Author: Sorting Last Post on Top ↓ Message:
JENAE954 Posts: 7,020
8/10/12 4:06 P

Send Private Message
Reply
I have a cpap but simply cannot use it. Seems to be too confining. Any suggestions?

Jenae


 current weight: 148.8 
 
219
196.75
174.5
152.25
130
STEELER71's Photo STEELER71 Posts: 4,975
8/7/12 7:02 A

My SparkPage
Send Private Message
Reply
I personally do not use the CPAP machine, but my husband does. He says he doesnt think he could sleep without itnow.He goes to sleep instantly and sleeps through the night.

 current weight: 125.0 
 
242
212.75
183.5
154.25
125
DASH4COVER Posts: 2
8/3/12 1:16 A

My SparkPage
Send Private Message
Reply
This is how I feel, too. There is something going on that the CPAP does not address or there just isn't the right mix for my face, head size and mask. I have a small head and the "one size fits all" was just too big for me. The mask would fit OK, but I'd have to rig something for the headgear to help it fit. Then they started making the headgear in different sizes and having the counterbalance be on the chin instead of the forehead. Those work better. I understand now there is a cloth mask. I'm thinking of trying it.

DASH4COVER Posts: 2
8/3/12 1:04 A

My SparkPage
Send Private Message
Reply
I have had my CPAP for over 5 years and I still hate it. I use it every time I sleep because if I don't, I feel my airway closing and it jerks me awake. But it doesn't work right for me. I have to use a full face mask because my sinuses clog up at night, and did when I was a kid, and I have to breathe through mouth. The problem is that no mask fits quite right. I've found one that is OK, but I can tell by how my mouth feels that I'm still snoring. So something is wrong somewhere. If I lay on my back, the chin part of the mask starts to leak as I relax, which wakes me up. If I make it tight enough that it does not leak, I wake up in the morning with a severe neck ache from my neck being immobilized all night.

JMORRIS85's Photo JMORRIS85 SparkPoints: (53,935)
Fitness Minutes: (25,053)
Posts: 4,827
6/24/12 11:22 A

My SparkPage
Send Private Message
Reply
Once you get used to sleeping with your cpap, you will not be able to sleep without it. The possible dangers of not sleeping with it outweigh the difficulties of getting used to it. Good luck!!!

Co-Leader of Fighting Depression with Movement http://www.sparkpeople.com/myspark/groups_
individual.asp?gid=56426

Until you heal the wounds of your past, you will continue to bleed.--Ivania Vanzant.

Life is short, live it; Love is rare, grab it; Anger is bad, let it go; Fear is a mind killer, face it; Memories are sweet, cherish them. www.atti-tude.com


 July Minutes: 1,539
 
0
32.5
65
97.5
130
SASSYCESSIE's Photo SASSYCESSIE Posts: 59
6/24/12 10:14 A

My SparkPage
Send Private Message
Reply
I am 41 and have snored since I was an infant. I was just diagnosed with sleep apnea this month. I have an AHI of 121 and somehow I have achieved this while sleeping on my side with my mouth closed. I have been using the CPAP machine 11 nights. I have adjusted to the nasal pillows as my mask just fine. I am also a bit claustrophobic. I do not pull it off at night and I am sleeping deeper but I have not had the "oh my gosh, I slept great" night yet. I am early in this process and I am going through this "I hate this" phase. I know I need this but I am depressed at the thought of using this machine the rest of my life. My wonderful husband is very supportive and I have promised to use it for the next few months faithfully and see how I feel. Good luck. Just remember, you are not alone in this.

Life is like yoga....it takes balance, strength and flexibility.


 Pounds lost: 8.6 
 
0
9.25
18.5
27.75
37
JMORRIS85's Photo JMORRIS85 SparkPoints: (53,935)
Fitness Minutes: (25,053)
Posts: 4,827
6/23/12 12:07 P

My SparkPage
Send Private Message
Reply
The first few weeks that I was on my cpap my doctor had to give me sleeping pills so that I could get used to it. I no longer take the pills, but there is only one type of mask that I can tolerate and that is the nasal one with the small nasal pillows. This type does not have all of the bands and hardware going across my face like the others and it does not keep me from sleeping on my stomach.

Co-Leader of Fighting Depression with Movement http://www.sparkpeople.com/myspark/groups_
individual.asp?gid=56426

Until you heal the wounds of your past, you will continue to bleed.--Ivania Vanzant.

Life is short, live it; Love is rare, grab it; Anger is bad, let it go; Fear is a mind killer, face it; Memories are sweet, cherish them. www.atti-tude.com


 July Minutes: 1,539
 
0
32.5
65
97.5
130
IH8W82's Photo IH8W82 Posts: 97
6/20/12 4:21 P

My SparkPage
Send Private Message
Reply
First night I used my CPAP I loved it. That was probably over 25 yrs ago. I've never been able to sleep without it since. I had a friend try it for the first time a few years ago and couldn't stand it. I suggested she try the nose pillows instead of mask and she has been doing well since. Of course the 90 pound weight loss might have also helped. Most people have a learning curve. Good luck. Kathryn emoticon Hoseheads unite.

The person who makes a success of living is the one who see his goal steadily and aims for it unswervingly. That is dedication.
Cecil B. DeMille

Aim for success, not perfection. Never give up your right to be wrong, because then you will lose the ability to learn new things and move forward with your life.
Dr. David M. Burns



 Pounds lost: 10.0 
 
0
50.25
100.5
150.75
201
CELTICNIGHT85 Posts: 16
4/26/12 4:22 P

My SparkPage
Send Private Message
Reply
When I first got my CPAP machine I could not stand it!!!! I told myself, give it one month; if in one month's time I did not get used to it, I would throw it against the wall. After about 3 weeks, I could fall asleep with it on (and stay asleep) with no issue. I use the nasal pillow masks which work perfectly for me rather than that Darth Vadar job. I no longer use the heat or the moisture, I just raw-dog it. The ramp feature was also horrible; it did not ramp the pressure up fast enough and I felt like I was suffocating. I have learned to put the machine on full-blast and strap it over my melon. My best advice to everyone just starting CPAP therapy is not to "try"; the machine does all the work for you. You'll get the rythm in no time at all. Also, make sure you use it EVERY NIGHT without exception. I made the mistake of not having it when I went for a weekend trip and I was a complete jack-wagon to everyone. You'll feel great initially and then it will feel as if it is no longer working (but it is). If you want to experiment, use it for one month consistantly then wait until you have a day off work (or else you'll get fired for attitude or falling asleep at your desk) and don't use it. You will be surprised at the difference one night without it makes. I hope this helps somebody in some way.

-- Grimm Jackson emoticon

"Grimm" Jackson


 current weight: 261.0 
 
293
272.25
251.5
230.75
210
PUNKAROMA SparkPoints: (298)
Fitness Minutes: (36)
Posts: 3
4/25/12 6:08 P

Send Private Message
Reply
I have had my CPAP machine for about three months. The first month was hard. If I just used it part of the night I was doing well. Now, I really feel so much better with it. It is so worth the effort so keep at it. Just do what you can each night. Play with the moisture setting. Mine was too dry. You can do it!

IH8W82's Photo IH8W82 Posts: 97
4/24/12 7:12 A

My SparkPage
Send Private Message
Reply
Someone should smack you. lol. Too thin? There is no such thing. Yes, I do understand anorexia and bulimia, but still "too thin". All my kids were thin and all my grands.

The person who makes a success of living is the one who see his goal steadily and aims for it unswervingly. That is dedication.
Cecil B. DeMille

Aim for success, not perfection. Never give up your right to be wrong, because then you will lose the ability to learn new things and move forward with your life.
Dr. David M. Burns



 Pounds lost: 10.0 
 
0
50.25
100.5
150.75
201
AELFWEALD's Photo AELFWEALD SparkPoints: (83,025)
Fitness Minutes: (18,817)
Posts: 3,340
12/5/11 1:01 P

My SparkPage
Send Private Message
Reply
Wow Kathryn, We must have gone CPAP at about the same time and I too had suffered with it since I was a kid. I had some problems getting a CPAP too (maybe I was too thin). The insurance company finally relented when I asked them why they would prefer paying out the death benefit instead of authorizing the machine. But I didn't have any issues getting tested. My PCP referred me to an ear/nose/throat guy who said he could tell I had OSA from the shape of my face. We didn't have an overnight lab in my area, so I had one of those units where they hook you up and send you home to plug in later. I don't remember the nasal pillows being an option back then. And it raised a stir when my results were analyzed. I had an index of 66 with an average duration of 29 seconds (so I was breathing less than 4 hours during an 8 hour sleep). Since my doctor was off to some conference when the results came back, the lab scared the dickens out of me by telling me to get a different doctor (at least for the meantime). And of course they wouldn't really tell me why specifically. Compounding things was a business trip I was taking in just a few days. It was quite an interesting series of events. And I don't go anywhere overnight without it. My original CPAP was an old Aries by Mountain Medical. I rerouted to different planes when I had to travel because it wouldn't fit under any of the seats and only a few of the overheads. AND I WAS NOT CHECKING IT. It does change your life. Heh, for one thing it extends it.

A journey of a thousand miles begins with a single step.

Ted


 current weight: 229.0 
 
260
240
220
200
180
IH8W82's Photo IH8W82 Posts: 97
12/5/11 12:10 P

My SparkPage
Send Private Message
Reply
I've been using CPAP for around 25 years. My pcp now thinks that I have apnea due to my weight. NOT!! When I was in high school I had all the symptoms but of course nobody knew what OSA was back then. Through the years, until I was finally dxd with OSA, I was treated for depression, headaches, and other things. Finally I was sleeping at a friends house and she noticed my breathing problem and in the morning, she forced me to call my doctor and get a sleep test. At that time, due to the newness OSA, I had to fight and scream to get the test. Afterward, my doctor said that he usually prescribed anti-depressants for women with my probs because OSA was an ailment of older, overweight, men. I suggested that if doctors sent men AND women with the same symptoms for the same tests, maybe they would find that this was not only a man's problem. Decades later and now women are allowed to have OSA also.
The results of my first polysomnograph were, "Severe OSA" I had 63 incidences of apnea/hypopnea per hour. This was an 8 hour test and I had zero (0) REM sleep. (No wonder I thought I was going out of my mind.) Three days later I was back at the lab for another polysomnograph and CPAP titration. I was then fitted with my headgear. I chose nose pillows over mask, and used the Adam's Circuit for over 10 years. When I did try a mask, I hated it and couldn't sleep. High cheekbones are a curse to CPAP users. Also, I felt claustrophobic, so I went back to nose pillows. I don't feel that I am compliant right now but my present pcp does not authorize a lob stay. They send some guy out with some equipment and hook me up. In my opinion the testing is not as thorough and this guy doesn't test the headgear or anything, where the lab would do a test run to check for leakage, etc. I'm tired of being tired and having headaches, but without CPAP, I can't sleep at all. If we lose electricity, I wake gasping as soon as I start to fall asleep.
In my opinion CPAP is fabulous. Literally, a lifesaver.
Kathryn

The person who makes a success of living is the one who see his goal steadily and aims for it unswervingly. That is dedication.
Cecil B. DeMille

Aim for success, not perfection. Never give up your right to be wrong, because then you will lose the ability to learn new things and move forward with your life.
Dr. David M. Burns



 Pounds lost: 10.0 
 
0
50.25
100.5
150.75
201
4DOGNIGHT's Photo 4DOGNIGHT Posts: 3,400
12/5/11 8:39 A

My SparkPage
Send Private Message
Reply
I got the new CPAP machine that I had to pay for and I must say, last night's sleep was worth the $462 I had to shell out. The machine was quiet and easy and hubby didn't have to go to the guest room to get some sleep. I feel refreshed and glad I sprung for it. Guess it is my Christmas gift to myself and hubby! Leaving the team but good luck to everyone.

Pursue the things that make you feel alive and fill you with joy and balance.!


 Pounds lost: 6.7 
 
0
8.675
17.35
26.025
34.7
WVAWACKADOO's Photo WVAWACKADOO Posts: 62
12/5/11 12:16 A

My SparkPage
Send Private Message
Reply
I've been on a C-Pap machine for over 6 yrs. I was sure that I just needed to lose weight. My sleep test revealed that I stopped breathing 72Xper hr.(Sever Obstructive)...not good. I have several skinny friends that have Sleep Ap. so it is not all about the weight, but I am sure that if I lost a bunch, they would probably lower the pressure. The thought of having heart &/or lung disease just doesn't appeal to me...I would never go out of town without my machine & get very nervous about it when the power goes out...I am exhausted after 2 days without it. Take care & Sweet Dreams...weight loss too...

 current weight: 251.8 
 
251.8
226.35
200.9
175.45
150
SUCCESS-AMT SparkPoints: (63,274)
Fitness Minutes: (67,845)
Posts: 3,928
11/30/11 11:15 P

My SparkPage
Send Private Message
Reply
Welcome. I took a sleep test but I couldn't sleep enough to get real results. My doctor said I probably get one. I haven't yet. My vrother has CPD, and is on a mask. He has some trouble with it because of claustrophobic. He also recently got a different on that gave warm air rather than the cold air. I wish you the best of luck.

 current weight: 237.0 
 
254
228
202
176
150
JEANK1950 Posts: 102
11/30/11 7:40 P

Send Private Message
Reply
Some people have an easier time of it on CPAP than others. I'm one of those who has had it for 5 years and even though it's made some difference, I haven't gotten the remedy I thought I would from it. I still wake on and off during the night and still have mornings where I wake up feeling like crap. I've tried all different kinds of masks, and still don't get much rest. My pulmonologist has adjusted the pressure, and still not much of a difference. If I don't use it I am tireder, but using it I'm not all that refreshed. However, sleep apnea it is a serious health disorder, so it's best to use it to avoid worse problems.

 current weight: 236.2 
 
236.2
223.15
210.1
197.05
184
AELFWEALD's Photo AELFWEALD SparkPoints: (83,025)
Fitness Minutes: (18,817)
Posts: 3,340
11/30/11 5:56 P

My SparkPage
Send Private Message
Reply
I'm happy to hear from someone who had issues getting used to a CPAP, but overcame them. Over the years I've heard a lot of people talk about how they couldn't sleep at all while wearing a CPAP. Now I maybe have a higher index than a lot of folks, but when I went on the CPAP initially, I felt better after a 20 minute nap than I did with 10 hours sleep without it. I was a zombie by 5:00 and so exhausted I was darn near incoherent. My son had permission to spritz my face with a water bottle if I fell asleep while reading to him at night (which he delighted in of course). I've known people with undiagnosed apnea that were accused of drinking on the job because they seemed drunk. And let's not even talk about the number of guard rails that suddenly appeared in front of me while driving down the road (none of which I actually connected with by some miracle). I lived 10 minutes from the office and would nod off 3 times while driving to work.

It may take a bit to get used to it.... and having a 6 foot hose attached to your face may not be the sexiest thing in the world..... and if I wanted to I could come up with a dozen other gripes about it. But you just can't beat the fact that it does work.... and that means that you feel better than you did without it.

Sorry, didn't mean to climb on the soapbox. I guess it's just an issue that's close to my heart. I wasn't kidding when I said I'd be long dead without it. If you have apnea strong enough that it requires treatment, listen to Hoss. Do your best to hang in there. The results are well worth the effort. LOL, and be glad that you never had to deal with the equipment we used over 25 years ago when CPAPs were pretty much new to the world.

A journey of a thousand miles begins with a single step.

Ted


 current weight: 229.0 
 
260
240
220
200
180
GMAHOSS1 SparkPoints: (19,110)
Fitness Minutes: (8,947)
Posts: 1,774
11/30/11 3:45 P

My SparkPage
Send Private Message
Reply
i use a cpap when i first started i was just angry with the whole thing iam very claustrophobic, it took me awhile to get the hang of it. now that i have gotten used to it it is great. i sleep better., i am working out and feel way better. i am also on oxygen as my level drops bellow 75 when i sleep so goood luck and just hang in there the results are worth it

i started this at 248.8 pounds and am hoping i can lose at least 50 in one year.


 current weight: 226.0 
 
249
224.25
199.5
174.75
150
4DOGNIGHT's Photo 4DOGNIGHT Posts: 3,400
11/29/11 8:27 A

My SparkPage
Send Private Message
Reply
I have an interesting story. Hubby complained for years that I snored and kept him awake and I took a lot of afternoon naps. Finally went for a sleep study in July 2011 and flunked. I could not go to sleep with all of those wires attached to me and in a strange place in spite of a med I took. I stopped breathing twice but insurance would not pay for a machine because that wasn't good enough. So I got a loaner CPAP in Sept to try for 45 days. At first I didn't like it, got the nose one. However I persevered with it and about half way through I increased the air flow and found it very peaceful. I had more energy than ever and hubby stopped complaining about my snoring. However, last Monday, my 45 day loaner was up and I had to return it to realize my insurance still would not pay for it. So after a couple of nights of hubby sleeping in the guest room, I called yesterday and got help from the respiratory therapist to buy one online for $462. Last night I used a breathing nose strip and slept all night so maybe I didn't need it after all but it is coming. I think if I could just lose 30 lbs my problem will be solved. I don't have it as bad as others it seems. Good luck to you.

Pursue the things that make you feel alive and fill you with joy and balance.!


 Pounds lost: 6.7 
 
0
8.675
17.35
26.025
34.7
AELFWEALD's Photo AELFWEALD SparkPoints: (83,025)
Fitness Minutes: (18,817)
Posts: 3,340
11/29/11 8:14 A

My SparkPage
Send Private Message
Reply
I've been on a CPAP since 1985. I'd be dead without it. It does take some getting used to, but it is well worth it. Give it your best shot. It will change your life.

A journey of a thousand miles begins with a single step.

Ted


 current weight: 229.0 
 
260
240
220
200
180
MILLIE5371 SparkPoints: (34)
Fitness Minutes: (0)
Posts: 4
11/28/11 10:12 P

My SparkPage
Send Private Message
Reply
I've recently been diagnosed with sleep apnea. I did two full night sleep studies; one without and one with a CPAP machine. With the machine, I only slept about 3 hours but felt much more alert than I have felt in a long, long time. My neurologist says this will help with so many of the issues I am struggling with. Extreme exhaustion, can't concentrate many days, irritable, headaches. She classified it as moderate to severe. I am so hopeful that this works and it is the thing that gets me off this crazy merry go round I've been fighting for so long. Too tired to do anything; need to exercise; too tired; need to cook healthy; too tired; need to exercise, hurts too bad; need to lose weight; can't hold out to exercise or the pain is too much. Everything impacts and is impacted by something else and I've been unable to break the cycle to help myself. This is a ray of hope for me.

Does anyone have experience with this? Do you use a machine? I'm a bit claustrophobic and not sure how I'll tolerate something over my face but if it will help me, I'll give it everything thing I've got to make it work!

Page: 1 of (1)  

Report Innappropriate Post

Other I Need Sleep! General Team Discussion Forum Posts

Topics: Last Post:
Night & Day 8/27/2013 11:27:57 PM
Food Dreams 1/28/2014 2:20:44 PM
Spring walking tips 5/5/2013 9:01:54 PM
sleeep 6/28/2014 5:50:44 PM
Canot go on like this 6/10/2014 11:20:51 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x6162x45280655

Review our Community Guidelines