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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
5/26/12 11:03 A

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I wanted to wish everybody a happy Memorial Day!!!! I hope you all have a nice weekend!
We aren't doing anything for Memorial weekend, because my husband will be working, but that is ok, I am not a fan of all the traffic!

Denise

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
5/26/12 11:01 A

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I'm glad to hear you are back, Marna. Sad to hear you are sick though.
I hope you feel better soon!

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
5/26/12 7:25 A

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hellow everyone, I am back but have been sick the flight is so long and I all ways seem to get sick when I get home this time was no different LOL. Hope everyone is doing well.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
5/12/12 10:08 P

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I hope you have a great time Marna!
I hope everybody has a Happy Mother's Day!

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
5/10/12 7:33 P

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Hope every one has been doing good. I am going to be gone to NC for about 9 or 10 days so see you when I get back.

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/22/11 5:36 P

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Hang in there it is so bad with me I cannot remember relatives names and has been that way all my life so I think as a kid the MS was there but did not totally come out because the last 15 years have really gotten worse my sister has finely come to understand that it is not me being lazy I really cannot remember things. Most of my childhood I can count on my had some things that I remember but it is like flashes and most of my life is gone. If I had the money I would get hypnotized and see if anything come out of it. It is very frustrating to not remember anything. I do not understand how to do things it just does not work in my brain any more.

I have tried Rebif among many of the other things over the years. I understand that a lot of things can happen with the drug you are only and not all can take it.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/22/11 5:03 P

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I have not had much luck with Tsybri unless I might not have given it enough of a chance. You get only 1 dose per month and it is given usually at a hospital and is given by IV and it is in a bag just like saline or and medication given by IV that is clear. I also know it costs $21,000 because I got the bill and the write off from the insurance company.
I have only got 4 doses of Tsybri so far.
I have also tried Rebif.
I was dx in April 2010. I also have a lot of cognitive issues and I am only 44!
I will be hiding my own Easter eggs within a couple of years probably the way things are going!

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/22/11 11:56 A

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I live in Oregon Central Oregon the high desert. I have had no experience with Tsybri I in fact have not heard of it. I take Copaxone injections and other than a darn shot every day it is great at holding me where I am without any complications from the injection. I did have this Wednesday a bad shot the DR thinks I pinched a nerve and I was in a great deal of pain clear down to my toes then I had the chills the next morning and then a fever. But I have been taking injections of one kind or another for close to 23 years so a bad one every now and again is a pretty good record.

Does the Tsybri work for you is it a pill or an injection? How long have you been on it and have you tried anything else other than that? When were you diagnosed with MS I know you told me but I forgot that is a lot of my problems with the MS is, it is Cognitive for me really bad plus the legs are weak from the exasperation's with numbness and my feet and fingers all the normal stuff I guess.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/22/11 11:24 A

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I am walking about a mile a day (or most days) and sometimes I get on the stationary bike for 15 minutes to a half hour whenever I can.
I have been stumbling a lot so I am getting afraid to walk.
I started on Tsybri about 4 months ago and it doesn't seem to help.
What are your feelings on Tsybri?
I can see at the age of 63 it is harder to do exercise, no doubt about it. sad you had to waste 37 years with the ex that was no good for you huh? So sad. I know I wish I could turn back time because I wasted 10 years with a guy I shouldn't have been with that long either.
I look back and I wasted a lot of time doing a lot of nothing too but I guess that is where the old saying hind sight is 20/20!
By the way, I am 44, just wanted to let you know, I don't know if I said it before.
Do you live in the United States? If so, what state?

Denise

If you think you can, or if you think you can't, either way you are right!
GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/22/11 9:35 A

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HI LIVINGFREE yes since I left I like to refer to him has the idiot after 37 years of pain I have lost close to 50 pounds life was once again worth (living free) sorry had to do that LOL. I have fallen twice once in June and about three weeks or a month ago I have broken a rib each time so I am still hurting a little but is getting much better but it has stopped me from doing any sort of exercises if I even can. I am 63 things are not as easy as they used to be added on the MS. But I did plan on trying to give it a try. It is getting to the place were I could now think about what I could do and can't and willing to try at LOL.

I do try and walk 3 miles a day outside is where I fell so am on the treadmill right now holding on he he,guess I will see here in a week maybe. How hard at it are you going with your exercises? And yes it is good you are doing them if you can it has helped balance out what wrong things you are eating and keeping the weight from climbing,every little bit you can do you are trying and that is what counts. If you have to eat the bad stuff and we all are guilty of that if we are human just be aware of how much you are eating and keep it low.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/22/11 12:29 A

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I have the same amount to lose as when I started because I don't eat totally right. I eat things a lot of times that I shouldn't. I guess even though I am doing all of this exercising I am wasting my time but yet it is good for the body to exercise so that is why I do it.
Do you do much exercising?
That is awesome that you are close to your goal! I wish I was.

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/21/11 4:10 P

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One would think that wouldn't you but they could and still need to cause trouble LOL. Oh I do not want to meet up with any of them. How is your weight going I am getting close to my goal but it is getting very hard now to get it off.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/21/11 1:36 P

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LOL, so true! I know I do!!
it is sad a person a so unhappy in life that, that is all they have to live for.
They must not have a family or kids at home or something to take up their time.

Denise

If you think you can, or if you think you can't, either way you are right!
GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/21/11 1:35 P

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Yes it is. You would think they had better things to do.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/21/11 1:13 P

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Oh, wow, your friend had a really bad experience! Isn't that funny how people put so much work in to such crazy things like following someone around either online or in person!

Denise

If you think you can, or if you think you can't, either way you are right!
GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/20/11 9:49 P

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Yes I have also heard of such things going on in fact I am very good friends with a lady that was hunted by a women who fallowed her around to different sits and it scared her. I have not had any bad things happen to me I only have about three groups that I go to and they have been fine. Maybe that is why I don't get involved with to many different groups.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/20/11 8:56 P

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I really like this site, I have had no bad experiences but I have heard of some, that is why I was wondering.

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/20/11 8:16 P

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No we are not one enough to go through any kind of troubles mostly just talk about MS or our weight.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/20/11 4:34 P

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Are you ACTIVE in any other group or not really?
I am not active too much in any group. I am just a little here or a little there. I hear people get in to arguments and hurt feelings and things and I am just not on here for that so I don't want any hassles like that on here.

Denise

If you think you can, or if you think you can't, either way you are right!
LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/11/11 9:41 P

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Yes, they would lose a whole lot of people. Me included.

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/11/11 9:26 P

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They will lose a lot of people including me I am afraid. It is the advertising and the moving ones that is messing up the system.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/11/11 9:00 P

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I wonder if at some point, they will start charging to be on sparkpeople. I guess it is possible.

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/11/11 8:19 P

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Well I guess I am not a pushy leader I do not set up all these games or contest we just come on and talk some times about our weight which is the big thing I guess some will come on very seldom but check in. Some times people just get tired of SP and quite. They are doing so much advertising that it is slowing down the system an awful lot and people get tired of it.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/11/11 8:10 P

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The group Doing it with Multiple Sclerosis is the other group i belong to and there is quite a bit of traffic in those teams for whatever reason.


Denise

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/11/11 8:02 P

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wow, there are a lot of dead or pretty much dead topics in this group. That is sad.

Denise

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/11/11 7:56 P

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That's sad. We should all stick together and help each other out with this disease. Maybe new ideas, or new medications, or side effects, etc.
I will go check out the main forum now after writing this post!

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/11/11 7:36 P

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Me too, but don't think it will seems we have been small for quite a while. There are thre or more thaat just go into the exercise area and do not talk to the rest of us.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/11/11 4:15 P

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Hi!
I will check it out. Thanks for the info.
I hope things do pick up again with this group and we get more people. If not though, no big deal.

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/11/11 9:14 A

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Yes LIVINGFREE it is much harder and longer but it can be done. You are more than welcome to come into the main forum and talk to the other lady's we are a very small group there is only two or three of us now it was much bigger but people come and go. I have had this group going on 7 years now.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/11/11 7:52 A

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Thank you.
I know we as MS'ers can't exercise the same as those without MS, so we can only do what we can, so weight loss is probably going to be slower for us.


Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/10/11 9:38 P

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That is a very good attitude with your weight LIVINGFREE keep that up it will help you a awful lot in the future , it is after all a lot of it in your mental make up in losing weight.

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/10/11 7:47 P

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I forgot to add that I have not done real well with the weight loss. I did lose ablout 20 pounds since the diagnosis but only about 2 since starting spark people.
With all the pain each of us endures with this medication it makes a person not want to eat much and, eventually, lose weight! I do believe mine will come off more too as time goes on. I have no doubts about that.

Denise

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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/10/11 7:44 P

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I am doing pretty well with my MS also but it hasn't been very long yet for me having it. My eyes are starting to go bad, where I now need glasses. I have the proverbial optic neuritis.
I don't use any assisting devices for walking yet.
I am not sure what else you were wondering about me Marna, but go ahead and ask if there is any specifics.

Denise

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
10/10/11 6:17 P

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LIVINGFREE welcome to the group I am sorry you were diagnosed with MS but we do the best we can with it. Well tell us a little about you, I have had MS for 23 years and I am doing pretty good. One of my team mates and I have each lost about 50 pounds.

Edited by: GREENIESTIME2 at: 10/10/2011 (18:18)
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LIVINGFREE19's Photo LIVINGFREE19 Posts: 37,039
10/8/11 2:42 P

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Hi! My name is Denise.
I am new to the group.
I live in Hamburg, Pennsylvania.
I need to lose 70 pounds.
I was diagnosed with MS in April of 2010.
I am excited to meet everyone in this group!

Denise

If you think you can, or if you think you can't, either way you are right!
GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
7/19/11 6:16 P

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CELIACMEL welcome to the group. We all have different levels of MS any questions or anything you would like to talk about we are here. We are a small group but have some very good members who are up on the MS subject. Again CELIACMELA welcome to the group. Your group leader Greenie

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7/19/11 5:55 P

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Just wanted to say hello! I thought I was the only one stressing over weight gain. I was diagnosed with MS in 2006. I found out I had Celiac Disease January 2010. I have gained weight being on a Gluten Free diet. Today is a new day and feel very motivated. I know I just need to "MOVE" my body, but sometimes that's just not possible. I will succeed! Good luck to all.

GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
7/10/11 12:44 P

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SHY I am feeling the same way with the same attitude it is like something finally clicked and I am ready and determined to get with it. Like you if I do want something bad I have it and then watch a little closer for a few days. I also am feeling better.

I am so glade that you are feeling so much better and 16 pounds wow emoticon emoticon emoticon emoticon emoticon to you for being on your way.

Edited by: GREENIESTIME2 at: 7/10/2011 (12:44)
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SHYFEMMEKAT's Photo SHYFEMMEKAT Posts: 1,771
1/27/10 1:04 P

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Welcome to the team, IML8RR! emoticon

It's going great! A sunshiny day here and it's hard to be in a bad mood when it's so pretty out.

I am doing well on my weight. I've lost about 16 pounds so far this time back. I'm a lot more focused this time and my attitude about what I am doing has changed. I am no longer looking at this as a "diet" but as a permanent way of life. I've factored in my cheat day every month so nothing is totally off limits.

Glad you are starting to feel better! emoticon






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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
1/26/10 10:19 A

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I would like every one to welcome 1ML8RR to the group please come in and say hi to us all.

Woke up to snow this morning it is beautiful out there, I am happy I do not have to go out and drive in it tough LOL.

So to all of you in the weight loss group how is it going?

I am beginning to after 5 weeks feel like a human again still do not have my energy what energy I had any way but am still really dragging my feet a lot.

I guess I need to go back and read some more messages I have forgotten all ready sorry will get back to you all this afternoon my friend is coming over and is going to work on my computer so will be out for a while. See you all later. M

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SHYFEMMEKAT's Photo SHYFEMMEKAT Posts: 1,771
1/25/10 12:49 P

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Marna, I miss it when you don't post. I always enjoy the things you post. Hope you will come by often. Have you ever thought about having a co-leader?






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SHYFEMMEKAT's Photo SHYFEMMEKAT Posts: 1,771
1/24/10 11:03 P

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Welcome to all the new people! emoticon






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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
1/24/10 10:48 A

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I am happy to see some of you in groups working on your weight. I a very proud of you all.

How are you all doing other wise?

I do not feel to much a part of this group any more I guess that would just mean I am not a good leader but I try and do my best. Wish you all a good year. I am going to just pop in and see how you all are doing but other wise will just read your messages and be happy for you.

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
11/29/09 10:19 A

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Welcome to all the new people to the group.

BMI 22.7WEIGHT120.6 leader MS & WEIGHT
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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
7/19/09 11:45 A

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Good morning, where is everyone??? Miss ya. Marna

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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
6/14/09 2:18 P

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Welcome 2THEMYERS IF i HAVE NOT DONE SO YET. mARNA

Edited by: GREENIESTIME2 at: 6/14/2009 (14:20)
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GREENIESTIME2's Photo GREENIESTIME2 Posts: 17,062
5/20/09 4:02 P

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Please come on in and say hi and meet the wonderful Lady's, you are most welcome. TWOGREENEYES (Marna)

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