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9/18/16 9:56 A

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I just got back from a week visiting my Grandchildren. I could hardly walk at all and my son had to help me all the time. I feel so ill I just do not know what to do. I have given up on the Dr's ever giving me any help. I am almost positive that Whatever shock and stress I had in february plus the virus gave me CFS and that is what is making me like this. That added to the poorly treated Thyroid would account for all my symptoms. I feel now that unless there is a miracle I am not going to get better. I know that is a terrible defeatist attitude but I really feel so ill today I just am too tired and low in spirit to think in any other way.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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8/17/16 1:36 P

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Well the appt at the surgery was just as disappointing as I expected. The only thing that showed up was that my familial cholesterol is very high and I need to double my meds. I could have a stroke, but I knew I had a risk. This is very difficult because I am already vegetarian and eat minimal fats. I do not know what I can do about this.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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8/3/16 6:34 A

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I finished at the dentist yesterday so hopefully I am good for another 6 months. I made a note in my phone to remind myself because I do not want to have such heavy treatment again. The practice forgot to send me a reminder so It was too long between visits.
I got my new glasses and they are very good, I will not make the mistake of going anywhere else again. Now I just have to wait 2 weeks for the useless Dr apt. I have made legible notes for when I see him so I am calm this time and can try to explain properly what is going on with me.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/26/16 9:12 A

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Back at the dentist this morning and had the worst tooth done. Glad that is over. Had a couple of near falls since yesterday!
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/21/16 4:51 P

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One of the fillings came out last night but I will wait till next week to go back unless it starts to hurt. I have not had a good day and I cant face going out again.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/20/16 10:48 A

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This has been a very busy week for medical things. I went to the dentist this morning and had a couple of temporary fillings. I need a root canal plus another filling done over 3 weeks. Not good news at all. I was not expecting that at all.
I was also lucky to get a cancellation at my preferred optician and had my eyes tested. I really needed to have them checked as my sight has not been good at all. My sight is a little worse and I have the beginnings of a cataract in my left weaker eye. I had a very thorough check up and I will need to change my drops. So I will have new glasses in about 10 days hopefully. So this has been a very productive day.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/19/16 7:30 A

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I had my ECG this morning and took the readout to the surgery. It looked normal to me but I will have to see what the Dr says. I had a phonecall from the OT that I will get a call from them next week to get an assessment soon.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/18/16 12:14 P

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I have had the blood test and now I must wait for the results. I do hope something shows up so that the symptoms can be treated.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/13/16 10:25 A

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I had a hard time at the Dr. He did not seem to understand what I was telling him. Jackie said I did not explain it properly. He thought I had one thing wrong with me causing the falls but it is two. Anyway I will have blood tests and a heart trace next week. There were no apts available sooner at the hospital. I will eventually get a 24 hour heart test through the post. Also he thinks I need an occupational therapist to asses my needs. He was not too happy about me living alone, but I manage fine. I was not happy with him about that assessment. Young people always think we oldies cant manage. I wish I had never gone and left well alone.
Myrna.



"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/12/16 6:53 A

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I have an apt at the surgery tomorrow. I am very nervous. Not because they will find something, but because they won't! It will be the usual run around and I will end up in the same dismal position as I am now. Very poorly with no chance of getting any better.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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6/20/16 2:51 P

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My sister is coming back from visiting her kids tomorrow. I think I will seriously consider going to the Dr and finding out what is causing the balance problems I am having and the dizzy spells and breathing difficulties.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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9/22/15 10:18 A

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I saw the Dr yesterday and he was very unhelpful. He said there was nothing he could do for me. DD was furious when I told her and said I should have challenged him. That I cant go around with swollen painful feet I cant walk on. I don't see what I can do if a consultant tells me it is untreatable. When I saw him in casualty he was so nice, this time he was cold and unfeeling. I have a streaming cold and feel too fed up to care at the moment. I am sick of Dr's who cant do anything and cant even be kind when they shut the door in my face .If they had federation healers like me in the NHS they would not be sending patients home untreated. it makes me so angry when time and again they ignore the phenomenal results we have in diseases they cant even touch.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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9/11/15 1:30 P

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I ended up in hospital yesterday after a visit to my chiropodist. I have been having a lot of trouble walking lately. Yesterday my toes were all swollen and a funny color. She told me to go straight to the Dr once she looked at them. The Dr sent me to emergency at the hospital. I was terrified but luckily there was a Rheumatology Vascular specialist on call and he is going to treat me. I was worried I would lose my toes but he said I wouldnt. I don't know what he is going to do but I have confidence in him. he said I have a heart murmur but that doesn't mean anything it is quite common. DD came with me and she asked me why I had to wear such a horrible pair of pink knickers! I thought they were very fetching! lol.
Myrna.


"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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6/18/15 5:35 P

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The professor told me the swelling in my feet and pains in my leg and breathing problems are caused by my Thyroid affecting my heart and bones. This is because my Thyroid medication needs adjusting. he said I need to alter the dose over 3 months to see if that will work. A higher dose one day then lower the next alternatively. I do not hold out much hope that this will work but lets see what happens. I will try anything that will help. The last three weeks my symptoms have got so much worse. I can hardly stand on my feet or walk around.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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6/17/15 7:15 P

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I am going to see the Professor again and the Thyroid clinic tomorrow. I am very nervous about it. I have put on weight and all my symptoms are really bad. I have no expectations of him doing anything to help me. I expect ridicule at the very least. it is all so hopeless.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/9/13 11:46 A

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It is always a very difficult few days before we go for check ups. I hope all goes well for you. Please let me know how you get on. I will be praying for you that you get the all clear and can stop worrying.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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7/9/13 11:36 A

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My yearly checkup for cancer/endo is next week. Hoping for good news. always seem to get a bit anxious. So many have reoccurances.

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3/4/13 2:55 P

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My Thyroxin has been increased by 25mcr. My symptoms are much worse. hair loss, rashes, hand shakes. getting weaker all round.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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1/21/13 10:58 A

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I have got a blood test tomorrow to try and find out why all my hair is still falling out and my skin is so bad. We have got heavy snow and I am worried about going outside and falling in it. I do not have a car and have to walk and take a bus to the surgery for the test. The pavements are never gritted only the roads.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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12/30/12 9:30 A

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I am not doing so well. My depression has reached epic proportions. Dr Cox has increased my
Venlafaxin by another 75mgms. I am going to see her tomorrow for an update. My hair is falling out in handfuls. My skin and scalp is so itchy. Sleep is haywire.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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11/22/12 4:14 P

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Still shortages of eltroxin but I have managed to get another 2 months worth. I have been ill for several months with a bladder infection. I am now on permanent antibiotics. i am waiting for a kidney scan. My health is not good.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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6/8/12 5:18 A

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No sign of the problems with Eltroxin getting better. managed to get 12 tablets from the pharmacy. Do not know what to do?

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6/3/12 12:08 P

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My venlafaxine has been changed to tablets. Hope it is the same. I have been on them for about 20 years. I only have a few Eltroxin left and the factory is not supplying any at the moment getting very worried.

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5/1/12 7:08 A

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Had a less than satisfactory visit at the Dr yesterday. he said that other nasty Dr does not want me to stay on the Eltroxin but to go back to the cheap nasty stuff. I said I would not go back to it. Stailmate. Lets see what happens when I put in a script for it. Sorted out the topiramate. Final dose change to 100mgs in a months time should end the problem. No diuretic. Wont increase my Eltroxin? till my pulse goes down. I said it was up because of aggravation. he said to get it checked again to see if it was lower. If it was I could go up to 75mcg then check again in 6 weeks. I said I would wait till I got back from Israel. My blood results have stayed at 1.6 no change. They have stabilized? I wonder if they will start going up again?

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4/18/12 11:00 A

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Went to the dentist. handed in my new medication list.

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4/12/12 5:29 A

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I made a complete fool of myself at the surgery over a prescription. I had run out of my pills, and despite every precaution on my part to make sure it would be ready for me, of course it was not. Back to the drawing board.

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4/10/12 3:12 A

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I have a blood test today. Need to book a Dr apt. Still no weight loss. Very upsetting.

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3/14/12 10:54 A

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The Dr was nicer today.

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3/10/12 2:11 P

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pain in my leg and back. Wonder if this is the start of thyroid pain.

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3/9/12 4:08 A

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Going for a blood test today. Increased the Topamax to twice a day for my migraines. This is the third week. 3 headaches since I started on it.

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2/20/12 7:40 A

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Got a copy letter from the neurologist. He is telling the GP what medication to give me. Nice to have a copy of his findings.

Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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2/10/12 4:01 A

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Fasting blood test this morning.

Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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2/8/12 4:13 P

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I saw the neurologist. he was very nice. I will have an MRI. He is changing my Migraine treatment. I am very pleased.

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2/7/12 6:57 A

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The Dr was very nice. he told me that the problem was probably due to the fact that I have now had Bells palsy in both eyes. This has made them partially paralysed and so I do not blink enough. he has given me some non preservative eye drops to use 6 times a day. indefinitely.
Tomorrow I see the Neurologist.

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2/6/12 2:43 A

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I am going to the eye clinic this morning. Report back later.

Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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1/30/12 7:13 A

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The Dr was a real pig. I have got a blood test in Ten days time. he said I was depressed because of the palsy. he said all the pain was muscular due to my age and arthritis and to take asprin. he said he thought I did not need thyroid medicine that I probably only had a virus. he said I was not so ill that I needed to take up an urgent apt. I wanted to crawl into a hole and die.

Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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1/26/12 5:57 A

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The migraines came back a couple of days ago. last night I took a sumatriptan plus some soluble paracetamol. I try never to take an analgesic but I needed it last night. I had the migraine plus the pain from the side of my neck. After a shaky start I am much better this late morning. Very weak though.
Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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1/20/12 6:14 A

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I stopped the steroids from today. Such a relief. I have to still take the meds for balance once I am able to walk outside again. I also take Omneprazole, statins, venlafaxine levothyroxin and sumatriptan. A lot of drugs with probably a lot of side affects.

Myrna.

"To share often and much--to know even one life has breathed easier because you have lived-- This is to have succeeded."


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1/15/12 11:39 A

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It would be very helpful if we could talk about what medicine and treatment we are receiving for our conditions. Maybe we could brainstorm a little and find some results that might be of use to ease some or all of our symptoms.

Myrna..

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