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GOANNA2's Photo GOANNA2 Posts: 11,336
11/21/13 5:30 A

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I'm starting to get vertigo again. Should talk to my doctor.

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J9NMAEVE SparkPoints: (35)
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11/21/13 3:58 A

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I had a problem with vertigo, high blood pressure with the generic. my Dr wants to switch me to brand name synthroid but I'm scared to go get the prescription. I don't want to feel dizzy again! I've been off my pills for 3 days now and its a relief. Only a matter of time till my hypo symptoms catch up with me I know.

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11/21/13 3:58 A

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Wow. You had it so much worse than me you poor girl. I would have been in the same boat if I had not stopped taking my levo when I did. I had terrible vertigo about the same time as you did after starting the pills. I went to urgent care and they said I had vertigo. Then 2 days later I went to my naturapath who said I had allergies with noninfected fliud in my ears and my blood pressure was high. Neither one got it right. Thanks to people like you who post on the internet I diagnosed myself and stopped taking my levo. By night I was not at all as dizzy as I was without any vertigo episodes all day either. Thank you for sharing your story. It helped me avoid the emergency room with no insurance. I hope you feel better soon!

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11/21/13 3:45 A

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Wow. You had it so much worse than me you poor girl. I would have been in the same boat if I had not stopped taking my levo when I did. I had terrible vertigo about the same time as you did after starting the pills. I went to urgent care and they said I had vertigo. Then 2 days later I went to my naturapath who said I had allergies with noninfected fliud in my ears and my blood pressure was high. Neither one got it right. Thanks to people like you who post on the internet I diagnosed myself and stopped taking my levo. By night I was not at all as dizzy as I was without any vertigo episodes all day either. Thank you for sharing your story. It helped me avoid the emergency room with no insurance. I hope you feel better soon!

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11/21/13 3:32 A

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I had a problem with vertigo, high blood pressure with the generic. my Dr wants to switch me to brand name synthroid but I'm scared to go get the prescription. I don't want to feel dizzy again! I've been off my pills for 3 days now and its a relief. Only a matter of time till my hypo symptoms catch up with me I know.

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8/9/13 9:03 P

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I am so glad to have found this topic!! I am new here. Im 26 and married. Recently diagnosed with hypothyroidism. It was discovered while trying to figure out why I wasnt having my periods. So, I was put on Synthroid but my insurance does not cover it but it does cover levothyroxine. Thats when my life changed.

I took it for a month. The first 2 weeks I felt great but by the 3rd week I had all the symptoms of a pregnant woman. But I wasnt. I was told it was just some side effects of the medication my body getting used to it. So, I held strong. But one day (4th week) I started coughing out of the blue. I thought nothing of it until the next day I had a fever that would not go down, not even with ice. So, my husband took me to the hospital. My blood pressure was 190/112 and my legs would hurt so much that I was crying. The doctor did lab work and found nothing wrong. He said the only thing that could be causing this was the levo. Im not allergic to any meds, well, I guess until now. My body was in a sort of shock.

I stopped taking it and the fever is gone and the leg pains are going away. I still have a bad cough (maybe I got sick in the hospital, to top it off) My doctor will see me at the end of Sept (which sucks) I do think that my body was trying to get back in order before I started the pills. Why? Well on July 2nd I got my period (before that it was in March) and I started the medication on July 3rd. So, I dont know, maybe it was all bad timing but it has affected me in a way I never imagined.

wow! So good to be able to share this with people that go through this or something similar.

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MYKIDSRSWEET's Photo MYKIDSRSWEET SparkPoints: (12,017)
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6/19/13 9:06 A

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I didn't do e well on generic as on synthroid. My doctor explained at since thyroid meds are in micrograms, not milligrams, the amount of medication is very, very small and so it is the one medication she recommends not takinga. Generic, because they might not be as particular about making sure it is exactly that dose in micrograms.




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GOANNA2's Photo GOANNA2 Posts: 11,336
6/18/13 7:58 A

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Mzz, I thought you were on holidays. You are just too kind with all
your selfless resea emoticon rch to give us up to date and correct information.
Now go have yourself a holiday. xxx

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6/17/13 10:42 A

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Hello Mzzchief,

Which medicine did you try before? I know for sure that Synthroid does not work for me, I tried twice and is as if wasn't taking anything, this last time tried for a little over a month and I packed another 30+ pounds, not happy at all, I'm on the seven ring of hypo hell right now. I just went back to levothyroxine, but after 4+ years with 275mcg still haven't lost a pound, I'm not even sure if I ever will see myself as I am/was at 180 lbs. Maybe that Tirosint could help but it is the first time I heard about it. Did you ever have levothryroxine?

MZZCHIEF's Photo MZZCHIEF Posts: 9,268
5/12/13 2:29 A

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HI Susan

You might want to look to Tirosint. Its a completely different T4 medication in that its packaged in a liquid gel cap.
The ingredients are: levothyroxine (T4) with glycerin, water and gelatin.

The gelatin is the shell... if you've ever taken a vitamin E liquicap, you'll know what Tirosint looks like.

Here is a link to their site:
www.tirosint.com/index.php?page=gelc
ap
s


Sorry I don't know of any generics that do or don't contain lactose.
But I do know who would know... your pharmacist.

: )
Mzzchief



New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

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SUSANPJ89's Photo SUSANPJ89 SparkPoints: (2,144)
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5/10/13 9:31 P

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I'm wondering if anyone can help me with some additional information on the generic levothyroxine.

I've been taking Levoxyl since having my thyroid removed in 2010, and since that med was recalled, I asked for a prescription for Levothroid. I just found out from the mail order pharmacy it is also NOT available.

I need to find a prescription formulation that does NOT contain lactose. I understand that some of the generics do not contain lactose and I want to research this further, but I would like to know:

*Those of you who DO take generic and LIKE the GENERIC levothyroxine, what is the manufacturer name listed on your prescription?

Thank you to anyone who is able to share that information with me.

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3/22/13 12:46 P

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I have not had any problems with levothyroxine. I have been on 150 mcg for several years, ever since my thyroid was removed. No high cholesterol or anything. I am the picture of perfect health. Anyway, my prescription expired and my doc gave me samples of Synthroid in the meantime (waiting for levo to come in the mail). I feel different. I feel different and I can't explain it. Brain fuzz if that makes sense. Can't wait to get back to my levo.

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1/19/13 12:11 P

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I had a thyroid goiter 24 years ago and took radioactive iodine. I have been on either synthroid or levothyroxine ever since. I came across this thread when I googled a search of synthroid vs. levothyroxine. Recently went to see an endocrinologist. I haven't seen one in about 18 years. I have always let my primary care docs manage my thyroid meds and I have been on levothyroxine for a long time. Anyway, she suggested that I take the brand (synthroid) and not the generic. This is the first time I have heard this. Interestingly, a few years ago I started getting my meds through medco and they switched me from levothyroxine to synthroid without me knowing. While I was on synthroid, my levels got all out of whack and I felt horrible. I ended up switching back to levothyroxine and taking a higher dose. Now this doctor has me switched to synthroid and she recently lowered my dose as I have lost 23 pounds. I just started taking it yesterday. I will be interested to see what my levels are since I'm now on the same dose I was on when my levels got out of whack. My endocrinologist suggested taking the brand as there appears to be too much variation in the generics- depends on the company producing it. My mom who had thyroid cancer in the 1970s always insisted on taking the brand.

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1/17/13 5:20 P

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by LUCK I happened to find out I was switched from Synthro to Levo. I was steaming mad when the pharmacist casually mentioned this switch after 2 years of being on Synthro. At that time I was just about to visit my endo to find out why I was having problems. Dry skin flare ups and major vitiligo...I'm so disgusted that I didn't notice they switched me but the fact that the pharmacist didn't make a verbal notification. When I spoke to them over the phone they just said "they always usually switch" and i'm like...oh REALLY? even after 2 years you just switch and not TELL THE PATIENT? I am searching for info to find out of there is a legal requirement to Verbally Notify patients and so far I don't see it. I mean, what the hell else is the pharmacist for???

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12/18/12 6:31 P

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I had thyroid cancer in 1993 with total removal of both thyroid. My endocrinologist put me on Synthroid and told me to always make sure it was Synthroid. Last year, he put all of his patients on levothyroxine. He didn't tell me he was changing me, so, naturally I called when I got the levothyroxine. His nurse told me he changed all his patients to this. I started taking the generic in February and in May my eyes started blurring, hurting and stinging. I was diagnosed with " dry eyes". I also started having irregular heart beats and my general practictioner sent me to a Cardiac specialist. He did all the tests on me and determined it was my thyroid. My eye dr also said that it could be thyroid related. I have developed diabetes and high chlorestrol. My endo says none of this is related to my being on the levothyroxin. My gp gave me a prescription for the Synthroid and I am slowly getting my body back together. Needless to say, I am looking for another endo....does anyone else have or has had this problem with levothyroxin?

LSULEEANNE Posts: 1
9/7/11 9:43 P

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Thanks for all of the great information. I was beginning to think I was crazy! I am on levothyroxine also but am going to ask doctor to switch me to synthroid. I had a thyroid lobectomy 4 months ago. I am working out about 4 to 5 times a week and not having any weight loss. I am very bloated. I am hopeful that a change in medicine will help this!

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8/24/11 11:57 A

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Skyfyr - You're in good company. I think everyone here has struggled to get a diagnosis and also when it comes to getting the right meds at the right dosage. I've been dealing with thyroid issues all my life, and in my experience specialists tend to take more time and pay more attention. So, see if you can find yourself a good endocrinologist. It's always a good thing if you can get a recommendation from other folks you know, and do your homework. Usually you can get little bios on the doctors via your insurance providers website, or if they are part of a clinic. And, don't stick with a doctor that makes you uncomfortable. It takes a while to find a good one, but you'll be glad you stuck it out.

~Sara

Sara

"Yesterday is history, tomorrow is a mystery, and today is a gift; that's why it's called the present."


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SKYEFYR SparkPoints: (12,336)
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8/23/11 9:23 A

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OMG I am so glad I found this team. I'm frustrated beyond belief. I was FINALLY diagnosed with thyroid disease after fighting with my dr about it for years. He wanted me on the Synthroid, but I ended up with levothyroxine and since it's mail order I can't do much about it (unless he calls the company and makes a stink). The original dose didn't help much, so they just doubled it and I have more energy, but I'm back to being cold constantly and I'm gaining weight at like a pound a week. I just can't do this anymore! I'm so frustrated! I really hope I can get some info here that will help me with my sanity. I'm also debating seeing a specialist because while I love my dr, he doesn't really seem to know a lot about this particular disease (like the fact that it can raise your cholesterol - he wanted me on something for that too and we had a huge fight over my not taking that).

I just want to feel better. Is that too much to ask??? Should I look for a specialist or stick with my regular dr? And I can't get a Synthroid script filled right now because I just picked up my new script yesterday. URGH!!!!

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BETO3355 Posts: 3
3/29/10 10:40 A

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Hi. Please be careful with increases in dosages, especially if you feel fine. My wife has been hypo for about 4 years, but over the last 2 years she started developing increasingly more severe symptoms...constant dizziness, frequent headaches, and now chest pains with tachycardia and palpitations. We have been to 2 cardiologists, an 2 internal medicine doctors and they still haven't figured out what's wrong. But recently I researched levothyroxine and found out that all of my wife's symptoms were consistent with OVERDOSING levothyroxine! I had her stop taking it..it's now been only 5 days and her symptoms have vastly improved! After 7 days I plan to restart her on levo but at 1/2 a pil/dosage, until I can possibly find an alternative medicine or even natural thyroid. Doctors, I recently found out, have been blindly relying on old, outdated, and very inaccurate lab tests (TSH, Free T4, etc.) to both determine if someone is hypo and what dosage to give them. I would check out the following link, it will greatly open your eyes!

http://www.stopthethyroidmadness.com/

BETO3355 Posts: 3
3/29/10 9:05 A

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Hi. Please be careful with increases in dosages, especially if you feel fine. My wife has been hypo for about 4 years, but over the last 2 years she started developing increasingly more severe symptoms...constant dizziness, frequent headaches, and now chest pains with tachycardia and palpitations. We have been to 2 cardiologists, an 2 internal medicine doctors and they still haven't figured out what's wrong. But recently I researched levothyroxine and found out that all of my wife's symptoms were consistent with OVERDOSING levothyroxine! I had her stop taking it..it's now been only 5 days and her symptoms have vastly improved! After 7 days I plan to restart her on levo but at 1/2 a pil/dosage, until I can possibly find an alternative medicine or even natural thyroid. Doctors, I recently found out, have been blindly relying on old, outdated, and very inaccurate lab tests (TSH, Free T4, etc.) to both determine if someone is hypo and what dosage to give them. I would check out the following link, it will greatly open your eyes!

http://www.stopthethyroidmadness.com/

JOYFUL711's Photo JOYFUL711 Posts: 1,625
7/31/09 11:22 A

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Generic "levo" is dirt cheap, how much of a "kickback" could a doctor possibly get? The stuff is cheaper than generic ibuprophen, seriously!!

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BETTYLOVEKITTEN's Photo BETTYLOVEKITTEN Posts: 141
7/31/09 11:18 A

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I have the levothyroxine and wonder how well mine is working....although has anyone not really any noticeable symptoms? I just started seeing an endo and went thru all my symptoms...I have had none really. I have two kids and so frustrated with it all. He also said I need to increase my dosage and it's fascinating because I feel totally fine! lol and I asked him if he thinks any type of alternative methods help and it was a flat out no. So someone suggested I get a second opinion and I will. Unfortunately though the military base is paying for it. Ugh so i'm sure they will not want to give me another referral. Although I'm determined to try and do something. Anyone have suggestions?

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DBSTRING507's Photo DBSTRING507 Posts: 21
7/31/09 10:06 A

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I take levothyroxine and it seems to be working for me...I've noticed, though, that once I started a daily exercise program, by 8 p.m. (I get up around 6:00 a.m. usually, earlier if I must for work) I am totally wiped out...have any of you noticed changes in your energy level (feeling really low energy) even though your tests come back as "normal"? I am thinking of asking my Dr. if I should stop taking the levo and start asking the pharmacist for Synthroid....Thoughts?

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QWEENB76's Photo QWEENB76 Posts: 20
7/31/09 9:07 A

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I finally convinced my doc to at least let me try Synthroid instead of Levo. He sure put up a fight too, insisting they were the same- gotta love the generic kickbacks they get, huh? Glad to see he's working in my best interest. I think I'll be finding a new doctor to say the least, but at least I got 2 months of free samples. Fingers crossed that this works.

Amy


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HIPPIEGURL's Photo HIPPIEGURL Posts: 4,949
7/28/09 12:25 A

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Hi Kim,

I take my thyroid meds at about 4 or 5 AM when I get up for a potty call, so when I eat breakfast, it doesn't interfere with my meds. Then I can eat a high fiber and high iron cereal with milk and I can take whatever meds I want without a problem. Read this article about how to take your meds....it's really helpful. I learned SO much about thyroid since I joined this group than I did from doctors after being hypothyroid for decades!!

Sandy

thyroid.about.com/cs/thyroiddrugs/a/
ho
wtotake.htm


Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
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ZENAREE's Photo ZENAREE Posts: 105
7/27/09 8:23 P

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Heard from my Dr....says he thinks it from the recent adjustment to my dosage and to wait it out for a week....cross your fingers....

Ree - It ain't over til this fat lady sings!

Start Weight: 209 May 07
(The starting weight on my ticker is my weight from May 2007)

Current Weight:
199 September 2013

Next Goal: 195 -
October 2013

Current short term Goal Weight
(1st-10% goal of 20 lbs):
180 by December 2011

Long term goal weight: 145 (Pray with me!) Even if it takes me a few years!!


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KIMMY608 Posts: 12
7/27/09 3:15 P

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Hello I am confused. I have been on Levothyroxine for over 15 years and I have never been told not to eat certain foods or drink certain drinks. Every year I have my thyroid checked and it comes back good. I take iron calcium multi-vitamin. Recently however I had my pills renewed and on the bottle was a warning sign not to take other medication with you thyroid for 3 hours after ingestion. Does every doctor have a different opinion. Hell was is the correct way of taking thyroid medication. Kim (:always

MITECU's Photo MITECU Posts: 7,061
7/27/09 1:30 P

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I've been taking 75 MCG of levothyroxine for 2 years and haven't had any problem. My doctor checks the blood every 6 months and he hasn't had to adjust the dosage in 2 years. I take my pill as soon as I wake up. then I shower, dress, get ready for work. That takes an hour, so then I have my breakfast-usually Special K with fruit and milk.
I take my calcium and vitamins before dinner time so they don't conflict with the levo.

With God, all things are possible. (Matthew 19:26)

"If we all did the things we are capable of doing
we would literally astound ourselves."
Thomas Alva Edison

The mediocre teacher tells. The good teacher explains. The superior teacher demonstrates. The great teacher inspires.
-William Arthur Ward



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KLAFNERAK Posts: 2
7/27/09 11:28 A

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Just read through all of the posts. Boy have got a lot to talk to my doctor about. She wants to raise my dosage of levothyroxin, but maybe the last batch of pills was just a lower strength. Thank you all for your comments, they have been most helpful and enlightening.

CLARISKA-KAY's Photo CLARISKA-KAY Posts: 60
7/26/09 11:21 P

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I did not do well on Synthroid. I felt uncomfortable and achy... just really out of sorts. I asked my doctor if I could switch to the generic, levothyroxine. She wasn't very happy about it, but did as I requested. I immediately felt better, but soon learned that I didn't feel that great EVERY month on levothyroxine. Some months, after starting a new refill I would feel sluggish and just plain lazy with no energy. My nails became brittle and my hair was falling out. I couldn't understand why I felt so great some months and terrible other months so I talked to my doctor. Apparently, just because you get the generic, that doesn't mean you get the SAME generic from the same company every time. When pharmacies buy their generics from suppliers, they sometimes go for the cheaper version in order to save money. This means the strength of a medicine can vary within a certain range and still qualify to be distributed at that dosage. Synthroid is regulated to be consistently the same strength. That's why my doctor was not pleased when I wanted to change to generic. Since Synthroid did work for me and I can't rely on generics, I'm not sure what to do. Also, I've never been given a T3 or T4 test to see if my meds are working on a cellular level. Right now, I'm sitting at 4.5 TSH and I think it should be lower because even though it's below 5.0, I think the scale has been revised to show 2.5 as the new top of the normal range. My doctor seems to think everything is fine, but she's not feeling and experiencing all that I am and I'm not sure she's totally up-to-date on thyroid conditions since she's a D.O. working in a small country clinic.

Clarice from Camp Point, IL

"Great things are not done by impulse, but by a series of small things brought together." ~ Vincent van Geogh


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ZENAREE's Photo ZENAREE Posts: 105
7/26/09 10:33 P

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Everyone, I recently was put on Synthroid .50. My TSH was 5.42. After three months, my TSH is .06 - yup, POINT 06. The DR lowered my dosage to .25 and we are both confused. I am now having slight palpitations, shortness of breath(not often), hives coming and going, loose bowels, and tummy aches. I also have headaches now. I did not have many of these on the higher dosage. I mostly had horrible joint pains on the high dose. Is this normal? Does it level off at some point? Should I ask for a different medication? I know my DR only tested my TSH, not T3 or T4.
Any ideas or suggestions? I'm so lost on this now. HELP!

Ree - It ain't over til this fat lady sings!

Start Weight: 209 May 07
(The starting weight on my ticker is my weight from May 2007)

Current Weight:
199 September 2013

Next Goal: 195 -
October 2013

Current short term Goal Weight
(1st-10% goal of 20 lbs):
180 by December 2011

Long term goal weight: 145 (Pray with me!) Even if it takes me a few years!!


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FAIRYGHOST's Photo FAIRYGHOST Posts: 230
7/26/09 6:13 P

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I take my levothyroxine at 1pm every day, and have with no problems for 15+ years. I've never heard of not having milk- I drink milk all the time- I also eat quite a bit of raw broccoli & strawberries.

I do, since joining Sparkpeople, eat breakfast every morning, usually something small like a Fiber Plus bar or something similar. It works great for me- I haven't had to change my dosage in almost 15 years- once they got it adjusted about 6 months after my initial diagnosis it's been the same.



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MZGRIFFMAN SparkPoints: (197)
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7/26/09 4:24 P

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sfoster,
I take my medication at night just before bedtime (this also keeps me from late night snacking). I have done this for years without problems. When I switched medications recently my doctor had me go back to mornings and it was horrible. I gained five pounds because of the disrupted eating schedule. I'm now back to nights with docs blessings.

SFOSTER's Photo SFOSTER Posts: 1,867
7/25/09 3:57 P

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After hearing all the stories here about levothryoxine I spoke with the pharmacist where I get my meds. I expressed my concern with not being able to have milk or my cheerios for breakfast and other offending foods and supplements and asked if it would be better if I took it at bed time so I wouldn't have to worry about any interaction. She said it is best to take it in the morning as it will give you a temporary energy boost and you might have trouble sleeping if taken at night. I showed here the protein bar I often have for breakfast and she it was ok since it had 15grams of protein and only 25% calcium the protein would slow down the absorbtion of the calcium so it wouldn't affect my meds but to wait 1 hour after taking meds instead of 30 minutes like the printout that came with my meds stated.
I also told her the supplements I was currently taking and she said I was fine the way I was taking them.

I also asked about the other foods I had seen listed as ones to avoid and she said she is on the same med as me and continues to eat many of the foods considered goitrogenic for example I mentioned strawberries.

Broccoli I already only eat steamed or cooked in soup. I love soymilk but have switched back to skim milk.

I might try almond milk on my cereal however since I take my meds at 8am I wouldn't be able to have cereal for breakfast as I eat cheerios and they have 50% of my RDV of Iron and I sometimes have two servings as they are only 110 calories.

UGGHHH this is so hard. I think I am going to talk to my doctor about taking them at night so I don't have to worry about when I can eat certain foods. It is hard enough counting calories, getting enough water and enough fiber and protein while making sure I don't get too much sodium. Now having to constantly figure out whether or not I can have something for breakfast sucks.



the info below was found here
http://www.suite101.com/lesson.cfm/18912
/2313/3

the following foods are considered goitrogenic: cabbage, broccoli, turnips, rutabaga, mustard greens, kale, spinach, Brussels sprouts, peaches, pears, strawberries, and radishes cauliflower, millet, and African cassava.

These foods should not be eaten in large quantities and generally not raw especially if you are on thyroid replacement hormones and still have a thyroid because they can negatively interact with your medication, nullifying its effects. Cooking seems to break down the enzymes enough to make the anti-thyroid effect a non-factor.

Other foods that fall on this list are potatoes and corn. These starchy vegetables may also have a goitrogenic effect, although we, in the Western world, are less likely to consume either of these raw anyway. Therefore, they may not be as much of a factor for us.

The final food product that has been deemed questionable for the hypothyroid is soy. Yes, soy! I know that may be shocking because soy is hailed as a hormonal savior these days. However, that may not be true for the thyroid.

Some experts contend that as little as 30 mg of soy isoflavones will cause trouble by competing with hormones for the same receptor sites on cells. Because of that, they can cause endocrine disruptions. The endocrine system may mistake the isoflavones for a hormone and not send out signals that the hormone needs to be produced, which could be problematic if you already have lower than normal levels of thyroid hormone production.

Soy isoflavones can also wreak havoc on the thyroid by causing anti-thyroid antibodies to be produced. This would create a situation in which the thyroid would attack itself just as in autoimmune thyroiditis. Over time, this could cause hypothyroidism to occur or worsen, if it already exists.

Shannon
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SHELLYDP Posts: 10
7/25/09 10:12 A

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Yes I am taking both. I took just the armour for two months and my T4 was still low so my doc added the synthroid. I take 65 MG (I think that is one grain?) of armour and 25 MCG of synthroid.

I still am not feeling "right" and really wonder if I ever will from all the posts I have read.

JOYFUL711's Photo JOYFUL711 Posts: 1,625
7/24/09 10:38 P

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Shellydp,

Am I mistaken, or are you taking Armour *AND* Synthroid?? If so, I hope they are both low doses, that has got to be very hard to get right.

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7/24/09 7:11 P

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I am sure there are others that can explain in more detail, but for the basics...there are synthetic and natural drugs for thyroid. Synthetics are engineered in a lab to provide T4 to your system. Natural are desected cow or pig thyroid that has been cleaned, ground up and then processed into a pill form. Natural provides T3 and T4 to your system. Synthroid is a synthetic, levothyroxine is a generic of synthroid. Armour is a natural as is Westhroid and Nature Thyroid. There are still a few more out there, but I haven't used any of the others. Please correct any mistakes that I may have made. This is just my understanding.

QWEENB76's Photo QWEENB76 Posts: 20
7/24/09 2:03 P

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Hi everyone, I am ecstatic to find this thread. And let me start out by saying as sooon as I'm done typing this, I'm calling my doc and having him switch me to Synthroid. I've been on levo for about 14 months, in that time I've gained 15 lbs, my hair is still falling out, I'm so moody, tired, freeeezzing all the time(and it's 80 degrees in our office) and sorry for the TMI, but I have constipation that is b-r-u-t-a-l! Fun times.

I never even gave it 2 thoughts between the two meds. And I've never heard of Armour - what is the difference between Synthroid & Armour?

Thanks for all the wisdom and advice.

Amy


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SHELLYDP Posts: 10
7/24/09 1:45 P

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Thanks for your reply. Since my post, I had called my pharmacy and my doc. Evidentally, there was a mix up w/ the rx. It was 4x the stength that was prescribed! No wonder I wanted to rip someones head off!

Hopefully, with the correct dosage I will feel better!

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7/24/09 1:31 P

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shellydp,

I was having a tremendous problem on the synthroid. I started on synthroid 12 years ago and then was switched to the generic for 8. I was placed back on the synthroid 2 years ago and started to have problems. It just went down hill. The fillers that they use can affect each one of us differently. There have been many on the site that had been taking the Armour until they changed it this Spring. Now they are having problems. It's an individual thing. Thank goodness, the Armour fixed my current problem.

SHELLYDP Posts: 10
7/24/09 10:59 A

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First I would like to say how happy I am to find a site about this!

I need to know if any of you have suffered more on synthroid and felt better on the levothyroxine. I was taking the generic and still felt a little off so when the pharmacist refilled the rx we discussed using the synthroid and it was a huge mistake. I am having horrible headaches, my eyes are dry, I am anxious and have a short temper. I took it for a week and by the seventh day I was horrible... so I didnt take any for two days and took half of one this morning but I already feel the effects. Is there anything that will get it out of my system faster??

This is so frustrating! I was only diagnosed three months ago but have been suffering for five years. I had to find a doctor in a bigger city to run the labs to diagnose this. Anyway, I was hoping the synthroid would make me better but it appears to have made me worse.

Also, I wanted to ask if any of you feel weird? I dont know if I can explain it, but I almost feel disconnected. I am not nearly as sharp as I was. I have to really focus even when I am driving or I find myself not paying attention to what I am doing. I have lost all my spark and energy.

I dont know if these are related to the hypothyroidism or something else. I have had these symptoms since before any of the thyroid meds but it isnt getting any better.

I failed to mention that I am also on Armour.



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7/21/09 1:46 A

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It worked well the first two years, then they switched me over to the generic and that is when my roller coaster ride started. I was on that for eight years. At our new location, they put me back on synthroid, but there has been some changes since my last time and I had negative reactions to it. It has taken two more years and lots of fighting the military health care system to change meds. The synthroid looked good on paper only for me. I am now on Armour, new version, and doing better.

AMAT143 Posts: 2
7/20/09 6:20 P

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i have been on levothyroxine for about 2 months now and the past two weeks my eyes started bulging out and became extremely swollen and painful. the doctor told me to stop taking the medicine for a few days and my eyes are slowly getting better so she wants me to start on synthroid tomorrow. i know that i didnt have an overdose of the previous medicine because i didnt show any other signs of hyperthyroid and still havent gotten back to my original weight. has this happened with anyone else's eyes? what is everyones opinion on synthroid?

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6/17/09 1:20 P

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Oh, and welcome back Mzzchief. Hope Paris was wonderful.

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I finally got in to see an endo for the first time yesterday. After driving over 100 miles to see him and waiting an additional two hours, he walked in with a prescription for synthroid without an exam, reviewing my medical records or talking to me. I'm having an allergic reaction to the synthroid. So, I was looking for other options. Oh, and I will find a new endo. After reading all the posts, I know that he is a quack (thinning brittle nails due to depression...give me a break).

MZZCHIEF's Photo MZZCHIEF Posts: 9,268
6/17/09 1:03 P

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Once again this thread just goes to show how differently our bodies respond to various meds... one man's poison is another man's meat.

That's why its so important for us all to take a proactive voice in our own care. Ya'll only get one body per life cycle... best to take care of it cuz you're not leaving home without it!

: )
Mzzchief

New decade. Big world.
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Never underestimate the value of getting out of your own way.

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EZFADE's Photo EZFADE Posts: 23
6/6/09 1:46 A

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this week i needed to fill my meds, and thanks to thyroid community i made a call to doctors office. my endo's nurse returned my call that day. i told her i wanted to change my meds back to synthroid. she said she would, but my health care may not pay for it. i told her i did not care. we switched health care a few years ago, i no longer was given synthroid. ok, i'm almost 71 and i'm told my hair should be thinning. then i read posts about splitting nails and other symptoms. it's only been a few days, but i feel i'm feeling better. while golfing the other day, i said to my friend, i feel so good today. which meant, i'm not physically hurting. on may 1st i tried talking with my doctor about feeling tired, he hinted at depression. i have panic and anxiety disorder, believe me, i've known depression after anxiety attacks. that disorder is managed and i've not had many problems over the past 20 years. ok synthroid's back, will report changes. emoticon

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ANJULIE7's Photo ANJULIE7 Posts: 55
5/28/09 6:34 P

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I was on levothyroxine, and almost 2 days into switching to synthroid I felt better. I wish you the best!

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5/28/09 11:40 A

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Yes, that is what I have been told. However, I went from a generic to the brand name. I am hoping for some improvement, but am still wanting to change to Armour. My docs are afraid of Armour (and they don't get kick backs). Any ways, thanks for letting me clear that up.

DFROGGE's Photo DFROGGE Posts: 28
5/28/09 12:07 A

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I read the replies and find them rather interesting as I am looking at my pill bottle. Here in Canada....levothyroxine sodium is Synthroid meds. It's just the actualy name of the medication. I have been taking .137 for 18 yrs and haven't had any problems with it. I do know that once your on the proper dosage your thyroid acts like it should and you can still lose weight. I've been up and down like a yoyo due to my own doings of course.

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5/27/09 11:21 P

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Hey all,
First I want to say this is my first post, but I have been reading all posts for the last two months. You all have been an inspiration to me. I have been diagnosed as hypo for fourteen years. My husband is military and all my care is dosed out according to what they decide my current need is. With that understanding, I was left untreated for the first two years of my diagnosis, the stated reason was that there were already too many people on meds in the region. We moved. The next doctor put me on Synthroid. I was able to lose over fifty pounds in the year and a half that I was on it. I also felt fine. Then for the last ten years I have been on Levothyroxine. I have been getting progressively worse since the change. I've gained over sixty pounds. Fifteen in just one month this year. I asked for a full panel this time (because of all of the information on this site). They say that I am within norms, however my quality of life is almost nil. I asked for an endocrinologist and have to wait eight months for the next available appointment. I finally stormed the office (did I mention that I am extremely moody?), after fighting with the doctor for two hours, he has approved the change back to Synthroid (I have to pay out of pocket). He refused the Armour option. Without all the information and discussions on this site, I would still be miserable. He quizzed me on numerous subjects and I was able to counter everyone (thanks Mzzchief). So, I am at least on the right track. I start back on Synthroid tonight...no more scratching!

TKJBSGETTINGFIT's Photo TKJBSGETTINGFIT Posts: 321
5/21/09 2:25 P

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sorry, don't know why it posted twice!

Edited by: TKJBSGETTINGFIT at: 5/21/2009 (14:28)
Fill your minds with those things that are good, deserving of praise, that are true, noble, right, pure, lovely, and honorable.Put into practice what you have learned and received from Me, both from My words and actions. Phil 4:8-9
TKJBSGETTINGFIT's Photo TKJBSGETTINGFIT Posts: 321
5/21/09 2:23 P

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Hi, I'm 1 1/2 weeks new to SP, lost 5 pounds with 2-4 hrs of daily exercise! 16 yrs ago during pregnancy they found a nodule on my thyroid, then my thyroid gave out and have been hypo since. First used Synthroid. 9 yrs ago new insurance co requested Synthroid dropped for levo so it was changed. Several weeks to a month later when I complained I was beyond exhausted dr found liver and kidneys were shutting down, RBC tiny and not working, all for unknown reasons...long story short, told I would die within 6 mo unless I stopped working, ate normal meals and rested. I quit job, moved out of state and dropped out of life, so to speak. Other cancer surgically removed 1 1/2 yrs ago. Continued probs with exhaustion but levels are in "normal" range so meds are unchanged. Liver and kidneys back to normal, RBC abnormal yet. Starting with new HMO in Aug, soonest can get in as new patient...what can I ask for to make sure levo is working? Are there other more accurate tests?

Fill your minds with those things that are good, deserving of praise, that are true, noble, right, pure, lovely, and honorable.Put into practice what you have learned and received from Me, both from My words and actions. Phil 4:8-9
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
5/20/09 12:09 P

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I have bad side effects with all synthetic meds. I have heard the pitch of level dosing but the body ache and heart palpitations and weight gain with Synthroid have me reaching for the levo version. Also the years of use may require extra care with T3 hormone testing and other supplement over time.

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
ANJULIE7's Photo ANJULIE7 Posts: 55
5/19/09 5:23 P

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Missa143,
That's SO exciting that you've lost that much!! One should generally not lose more than 2lbs a week for healthy weightloss. Don't be discouraged, I think you're doing great. I'd be happy for 1/2lb/week. =)

Mzzchief,
Thanks so much for all your input, seems like you're very knowledgeable, and I appreciate your sharing that with us.
(I didn't see the script as the dr just called it in, but I assume if I was given levox. and now am given synthroid she must have put that on the script.)
I've felt better and have been sleeping better with the synthroid...but I think I'm still having mood issues...though, that could be pms.....=)

SUSANNERIALT,
I was amazed at all the different symptoms that can come with thyroid issues. I'm wondering, at this point, if I really do have pcos...or if the dr's were just saying that because of the symptoms-which are the same as hypothyroidism..which I DO have...
and a lot of the foods and what not used for aiding in pcos are not conducive to a healthy thyroid

(apparently soy is a big no no for thyroid sufferers, "Soybeans were first shown to be goitrogenic in the 1930s (1), inhibiting the formation of thyroxine. Soy’s goitrogenic action is due to its isoflavones, which appear to block the action of a thyroid enzyme. Isoflavones are types of flavonoids – the pigments that give plants their colours – and they are generally praised for their health benefits. But the link between this one particular sort (isoflavones) and thyroid dysfunction is detrimental to health." as well as other "goitrogenic" foods.)


Edited by: ANJULIE7 at: 5/19/2009 (17:31)
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MISSA143 Posts: 11
5/19/09 4:24 P

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I have noticed a lot of people mention that they have trouble losing weight with hypothyroid. I myself have felt that I have been having trouble losing the weight. I've lost 11 lbs in 7 weeks of several hours a day at the gym and a great diet that I've stuck to. I feel like I should be losing more for all the effort I've put in but is this a normal amount or could my thyroid be holding be back.

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MZZCHIEF's Photo MZZCHIEF Posts: 9,268
5/19/09 11:47 A

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Bently!

Ya, its a good idea to take your HRT on the opposite end of the day, like before bed, if you are taking your thyroid meddie in the morning. Simple enuf to remember that way.

Be prepared though, for a potential need to decrease your thyroid meddie dosage, as the estrogen in your HRT can block the absorption of your thyroid meddie.

Regarding dry skin... I simply have to use lotion after every shower, have for years, even prior to being dx'ed with hypothyroid disease. I squish out some lotion into a plate, mix a little ascorbic acid powder(pure vitamin C) in with it as well as a vitamin E cap, right before I get into the shower, so it has time to marry with the lotion ingredients. You gotta do this on on an as used basis as these mixes don't last long, they loose their potency when stored. This turns my $6.95 bottle of Walmart's Equate brand Cetaphil knock off into a low cost clone of some of the pricier Vit C serums that are currently on the market.

If you decide to do this, mix up a small batch and try it on your arm first, to make sure you don't have a bad reaction. I use about a half teaspoon of that pure vit C powder and one 400 NATURAL vit E to 10 pumps of Equate brand Cetaphil. Its unscented, but if you like, you can put in a few drops of an essential oil to customize its smell. With the vitamin E, natural vitamin E is twice as bioavailable as synthetic, it has something to do with the way the molecules in the E are structured.

Also be aware that fragrances, even those derived from essential oils, are potential allergens.

If you enjoy mixing your own lotions and potions, Purrballs leads a team that caters to that interest, you may want to check that out!

Anyways that's enuf off topic rambling for this post!
Take care of youse!


: )
Mzzchief

New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
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SUSANNERIALT's Photo SUSANNERIALT Posts: 53
5/19/09 10:33 A

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Anjulie7 -- Besides the vitamins and the Armout, I take 3 meds for high blood pressure and 2 meds for diabetes. Just recently, I've had to add 3 meds for an on-going (or should that be an out-going?!) kidney stone as well as another prescrip for a skin infection. I can't even count that high without using fingers & toes! Juggle-juggle! I used to wake in the middle of the night (around 2am) and that's when I'd take the thyroid med. Now, with Armour, I'm sleeping through the night (never realized that was ALSO connected to thryoid).

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WBENTLEY Posts: 5
5/19/09 9:57 A

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Thanks for the info. I have been taking my synthroid and HRT together every morning for the past 13 years. Then I would drink my cup of coffee afterwards. No wonder I still have the problem with the dry skin. I recently had my TSH check using the new range. I see my doctor on the 4th of June to get the results. Again thanks for all the help.

MZZCHIEF's Photo MZZCHIEF Posts: 9,268
5/18/09 10:48 P

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Juli~

If your script was written for Synth and they give you generic, YES, you can refuse the generic!

Because there has been so much controversy over narrow theraputic index drugs like Levothyroxine, and since there's well known inconsistancies between the varying brands of levothyroxine, countless recalls brought about by the FDA for inconsistancies from batch to batch even in name brand levothyroxines like Synthroid and Armour, you've got the American Association of Clinical Endocrinologists, The Endocrine Society, and the American Thyroid Association ALL on your side recommending that no substitution is made for a brand name Levothyroxine. Even though pharmacists can substitute for most other types of scripts.

If your pharmacist still gives you grief, you can do one of two things: ask them to call your doctor, or ask for your script and get it filled at another pharmacy.

And before you hand it over to another pharmacy write in CAPS D.A.W. "despense as written". But I don't think you'll have a problem... most pharmacists are very knowledgable, helpful people.

okay, let me see if I can find something concrete about this online:

www.ama-assn.org/ama/no-index/about-
am
a/17731.shtml


Life is just to short to argue when there are workarounds!

: )
Mzzchief

Edited by: MZZCHIEF at: 5/18/2009 (22:54)
New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


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ANJULIE7's Photo ANJULIE7 Posts: 55
5/18/09 5:56 P

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Susan,
Thanks for the info.
I'm very very happy for you that armour is working...I'm excited for everyone who finds what makes them feel good. =)
I'm juggling when to take all these things, because I AM on BC...and my schedule changes almost daily. (sometimes weeks will be similar) But it's hard to figure out how to put all this together, and how to eat and when to eat. Blah!
Thanks all for the advice and encouragement. =)

Out of curiosity...if CVS fills the perscription with levo. and you were taking synth in the prev. dose..can you refuse it and tell them to give you the synth.?

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PUMA8406's Photo PUMA8406 Posts: 717
5/18/09 3:13 P

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oh and also, i found this tidbit interesting, she said that if a doctor does NOT write brand only (and sometimes even if she DOES write it), the pharmacy PREFERS to give generic, because they get benefits from selling generics. hmm... greedy much?!

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