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MOM2BRANDON's Photo MOM2BRANDON Posts: 225
8/9/12 9:51 P

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WOOHOO....after almost 3months on 50mg of prednisone a day, I weaned off. That was in mid-April, and I have been off it ever since. I've lost 8lbs so far, and although the humidity has my asthma flaring again, I'm fighting like hell to avoid the steroids again!! We also changed my inhalers: I'm on advair (2 puffs / twice a day) and Alvesco - he told me to try 1 puff twice a day & see if that settles things down, & if not go up to 2 puffs twice a day. Like I said - anything to avoid the dreaded "P" again!!

~ Kimberly

"Slow progression is the key to long-term results" Tamilee Webb

"Itís not who you are that holds you back, itís who you think youíre not"


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BABYBEAR666 SparkPoints: (213)
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7/14/12 6:16 P

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Yikes!! I love that Prednisone helps me get back on track but to be on it constantly is no good :( I'm sorry you're going through that.
I've had asthma since I was 2 and my best advice is to talk to your doctor (hopefully you have an actual allergy and asthma specialist) about prevention and not just treatment. I'm personally on Advair but I believe that should be one of the last resorts also. What kind of machine is it at your work? Is there anyway you can stay away from that machine, asked to be switched to a different department, or even just wear a mask to work when you are around that machine?
If your doctor seems reluctant to help you PREVENT your asthma in the first place, GET A NEW DOCTOR!! The BEST medicine is ALWAYS prevention. Once asthma starts, it's difficult to stop, as you all know.

I hope this helps and best of luck and health to you emoticon

"I have a message for my fans. Whatever you want to do in this world, it is achievable. The most important thing that I've found, that perhaps you could use, is be passionate and enthusiastic in the direction that you choose in life, and you'll be a winner." - Steve Irwin


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SUMMERGIRLTASHA's Photo SUMMERGIRLTASHA Posts: 399
6/23/12 7:47 P

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I was a slightly overweight child with asthma. I remember running in PE and thinking I was going to die feeling my lungs burning and wheezing. The PE teacher was so unkind and I felt so condemned for not keeping up with the other kids. Then I went on inhalers and and steroids. I gained weight and was sick a lot! I hated school for years. At 15 I went on a lot of steroids and gained 40 pounds. My menstrual cycle went crazy and developed ovarian cysts which added to my weight gain. Continued to gain throughout my life on and off steroids. I have been hospitalized several times for asthma, bronchitis and pneumonia. It can be so frustrating but I have been off steroids for over a year now and have lost a lot of weight (see my page) Mostly I use my nebulizer with albuterol to control the asthma. It clears out my lungs a lot better than a rescue inhaler but i keep one of those close by too. I have had some scary episodes in the night where I have an attack while sleeping and don't realize how bad it is until a long way into it and then I'm so close to totally having no breath. But since losing weight I have had no episodes like that. So glad. I also use a snorkel when I swim so I can breathe the whole time I am swimming. That helped ALOT. I know other swimmers probably think it is strange but I don't care. Breathing is kinda important lol!

"If a man really wants something he will find a way, if he doesn't he will find an excuse." Stephen Dolley, Jr.

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Trust God to do what you CANNOT do!

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DENAINOHIO Posts: 8
6/17/12 3:04 P

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I also have been on & off steroids for the past eight month because of my asthma/allergies. I also have put on 18 lbs because of the steroids! It so depressing to not fit into your clothes, as of right now I have been off steroids for 36 hrs & I will NEVER go back on. They only mask the problem. I started with a new doctor 36 hrs. ago, he did a CranioBiotic Technique (CBT) and was able to cure me of two of my nine allergens. I will return tomorrow for another treatment and hopefully continue to be cured. If I can keep the allergies under control ( my maintaince meds, including steroids were no longer even working, in fact they were harming me by puffing me up so much & having me retain water)
I'm not completely crazy, I will continue to keep my rescue inhaler with me and use it before dropping dead.

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6/12/12 6:46 P

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I was born not breathing and have had asthma ever since. My asthma is completely intrinsic and triggered by exercise, weather changes, humidity, high heat, very cold temperature, smoke of any sort, any scented items (perfumes, lotions, everything, even if someone puts lotion on in class I have an attack). Pretty much everything, but I have NO treatable allergies. I use symbicort 2x daily, my emergency inhaler almost everyday as needed, and very very often my nebulizer. This year, I have gotten a steroid shot once every month, plus I usually have to follow that up with oral prednisone.
I started seeing a weight loss doctor due to the amount of weight the steroids had caused me to gain over my lifetime, and see if there was some sort of help to balance it out. I am currently on weight loss pills and they are really helping me! I have lost 64 pounds since I started and it helps the water weight gain flush out of my system quicker, and helps me avoid feeling hungry all the time while on them too!
On a side note. I am currently pursuing a surgery called bronchial thermoplasty. It is for asthma patients with very serious asthma. They go into the lungs and use some sort of current to shrink back the muscles that have swollen so tight over the years of attacks. It has been approved by the FDA since 2010, and medicare just approved it in their systems, so other insurance companies will be soon. It is said to make asthma sufferers up to 85% better!!! My doctor says I am a great candidate, but now we are fighting the insurance and waiting for them to begin approving it. I just wanted everyone on here to know about it and look it up if you think it may help you! I hate my asthma, so the thought of a surgery that can help all of us suffering is something I want to share!!!!!

KARRIESPIES's Photo KARRIESPIES Posts: 9
5/30/12 3:35 P

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One of the best things you can do to try to stay off prednisone is stay hydrated. Asthmatics need more water than most, significantly more water. Onset dehydration for us can trigger attacks. There are just times when we have to use the prednisone, but we can try to avoid a flare up with hydration. I just had to get a Kenalog shot yesterday, and looking back I was not properly hydrating.

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PICKIE98's Photo PICKIE98 SparkPoints: (264,832)
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4/10/12 1:04 P

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My asthma is triggered by both:weather change and exercise.. usually high humidity and any incline walking.. even a couple degree incline.. snaps me into a gasp-fest!!!

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JOY00_01's Photo JOY00_01 SparkPoints: (9,280)
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3/31/12 6:05 P

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I've been sticking to Flovent all year round and increasing dose with bad allergies or colds and decreasing when not needed as often(with DR addvice). The thing is without coverage it's $175 per inhaler and I'm suppost to get one every month so without coverage it wouldn't be ideal.

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MSTIGGERFAN's Photo MSTIGGERFAN SparkPoints: (59,059)
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2/27/12 7:26 A

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I have been trying to use the atkins plan to help me jump start my losing. I have lost 15 pounds so far but need to lose a ton more. It just gets to be such a roller coaster with asthma and my little two year old battles it as well as my older two. They are only exercise induced where changes in the weather trigger mine and Sarah's. Good luck to you.

Cherly
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SYVN8KAZAGAIN's Photo SYVN8KAZAGAIN Posts: 10
2/25/12 8:58 P

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Omg I feel you guys on this one.
I was born with asthma. mom was pregnant in Bremerton Wa Naval shipyard. Aspestos and other polutants are airborn there.

I get alergy shots twice a month, take symbicort 2x day, qvar 3x a day. my rescue inhailer as need. take 180mg of alegra, 10mg singluar and 10 m g of prednizone. EVERY DAY. and everytime I get sick minimum of 60mg of prednizone, then done to 40mg for a two week or six week period. ( I weighed 118 in highschool, when pregnant 160, Im not 217. and its all because of the prednizone.)

If I get HOSPITALIZED for broncitis, or pnemonia. - the Hospital gives me up to 200mg of PREDNIZONE A day. YES it keeps me alive and breathing but my resting HEART rate is 111.
At this rate I'm going to die of a heart attack.


Besides not getting sick. How do I get away from Prednizone??

Karma is like a rubber band, it can only stretch so far before it come back and smacks you in the face.


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BEEHAPPY2's Photo BEEHAPPY2 Posts: 1,400
2/24/12 3:31 P

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Prednisone really is a roller coaster ride. I was not diagnosed with asthma until I was 30 years old, so have spent the last 20 years trying to keep it under control. My allergy shots and daily inhalers usually do the trick but I end up on prednisone a few times a year with infections too. Allergy shots really have helped me not be a prisoner to allergies so that might be something to ask your doctor about, esp. since you have so many environmental triggers. Good luck, Bee emoticon

MOM2BRANDON's Photo MOM2BRANDON Posts: 225
2/23/12 11:14 A

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I was diagnosed with asthma when I was 23, and once we found a plan that worked, I was relatively symptom-free. Fast forward to 18 months ago (age 40) - they install some new equipment at work, and my breathing starts acting up. I have a chronic cough, wheezing, chest tightness, mucus production....and the tiredness - OMG!! emoticon So in January 2011 I was put on prednisone - 30mg x 7 days. It seemed to clear everything up. But by July, I was back on it again - 50 mg x 5 days. September, my breathing is bad again & I have an appointment with my ENT - my nasal polyps are enlarged, so she puts me on a 12 week dose. I started with 7 days of 50mg, and gradually tapered until I was on 2.5mg every second day. A month later, I was on it again (50mg x 7 days)....three weeks after finishing that dose I was on it again.....you see where this is going??
I asked for a referral to a pulmonologist, who I saw February 10th - I was back in his office on the 17th with another flare up, and he put me on 30mg until my spirometry tests show marked improvement.
My biggest issue is the weight gain - 2 years ago I weighed 123lbs. I now weigh 167!! emoticon I'm upset...I'm depressed....I'm angry. The only time I can effectively do cardio (and breathe) is when I'm on prednisone, but the drug causes me to gain weight. it's a vicious circle. I track my food on SP, and stay within my ranges (95% of the time).

Can anyone HELP me? I need ideas (diet or otherwise) to get my weight back into control!

Edited by: MOM2BRANDON at: 2/23/2012 (11:15)
~ Kimberly

"Slow progression is the key to long-term results" Tamilee Webb

"Itís not who you are that holds you back, itís who you think youíre not"


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