Author: Sorting Last Post on Top ↓ Message:
EDS_ELLEN's Photo EDS_ELLEN Posts: 89
5/5/14 11:13 A

My SparkPage
Send Private Message
Reply
If you have a kindle, my book was published for kindle yesterday. It is called "Zebras of Hope". You can download a free sample from Amazon to see if you want to read it.

 current weight: 110.0 
 
135
128.75
122.5
116.25
110
JSMITH68's Photo JSMITH68 Posts: 46
5/4/14 8:37 P

My SparkPage
Send Private Message
Reply
I have read, and re-read this book. So much to take in.

EDS_ELLEN's Photo EDS_ELLEN Posts: 89
2/13/12 9:18 A

My SparkPage
Send Private Message
Reply
These are some Facebook groups devoted to EDS:

Zebras Need Zebras www.facebook.com/#!/groups/158252460
69
1/


Zebras R Us www.facebook.com/#!/groups/168190497
41
0/


Zebras For Life www.facebook.com/#!/groups/hearhoove
st
hinkofzebra.EDS/


EDS - We are Zebras www.facebook.com/#!/groups/149855614
72
8/


Ehlers-Danlos Support Group www.facebook.com/#!/groups/152615741
47
3177/


Ehlers Danlos Syndrome www.facebook.com/#!/groups/221096523
9/


Ehlers Danlos Awareness www.facebook.com/#!/groups/358792522
06
5/


Support Ehlers Danlos Syndrome www.facebook.com/#!/groups/323535012
03
/


EDS Today (Ehlers Danlos Syndrome) www.facebook.com/#!/groups/EDStoday/

Ehlers Danlos Syndrome type 3 www.facebook.com/#!/pages/Ehlers-Dan
lo
s-Syndrome-type-3/126241787394071


EDS Network C.A.R.E.S. www.facebook.com/#!/pages/EDS-Networ
k-
CARES/295238396730


MAC12 EDS May Awareness 2012 www.facebook.com/#!/groups/298898593
88
4/


Edited by: EDS_ELLEN at: 2/13/2012 (09:32)
 current weight: 110.0 
 
135
128.75
122.5
116.25
110
EDS_ELLEN's Photo EDS_ELLEN Posts: 89
2/13/12 9:04 A

My SparkPage
Send Private Message
Reply
These organizations, offer information about EDS:

Ehlers-Danlos National Foundation www.ednf.org/

EDS Network CARES Foundation www.ehlersdanlosnetwork.org/

Edited by: EDS_ELLEN at: 5/5/2014 (13:54)
 current weight: 110.0 
 
135
128.75
122.5
116.25
110
EDS_ELLEN's Photo EDS_ELLEN Posts: 89
2/13/12 9:02 A

My SparkPage
Send Private Message
Reply
This is a link to Dr. Brad Tinkle's latest book about EDS and Hypermobility Syndrome: www.amazon.com/Hypermobility-Handboo
k-
-Management-Ehlers-Danlos-Syndrome/dR>p/098257715X/ref=sr_1_2?s=books&ie=U
TF
8&qid=1329141732&sr=1-2


 current weight: 110.0 
 
135
128.75
122.5
116.25
110
EDS_ELLEN's Photo EDS_ELLEN Posts: 89
11/30/11 9:07 P

My SparkPage
Send Private Message
Reply
WHIMOBESSED's SparkPeople Blog www.sparkpeople.com/mypage_public_jo
ur
nal_individual.asp?blog_id=3954915


Edited by: EDS_ELLEN at: 2/13/2012 (09:45)
 current weight: 110.0 
 
135
128.75
122.5
116.25
110
Page: 1 of (1)  

Report Innappropriate Post

Other Ehlers-Danlos (EDS) and Hypermobility Syndrome General Team Discussion Forum Posts

Topics: Last Post:
started water aerobics 5/20/2013 11:21:54 AM
exhaustion 5/13/2014 6:04:54 PM
lost weight now skin is really, really wrinkled 6/21/2014 7:02:52 PM
Struggles keeping weight on? 11/29/2013 2:08:20 AM
creaky, cracking joints 6/20/2014 9:49:05 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x54081x45312134

Review our Community Guidelines