P

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Hi Nan

Blanket statements from your Pharmacist like :

Armour is the best thing anybody can take with the least side effects.

Is neither realistic or helpful.
Its just like a doctor insisting that Synthroid is what's best for you.

Human beings are very different.
if 99% of people are doing well on a med, and you're in the 1% that isn't... that 99% isn't relevant.

Armour is a combination T3 and T4 medication. It has a LOT of the short acting T3, the " good to go" thyroid hormone, not so much of the longer lasting T4, which needs to have an iodine molecule removed in order for a cell to unlock its magic.

T3 great for people who are having a difficult time, for whatever reason, converting the inactive T4 to T3. But its godawful horrible for those who easily convert, bc suddenly you have all this active excess thyroid hormone running around the body, and yes you will begin to have the symptoms of hyPERthyroid disease, which sounds like what you are describing here.

I am also curious what your blood calcium levels are. Sometimes they remove the parathyroids and that causes some of the problems you are describing.

224 levothyroxine is a huge dose.
How did you ever get put on that much levothyroxine?
75 - 125 mcgs is normal for most women.
How much do you weigh? If you're over 180 pounds this might be why you're on so much.

Some of your symptoms are the result of changing reproductive hormones.
Perimenopause is frequently when thyroid disease raises its ugly head.
I can assure you that the woman you are pre-menopause, will not be the woman you reasch full menopause. There will be a profound change in your weight distribution, how many calories you can eat, skin, hair and nails, muscle mass, join pain, cholesterol. And it happens in a very compressed time frame.

Its been a while since you wrote, sorry, I'm not been on as much as in the past.
How are you feeling currently?

Cheers
: )
Mzzchief

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UNICORN212's Photo UNICORN212 Posts: 12,708
10/9/17 11:57 P

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Nan - Do you take the Armour once a day or twice a day? I am on NPThyoid and I take it twice a day. You might check with your doctor to see if you can split your dose. T3 has a short half life. I take 1 pill in the morning and one mid afternoon, usually between 2 and 3.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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NAN5051 Posts: 1
10/8/17 2:56 P

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hi I was diagnosed with Hashimoto's disease since I was 21. Finally at the age of 50 a year ago my thyroid had over 26 cysts on it so they had to do a total thyroidectomy. Thinking I would feel better was a joke :-( I have never been so miserable in my life. I have no energy, my hair is dry, I have Fog brain, anxiety, depression, I have been in and out of the hospital with them thinking it's a heart attack or a stroke. And all it is is my thyroid is completely either too high or too low. They had me on 224 micrograms of Levoxyl, but it was making me cough and causing my heart to palpitate too much. I have now been put on Armor and I am taking 90 milligrams a day. All of a sudden I am getting periods again. I've been on it for almost 30 days. But I'm still having difficulties with anxiety and depression :-( I don't know what else to do. Has anybody else experience this when they first started taking Armour? My pharmacist said that Armour is one of the best things anybody could take. It has the least side effects. I just want to feel like myself again. I would appreciate any feedback thank you very much. Nan

MZZCHIEF's Photo MZZCHIEF Posts: 10,353
9/4/17 5:01 P

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Hi Foleya

Sorry, it's been a while, what did you wind up doing?

To be perfectly frank, I place very little faith in numbers, once we are on thyroid hormone replacement, bc so much depends on when you took your last dose, and when your blood is drawn. The numbers are dynamic, they change so rapidly, even more so when you're on a med that includes T3, due to its short half life of 24 hours, versus T4s 5-7 days.

I think dosing ought to be based on symptoms and how we feel.

Unfortunately many doctors don't, and therein lies the rub.

: )
Mzzchief



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Hello, 60!

Never underestimate the value of getting out of your own way.

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MZZCHIEF's Photo MZZCHIEF Posts: 10,353
9/4/17 4:50 P

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Hi unicorn
Sorry this slipped by me.
Biotin interferes with the assay that calculates your TSH.
Biotin is water soluble, so doesn't last long in our bodies.
But to be on th safe side, I'd stop taking your supplement about 3 or more days before your blood work.

Best to you!
: )
Mzzchief

New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

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UNICORN212's Photo UNICORN212 Posts: 12,708
8/14/17 11:36 P

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And Mzzz - is there a way to take Biotin where it does not mess up the labs?

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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UNICORN212's Photo UNICORN212 Posts: 12,708
8/14/17 11:35 P

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Mzzz - what does the biotin do to the TSH? I will need to ckeck my multi. Yes I know TSH means little when you are on a porcine, but it may help my doc be more comfortable with my lab work!

Foleyda - no, I can't remember exactly, but I think he moved to Ohio.

It has now been 9 years (this month) since my thyroid kicked the bucket.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 10
8/14/17 11:30 A

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It's interesting that Mzzchief mentioned Biotin because I've noticed on the store brand of multivitamin that has 300 mcg of biotin that my nails are much stronger and grow quickly. I've been taking it for quite a while but never connected the two. I used to take a Centrum Women 50+ multivitamin and I believe it contains less biotin which might be why my nails in the past were brittle. I'm making my list of questions for my appointment this Wednesday and I'll report back to this site. She evidently isn't alarmed by my lab results because she hasn't contacted me. BTW, your favorite doctor didn't move to North Carolina did he?

UNICORN212's Photo UNICORN212 Posts: 12,708
8/12/17 11:43 P

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If she asks, tell her you forgot. She may not even ask. And when she does the blood work, ask for Free T3.

The doctor that diagnosed and treated my reverse T3 and put me on the porcine thyroid meds (I wish he had not moved out of state!) told me about not taking the meds before the blood draw. He was the best doctor I have had in 9 years of battling this disease, and I miss him. He actually listened. And if he was not sure about something, he researched it. He did not just throw T4 at someone and pat them on the head like so many seem to do.

A friend of min had her thyroid ablated years ago and she just had to have two parathyroid glands removed. She thought the two might be connected. If your calcium levels are high, you might want to ask your doctor to check.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 10
8/12/17 6:36 P

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Thanks for your reply. Let me give you some history. I'm soon to be 71 years old so am past all that menopausal stuff. I've been treating my ablated thyroid for at least 25 years with t4 (.112 mg) only meds. During the past year it became apparent they weren't helping. I saw my current endo on April 26, 2017 and she wanted to start me on 90 mg of Armour but I asked for less to start out so she prescribed 60 mg. My first labs were done on June 13 (I took my Armour b4 labs), and t4 was slightly outside bottom of range, and TSH was at high end of range but not outside the range. She said she saw that t4 behavior in many of her Armour patients.

At that point I had some dizziness and fatigue but overall felt better than when I was on t4 only. Since I felt better, she wanted to hand me off to my primary doctor but I thought this was a bad idea. She kept me on 60 mg and I returned for labs on August 9. This time I didn't take the Armour until after labs and you know how those turned out. So I've been on Armour for about 12 weeks.

I take a multivitamin each evening along with a vitamin C tablet. The multivitamin contains 300 mcg biotin or 100% of daily value. The only other pill I take is the Armour in the AM. I'm very healthy for my age. FYI: My mother had Graves and so did an aunt.

I apologize for the length of this post. I have to admit I don't have a lot of confidence in this doctor, but I think she'll be OK with me switching to NP Thyroid and increasing the dosage. I plan to ask for t3 to be included in the next labs even though she refuses to discuss the t3 results. She'll want to know why I didn't take my Armour b4 the last labs and I'm not sure what I'm going to say. Any suggestions?

MZZCHIEF's Photo MZZCHIEF Posts: 10,353
8/12/17 4:01 P

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HI Foleyda

Sorry I'm just getting to your response now, as I am just seeing it.
Nancy has given you some good advice.
Even better, bc she is on another one of the Porcines, whereas I'm still on Synthetics

With TSH... that is usually very slow to change.
Even after stopping thyroid meds completely, or starting up a new prescription, it takes the TSH 6-8 weeks to fully change.
Whenever there's T3 involved, the change is faster... but overnight?
A 9+ TSH is astonishing.

This leads me to believe there's something potentially interfering with the TSH assay.
So perhaps you can help clarify... are you taking a multivitamin... and if yes, would you please check and see if its got Biotin in it? Also are you supplementing with Biotin ( a Bvitamin) in any other supplement or form. Bc Biotin interferes with the assay for TSH, and is commonly included in multis now and hair loss formulas.

It saddened me to learn that your doctor was short with you, and irritable.
Whereas I can understand her reluctance to test for T3, that she would refuse to share the results with you, is puzzling, since its a patient's lawful right to have access to all their labwork.

IMO you are making a good choice, finding a different doctor.

One other thing... if you are perimenopausal or going thru the Change, you will have some of the symptoms you described in your posts. Unfortunately our thyroids being off, is for some ( that would include me), one of the FIRST signs we are entering perimenopause.

Many of the symptoms overlap, bc for many people, so its difficult to know what hormone loss is causing your symptoms at any one time.

Stay in touch!
: )
Mzzchief



New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

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FOLEYDA Posts: 10
8/12/17 11:11 A

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This doctor doesn't test t3; says it's too unstable. She said she would do t3 if I want it but she would not discuss results. I'm in the process of finding a different doctor closer to me who has experience with desiccated thyroid medications. Difficult to find. My current symptoms are sweating and heat intolerance, always tired even after a pretty good night's sleep but sometimes can't fall asleep, lack of energy, some weight gain, light headedness, and depression. I see her Wednesday to discuss the labs and I intend to have her switch me to NP and to do t3 at next labs. Should I start at less than 60 mg on the NP? I'm currently on 60 mg of the Armour but that appears to be too low based on these recent labs.

UNICORN212's Photo UNICORN212 Posts: 12,708
8/11/17 11:10 P

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It sounds to me like your meds are too low. 1 grain a day is low. Most take 2 to 3 grains a day. I take 2 (a grain is about the same as 60 mg). Your free T4 should be much higher, your TSH should be much lower. Did they test free T3?

T4 stays in the body a long time - the half life is 5 to 7 days. The half life of T3 is about 1 day, it peaks in about 5 to 6 hours. So, if your body were on the right amount of medication, it would not matter if you skipped a dose, your Free T4 would have been in the normal range. And if your body were converting T4 to T3 properly, your TSH would have also been in the normal range, toward the lower end, since the T4 you had previously taken would stay in your body, being converted to T3, for nearly a week.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 10
8/11/17 4:28 P

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Ok, got my lab results today. Let me say this is the first time I have EVER done labs without taking my AM thyroid medication and I'm not sure it was the right thing to do. My FT4 was .55ng/dL, using a range of .66-1.14ng/dL. My TSH was a staggering 9.298ulU/mL, using a range of .450-5.330ulU/mL. My TSH has never been that high in all the 20+ years that I have been taking thyroid medication. The FT4 last time was .61 so it's gone up but don't know if that's good or bad. I'm really concerned about the TSH being in a danger zone and what that means for me. I see the doctor on Wednesday to review all this and I'm sure she's going to ask me if I did anything different this time. I feel like a kid who just got caught smoking behind the school!!

UNICORN212's Photo UNICORN212 Posts: 12,708
8/7/17 10:52 P

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My doctor was fairly new to me when I switched, and he backed off my dose a little thinking I might metabolize the new pill differently. I took 2 grains a day of Armour and what I am taking now is supposed to be the equivalent. I take the second pill in the afternoon because that is when I hit the wall - no energy, etc. I think I burn through the T3 in the morning pill by 2 PM and need more.

Edited by: UNICORN212 at: 8/7/2017 (22:55)
~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 10
8/7/17 12:22 P

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I checked with my insurance and they don't cover NP, which wasn't a surprise. My pharmacy can order it and the price is about half of Armour. I'm using the Good Rx card because I'm paying cash. I don't know what strength Armour you were on b4 NP, but I'm currently on 60mg Armour in AM. My doctor said my fatigue in afternoon is "siesta" fatigue that everyone gets. My question, in your opinion, is the conversion from Armour to NP the same? In other words, 60mg to 60mg. I might have to push this doctor to switch me because she sometimes has a negative attitude. At this time, I don't have 100% confidence in her which is why I'm trying to learn as much as I can.

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8/6/17 2:43 P

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Mine has always been made by Acella. I have been on it for a couple of years (5/2015). I do not think I have any side effects. My hair stopped falling out and I have more energy, but I don't think my dose is high enough. Getting a higher dose is hard because all of the docs worship TSH and this med suppresses your TSH. Since I started on it, I have been increased from 12 60 mcg pills a week (5 days at 2 a day and 2 days at 1 a day) to 2 pills every day, with the 2 pills a day starting in March of this year. They do not come in a lot of strengths, so adjusting can be a pain, but it is a lot cheaper than Armour. I order it 90 days at a time and my co-pay for 90 days is about the same that I was paying for 1 month of Armour.

I do not think there is a generic Armour. NPThyroid is sometimes called a generic but it is actually a name brand.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 10
8/6/17 10:36 A

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I'll hold off on taking my Armour until after my labs on Wednesday. Because of the cost of Armour, I'll be talking with my doctor about switching to a different desiccated brand. I've done some reading on WP Thyroid, NP Thyroid, and Nature-throid, but can't determine if any of them are generic. But they are all cheaper than Armour. Can you tell me if NP is generic and whether you've experienced side effects? Has Acella always made NP, that you know of? Sorry for all the questions. Appreciate your input.

UNICORN212's Photo UNICORN212 Posts: 12,708
8/4/17 7:51 P

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I do not take it in the evening, I take it in the afternoon, usually before 3. If I were on your schedule, I would take the pill immediately after the lab appointment, and eat at least an hour later.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 10
8/4/17 9:53 A

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Thanks for the info, Unicorn212. Does taking a second 60mg in the evening interfere with your sleep? I don't want to have sleepless nights again. You're correct, the Armour pills are not scored and would be difficult to cut. I take my Armour at about 8:15AM and my lab appt is 11:30. Would I skip that day altogether and start up again the next morning at my regular time?

UNICORN212's Photo UNICORN212 Posts: 12,708
8/3/17 11:29 P

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Foleyda - I take NP Thyroid (similar to Armour), 60 mg twice a day. I take one 60 mg pill in the AM when I get up, and one in the afternoon. I take them with a glass of water, 1 hour before or 2 hours after food and 4 hours away from things like calcium that can bind the meds. I insisted on getting a twice a day dose because otherwise I hit a wall in the afternoon and sleeping under my desk at work is frowned upon. The pills may not be designed for cutting. Are they scored? It has been a long time since I switched to NP Thyroid and I do not remember if the Armour can be split.

Oh, do not take your pill the morning of your labs. The T3 in the meds will spike and throw off the results.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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FOLEYDA Posts: 10
8/3/17 11:25 A

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Thank you for your reply. The light headedness and dizziness have gone almost completely away. However, almost to the hour after taking my 60 mg of armour in the morning, I get a hot flash. It never lasts too long but happens on schedule every morning. I'm sleeping better but I'm very tired by mid-afternoon and into the evening. I asked my doctor if I should cut the pills in half and take 1/2 in AM and 1/2 in PM. She said no but didn't give me a reason. I go for new labs on 8/9/17 and have an appointment with the doctor on 8/16/17. After this appointment, I'll share the labs with you and anything the doctor says. Armour is new to me and I'm not as educated as I was while taking t4 only meditation. This doctor is irritated by all my questions but it's hard to find an endo who prescribes armour. Thank you again for your help.

MZZCHIEF's Photo MZZCHIEF Posts: 10,353
8/3/17 10:06 A

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Hi,
Yes, if you are on Armour your t4 will be lower, and your t3 higher than someone on Levothyroxine (t4 meds only). Armour and all the Porcines are a mix of t4, t3, thyroglobulin, calcitonin and thyroid tissue.

I agree with your doctor, the numbers aren't as important as how you feel.
The lightheaded feeling and other symptoms, may be from the T3 in the Armour
How are you feeling, it's been a while since you posted.

Mzzchief

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FOLEYDA Posts: 10
6/19/17 1:55 P

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I'm new to this group. Been taking levo (t4) only meds for years but about 1.5 years ago stopped working. Was on .112 of levoxyl.Found a new endo who prescribed 60mg armour and have been on it for about 8 weeks. Mood is much improved and overall am sleeping better. The 6 week labs were TSH 5.394 using range of .340-5.60 ulu/mL, and t4 was .62(L) using range of .66-1.14 ng/dL. This endo refuses to do t3. I told her I was concerned about the t4 because it was so low and her response was that she sees this in all her armour patients and it's nothing to be concerned about as long as I am feeling better, which I am except for lightheadedness, some dizziness, and sweating especially in AM. she then said I should stay on 60mg and return in 6 months.
I changed this to labs again in 2 months.

Has anyone had low t4 (below range) and been told that was just a characteristic of armour? When I asked her if armour used different ranges, she said no.

ONEDOGLVR's Photo ONEDOGLVR Posts: 4,267
6/5/17 11:28 A

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Yes the doctor gave me a prescription. One pill a week for 3 months. I took the first one on Friday.

It has been raining and dreary here the last few days. Sunny now (but I'm stuck inside as work). Calling for thunder storms later in the day!

Hope everyone has a great day!

Debbie


Debbie --- Scranton, PA USA --- EST
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6/2/17 4:03 P

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Did doctor give you prescription D? I never saw over the counter D-3 in 50,000 dose. Prescription is D-2. The type found in veggies.

D-3 comes from sun and type needed to improve immunity and mood, harden bones, etc. This vitamin energizes me. Take D with food. I take mine with lunch. D-3 also causes constipation, which is why I take magnesium citrate with dinner.

My D level was 20 when first tested. Taking 5,000 IU daily has increased my level.

Sunny, windy and 70 here. Fog at night.

Nice to read it is sunny there and you are looking forward to weekend.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

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ONEDOGLVR's Photo ONEDOGLVR Posts: 4,267
6/2/17 8:39 A

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Hope everyone is doing well. The sun is shining and I'm looking forward to a fun weekend.

I found out that my Vitamin D is low (21) so the doctor is putting me on a really high dose of Vitamin D for 3 months (50,000 units - 1 pill a week). Hope this helps with some of my fatigue and bone aches.

Make it a good weekend!

Debbie


Debbie --- Scranton, PA USA --- EST
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6/1/17 12:54 A

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I was like you 50 years ago when diagnosed. Feel free to ask questions. We are here for you.

It could be that levothyroxine (T4 medication) is not the medication for you. I felt terrible when I took T-4 medication. My gym buddies that take this medication complain of pain and fatigue too. Unfortunately, T4 medication is what most doctors prescribe. It could be that your body is not converting inactive T4 medication into active T-3 that is needed for you to feel and look better and lose weight. You could try taking selenium and zinc supplements that helps the body convert T-4 into T-3. These two vitamins are in my multivitamin with minerals.

I take medication that contains T4 and T3 and in the same boat when it comes to pain and weight. It is common for labs to look normal and patient to be hypo( low) thyroid since labs use higher range than endo society.

Regulating/properly treating thyroid doesn't happen overnight. It is not like taking a aspirin to get rid of headache or pain medication to dispense with pain. The top hospital for thyroid said it take a year or longer to regulate thyroid for patient to feel and look, etc better.

In my case it has taken 2 or more years for this to happen with testing and seeing doctor every three months since illness, allergies, pollution, fluctuating hormones, stress, diet, sleep, daylight saving time, and just about everything affects thyroid function.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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ONEDOGLVR's Photo ONEDOGLVR Posts: 4,267
5/31/17 10:22 A

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Thank you so much for all the information. I am still trying to digest everything I am learning. I am currently on levothyroxine 75 MCG once a day. I will have to ask the doctor if I was tested for Free T-3 and Free T-4 --- I really do not know if I was tested for that or not. Like I said I'm still learning and digesting. Lots of information...UGH!

I will hopefully have my vitamin D tests back this week to see where they are and I will see where I go from there.

Again thank you so much! I'm sure I'll be back with many more questions.

Debbie


Debbie --- Scranton, PA USA --- EST
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5/30/17 2:30 P

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Debbie,

Welcome to the group. I assume your doctor is only testing your TSH from numbers your posted. TSH is pituitary hormone, not thyroid. The pituitary plays a role in thyroid, but the most important is Free T-3. We need Free T-3 in cells for us to feel and look good. Free T-4 is another important test. It shows how much medication is in your blood stream.

My endo does TSH, Free T-3 and Free T-4. If you are lucky, your doctor will test R(reverse) T-3 to make sure medication is not being resisted by cells.

Most doctor prescribe T-4 medication (levoxyl, synthroid, etc.) but patients report feeling better with T-4 medication and some T-3 medication (Cytomel) or a med with both like Armour.

I have had thyroid disease for 50 years. It has been difficult to find an endocrinologist that orders proper thyroid testing and prescribed a combo of T-4 and T-3 medication. I have only had two good doctors in 50 years.

I am glad you had your D level tested. You may want to take selenium which helps convert
T-4 medication into T-3 to see if you feel better. Brazil nuts and other selenium foods do not contain enough selenium and supplement recommended. I suggest taking multi vitamin with minerals, selenium, Zinc, C, D, and magnesium citrate. Start with multi vitamin with minerals and D. Then, add one of the other vitamins weekly.

You may want to try Paleo or low carb diet. Paleo made me feel tired, etc. Low carb is better since carbs are necessary for thyroid and adrenal function.

Good luck.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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ONEDOGLVR's Photo ONEDOGLVR Posts: 4,267
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Hi! I am new to this group. I had blood work done last year and the doctor said my thyroid levels were a little elevated. We waiting another 6 months - retested - still high and decided to put me on thyroid medicine. We started with levo 50 and then retested - it still did not move - upped the medication to 75 and it went from 4.5 to 1.9. So they now say I am good but I am still extremely tired all the time, have bone aches in my arms (mostly) and legs and I have been losing and gaining the same 3 lbs since the beginning of the year. I went to see a specialist (see my blog) and that was a total waste of time. I'm not sure what to do from here. I just had my vitamin d tested and am waiting on the results from that.

I hope to get to know lots of you in this group and hoping you can help me through this new chapter in my life. Hope everyone has a great day!

Debbie


Debbie --- Scranton, PA USA --- EST
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4/10/17 12:55 A

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emoticon

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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4/9/17 12:43 P

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The food elimination protocol has solved ... sooooooo many of my hypothyroid issues.

Just sayin'.
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Cat

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it's about learning how to dance in the rain.


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3/25/17 8:52 P

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I am happy to read you feel better on elimination protocol. I have been craving cauliflower mash potatoes for weeks, but cauliflower hasn't been good here due to all the rain. Found a good head today and making for dinner tonight.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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3/25/17 12:12 P

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I am wrapping up 7 full weeks on the elimination protocol. I am amazed at how well I feel.

My mind wonders into eating or eating certain foods ... but it's out of habit not true physical hunger.

Cat

Life is not about waiting for the storms to pass...
it's about learning how to dance in the rain.


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3/22/17 3:44 P

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MYLOVEMYLIFE,

You may want to check out Trim Healthy Mama diet. It is gluten, soy and dairy free. I checked the diet and cookbook from my library. Many thyroid patients use this plan and had wonderful results in lowering inflammation, blood levels, losing weight, etc. The recipes use almond, coconut, etc flour to make pancakes, muffin in mug, etc. I was on the diet for a month with daughter and recipes were great. It honestly didn't feel like a diet. There are beginner, etc groups on facebook that are helpful and supported.

You may also want to add turmeric and ginger to diet. Both lower inflammation. I only use these two herbs and my inflammation tests was 2, which my doc said is extremely low. I sprinkle turmeric on scrambled eggs, meat, poultry, etc. Costco sells turmeric capsules that contain olive oil and black pepper that is necessary for absorption.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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3/22/17 3:06 P

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I have just embarked on eating no gluten, dairy, soy or sugar. After six(6) weeks ... I feel amazing. I have dumped 17 pounds of mostly inflammation.

It's like all the stars aligned for me ... with my doc suggestion this, getting books from the library and a free pod cast The Thyroid Secret by Izabella Wentz.

We allllll have to find our own path.
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Cat

Life is not about waiting for the storms to pass...
it's about learning how to dance in the rain.


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3/22/17 12:19 A

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I know nothing about thyroid peroxidase and thyroglobulin. I had thyroid disease for 40 years before a doctor did ultra sound. Test showed I have no thyroid, which doc said was due to taking medication for long time.

Gluten/dairy free diet is suppose to decrease inflammation. I am athletic, tried this diet and became extremely fatigued. So, I went back to eating a little gluten and dairy daily.

I get discouraged too. Dealing with illness, pain and the unknown takes toll on your body and mind. I just went thru this.

A certain amount of aches or pain is normal when going for sedentary to exercising. The discomfort means your body/muscles are getting stronger. My upper body ached when I lifted weights on Friday after long absence. No discomfort after lifting them again on Monday since muscles were stronger.

Do you take vitamin D-3 ( over counter)? You should ask your doctor to test this vitamin level. This vitamin is very important for thyroid patients since it decreases inflammation, increase immunity, keep depression at bay, strengthens bones, etc.

Sending good thought for normal ultrasound.




Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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AURORAMOTA414 Posts: 3
3/21/17 5:42 P

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hello again my friends. So I went to the doctor on the 22nd and based of the labs for the thyroid peroxidase ab being at >600 and the thyroglobulin ab being at 1.3 they want to do an ultrasound. I have done my research as well as to a better way of eating and found out the gluten free/dairy free diet is the best in my case. I am unfortunately not very good at keeping up with whats best. I get discouraged very easily. Id loose then gain and loose and gain weight. I mean what a rollercoaster ride. at least I haven't gained more than the 220. i'm steady there. I get energy and workout, then get discouraged again with the pain n busy lifestyle that I stop. I'm almost sure, but sometimes doubt that if I actually keep this up for atleast 30 full days, i'll actually see real results. I'm a mess. what can I say. I say it always, but maybe one of these days I will actually keep going even if just a little bit at a time and not focus on the weight loss but more of the commitment instead. like Nike says ... Just do it! Well lets see what results I get on the 19th of april when they do my ultrasound. Hope for the best, but preparing for the worse.

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3/19/17 1:00 A

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Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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3/18/17 12:01 P

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Just wanted to share ... after doing the elimination diet for 6 weeks I have chunked 17 pounds, eliminated water retention and well, feel AWESOME.

No gluten, dairy, soy, or sugar!!!!!

Cat

Life is not about waiting for the storms to pass...
it's about learning how to dance in the rain.


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3/11/17 5:32 A

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emoticon on weight loss. I am happy you found a plan that works for you.



Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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3/9/17 11:02 P

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It's not so much using the Whole30 diet ... but the elimination of foods specially gluten and dairy ... that the doc wanted me to do. I have gained 10-15 pounds of water weight over night ... numerous times. I also have had "tummy" issues to include severe bloating.

By staying with lean proteins, non starchy veggies and low glycemic fruits ... I have lost 15 pounds in a month ... mostly water but that was the point.

The thought is to add back some foods after a healing time. The pod cast has echoed my doc's sentiments.

Edited by: MTN_KITTEN at: 3/9/2017 (23:04)
Cat

Life is not about waiting for the storms to pass...
it's about learning how to dance in the rain.


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3/9/17 1:02 A

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Cat,

I am glad Whole 30 works for you. Congratulations on making it 32 days. I am sure you will reach your goal.

Why did your doctor recommend this diet? None of my doctors recommended any diet. So, I am doing my own thing.

I am aware this type of diet eliminates water retention, but I have a different problem. I am dehydrated and can't afford to lose water until doctor determine and fix the dehydration problem.

My library doesn't have the diet book, but does have recipe book, which I think is crazy. What good is cookbook if they don't have the diet.

Glad this plan eliminated tummy problems and water retention. Keep doing what you are doing. Sometimes it take years for a patient to find a plan that works for him/her.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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3/8/17 3:50 P

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I should be ashamed ... as long as I have been dealing with hypothyroidism I still know soooooo little about it all.

My doc recommended an elimination process more than once through the years.

I did it for 10 days once … but skipped on the reintroduction stuff.
I did it for 15 days a couple of times … did better on the reintroduction part … but then ate everything in sight.

I have now done it for 32 days … my goal is 45 days … or maybe more.

I am eating lean protein to include eggs, non-starchy veggies and low glycemic fruits. I am eating 3 times a day and feel FANTASTIC. Well, after the first 2+ weeks … that is.

Right now … no gluten, no dairy … well, I’ve had cheese from time to time. Coz I was shooting in the dark on this … I read Melissa Hartwig Whole30 and Food Freedom Forever. BAM … my tummy is sooooooo much happier and the gosh dern water retention issues I have had for ever … are gone!!!!!

Then I switched on the free pod cast The Thyroid Secret with Izabella Wentz … and low and behold … remove gluten and dairy from your diet so your thyroid heals.

I hear ya on the low carb ... but right now I am doing good. I am getting in carbs from the veggies and fruits.

I have become a reading fiend …

thethyroidsecret.com/trailer/

Cat

Life is not about waiting for the storms to pass...
it's about learning how to dance in the rain.


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3/8/17 4:17 A

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Kitten,

I just finished reading Whole30 diet customer reviews on Amazon. It is a restrictive diet. No dairy, bread, etc. Can have any meat, fish, poultry, veggies and fruit. No pancakes, gum, etc. Be prepared to cook a lot. Several customers said they got tired of cooking after 2 weeks and made large recipe and froze to cut back on cooking. Majority of customers lost weight. Some gave into cravings like pizza, cupcake, etc before 30 days.

I will see if my library has the book. I do not know what Dr. Wentz said about this diet, but know that no/low carbs lead so reverse T-3. RT3 happened to me when I gave up carbs and also ate veggie.

My daughter with untreated thyroid condition messed up her hormones on similar Whole30 diet. I followed her diet for two week and slept less, didn't lose weight, but had better blood test results.

My daughter who is a carb addict switched to Trim Healthy Mama diet, improved her thyroid and lost 50 lbs. You only need to follow THM diet 80% of the time to be successful. Thyroid patients on this diet had same results at my daughter. THM recommends thyroid patients eat a lot of meals containing 45 grams of carbs so they do not develop RT3, a few Whole 30 meals and high carb meals weekly. This diet allows gf carbs. They even have a cookbook with main dishes, gf pancakes, cookie, brownies, cheesecake, etc. I am crazy about THM eggroll in a bowl, chili, quick lasagna, etc. There is a beginners THM, etc groups on facebook. Many thyroid patients reported same results with THM, without giving up foods they loved.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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3/7/17 11:28 P

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Cat - Can you fill us in on the podcast? I have one of her books but I have not gotten the time to read it.

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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3/7/17 8:59 P

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I just got Whole30 today from the public library. I too am tired of "diets" but after watching Dr Wentz ... it sounds like our diet can play a HUGE part in our low thyroid.

Cat

Life is not about waiting for the storms to pass...
it's about learning how to dance in the rain.


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3/7/17 2:49 P

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I saw book at the store, but haven't tried it. Frankly, I am tired of trying diets since they don't work. Is it a clean diet?

What did Izabella Wentz say about diet? I watched a show about diet yesterday. It was a veggie diet, which I fainted, etc on in the past.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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3/6/17 6:19 P

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Has anyone tackled the Whole30 program or food elimination protocol??

I have been watching the pod cast The Thyroid Secret with Izabella Wentz.

Cat

Life is not about waiting for the storms to pass...
it's about learning how to dance in the rain.


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2/22/17 11:47 P

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Nancy,

My thyroid levels are fine. The problem is low renin and aldosterone. Low levels of these endo hormones has caused thyroid medication not to get into cells, low blood pressure, dehydration, etc. due to patient eliminating too much sodium. Normal sodium elimination for random urine test is 20 ng. Mine was 120 ng. I fought with endo to put me back on medication for this condition in Dec, but she refused. Going to have a serious talk with her on Friday.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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2/22/17 11:41 P

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May,

My endo diagnoses me as very hypo when my TSH is in the 4.0 or higher range. She even considers 3.0 somewhat hypo. I was in the 4.0 range last year due to medication that didn't work.

The endo society recommended range is under 3.0 A higher reading means hypothyroid. The specialists I have seen want TSH under 2.0 to avoid thyroid cancer. My TSH was 0.08 last week. People without thyroid disease have less than 1.0 TSH.

Synthroid, levothyroxine and levoxyl are T-4 medications. Some doctors like Synthroid. Others only like levoxyl or levothyroxine.

I agree with the other member that asked if your doctor did Free T-3 and 4 and other tests. TSH alone doesn't tell the whole story.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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UNICORN212's Photo UNICORN212 Posts: 12,708
2/22/17 4:52 P

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Tee - I wish it was only "a year or longer to determine the correct med dose and you to feel good again". I found out I had Hashi's 8 years ago. I am still trying to find a good doc. The one I had moved out of state and I have been looking ever since. I recently had one that was so-so (better than some others I have seen) and he moved to Dubai last Nov. I went to a new endo today. I am not feeling very hopeful. She did not impress me.

Edited by: UNICORN212 at: 2/22/2017 (16:56)
~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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2/22/17 4:47 P

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May - When my thyroid worked, my TSH was about 1.4. My understanding is that the "normal" range was recommended to be .3 to 3.0. In my experience, you need thyroid meds. I have hashi's and my TSH is best under a 1.0. Did they test Free T4 or Free T3? TPO antibodies? Anything else? If so, post your results with the ranges (though the TSH may still show the old range).

~Nancy


"Faith is not about everything turning out OK; Faith is about being OK no matter how things turn out."

"I would rather live my life as if there is a God, and die to find out there isn't, than to live my life as if there isn't, and die to find out there is."


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--MAY--'s Photo --MAY-- Posts: 4,488
2/20/17 11:50 A

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Hello have been diagnosed with a thyroid problem. Here is my question, since the first time she has taken my TSH which was 4.45 on Aug. 1, 2016
Then on Aug. 9, 2016 it was 4.26
Then on Feb. 9,2017 it was 4.31.

They way she made it sound it was really bad. But according to what I have seen of what TSH is supposed to be it is borderline. Which she put on my paperwork, but when she was talking to my, like I said she was frantic that I take Synthroid, she gave me a months supply and I got
A 3 month supply of Levothyroxine, at 137 MCG.

My question is do I need to take this?
Thanx, I do not know anyone to ask

You can call me Barbara or May!!
~~~Remember to Give YOUR LOVED ONE'S a BIG HUG and KISS Everyday cuz you just NEVER KNOW...~~~~
~~PURPLE is MY COLOR~~
~~Laugh Everyday Just Because~~
~~And Remember all you have to do is:
~~PUT ONE FOOT in front of the Other and soon you'll be walkin out the Door~~~


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2/16/17 5:53 A

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Sorry you had a tough year. I had several bad years and know it is discouraging. I hope taking vitamins helps. I have appointment on the 22nd too.

I am like you. I lost a few pounds and gained. My diet and exercise are good, but my sleep isn't.

Good luck on the 22nd.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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AURORAMOTA414 Posts: 3
2/15/17 11:03 A

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thank you for the response. I have an appointment on the 22nd and hope to get some answers and finally try and get a hold of this. its been a tough year. I also have lichen sclerosis too which can flare up if I'm not doing what I'm suppose to do and set me back a little. since my last post I've gained and lost again and gained again. I had a minor set back and haven't worked out in almost a week now. I was walking a minimum of 3 miles a day. I have decided to do this program called DDP Yoga and have slacked a bit on my eating and recording what I'm eating on my fitbit. I've slacked on taking my vitamins too. I have selenium pills and Vitamin D too but not that many IU. i'll have to order some. I noticed a changed in the amount of pain I feel when I don't take my vitamins to when I do. Today I will once again start taking all my supplements again and start my workouts again. i'll let you all know how it goes on my 1st endo visit.

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2/9/17 4:16 A

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Mylovelife,

emoticon to the group. Levothyroxine, synthroid, levoxyl, etc are T4 medications. T4 is inactive and means your body has to convert T4 into the active form T3. T3 has needs to be in your cells for you to lose weight, and feel good. I didn't notice any difference in synthroid or levoxyl. Doctors usually start patient on low dose medication and increase as needed. Medication is prescribed according to weight, symptoms, test levels, etc. Some patients feel better taking a T4 medication. Others need T4 and Cytomel (T-3 medication). My body does not convert T4 med to T3. So, I take NDT ( T4/3 combo med).

Your symptoms point to low thyroid. My endo said thyroid patients feel like they have the flu when thyroid is low. Gaining weight if you look at food is another symptom of low thyroid. I am glad you are seeing an endo.

You were smart to remove white products from your diet for Hashi. Has your doctor checked your D, zinc, selenium levels? Most thyroid patients are low in D. My level was 20 when first tested. I take 5,000 iu of D daily, which increased my level. D and zinc enhance immunity, lower inflammation and good for Hashi patient. Selenium helps convert T4 to T3. Eating 2 Brazil nuts or handful of sunflower seeds daily gives you adequate selenium. Mushrooms, etc also contain selenium. Eliminating all carbs from your diet can result in Reverse T-3, which causes weight gain, etc. I eat low carb bread, sweet potato, etc.at least once daily.

Some patient found that taking T4 medication before bed worked better. The studies I read stated this medication converted to T-3 during sleep better than taking upon waking. Taking before bed eliminates waiting an hour before eating breakfast too. Take thyroid med with full glass of water. No coffee. Taking med with coffee messes up our hormones. Eat before drinking coffee. My doctor recommends exercise to regulate hormones. Just don't overdo it with 2-3 hours daily.

I have been Hashi/hypothyroid for 50 years and still learning new things. Hashi patients can have swings in inflammation. I am a swinger.

My endo orders CBC, TSH, Free T3 and 4 every three months. Vitamin D, cholesterol, A1C ( diabetes test) once or twice yearly. I gained 50 lbs under my present doctor's treatment and looking into switching doctors. I received a lab slip from new doctor I want to see. He ordered 8 tests my endo never has.

Treating thyroid conditions requires patience. It can take a year or longer to determine the correct med dose and you to feel good again. Diet, exercise, sleep, low stress and vitamins play a vital role in feeling good too.

I hope the endo has answers and leads to you feeling better.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had chosen it. That frees you


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HARMONY's Photo HARMONY Posts: 62
2/3/17 9:19 A

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Welcome to the group!
We wish you didn't need to be here, but we will try to share what we have learned works for our own bodies. You are on the right track by pushing for more testing to understand the whole picture (as best as can be understood at this time).
Take the time to read many of the past posts, especially those of Mzzchief who has done an amazing amount of research and shared with the group. She recommends starting a binder with all your test results, pushing doctors to change things based on how you FEEL not on whether the numbers are in their "acceptable" range. (My TSH is down to like 0.02 for example). So it makes sense to track how you feel through the day, through the week, and around the time you have the blood tests run.
You may be a person who responds best to splitting your doses throughout the day, or you may respond well to taking both the T4 and the T3 providing drugs.
I have found that getting enough movement throughout the day combined with strength training three times a week is getting me to feel good in my body. We are each on our own individual journey, but we can offer suggestions and support. Good luck!

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AURORAMOTA414 Posts: 3
2/2/17 1:02 P

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hello all,

I'm new to this message board and hoping this is going to help me learn new things and just cope with this also. I was diagnosed with Hypothyroidism about 16 months ago. I have gone from 112mcg to today being raised to 150. I had to do my own research on what to eat and what not to eat as well as test that should have been done but weren't. I learned through looking at my medical chart that she only did the TSH test and only once did the T4 test. So on the 31st I requested to see her due to my resting heart rate dropping to an average of 55 and sometimes being as low as 48bpm. I told her about my research and asked that she run ALL test. well sure enough my TSH was slightly elevated again, but something new we discovered since she ran those additional test was that my thyroid antibodies were abnormal. This meaning that Hashimotos was now the cause of my hypothyroidism. so now I have to see and endo and will soon I guess find out new things about possible new meds, which brought me to this forum. I was looking up levothyroxine vs synthroid to see whats the difference. all I know is that I keep gaining weight. if I don't workout atleast 30 minutes everyday of cardio, anything that I lost I will gain. in the last 3 weeks I've lost and gained 6lbs and just feel so tired, cold, weak, joints and body hurt. I no longer eat white rice, white bread, fried anything. I've been weighing and measuring my food intake. but if I have just one cheat in any one meal, the next day, I feel it and see it. I've gained 85lbs in the last 17 - 18months and its not fun to see the scale just go up and up and up. it seems like I'm sensitive to nearly everything I eat. this sucks at this point but I'm not giving up. I will keep working hard to get this done and get back to feeling like myself again. Its so amazing how many people are actually dealing with the same thing. I used sparks people when it first came out so so so many years ago and just stopped. along with my fitbit, I will start using it again.

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