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3/17/14 8:28 P

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Hello, Brenda...we're all over on the other thread, the 2014 Let's Chat. That's where much of the visiting and talking is going on.

I'd like to hear from you and how things are for you. I am the caregiver to my ol' Sweetie, but I myself am 72, and there may well come a day when I need my daughter to care for me, and I don't want to be a burden on her! What do caregivers of aging parents have to do? What struggles do they have? And what can I do NOW to insure that she isn't loaded down with me at some future date?

Look what I just did! Here you are needing support with the caregiving you're doing, and here I am wanting to learn from you!

I hope that we can give you the support you need even as we learn from you. And I hope you will learn from us as well. Let's support each other and learn from each other as well.

You didn't say what's happening with your mother. Is it Alzheimer's or some kind of dementia? There's a great blog that may be of use if that's the case.

http://www.alzheimersreadingroom.com/

Welcome aboard, and I hope we'll hear from you.

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3/17/14 1:55 P

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Hi, and Welcome. Join us in the Chat Room and met everyone! Some one is usual around to answer questions or give a few tips. At the same time, reading the posts there may let you know that you are not the only one dealing with a worry some problem.

Looking for ward to meeting you!

Michele - Northern Kentucky


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3/17/14 1:16 P

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I'm a caregiver to mother.

I ♡ walking every day !


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3/13/14 8:19 P

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A month later and I found your post.

Wow, cancer...my mother died of breast cancer, and she had this awful open wound that was kept stuffed with balm of gilead. Yes, cancer sure is awfully disfiguring.

I'm having an opposite problem. Stress from caregiving is causing me to gain belly fat, which comes from cortisol which comes from stress.

OTOH I have had the experience of losing weight because of intense stress.

For the most part we seem to be on the Let's Chat 2014 thread. I hope we'll see you there.

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2/20/14 4:36 P

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Hi Sandy and welcome!

Look forward to hearing from you in our chat thread.



Susan-- in Metro Detroit, Michigan

Leader-- 100 Days of Weight Loss team
Small bite-sized daily motivation lessons from Linda Spangle to help you succeed with any weight loss plan and help overcome emotional eating.

teams.sparkpeople.com/100Days


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2/16/14 6:57 A

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Welcome from me too, do pop into our general chat thread where we share up sand downs and support and learn from each other, Irene in
England

Irene in Nottinghamshire UK
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2/15/14 9:07 P

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An you take care of yourself! See you when you can pop in ... don't be a stranger.

Michele - Northern Kentucky


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" Finish each day and be done with it. You have done what you could."
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MCDEANE52's Photo MCDEANE52 Posts: 7,275
2/15/14 6:20 P

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Thanks, Michele, for the welcome. I'll be here as often as I can and I'll be posting, too, as I love people and talking. LOL
Take care of yourself. Later.

Peace Out,
Sandy







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2/13/14 11:57 A

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Welcome ... glad to have you with us. In answer to your question, weight I have not lost but have maintained as best I could. I have been a Caregiver to DH for close to two years recently and off an on for the past 20 years from various surgeries. Last November the stress of the last two years, presented me with a Big Stage Heart Attack. That was the worst this last round of Caregiving has left me. Perhaps some of the other Team Caregivers have run into your problem an can give you a few pointers,

Looking forward to seeing you more on the threads.

Michele

Michele - Northern Kentucky


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2/13/14 11:34 A

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Hi all! I'm a caregiver to my significant other of over 18 years. Ron, that's his name, has Stage 4 cancer ~ both lungs and continuous tumors on his right shoulder. That's the hardest part, the shoulder is an open wound that just keeps getting worse. They over-radiated the area and burned 2 (at least) of the bones plum in two~ So I have 5 spots where the bone is on the outside of the skin and that's not a pretty site~!
All this has caused me to lose way more weight than I wanted to. My goal was 165# and I'm weighing 110.2# as of yesterday.
Has your caregiving done anything to you like it's done to me? I have never heard of it before but having the problem is a real bummer to me.
I'm glad that I found this team and I hope I can get some good information and maybe I can be of help to someone else. You take care and I'll see you soon!

Peace Out,
Sandy







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10/8/13 9:40 A

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emoticon Ree, glad you could pop in. That Book Club sounds interesting. What book were you reviewing? Have not been reading lately, just waiting till the DVD comes out, then watch it. Just can not find the time as of late. Hope things continue to go well for you and hubby. Enjoy the Season. emoticon

Michele - Northern Kentucky


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STITCHINGNAN's Photo STITCHINGNAN Posts: 10,235
10/8/13 1:15 A

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Last evening I was at a monthly book club I goto. M husband knew where I was going and I was home by 9 15 but found him in a bit of a state asking where where you.?
I think he fell asleep woke suddenly then couldn't find me.
I do need my breaks so think in future I will write it down in big letters where I am and put my phone number in too. He had yet in his diary anyway but it may reassure him to see where I am and can call me if he has to, I did not sleep for ages then thinking it over , Ree

Irene in Nottinghamshire UK
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10/7/13 8:43 P

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Same here for hubby, however the temps are staying in the 50s at present around here. So believe it is time to hunt his sweatshirts and sweat pants so at least he has the warmth of them.
Spent this afternoon whiching the squirrels rump along the electric an phone lines. So far he has not wanted to have breakfast out or even go grocery shopping. He sees his old buddies at breakfast and visits with the clerks at the grocery store. As of yet has not mentioned Driving.

Have a better day tomorrow!

Edited by: MICHELE142 at: 10/7/2013 (20:45)
Michele - Northern Kentucky


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TRCOUNTRYGIRL's Photo TRCOUNTRYGIRL Posts: 422
10/7/13 4:40 P

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thanks Michele. She gets out on her deck when the weather is not to cool or hot. Her bedroom right now is in our sunroom so she can look out and enjoy the weather.

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10/5/13 9:50 P

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Glad to hear MOM is holding her own. Is she able to get out and notice the change of Seasons? At one time home bound patients would tell the change of Seasons by the clothing worn by those who gave them care. Now though with the climates doing a give and take it seems to be harder for some to tell. emoticon emoticon

Have a better day tomorrow!

Michele - Northern Kentucky


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10/5/13 9:23 P

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Hi she is holding her own right now...good days and bad. I am pretty stressed at times trying to handle work and everything I have to do at home but I am trying to stay positive and strong for her. Plus my sister is not handling it well and being a complete jerk to my mom right now. I just try to take it one day at a time.

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10/4/13 8:36 P

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Nice to have you with us. How is your mother doing? Better yet how are you handling the situation?

Michele - Northern Kentucky


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TRCOUNTRYGIRL's Photo TRCOUNTRYGIRL Posts: 422
10/4/13 4:09 P

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I am taking care of my mother who is terminally ill with end stage heart failure due to 4 severely damaged heart valves and TIA's. We have Hospice helping with her care now. My boyfriend and I live with her and I work full time as well.

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9/30/13 5:59 P

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First let me congratulate you and your husband for offering them care and shelter. Second it is not unusual for family members to shy away from the elderly when they are in need of support and care.

Believe me you are not alone in your situation. Your feelings are shared by many. Feel free to pop in an vent or ask what ever you may need. We all, in some way have been there or have had the same or similar problems either in the past or now.

Michele

Michele - Northern Kentucky


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9/30/13 12:36 P

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My husband and I are guardians for his mother and her sister. We have been caring for them for 4 years now. They live in our home and take up all our home time. Somedays I feel like crying and other days I just feel so sad. There are happy days too. MIL has never was a kind person and the disease has only made her worse. Her sister has always been a friendly, agreeable person. How in the world can they be sisters? We have agreed to allow them to stay with us 6 more months then we will have to place them in a nursing home. Husband brother does not want to help with care, however, we provide a financial report every month.

To stay balanced, we practice Tia Chi and Kung Fu. Believe me, we need he time away from the ladies.

I have lost 25 pounds here and have maintained for about 2 years now. I need the emotional support and maybe other people who undersand the pressures we deal with everyday.

Becky emoticon

Edited by: TBWELLS01 at: 9/30/2013 (12:39)
"Excellence can be attained if you:
Care more than others think is wise,
Risk more than others think is safe,
Dream more than others think is practical,
Expect more than others think is possible."



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6/6/13 11:48 P

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Welcome ... the time and closeness your are spending with your Mom will provide many happy and endearing memories for you and yours. It may be exhausting ( and it is ) but it is rewarding as well. Feel free to share your concerns with us and ask questions or even vent when needed. We have all been there and many of us still are. Ideas can be learned and tips can be shared. Again Welcome to our little family.

Michele

Michele - Northern Kentucky


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6/6/13 7:45 A

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I am caregiver to my Mum who lives 30 minutes away. We had been living in CA and Mum was in SC. When her second husband died after just 2 years of marriage, he was 92, she didn't want to come back to CA. Said SC was the most beautiful place she'd lived and she's from England! So my beloved hubby and I sold our place in CA and moved to SC. I have 2 sisters in CA, neither is interested in helping in any way, shape, or form, just waiting for her to die so they can get some money! Honest! We chose to live in a lovely town close to Mum but a place we would like living in the rest of our lives. He town wasn't pretty at all. Anyway, hubby drives to her place 3 days a week to either pick her up for church, take her to her volunteer position at a school, then I drive her home from volunteering and from church, then spend the rest of the day with her. She just turned 87. I am SO grateful to have time with her but it is exhausting, and very costly! We are going thru 2 tanks of gas a week PER VEHICLE! But the best way to honor my Dad is to care for my Mum whom he cherished. They adored each other for 54 years and gave me the example of a wonderful marriage. I am so blessed!

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5/31/13 10:54 A

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I truly understand what you are going through and very slowing trying to get through to DH just how and why he is changing. That at times is easy until you keep hearing him tell his friends and family that he is just fine. He is still driving however, it seems when he goes by himself, the time away from home, is increasing. My main concern at present is the finances, as I am finding to many mistakes with the check book and bills that never make it out to the mailbox. He tells me I need to handle it yet, comes behind and does it his way.

Your DH tells you he is forgetful, mine denies it to no end. Sounds like we both have a progressing challenge ahead of us.

Michele - Northern Kentucky


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5/31/13 10:04 A

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I am caregiver to my husband who has the start of Alzeimers . As yet it's not too much of problem but who knows what the future holds. He accepted the diagnosis as the brain scan proved it he could not disagree. But in his mind he hasn't changed at all.
He agrees he's forgetful, but isn't everyone.! He wants to carry in doing what he has always done.
There is no driving now he hated giving up but it had to be and he has accepted that
.i am slowly taking over paperwork and finances but everything is a battle.

There had to be a call to the bank today I wanted to do it, but no he say i am alright doing that! But he had to keep asking me questions all the time on where do we live. What's our phone number etc and goes off track when trying to explain a problem . I do not want to take everything away from him he's had to give up on many things he enjoyed doing. I am not yet legally responsible for everything , the legal work is going through slowly .
He is still fit, we try to walk each day round our small town. He reads even if he does lose track of the story, he likes tv but often doesn't know the characters or the story line .
.We have long conversations some days and he's almost the man I married. I know every case is different but I hope to find some ways of helping him and myself. I am ok physically and mentally I do not sleep much and get tired by day but I can cope usually! Irene ,

Irene in Nottinghamshire UK
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5/2/13 8:37 P

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Having some problems with hubby's memory. Doc. thought he may have stroked last year when he fell and broke his hip. Found out last week that his oxygen Saturation in his blood was at 90, a drop of 8 points since last year. The lack of oxygen to the brain, was causing his memory loss, mood swings, loss of appetite, and aggressive behavior. Sats are still low and if they drop below 90 he goes on oxygen. ....... Me: walking on eggs shells around him, 11 years now cancer free, still anemic from those radiation treatments and enjoying watching GD develop into a 7 year old equestrian competitor in the Hunter Class. Three weeks ago she won 3 ribbons in one meet. Just love it. Weather finally breaking around here so we are finally able to get out in the sun for a change. Looking forward to this weekend and spending time with my daughters and the GD. Have a good day tomorrow and a Great weekend.

Michele

Edited by: MICHELE142 at: 5/2/2013 (20:45)
Michele - Northern Kentucky


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5/2/13 7:04 P

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Hi MICHELE! The sunshine is a welcome change. I planted 2 things outside today. that felt wonderful. I have been going to water aerobics lots. I have made many friends there. And the people are almost always "up." So it helps my mood.

what's new with you?

Chris

Today I stop and think before putting anything into my mouth. HALT! Hungry? Angry? Lonely? Tired?


It feels like I am not moving, but I guess I am. Even turtles eventually move from place to place. chris


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5/1/13 10:50 P

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this person is smiling for the: flowers popping up, weather warming, and the sun is around longer. Now it would be great if Sprig would stay around for at least a month.

Hey, Chris,...how have you been?

Michele - Northern Kentucky


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5/1/13 6:02 P

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The current spring-like weather seems to be making everyone smile. What a big help that is. Chris

Today I stop and think before putting anything into my mouth. HALT! Hungry? Angry? Lonely? Tired?


It feels like I am not moving, but I guess I am. Even turtles eventually move from place to place. chris


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3/20/13 11:06 A

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Sorry to hear about the Dialysis.....have had several friends having problems as well, one seems to have more problems with the infusion cath. more than anyone I ever heard of. How are you both handling all this? Are you able to get some time for yourself? Take care of yourself, sounds like you will be in for the long haul. Your right, need that Positive attitude and high spirits to get through this.

Michele

Michele - Northern Kentucky


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BIZZYFED's Photo BIZZYFED Posts: 15
3/20/13 7:04 A

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Not so good this week...we've been trying to start peritoneal dialysis but had to go back to the Access Center to see why hubby has pain when the try to fill him with fluid. They also worked on his fistula and weren't happy with the results so want him back in two weeks if problems at dialysis. Now we have to go to a specialist for his pd catheter to fix the problem. Trying to stay up but wearing out! Hard to see my hubby struggle with all of this...just have to try to stay positive and take one day at a time. emoticon

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3/20/13 12:30 A

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How is everyone doing with their periods of emotions? Know for a fact I not handling my periods of moodiness and emotions right now. Can not wait for that sun to show it's self once an for all.

Stay well!

Michele

Michele - Northern Kentucky


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2/18/13 10:24 A

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Even though DH is doing more for himself at present, after a year I still find myself....frustrated an teary-eyed several times a week. DH is trying hard to get himself back to the point he was before his fall. He refuses to admit what the docs. told him that his fall caused a stroke and had residual with his memory. When I see his frustration with not remembering ... knowing that
if I had been home he may have not fallen, that is the time I tear and need a place alone to cry it out.

emoticon

Michele - Northern Kentucky


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BIZZYFED's Photo BIZZYFED Posts: 15
2/18/13 7:27 A

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Hi there-- we haven't met but I just joined this team as a caregiver and saw your post. I go through my crying episodes too...even out in my barn surrounded by my three very loving donkeys to comfort me. :-) Just remember that it's ok to cry...I have found it very therapeutic to cry and feel better after letting my frustrations go. Remember that you are surrounded by your Spark friends and we can find comfort in those that share similar burdens in life. Hope your day goes better!! emoticon

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2/17/13 8:29 P

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Very hard month here. I have major crying episodes by myself some days-

If nothing ever changed,there'd be no butterflies


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2/16/13 2:14 P

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It is always good to get your hair done. My husband likes to see me looking good. He claims he feels better and more alive.

I am on my way to better health!


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2/15/13 6:23 A

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Thank you Michele! Yes...I finally got a haircut and highlight yesterday. I think my last hair treat was last September or October. I think my own neglect is a combination of guilt and just not caring anymore. However, joining a group with people who understand how I feel has sparked new interest in learning to cope with my "new normal." I'll keep in touch. Jana

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2/14/13 10:16 P

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Welcome to the Team. Hope your DH is doing well and you are also. Are you able to get any "Me Time" in for yourself? As you said caregiving as stressful and one big roller-coaster ride for each of us. That is one reason all care giver support groups recommend time away or free time for ourselves, whether it's coffee with a friend, Hair salon, exercise or a nice warm bath.
Yet, that time allowed does depend on each caregivers situation.

Hope to be seeing you on the Threads an in the Chat-Room when you are free!

Michele

Michele - Northern Kentucky


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2/14/13 3:44 P

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Hello -- I'm a caregiver for my husband who is diabetic, has CAD (had five bypasses in April 2010) and is now on dialysis. My degree of caregiving is nothing compared to many but it's enough to carry stress to a degree of neglecting myself. My husband's health problems began in 2006 so I've been on an emotional roller coaster for awhile. I was thrilled to search "peritoneal dialysis" on Spark People and found a new friend who is also caring for her husband who is on dialysis. It was so nice to read blogs that I could relate to and made me feel so much better. She also found this caregiver team and encouraged me to join. So...here I am! Glad to be here and hope to be helpful to someone else too.

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1/31/13 8:42 P

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Welcome an Thanks for lending your expertise to are membership, glad to have you aboard.
Our members have various experiences with their caregiving and all types of situations that they have had to deal with throughout their caregiving. Amongst the team there is plenty of
support, encouragement, and motivation, so do not hesitate in asking for help or venting now and then as you need to.

Hope to see you when you have the chance!

Michele

Michele - Northern Kentucky


Warriors In Pink~~Administrator
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" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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1/31/13 2:01 A

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Hello there,

I am new to Spark People and am excited to have just found this team. I am sole caregiver to my 24 year old son who has cerebral palsy and is quadriplegic. Things have been especially challenging since a major anterior-posterior spinal fusion surgery in Feb, 2010. Ryan has been on and off bed rest (due to recurring skin breakdown)...unable to attend the day program he belongs to for any length of time. As entertaining as I can be :-) he misses the activities at "school"and exposure to friends. He only leaves the house for monthly Dr visits. A former Special Education Teacher, I now stay at home to care for him 24/7. While I am so blessed to have him in my life...along with my other 3 children (ages 14 to 28), I realize I have spent the better part of my existence living for everyone but myself...and under high levels of stress. This is the first time I have reached out to virtual strangers for support. Ordinarily I like to just stay upbeat, positive and provide encouragement to others - not revealing to anyone how hard things can be...not thinking about how we have been living in limbo...waiting for Ryan to get better for nearly 3 years.

ReRe, thank you for your recent message. We are not alone....and I am truly grateful. Let's work on taking care of ourselves...filling our own love tanks sufficiently so we have plenty more to share with those around us. Hugs! ~Shana


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1/28/13 11:25 P

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Hi Everyone...

I'm not new, but have been away for a long time. Well, I'm back and giving it another try. Hopefully, this year will be the year I learn to take care of me, as well as my daughter and dad.

I'm caregiver to my daughter, who is in renal failure and to my dad, who is 89 and has dementia. They both live with me. In the past, I have had a difficult time making time for myself. My life is extremely busy, as I also work full time. 3 years ago I moved to PA from So. FL, where I had lived for 31 years, so my son could help me. He has made my life tolerable again and helped to decrease my stress level to where it is now manageable. My daughter is a tremendous help with my dad, also.

Well, just wanted to say "Hi" and let some of you seasoned members know I hadn't fallen off the face of the earth.

ReRe

They call me ReRe.....

The only way you fail.....
Is if you quit!

Life is too short not to be happy and have a good time!!



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1/28/13 8:15 P

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Nice to hear from you an Hope your DH manages to get some relief soon. Treatments are not usually the pleasant way to relax and enjoy what life we have. Positive attitude helps so much to help one through the treatments for cancer. Feel free to stop in anytime, for help, support and encouragement. You can also vent away if you need too, cause you need stress relief as well. Keep us posted on DH when you have the chance.

Michele

Michele - Northern Kentucky


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" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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1/28/13 11:58 A

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My husband,diagnosed with Ewing's sarcoma-- blue cell tumors on fathers day last year. Stage 4 doing well and just did 24 radiation sessions and will be doing more chemo in a few weeks. His tumors are through his spine and under one arm. He certainly is tired of everything but we work to keep him fighting!! I have my cries,but then move on..best to all of you on here.

If nothing ever changed,there'd be no butterflies


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1/3/13 8:20 P

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Anytime, let me know how things turn out.

Michele - Northern Kentucky


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" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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1/3/13 7:05 P

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these are great suggestions, Michelle. thank you so much. I will definitely be checking them out.

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1/2/13 7:49 P

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Not at the present time, New Jersey should have State and Local agencies that can help you.
Look for a Senior Citizen's group, local Home Health agencies, Social Services, or check with Medicare to see what services they cover. The Social Services at local Hospitals will have a list of Agencies for Home Health and the majority of Hospitals also have listings of all Specialist i.e.Oncologists. If any other family members or friends have been diagnosed with cancer ask them about their Oncologist, word of mouth often helps find doctors that others have faith in. Faith in ones doctor means a lot with the treatment of cancer. There are some churches that have assistance for companions as well.

Give those suggestions a try and let us know how it turns out.

Michele

Michele - Northern Kentucky


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1/2/13 2:51 P

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thank you, Dianne. I appreciate it. I'm very sorry about your husband.

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1/2/13 2:39 P

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Welcome to the group. We are hear to assist you in any way we can. I found just having someone listen to my frustrations was a big help. My dh died in June 2012 but I continue with the group with the hope of helping someone else.

Sorry I live in Canada so I don't know what is available in your area. Is there a community organization that you could call for information?

God bless to you and your mom

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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1/2/13 1:21 P

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Thank you for the warm welcome! She was diagnosed on December 20. I don't yet know the exact area of origination, but it's in the abdominal area (pancreas, stomach, ovaries...) I live in NJ. Do you know if NJ offers companions? I'm assuming that would be as part of Medicare? I just feel overwhelmed at making decisions like choosing the oncologist, keeping track of paperwork, the requests made by doctors, etc. I just want to crawl into a hole somewhere and let someone else deal with it.

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Hi.....Welcome to Caregivers support, so glad to have you with the team.

Can you tell me when Mom was diagnosed with cancer and what area it involes at present?
Basically, you seem to be doing the planning for Mom's care. What state do you live in?
Many states offer different programs available to senior citizens, including a companions.

Caregiving to some can be stressful and above all frustrating as well as 24/7 concerns.
In order to help Mom you must take care of yourself along with taking care of Mom. So time for yourself is important, especially for that mother, daughter relationship. Let the team know just what assistance you may need or what answers you are looking for.

Michele

Michele - Northern Kentucky


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" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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1/2/13 8:53 A

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I am a caregiver to my 75 year old mother. She has cancer, we don't know exactly where it has originated as she needs to have a CT-scan soon but my brother and I are already emotionally spent. I'm scared and am in charge of contacting my mother's doctors, Medicare, etc., plus driving her to appointments. I just feel overwhelmed. My father died of lung cancer almost 6 years ago, so I've been through this to a degree. At least my father had my mom 24/7, but she's very lonely and scared and my brother and I try to spend as much time with her as we can, but it's not enough. I think she needs a companion to be with her, but where do I find someone like that? Anyway, I'm so glad to have found this group. I really need some support and hopefully, I can be of support to others.

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12/30/12 11:21 A

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Hi, welcome to this site. We will try to support you in any way we can. Sorry to hear about your dh's cancer. Caregiving is an extremely difficult task so feel free to come and chat with us any time. We are hear to listen

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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12/29/12 3:23 P

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Hi! Glad to have you with us and hope we can get you all the support you may need. Join us in the Chat Room an get to know us. There you can get to know us and we can get to know you. Amongst the team we should be able to answer any question you may need answered. Exchange of information from one to another, as we all are caregivers, at times makes our problems seem minor when actually they are not.

Join us when you can, if you need to blow off steam - we do understand.

Michele

Michele - Northern Kentucky


Warriors In Pink~~Administrator
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" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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12/29/12 1:03 P

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Hi- I am new to this sight and looking for a team to join.
I am a caregiver to my husband who was diagnosed last May with stage 4 kidney cancer. I am in my early 50's and my first husband passed in '06 with pancreatic cancer. I was also a caregiver to him and he passed peacefully at home. With this being the second time I have been the primary caregiver I have decided to reach out for some support. I would like to lose weight and feel better but even my doctor says that my stress level does not support much success! I am going to prove him wrong.

Any help, advice or support will be greatly appreciated.



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10/20/12 11:47 P

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The last group conference I attended was right around the time the iPad was becoming more
widely available. The use of one was suggested for those that did not have motor residual from a stroke.
Leap Frog's tablets for learning to talk and written communication for those stroke patients that were also capable of motor skills and learning to talk again as well cognitive memory was suggest bc of the cost over an iPad. DH has been successful with computer an type writer, he uses the game section on AARP's website daily.

Michele

Edited by: MICHELE142 at: 10/20/2012 (23:49)
Michele - Northern Kentucky


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" Finish each day and be done with it. You have done what you could."
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10/20/12 2:34 A

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I hope your mom likes the support group. It was very comforting to me to see how much people can recover after a stroke. It might encourage her to she how others have improved and to see that she's not alone. And you're not alone either. Taking care of your mom and son must be very challenging. I just have my husband and 3 cats.

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10/19/12 7:34 P

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Thanks for the encouraging words. My mom is basically only able to say the word "No" for everything, but we have been working on the sound UhHuh for yes answers. Your situation sounds very similar to ours. We play a lot of guessing games with me asking 20 questions until I hopefully figure it out. And we have been working with speech therapy. We are in the process of trying to get her a computer that is specifically for people with aphasia. I am so hopeful that once we have that and we work hard with it that we will be better able to communicate. I will have to check out your suggestion of the apps for autism for my iPad too. And I finally got her to agree to giving the stroke support group at the local hospital a chance. We are going there next week for the first time. I appreciate being able to go on here tho and communicate with others who are having similar issues. Thanks again!

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10/19/12 6:06 P

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Welcome! Being a caretaker to someone who can't communicate is particularly hard.
emoticon

You say your mom can't speak. Does she have trouble with the motor process of speaking (can't use the muscles) or with the internal brain activities of speaking (doesn't know the words), or both? For several months after his stroke, my husband didn't speak at all and didn't even respond to Yes or No questions. He didn't understand the process of pointing to pictures to indicate what he wanted. It was nearly impossible for him to communicate his needs. His first word was "Ow" (something hurts).

He still has serious aphasia (can't get the right words out and often doesn't quite understand what I say) so talking to him is a constant guessing game. He also responds randomly to Yes/No questions. He describes things a lot, because he has particular problems with nouns and names.

Speech therapists are the first place to start if she has trouble using the muscles to speak. Here are some ideas for alternate ways to communicate. You can try these yourself or a speech therapist can help.

I met a deaf and nonvocal woman with a binder of pictures, labeled with words, that you and she could point at to communicate.

Some people can write even when they can't use thir speech muscles; a small whiteboard and fat eraseable marker are easier for some to use than pen and paper.

There are tablet apps marketed for autistic people that help you communicate, like an online version of the deaf woman's binder. I have some on my iPad and they seem very helpful. (My husband couldn't use them because he couldn't learn to point.) If your mom is able to learn new things, she could try them. I bet your 4year old would love to help with that. I found them by searching on "autism" in my iPad's catalog. Almost all of them are free.

A tablet can also give her a way to play brain games and tune up her fine motor skills with Angry Birds or Fruit Ninja or some other silly game. That could help with the depression too, especially if she plays with your son.

My husband does much better when he has social encounters. He's been quite chatty at a stroke support group in my area. That's also a good place to chat with other caregivers in person. And of course, we're here on SparkPeople.
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Edited by: JBINAUSTIN at: 10/19/2012 (18:07)
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10/19/12 5:41 P

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Welcome Pixie_Smile, glad that you can join us. Feel free to chat about anything especially your daily stresses of being a caregiver. I have found that talking to other people in the same situation is always helpful.

Take care

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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10/19/12 4:46 P

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I am new to this team. I am 35 and recently became a full time caregiver to my mom, who had a stroke in Feb. She is currently unable to talk, which makes communication extremely difficult and is suffering depression, as my father had passed away only 5 months prior to her stroke (after he had battled Stage 4 cancer for 5.5 years). Keeping both my mom and myself motivated is definitely an issue, so I am hoping that coming on here will keep me motivated and in turn, I can be motivating for her to continue her recovery. I also have a four year that keeps us highly entertained but who also can drain my energy. Oh, if only I had a smidge of all his energy!

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8/3/12 12:29 A

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Denise, I am a ten year survivor of breast cancer, with many more birthdays ahead. If there is anything I can do to help let me know. I usually check in the Chat Room daily for any new postings or will add a general post to see how things are going with everyone. Above all, keep yourself as strong an healthy as you can. MOM, will be needing you for help an support.
Keep intouch.

Michele

Michele - Northern Kentucky


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" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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8/1/12 8:51 A

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Laurence,
You are so right! It is tiring and sometimes causes you to question your own mental stability! You are right on target in thinking that the best thing that you can do is to take care of yourself! I had forgotten to do that it made taking care of my husband that much more difficult. When I feel good and good about myself, I am able to do more for him! You are so smart - thank you for your post!

Edited by: SUNNIEMCPH at: 8/1/2012 (08:52)
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8/1/12 7:22 A

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Hi Laurence - about the only thing you can do is try to make the person as comfortable as possible. Just continue to be there for him. Get as much help as you can. And you are right to take care of yourself so that you can take care of him.

I am hear to support you in any way I can. You are in my prayers and thoughts.

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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8/1/12 7:18 A

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Hi Denise - Sorry to hear about your mom. You must really be stressed right now. I was the sole caregiver for my dh. While most of the time it wasn't too bad - there were some days I was ready to give up. Buy from the encouragement of other Sparks members I made my way through an extremely difficult time.

I will keep you in my prayers and my thoughts.

P.S.: Join us on the Chat line

Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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7/31/12 10:24 P

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Checked in a while ago, checking in again. Being around another person's mental illness and disability is tiring. Y'know, I don't know quite what I need...I can't fix him and the prognosis isn't good. The best I can do is try to take care of myself while I take care of him.

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7/31/12 6:44 P

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My (57 year old) mother was just diagnosed with an extremely aggressive form of breast cancer. She is married (to my step-dad), but he works on commission so he must work, and he isn't good with doctors/hospitals. I am an only child, so this pretty much all falls on me. We do have a great community of friends and church groups, but there is only so much you can lean on others for.

We start chemo Monday. Once she gets through the basically 6 months of that, it'll be a mastectomy and then radiation.

I've been with her through many other scares - full hysterectomy for ovarian cysts 8 years ago, melanoma last year, but this is going to be a huge battle.

I'm single (so I got home to just my kitties at night) and I'm just really finding it hard to deal with the stress these last few days. I'm also in the process of short selling my condo to get away from an ex-boyfriend and that has dragged on for over 8 months!

There is just so much unknown. I want to be strong for her, but it tears me up to see her in pain and confused and overwhelmed.

~Denise

Edited by: SLEEPYDEAN at: 7/31/2012 (18:46)
PR races:
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Dec 26, 2011 - Operation Jack Half marathon (2:27:44)
April 1, 2012 - Carlsbad 5000 5k (29:17)


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7/27/12 8:14 A

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Hi Sunny, you certainly have a heavy load on your hands. I can relate to some of what you are going through. My dh passed away on June 3 after a lengthy battle with cancer. At the end he could not move or speak or even do any personal grooming. He had been sick for 17 years. It sure takes a tole on a person.

I glad you have soom help, unfortunately it is not aways enough Make sure you take some time for yourself so that you can continue to care for him.

Take care, you are in my thoughts and prayers


Dianne

HOPE is not pretending that there's never any sorrow - It's the knowledge that our troubles will be overcome tomorrow. It's the inner strength we call on to sustain us now and then, till our problems lie behind us and we are happy again


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7/26/12 7:07 P

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I'm a caregiver for my husband who has progressive MS and is completely disabled. He is unable to move on his own at all. I have to move him with a lift. He is unable to take care of any of his own personal needs. We have two teenaged daughters who we try to make sure that their lives are as normal as possible, but that can be tricky sometimes. I am very fortunate that my mother lives with us and stays with my husband during the day so that I can work. Life is certainly busy at our house!

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7/16/12 1:10 A

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Sounds like you have your hands full. How are things going an how can we help you?

Michele

Michele - Northern Kentucky


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" Finish each day and be done with it. You have done what you could."
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7/15/12 9:24 P

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I'm a caregiver to a man with both physical ailments and Borderline Personality Disorder as well as Post-Traumatic Stress.

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6/25/12 12:31 P

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This is the time that he needs you the most. The more encouragement you can give with Love, for him to do things for himself, the quicker his rehab. will end. Have your four legged kids had to make adjustments? Pets do speed up recover also. I any just coming out of what you are going through now. My biggest problem was learning his style of bill paying and filing. My system was just not good enough for him. I learned alot an am still learning. Have always heard that one is never to old to learn!

Catch-up later. ..........Michele

Michele - Northern Kentucky


Warriors In Pink~~Administrator
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" Finish each day and be done with it. You have done what you could."
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6/25/12 11:52 A

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As far as care goes....Mark is able to bathe himself which is great. He is able to take care of all his toileting (although at night he uses a urinal so that is always nice to wake up to)! I work full time, and I have a caregiver that comes in for 4 hours Monday-Friday. She is a huge help. She does laundry, cooking, cleaning - whatever that needs to be done. This is paid for thru TennCare, I would not be able to self pay right now. I am so thankful for that. We do not have any kids, but we have 2 four legged babies that I keep up with (this was always his job). I have learned to mow the yard! I am so proud of myself. I did not want to pay someone to do it! I guess for the most part - I just make sure he makes safe decisions. He wants to be as self sufficient as he can be and I let him to a certain extent. I do not get much time to myself. Sometimes, I feel like I work to get a break. I love him, but it sure is hard sometimes.

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6/25/12 11:35 A

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Life is very uncertain for a Fact.......Welcome to Caregivers Support! Your husband's life has changed yet, more importantly yours has also changed. Visit with us in the chat room as often as you can. That is the place were we meet up and get the support we ALL need.
If you can, let us know what care ( in addition to that mentioned ) you are giving. Do you have help and are you able to get anytime for yourself? This way we can have an idea of how we can help. Do post often, many times venting allows one to see things more clearly and makes it possible that we do not take our feelings out on the person we are caring for.

Hope to see you again. ............. Michele142

Michele - Northern Kentucky


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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6/25/12 11:09 A

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I am a caregiver to my husband. He had a total knee replacement on January 3 and a stroke on January 10. He came home to me in March. He is walking with a cane (but is very unstable), and he can not use in left arm/hand (we are working on it!). His mind is pretty good most of the time, but I hate the days he gets confused. He is 54 and was very active before this happened. It is so hard for him. It hurts me so bad to see him struggling. I am not even 40 years old yet, never dreamed I would be a caregiver this young.

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6/5/12 12:44 A

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Greetings ANDILH: Sorry I did not catch your post sooner. Welcome to Caregivers Support.
Hope you will be able to find the support, encouragement and motivation that is needed when care is given to others. Are you by chance a Professional in the Health Care field. Your Background info. certainly sounds as if you are.

When you have time stop by the Chat Room and tell us how you are doing. The Chat Room is open 24/7. Either myself or others can be found there. If you need to let off steam, that is the place.

Again Welcome

Michele142............. emoticon

Michele - Northern Kentucky


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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ANDILH Posts: 1,138
6/3/12 4:37 P

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I'm a caregiver to my younger sister. She is 28 years old, and severely multiply impaired. She has Tuberous Sclerosis Complex, autism, epilepsy, osteopenia, use of a wheelchair and g-tube, and the mental age of an 18 month old.
I've done care for people with Cerebral Palsy, Down's Syndrom, FAS, ABA for Autism, hearing and vision impaired children, as well as other disabilities with no known diagnosis. I've also done some elder care, but not nearly as much as with children (my degree is in Child Development).


MAGA99's Photo MAGA99 Posts: 13,912
5/9/12 1:17 P

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HI
I m caregiver to my 67 yr old father I have been for the past 5 yrs. @ this point he is a diabetic; had a stroke 6mths b4 I moved in to care for him he now has his leg amputated above the knee it started w a toe a mth b4 I moved in; he suffers from high blood pressure high cholesterol
he also doesnt read or write
the only thing he does for himself is to feed himself

My enemies don't be glad because of my troubles!
I may have fallen, but I will get up;
I may be sitting in the dark, but the Lord is my light
Micah 7:8


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MESTENA's Photo MESTENA Posts: 809
4/22/12 10:21 P
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.....my son, 15, recently diagnosed with PDD-NOS

and soon my husband, recently diagnosed with COPD

Still reeling right now....

Delta Co. MI zone 4


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3/8/12 3:00 A

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...my husband who had a stroke a year and a half ago. He recovered physically fairly well but has a lot of cognitive and speech problems. 

He spent 9 months in live-in rehab but is back home now. He no longer needs 24/7 supervision and can spend several hours by himself but isn't completely independent. He can't drive any more, which bothers him more than anything else.

It's a good thing we could finish each other's sentences before the stroke, since I have to do that a lot now. His aphasia is centered mostly on nouns, names, and numbers. Imagine a life without nouns. I get to play 20 Questions a lot with sentences like, "You need to fix the [random sound] before it breaks." Does he mean the cat's claws, the car, or the roof? Or possibly it's something he wants for lunch....

No stress there. Ha!

He's not interested in more therapy although it might help a lot. He's starting to warm up to the idea if it's tied to his getting his driver's license back. His neurologist doesn't think that's likely to happen and I don't think I'd want to ride with him if it does, but you never know. Less likely things have happened. But I feel kind of dishonest trying to get him into therapy when I know it won't accomplish what HE wants.

I know I need to take care of me, but I have trouble with that. I've always had trouble with depression and the stress of all this doesn't help. I'm trying to take care of my health, but that's also hard. I had one friend who could be counted on to be proactive in helping me find 'me' time, but her husband has just been diagnosed with an aggressive cancer, so she has troubles of her own. I'm trying to figure out how to help her, when I really can't even take cae of myles. Sigh.

I'm glad to have found this team of people in similar situations. Sometimes just the mental exercise of writing down my problems helps me find solutions. And I know my fellow SP will always chime in with ideas.

Glad to join the team.

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1KSBEST's Photo 1KSBEST Posts: 5,414
1/28/12 10:50 A

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emoticon

Edited by: 1KSBEST at: 2/19/2012 (14:08)
Karen- Central Oregon, USA
***Have Fun!! ***





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1/27/12 6:30 P

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Hi, and welcome to the group!!

DH means dear (or darned--- depending on your mood :)) husband

I'm your neighbor, I live in Idaho :)

Teams I am on:

Boise Sparks
Idaho Living
Caregivers support (leader)
Celiac & Gluten Free
Frucose Intolerance
Leaving 210- ville
LDS Ladies
Love Kids, Just Don't Have Any
One Person, One Dream (pay it Forward)
People w/ Cerebral Palsy
People w/ DIsabilities on Fixed Income
Plantar Fasciitis
Sleep Apnea
South Beach Diet
Tall Ladies
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1/27/12 12:58 P

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emoticon

Edited by: 1KSBEST at: 2/19/2012 (14:07)
Karen- Central Oregon, USA
***Have Fun!! ***





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10/22/11 1:54 P

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Hi Michele 142

We seem to be in about the same boat. I have been taking care of my DH for 17 years. On the plus side it is easier to care for him than my son who has Autism. We adopted him in 1987 at 13 months old. He was placed in a special care home when it got to the point that I could not take care of him anymore. Unfortunately not six months after he was placed my husband started to get sick. First prostate cancer, Celiac disease, major stroke and now lung cancer. I have gotten to the point that caregiving has become an automatic reflex. Even in public, if I see someone needs help and am usually the first one to be there.
I am hoping when my DH is placed in the spring that I will be finally able to live for me.

I sorry to hear you DH is sick. When my husband was diagnoses with lung cancer 2 years ago his sons at least one of them would visit every two weeks. My husband is divorced and his children (all adults in the 40's) have always had a hard time accepting me. I have been with DH for 35 years. They are coming less often since their father has lived past life expectency. I have to admit though that this summer was an exception. The whole city of Montreal (we are an island) was at a stand still from so much construction due to falling pieces of cement from our overpasses, bridges being closed for emergency repair because they have suddenly become to dangerous to drive on. We are being called Cone (construction cones) City. They are also having to constantly fix broken water mains. We have holes everywhere which of course makes you have to take a detour route. DH's sons live on the other side of the river. Traffic has been so bad that it doubles their drive time.
They don't call, mainly because DH has trouble hearing and does not remember much about his day to day happening.

Don't you find that after being a caregiver for so long that you end up doing things only as they come along. It is difficult to plan anything ahead of time, to entertain and go out as he requires your care all the time. It is also like having a child who is getting younger not older.
You have lost a husband and gained a patient.

I am relieved that soon I will not be his primary care giver but his wife again.

Man do I ever ramble. It just is so nice to "talk" with someone.

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10/5/11 11:27 P

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welcome new members, we're glad you joined us!

Teams I am on:

Boise Sparks
Idaho Living
Caregivers support (leader)
Celiac & Gluten Free
Frucose Intolerance
Leaving 210- ville
LDS Ladies
Love Kids, Just Don't Have Any
One Person, One Dream (pay it Forward)
People w/ Cerebral Palsy
People w/ DIsabilities on Fixed Income
Plantar Fasciitis
Sleep Apnea
South Beach Diet
Tall Ladies
HAPPY0408's Photo HAPPY0408 Posts: 3,040
10/5/11 8:44 P

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I am a caregiver to my Significant Other. He was born with a learning disability, but then at age 19 (10 years ago) he was diagnosed with Tuberous Sclerosis due to seizures. I knew this when I was getting to know him, but fell in love with him for other reasons like his personality. All his past girlfriends left him due to medical issues, but I was able to see past that and love him anyways. He is unable to drive, so I take him every where. We now live in a town with a bus system, but I still drive him every where since he has a learning disability and has a difficulty understanding things. His family lives 4 hours away. My family lives 2 hours away. So we are on our own. When we moved here to La Crosse, he started seeing a new chiropractor who told us he has sclorosis going on, but it has been improving with him seeing a chiropractor regularly and moving more. It is a struggle getting him to change his habits as it seems his family did not do a good job teaching him things. I have been working on getting him to pick up after himself, which I feel he is finally getting after almost 4 years of being with him and coaching him. He is also doing some of the cooking with me teaching him of course and doing some of the cleaning the house though it never gets as clean as I like it so once in a while I do a thorough clean job. But he is finally deciding on helping out so that I do not do it all since I also work full-time while he is home all the time. He would like to go to school for computers, but the old town we lived in was difficult getting him back and forth that he failed all his classes. He wants to go into something with computers. He would like to learn how to fix them. Back in March 2009 (I think it was) he fell on ice and broke his leg. I took FMLA, but did not have enough to just stay home with him so I worked 4 hour shifts while then coming home and taking care of him. It was very exhausting but we got through it.

I work day shift now which gives me some time for me since he is not a morning person. My significant other usually isn't up until after 10 am, so I get my exercise done before I go to work and on my days off I am still up before him so I get my exercise done before he wakes up. He is becoming more independent but I have had to do all the teaching and coaching since he mom seemed to have babied him. It still gets frustrating at times, but I hold onto those loving feelings I have for him. It helps me to get through the tough, challenging, frustrating times.

That's all for now. Hope to get to know you all. Its close to bedtime for me. Not to brag but one thing I love about my S.O. is that he gives me a relaxing, nightly massage before tucking me in. He is so loving. I feel like a lucky lady to have such a loving, affectionate man in my life. GOOD NIGHT!

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CEIGSTI's Photo CEIGSTI Posts: 2,239
9/26/11 9:10 A

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Soon I will be emotional support and any thing else that comes up support for my sister who was just diagnosed with breast cancer. She doesn't know the extent yet but it is invasive with no tell tale lump. Just hoping I have the strength to go through it all again. I was co caregiver for my dad and mom when they went through their respective cancers. Luckily we have a big family so we can all lean on each other when we are down. Signing up for Race for the Cure walk next weekend. Doing the family walk as I'm not quite sure how far my 6 yo would make it! My oldest sister is walking with us. I had signed up for the Romp to Stomp breast cancer about a month ago. (snowshoe). I've done it in the past and it is so much fun. This year it holds more meaning for me.

Carole
____________________________________
Denver, CO. MST

Goals:
Hike my next fourteener! Mt. Bierstadt.

www.fitbit.com/user/23JRFC


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MICHELE142's Photo MICHELE142 SparkPoints: (96,509)
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8/8/11 12:35 P

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Good morning....New with you all since yesterday, I have been with Spark since March of this year. My husband has and is the love of my life. As a retired registered nurse, I have taken care of many people with my husband's medical conditions. The problem I have now is he is my husband so the shoe now is on the other foot, care is now 24/7 and not 8/5 Monday through Friday. He has past and present coronary and vascular problems, COPD ( relating to smoking ), minor stroke 5 years ago, hearing loss, and stubborn as all get out.

After leaving the acute hospital I went into Home Nursing. I tried to help as much as I could. I also noticed that the frequency of the visits of family members was few and very far apart.
Since my husband retired, I am seeing the same pattern with his children. For the money he has loaned or spend on them since we married.....this is very wrong. Each of his children would visit on there own once or twice a week, now that the handouts are not forth coming visiting has stopped. This angers me to no end. I am not to say anything to them, he does not want their feelings hurt..........what about mine.

I am open to any and all suggestions--------I need help.

Michele - Northern Kentucky


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralpd Waldo Emerson



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7/13/11 9:31 A

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I've been on Spark since July 2008, and had accomplished my weight loss & fitness goals until...January of this year when my husband was diagnosed with brain tumors. My life has completely turned upside down since then. He's been through radiation twice, in hospital chemo twice, and ten treatments of another chemo that gets administered in the oncologist office. At this time he's barely mobile, walking with help or a walker, but very little. He has virtually no short term memory, and is rather unstable on his feet due to the swelling around the tumor. Prolonged use of steroids (for the swelling) has caused a multitude of other problems, including high blood pressure and diabetes.

Managing his care is now a full time job. I continued working as much as possible until June, when his condition started to rapidly deteriorate. I pay virtually no attention to my diet anymore, and fitness activities, for the most part, just don't happen. Some days I can't even find the time to log on to Spark, though I've been doing better with that lately.

Life sure can throw you a curve, huh?

Even if you're on the right track, you'll get run over if you just sit there.
-Will Rogers


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CTUPTON's Photo CTUPTON SparkPoints: (111,072)
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3/6/11 10:05 A

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PINDOC, You seem to have a tough situation. I thought mine was hard but not really. After 5 years, things have fallen in to place. My husband is in a motorized wheelchair. He does fall out occasionally. We have to get help from ambulance or police to get him back in the chair. But he is sturdy and has not gotten hurt. I am still working full time as a teacher. I have an aide each morning get him up and dressed and give him his breakfast. I go to work and do the rest when I get home. My advice is to get all the help you can. Keep posting on the team page. People have good ideas and are wonderful emotional support. emoticon Chris

Today I stop and think before putting anything into my mouth. HALT! Hungry? Angry? Lonely? Tired?


It feels like I am not moving, but I guess I am. Even turtles eventually move from place to place. chris


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RHALES199's Photo RHALES199 SparkPoints: (27,179)
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1/22/11 10:45 A

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emoticon hiand welcome emoticon to the team!!
I've been a SP member for a while, too, and I've seen you around :).
A lot of us can relate to some of the things you deal with!
I myself can relate to the not enough time/ energy, and I can relate a little to the sleep deprived feeling...
And I understand ALL too well the challenges of losing weight while being a caregiver. (Haven't really lost weight since I realized I have food sensitivities (about 2 years ago) & had to overhaul my diet yet again)
Hopefully your relatives will continue working on viable options for your mom, so you can have some relief. You need a break!!

feel free to come here aNY time you need help, suport, or just a shoulder to lean on, or anything else!!

Teams I am on:

Boise Sparks
Idaho Living
Caregivers support (leader)
Celiac & Gluten Free
Frucose Intolerance
Leaving 210- ville
LDS Ladies
Love Kids, Just Don't Have Any
One Person, One Dream (pay it Forward)
People w/ Cerebral Palsy
People w/ DIsabilities on Fixed Income
Plantar Fasciitis
Sleep Apnea
South Beach Diet
Tall Ladies
_MAOMAO_ Posts: 5,872
1/22/11 1:11 A

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I've been at Spark 2 years. I'm staying with mum most of the time right now. she falls almost every day. sometimes she makes less sense than others. I don't think her brain can keep up with being in incredible pain. she has severe RA and OA. I'm so sleep deprived. relatives are supposedly working on options to give my mom - they're right, she'll probably take those better from siblings than her kids.

I SO don't have time for another team. I'm not keeping up with 2 I lead, even, so this feels extravagant. but I really can hardly take this anymore.

moral: don't get rheumatoid arthritis. just say no.

last fall, my weight finally started to moved down again, usually hanging in the 160's. not now, staying in the 170's again. it's really hard to not keep eating. being so sleep-deprived, I just can't feel hunger correctly now. of course, my metabolism's fried too.

emoticon

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RHALES199's Photo RHALES199 SparkPoints: (27,179)
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10/9/10 11:54 A

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emoticon emoticon emoticon emoticon

No matter the disabilitiy we care for, all of us here are caregivers, so can definately relate, but a good # care for people with dementia, so you'll fit right in!

p.s.--- love your screenname! I don't quilt (but would love to someday!), but i do crochet... so I understand!!

Edited by: RHALES199 at: 10/9/2010 (11:59)
Teams I am on:

Boise Sparks
Idaho Living
Caregivers support (leader)
Celiac & Gluten Free
Frucose Intolerance
Leaving 210- ville
LDS Ladies
Love Kids, Just Don't Have Any
One Person, One Dream (pay it Forward)
People w/ Cerebral Palsy
People w/ DIsabilities on Fixed Income
Plantar Fasciitis
Sleep Apnea
South Beach Diet
Tall Ladies
QLT4SANITY's Photo QLT4SANITY Posts: 701
10/9/10 10:17 A

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Hi - I just found this team and hope I can find emotional support and people who 'get' where I'm at! My DH was diagnozed with Early Onset Alzheimer's in August of '08 - although he'd been having memory problems for at least 6 months or more! But being only 50 it wasn't the first thing that came to mind! Anyway, he's on Aricept and doing well. I've 'retired' from work in order to be around home more. We have 5 children - the youngest is 13 - and one grandchild - so there's lots to keep us busy!!

Gail



He who sleeps under a quilt, sleeps under a blanket of love.


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8/28/10 1:11 A

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emoticon emoticon emoticon

Well, fistest of all, happy anniversary 7 happy Birthday emoticon emoticon emoticon emoticon emoticon emoticon

My hubby had a vertebrae fused almost exactly 3 years ago... i understand all tooo well now how much of a pain back problems can be!

here's a link to a thread on this team about emotional/ stress eating. In that thread, there is also a link to a good SParkpeople article with suggestions to help with emotional eating :)


www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=15082x4565xR>34740495


lookin' forward to seein' ya around here :)!

Teams I am on:

Boise Sparks
Idaho Living
Caregivers support (leader)
Celiac & Gluten Free
Frucose Intolerance
Leaving 210- ville
LDS Ladies
Love Kids, Just Don't Have Any
One Person, One Dream (pay it Forward)
People w/ Cerebral Palsy
People w/ DIsabilities on Fixed Income
Plantar Fasciitis
Sleep Apnea
South Beach Diet
Tall Ladies
BEAJAE's Photo BEAJAE Posts: 144
8/27/10 7:53 P

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Hi! Just joined this group altho I've been a Sparker for awhile. My DH of 11 years tomorrow has had Congestive Heart Failure diagnosed seven years ago. About 1 1/2 months ago it was gound that his heart is greatly enlargedand thus the valve in his left ventricle (the important one) is not doing its job. It will try to pump blood but, since the heart is so big, the valve doesn't close and pump the blood forward into his body. It only gets a little into the aorta and the rest flows backwards or not at all. Tuesday he will undergo Open Heart surgery to install a Left Ventricle Assist Device (LVAD) in his heart. It is a pump and will be attached to his aorta and another part of his heart and will assist his heart in pumping blood to his brain and body. Wires will come out of his side and be connected to batteries and a monitor. He is really in sad shape right now because his brain and body are not getting enough blood flow. He gets extremely angry and takes it out on me. I understand what is happening but it still is hard. I am so glad his cardiologist caught this. He would be dead in a couple of months if they hadn't. Now they say this will add 10 good years to his life.

I have two replaced hips, a replaced knee and 4 vertebrae in my back fused. I also have fibromyalgia which really drags me down. I am so tired all of the time. I also have neuropathic pain in my feet and lower legs which is almost as painful a the back surgery that caused it. Yesterday we were at the hospital testing (just him, not me) and I must have walked 10 miles! My feet and legs are so sore today that I didn't get anything done! I am going to be 72 on Sunday (tomorrow is our 11th anniversary) and today I feel about 102! It is so nice to find a group where everyone is in somewhat the same boat! How do you stop eating wildly when you are stressed? I am having trouble finding the answer to that! Help!

Edited by: BEAJAE at: 8/27/2010 (19:56)
Betty - Menominee, MI

Striving for success without hard work is like trying to harvest where you haven't planted. - David Bly

If life were fair, Elvis would be alive and all the impersonators would be dead. - Johnny Carson

And in the end, it is not the years in your life that count, it is the life in your years. Abe lincoln


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