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SUSIETIG Posts: 196
3/3/14 9:37 A

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Edited by: SUSIETIG at: 4/19/2014 (14:41)
TWEETYKC00's Photo TWEETYKC00 Posts: 78,291
12/30/13 10:44 A

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Honestly I have not heard much good about Humera, but things do work differently for everyone. I use and herbal salve to help manage my pain and it helps alot.

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SBECKER526's Photo SBECKER526 Posts: 1,459
12/30/13 9:45 A

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I take 17.5 mg of methotrexate every Friday. I am doing well with it. My problems are with surgeries. I normally go off of my RA medication for wound healing.

I am on my way to better health!


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HJMOMMY Posts: 870
10/13/13 10:43 A

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I've been on Humira Injections (weekly) and Methotrexate Injections (weekly) for several years. Recently my Rheumatologist added a new drug called Arava (generic name Leflunomide) which is much like Methotrexate - as he states my arthritis is progressing, even though I'm still taking both injections weekly. Has anyone else taken this newer drug Arava in addition to the Humira and Methotrexate injections - and if so, what (if any) changes have you noticed?
Other than my hair loss, I have yet to notice changes after taking it for almost 3 months.
Information I find so far is "mixed" on this drug, but with my allergies to the other ones available for severe arthritis, this appears to be the best bet for me at the present time. I would appreciate any feedback from anyone else taking it - either alone or with other medicines for arthritis.
Thank you in advance for any replies and
Wishing you All a Blessed Day!

HAPPYGIRL581's Photo HAPPYGIRL581 SparkPoints: (5,216)
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8/2/12 11:42 A

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I know, have trouble with that every so often. Hate it! I don't take either of the pain meds exactly as prescribed. I do both first thing of the morning. Then don't usually take any more of the Hydro, til supper and the gabapentene til bed. My Dr knows this. If I am having a really bad day however, I will take both as prescribed. I just hate taking pills!
I hope you are doing well. Do take care, and God Bless, cris

Every day is a new day with a new chance to do something great!
JUDSTERF's Photo JUDSTERF Posts: 3,263
8/1/12 6:37 P

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Be careful of the codein in the hydrocodone. You can get constipated really easy with codeine which can cause many other problems. Speaking from experience.

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HAPPYGIRL581's Photo HAPPYGIRL581 SparkPoints: (5,216)
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8/1/12 2:19 P

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Hello everyone, I am on salsalate 1500 mg twice daily, hydrocodone 5/500 4 times a day, gabapentin 600 mg 4 times a day. This is just my pain meds and anti-inflamatory. I take other meds for other conditions. Sometimes I feel like a walking pharmacy! I get so tired of taking pills. But I do what my Dr tells me and try to stay active. Some days I cannot do much. But I just take it one day at a time. emoticon

Every day is a new day with a new chance to do something great!
JUDSTERF's Photo JUDSTERF Posts: 3,263
7/28/12 2:02 P

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I am on Trileptal for fibromyalgia and the family dr is talking about taking me off of that slowly and then starting me on the new substitution for Neurontin - I don't know if the new one is the name you gave or not. He was concerned about all the side effects of the Trileptal with all the other problems I have going on. It did work well for me though. The Cymbalta gave me severe headaches and the Lyrica made me psychotic to the point that I embarrassed my husband in public (he handled it well though) I'm anxious to get started on the newer one.

Judy emoticon



One Day At A Time Dear Jesus!!!

Not looking at how many # to go but back and how many #s I've already lost!!!




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BECKYSRN's Photo BECKYSRN SparkPoints: (57,717)
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7/28/12 9:50 A

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My husband and I have RA and my daughter has lupus--my husband is on 400 of plaquenil a day and 25 of methotrexate a week, no pain meds, occasional prednisone when he has a flare.
I was on methotrexate and remicade, plaquenil made me sick to my stomach. I'm not on anything right now as my rheumatologist is no longer here and the remicade assistance program was a farce and I can't afford it. I take vicodin occasionally for the pain, but not all the time.
My daughter is on plaquenil, methotrexate and cymbalta. Her lupus markers are decreasing and she has been finally able to go back to work after being in constant pain for several years. She takes percocet for pain, and also 2700 mg of neurontin (gabapentin) daily because she also has fibromyalgia.
Good luck on your regimen. What you're on (speaking as a nurse as well) is a very common one. Keep us posted on how it works.

Blessed be.
Becky

May I deal with honour, may I act with courage, may I achieve humility.--Dick Francis

And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
--Antoine de Saint-Exupery



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ANGELBABIES2's Photo ANGELBABIES2 Posts: 437
7/26/12 2:11 P

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I am on lodine and tramadol for my pain and baclofen for the muscle discomfort and they all help in there own ways...

Do you love life?? Then do not waste time for that is what life is made of...


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MOMMABEARZ99's Photo MOMMABEARZ99 SparkPoints: (2,697)
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7/26/12 1:24 P

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Hello. My namevis melinda its nice to meet you. I have the same type of arthritis, i am 38 and the art has cause all the cartilage in my L knee to break apart and now i am walking bone obpn bone cause of it. But i also have it in every joint,knees,hips,ankle,finger,elbow,and the vertebraea in my spine. The art has attcked my spine so much that it has caused he bone to splinter off and the tiny peices move around and lodge in the muscles and cause debilitating muscle spasms. I have also been through mant cocktails of medications. Everythingbfrom hard narcotices to anti inflamitory meds.

The ones that i am on right now that work the best are-

Declophenaic- this is a very strong anti- inflamatory this has been the most important one i have vey been on. At 1st i didnt thinknit was helping but when i had to go off of it or surgery within 3 days the pain thriples. I was told by the pharmasit tht is is like taking 16 ibeprophen at 1 time. I have been on it for a long time and it has not caused any issue with my stomich or liver. I take it 3 times a day.

Nurontine- this med is used a lot for depression but it is also used for nerve damage and along with the art i was lso DX'ed with fibromyalga. I was having days at. Time with horrible achey pain everywhere and after being told i had arthristis iwas also misDX'ed with lupus and other anti- immue diseases. It took many years to finally find out that not only was the arthitis desrtoying my cartilage and bone but causeing nerve damage around the same places. Every nite i would have horrible pain like restless leg syndrome but every where and i had to get up and move for hours, walking and shaking my arms and stretching my back or sitting in the hot shower till i ran out if hot water then wait till it got hot gain and start all over

Vitiman D3- arthitis also causes your body to not absorb vitD normally and can cause vit defiency and that is a big cause to joint pain

Kadian- type of morphen but a time released med that last 12 hours, even though it is a narcotic the only way you feel it is in the level of pain.

I also am on a muscle relaxer due to the shards of bone traveling around when i move and another pain med but those are he most important ones

The biggest thing i have learned with my type of arthistis is it can cause of issues that by them selves can cause pain. It took 12 years for a bunch if differant doctors to look past the pain, to look past the arthritis. I would goto the doc because of pain and ketp telling them what he pain felt likecnd they would see arthistis in my chart and stop there, well this is the reason you have pain. But it got to the point i was on so much pain meds plus going to the ER screaming in pain and some ER docs were thinking i was just drug seeking. That almost hurt worst than the pain. But i kept pushing. A full body x-ray showed the bone breaking apart, and after repeated appt and telling of the hortible pain at nite my doc put me on the med for nerve damage, i sv not gad that pain since and it has been 4 yrs ir so.

Sometime the docs have to look for differance sorces for pain, look at what ART is doing to the body. Like the nerve damage, it was started in the joints but followed the path of nerves and caused pain in a different place where Art usually does effect. Being deficant on vitimans is a huge thing too. And it is a simple blood test.

I hope some of this helps you, hope you have a good day!

Be good humans
Always stay on the path when if it is much easyer to cut through the grass


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MUSIC66's Photo MUSIC66 SparkPoints: (74,527)
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7/26/12 12:22 P

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yes i hsve RA and OA i am on plaqinal and arava for RA .

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JUDSTERF's Photo JUDSTERF Posts: 3,263
7/26/12 12:18 P

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My husband has rheumatoid arthritis. He has tried just about everything and the only thing he has found that works is Plaquenil. It does have it's serious side effects like all other drugs. He has to have his eyes checked every 6 months to keep an eye on his retinas for damage. He's been on it for over a year with no side effects. Without it, he cries from the pain in his hands and wrists as they go totally out of shape and twist on his.

Judy emoticon



One Day At A Time Dear Jesus!!!

Not looking at how many # to go but back and how many #s I've already lost!!!




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TWEETYKC00's Photo TWEETYKC00 Posts: 78,291
7/26/12 11:26 A

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Yes, it can do that as well! I have been on Prendisone for years as well and it is the only thing that really helps me, but it is so hard on the rest of my body. What can you do, right?

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LIBBYG7's Photo LIBBYG7 SparkPoints: (15,766)
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7/26/12 11:23 A

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Hi Tweety

Thanks for your input. I have long experience with steroids = on and off for 15 years! I know the damage it can do to your bones and to your organs. But it's also a life saver. What a conundrum!!

I'll probably taper to 5mg....to try to control the inflammation.
But I need to control my appetite......and I'd been doing soooooo well!

Luv, Libby

"Finish each day, and be done with it.
You have done what you could.
Some blunders and absurdities have crept in.
Forget them as soon as you can."
Emerson

Happy is the day I'm pain-free


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TWEETYKC00's Photo TWEETYKC00 Posts: 78,291
7/26/12 11:16 A

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I don't know about the Palquenil, but I am very used to the Prednisone. I have to take that for my skin. It helps with that, but it does have side effects that I am not fond of like it can have a serious effect on your organs. Even if you taper down, if you have problems with your liver or kidneys you could have problems with it. Also, because it is a steroid, it will hinder your weight loss efforts. You will most likely gain weight even if you stick to a good diet and try to exercise.

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LIBBYG7's Photo LIBBYG7 SparkPoints: (15,766)
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7/26/12 11:06 A

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HELLO.....

I've been diagosed with an inflammatory type (auto-immune) form of arthritis - as well as osteo-arthritis in my knees. It's a form of Lupus......

This is whole body involvement - with painful inflammation and joint flare-ups....disabling.
It took a long time for the doctors to come to these conclusions...

I've been put on a cocktail of Plaquenil (400mg) + Cymbalta (30mg) + Prednisone (40mg tapering to 10mg) + a morphine based pill to control the pain. The Plaquenil is supposed to control the inflammation, over time - and thus the pain. Then, I may be able to quit the morphine.......

***QUESTION --- Is anyone familiar with this protocol or with these drugs? I'd love to have feedback from people who have taken these - succress or failure??

Many thanks for any info you can provide.
This is part of my research........

Hugs to all.....Libby

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"Finish each day, and be done with it.
You have done what you could.
Some blunders and absurdities have crept in.
Forget them as soon as you can."
Emerson

Happy is the day I'm pain-free


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