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DOTSLADY's Photo DOTSLADY Posts: 10,024
8/5/11 10:15 A

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Cindy - agreed re: leaky gut, as the gut is the hub of immunity. Could also be dysbiosis and lack of stomach acid/enzymes which, when all considered, is all related. You can get your gut health checked by an alternative practitioner. I'm sure there are other tests/testing companies, but I had stool testing done via Genova Diagnostics which was revealing and helpful.

Here are tests recommended for Arthritis: www.gdx.net/tests/search

I believe you re: your feeling worse when you have grains. "Grains = pains" they used to say. emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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SMILINEYESBLUE's Photo SMILINEYESBLUE Posts: 882
7/28/11 7:38 A

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I have been off line for two weeks while we moved and I did not know this topic was here until today. I just got back on line and it is wonderful to check my teams and try to catch up on the news.

I have bad thumbs and have found that Sombra and Icy Blue pain relieving gels help my hands a lot. They make them feel warm and I need heat. I also take Tylenol Arthritis as needed or ibuprofen.

It is the pits when you can't open a jar or hold a glass!! We have moved within 8 blocks of our daughter and her family and that is going to help a lot with family visits and help in our retirement. We lived on the Oregon Coast 69 years so this is HOT COUNTRY where we live now. I use my cane to walk for balance and to grip, making my thumbs work.

Make it a great day of blessings and thanks for all the info on here!! Marianne

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CINDYSUE48's Photo CINDYSUE48 Posts: 3,264
7/27/11 9:36 P

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Dots...there is also a theory that "leaky gut" from grains and other irritants is the cause of autoimmune diseases. I know for myself if I overdo it with grains I'm stiffer and sorer (Is that a word?).

I didn't watch the video (no sound), but probiotics are usually one of the main things with "alternative" treatments.....not for just arthritis, but for lots of conditions.

Sew... definitely talk to your doc!

Cindy Moore

Low Carb and Paleo advocate

Palindromic Rheumatoid Arthritis diagnosed September 2007

Raleigh Low Carb Examiner
SEWSPARKMEUP's Photo SEWSPARKMEUP SparkPoints: (80,121)
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7/27/11 2:40 P

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I had not hear of PRA...palindromic rheumatoid arthritis but it seems like something I should check into. When your pain can move from one area to another it starts to feel like it is "all in your head." I also had a great deal of pain in the left thumb and it has taken months but is nearly pain free now.

Good topic and a lot of good advice.

Karyl

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DOTSLADY's Photo DOTSLADY Posts: 10,024
7/25/11 4:21 P

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I found this youtube re: autoimmunity and gut flora which confirms other links, or adds to info: bit.ly/mcbridegut

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,024
7/25/11 12:38 A

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After reading your page and most recent blog, my heart goes out to you for your pain. I offer you two links about change in diet which might be most challenging but also of great help to you:

Arthritis: bit.ly/qZ2h9V
ITP: bit.ly/pYI1yZ

I have found eating more VEG and fruits vs meat, nuts (I don't eat grains, legumes or dairy for my autoimmune conditions) is very helpful. I'm a simple salad/meat eater, and snack on fruit and nuts. KISS - keep it simple sweetie. I've been omitting nightshades for over a year for my myxoid cyst (related to osteoarthritis) ... I can't say whether it has helped my pain as the pain overlaps with my fibro pain ... however, the myxoid cyst, after popping it a while, has not reappeared. I have another online friend who is popping hers without change in diet to see if it reappears. I've read it can spontaneously disappear, too, but knowing how powerful food is to our health because of my autoimmune diseases, I tend to want to believe I've overcome the cyst with diet. :) I talked with an orthopedic surgeon who said a person is to 'never' to have consumed nightshades to 'possibly' never get osteoarthritis. He can't say for sure, and we said this at the same time, because "there's no money in diet studies vs pharmaceuticals."

Gluten-free and dairy-free helped my pain tremendously (but like I said, it's mixed in w/fibro).

Those links are a good read. FWIW, I don't know at your stage if I would do the IGG testing; I'd just try the diet. However, if you're a science geek and like to know KNOW, then I'd do it and then still proceed with the diet and reassess with follow-up tests.

You might want to test for celiac disease before you change your diet if you think to talk to your doctor about it (emphasis there). You can't check after you've removed the gluten because the antibodies need the gluten. If you feel better without it, it's VERY difficult to go back to eating it as there might be greater pain involved for the time necessary to reintroduce the antibodies (up to 3 mos). Anyway, not sure I've connected the dots, but if you have questions, please let me know, I'd be glad to help w/other resources.
emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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COUTURELADY's Photo COUTURELADY SparkPoints: (21,054)
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7/24/11 9:29 P

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hi there! Hope you find some relief soon! Try warm water soaks and do you already take MSM and chrondroitin? It helps my mom with her osteo-I have rheumatoid and I haven't noticed as much help. Hope you are feeling better soon!


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VALI_T's Photo VALI_T SparkPoints: (98,991)
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7/22/11 8:45 P

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Well then you could easily do that by melting wax in a cooking pan. You'd just have to make sure that you let the melted wax cool down enough after melting it that you wouldn't burn yourself. Do you use just ordinary parafin wax, or would you have to find a special kind of wax?

There was much rejoicing!


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CINDYSUE48's Photo CINDYSUE48 Posts: 3,264
7/22/11 8:42 P

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I use ice on my lower back....and sometimes on my feet....otherwise it's heat only. Cold causes pain in my hands, especially my fingers.

Cindy Moore

Low Carb and Paleo advocate

Palindromic Rheumatoid Arthritis diagnosed September 2007

Raleigh Low Carb Examiner
CINDYSUE48's Photo CINDYSUE48 Posts: 3,264
7/22/11 8:41 P

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With the wax, you don't soak you hands....you drip them, let it cool a bit, then dip again....build up a thick layer of wax....then wrap in a towel or something to hold the heat it.


Cindy Moore

Low Carb and Paleo advocate

Palindromic Rheumatoid Arthritis diagnosed September 2007

Raleigh Low Carb Examiner
MIAJOEB's Photo MIAJOEB SparkPoints: (189,694)
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7/22/11 5:05 P

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I alternate Ice and moist heat...

I use ice after a chiropractic visit.

Sing to the Lord a new song, for he has done marvelous things:... Psalm 98

Therefore we do not lose heart. Though... we are wasting away, yet inwardly we are being renewed day my day....So fix our eyes not on what is seen, but on what is unseen. for what is seen is temporary, but what is unseen is eternal
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LIBBYG7's Photo LIBBYG7 SparkPoints: (15,770)
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7/22/11 4:40 P

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thank you all for all your advice and suggestions.
it seems like the consensus is heat.....great on a day when it was 104degrees! I'll start with soaking them in warm water.....maybe a heating pad. My left thumb is really painful......lately, all the time. My fingers are swollen and ache terribly.

Again...many thanks. On the whole, arthritis stinks!!!

Libby emoticon

"Finish each day, and be done with it.
You have done what you could.
Some blunders and absurdities have crept in.
Forget them as soon as you can."
Emerson

Happy is the day I'm pain-free


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CMFARRELL36's Photo CMFARRELL36 SparkPoints: (106,448)
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7/22/11 4:20 P

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I'm with most of the other folk here - heat helps. That costs me, because I don't deal with heat very well!
However, I have a teddy bear that can be heated in the microwave. I don't bother to heat it, just wrap the arms and legs round my hand - at the moment it's the base of the thumb on my left hand that's causing me most bother. That helps a bit - till I next need to grip something. Then I have to use my right hand and hope to goodness it's still working!!!!!

DH has bought himself a new gadget with retiral money from his colleagues.
It's called PainSolv, and uses PEMF - pulsed electromagnetic wave field.
The therapy seems to be helping both his current leg ulcer and also his more recent knee problem.
I'm looking forward to getting a shot of the gizmo for my hand, and other problems sites.

Christine
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SOUPY18's Photo SOUPY18 Posts: 3,314
7/22/11 1:39 P

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Heat does help -- I have used the corn fill wrap that is heated in the microwave and then wrap my hands in it. You just have to be careful not to make it too hop. It is relatively inexpensive and can be reused over and over.
Sue

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GWEILO19 Posts: 241
7/22/11 12:55 P

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I bought an electric warm wax thingie at Walmart on sale for $19.00 last year, and use it on my heels. It does come with gloves. You just need to keep on buying more wax for it.

I find it's a little TOO hot, but it does help.

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LINDAGRAVEL's Photo LINDAGRAVEL SparkPoints: (114,205)
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7/21/11 10:40 P

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Interesting!

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KITTYF54's Photo KITTYF54 Posts: 4,745
7/21/11 10:17 P

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yes you can do it at home.
the value of the electric warmer would be the thermostat would protect you from overheating and burning yourself. but.... if you investigated the proper temp you could use a candy thermometer and.... hmmm, what about an electric frying pan to use for the heat. discuss it with your doctor perhaps to learn the optimal temperature? or see if you could get a PT center to give you that info?

and remember when heating wax its safest to use a double boiler arrangement, so rather than using the electric frying pan for heat, you could possibly heat it in a tin can set in a crock pot of water, and use something wide and somewhat shallow to soak your hands in.

OR sit a cake pan of wax into a frying pan of water? sounds like that could work, but don't forget to check the temperature and take into consideration the heat of the pan. FWIW, Kitty


Trust in the Lord with all thine heart, and lean not unto thine own understanding. In all they ways, acknowledge Him, and He shall direct thy paths. Proverbs 3:5-6


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VALI_T's Photo VALI_T SparkPoints: (98,991)
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7/21/11 9:55 P

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If insurance wouldn't cover it, couldn't you just melt wax in a pan and then use it once it cooled down a bit? You'd have to have one pan dedicated to just that. (When I was a kid we used to make a lot of candles with my mom and it's pretty much impossible to completely clean a pan you've melted wax in.) I would think that you could just use plain old parafin wax like you would use for sealing jars, or you could look at one of the commercial systems and see what kind of wax it uses.

There was much rejoicing!


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CINDYSUE48's Photo CINDYSUE48 Posts: 3,264
7/21/11 9:50 P

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Wax therapy is an old and very effective treatment! Today you mostly only see then at PT centers....but you can buy them. Doubt insurance would cover though, even with a prescription.

Cindy Moore

Low Carb and Paleo advocate

Palindromic Rheumatoid Arthritis diagnosed September 2007

Raleigh Low Carb Examiner
KITTYF54's Photo KITTYF54 Posts: 4,745
7/21/11 9:06 P

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Saw a warm wax thing they sell for manicures I heard it was good for arthritis pain. don't know, but you could see if you could find one.

Trust in the Lord with all thine heart, and lean not unto thine own understanding. In all they ways, acknowledge Him, and He shall direct thy paths. Proverbs 3:5-6


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FVHORVATH's Photo FVHORVATH Posts: 13,146
7/21/11 8:25 P

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I have problems with my hands too. Sometimes they just let go of what ever I am holding. Doing anything with them at times hurts but like CINDYSUE I have found that heat really helps with the pain. Tylenol first then stornger RX pain meds next. I have also tried the Therma Wraps help sometimes. In the heat we are going through I would try them first before the heating pads. Warm water helps too.

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CINDYSUE48's Photo CINDYSUE48 Posts: 3,264
7/21/11 7:52 P

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I have osteo in my fingers also (and other places) and I also have PRA...palindromic rheumatoid arthritis...all of the hurt, but no damage. The pain in one or more fingers can get intense....I do know what you mean with it hurting to hold things, or heaven forbid do something with what you're holding!

I will fill a sink with very warm water and stand with my hands in the water. Or I use a hot pack or heating pad wrapped around my hand. The heat makes it feel so much better. Ice makes me worse, but it might help you, I know others that swear by it. With PRA you just have to wait it out....eventually it will move to a new location or go away. Osteo seems to get better with heat though.

Do you take any medication? Supplements? OTC or prescription? I take diclofenac almost daily - twice daily and use aspirin or naproxen as needed...and take hydrocodone when I'm really bad. I also take Doxycycline for the PRA. I also supplement with Vit D3 and krill oil. Without damage being done I'm trying to avoid the conventional RA drugs and these help.

Cindy Moore

Low Carb and Paleo advocate

Palindromic Rheumatoid Arthritis diagnosed September 2007

Raleigh Low Carb Examiner
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7/21/11 7:46 P

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At the suggestion of someone else in this group I've been taking tart cherry pills (capsules, actually) and they have helped me quite a bit. I take them because I have huge problems with my knees but they help with all of my arthritic joints, which includes every single joint I've ever injured. (Almost all of them. emoticon ) I buy it from swansonvitamins.com and it's not terribly expensive. Maybe it would help your hands, too.

There was much rejoicing!


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MUSIC66's Photo MUSIC66 SparkPoints: (74,584)
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7/21/11 6:24 P

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i have ra in fingers but they got so bad they have been fused on waiting list for other hand .

Edited by: MUSIC66 at: 7/21/2011 (18:25)
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LIBBYG7's Photo LIBBYG7 SparkPoints: (15,770)
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7/21/11 6:05 P

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Hello everyone!

Hope you're finding a way to keep cool in this heat!!

I need some help/advice.....Among several muscular=skeletal problems that I have, is, osteo arthritis just about everywhere. Knees are worst, spine and neck a close second.....and now I have developed intense pain in my thumbs....and in my fingers. I just had an epidural in my neck.....and not long ago, finished 2 sets of Stuparz injections in my knees. I'm not up to injections in my hands (Yuck!!!!!).

Is there a good home remedy for hand pain that anyone can recommend? Or the best OTC treatment? It hurts to type, to hold things.....even to put on deodorant #%^%&!

Thanks much.
Libby emoticon

"Finish each day, and be done with it.
You have done what you could.
Some blunders and absurdities have crept in.
Forget them as soon as you can."
Emerson

Happy is the day I'm pain-free


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