Author: Sorting Last Post on Top ↓ Message:
ALRAET's Photo ALRAET Posts: 319
4/24/16 12:48 P

My SparkPage
Send Private Message
Reply
Shirl I have tried cranberry for 8 years and mandelomine for his UTI. He picked up a resistant bladder infection while in rehab. It never clears up and only one antibiotic is keeping it under control .He will be on it for the rest of his life. It is an IV antibiotic.But thanks for thinking of us.

Remind yourself that it is okay not to be perfect.


 current weight: 228.0 
 
265
239.5
214
188.5
163
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
4/24/16 9:49 A

My SparkPage
Send Private Message
Reply
Hi, Shirl...you're right of course. We should have halos. And yet I feel as if I'm not good enough. I feel as if I'm failing and failing and failing. (In fact, I think I will move this topic to the Chat Through 2016 since that's were the action is.)

 current weight: 143.0 
 
168
153.5
139
124.5
110
SHIRLS2016's Photo SHIRLS2016 Posts: 55
4/24/16 8:43 A

My SparkPage
Send Private Message
Reply
Hello Better Me and Jenna and welcome to our little band who should have haloes but never really get time to check! Alrae, once Denis's UTI is clear you could try giving him a cranberry capsule daily. A nursing sister gave me this advice regarding my husband, Roger and so far it has held off any further infection.

Let us not forget to be kind.


 current weight: 187.0 
 
189
174.75
160.5
146.25
132
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
4/19/16 9:02 P

My SparkPage
Send Private Message
Reply
Hello, Jenna...I can identify. My ol' Sweetie had an emergency triple bypass. That had to be ten years ago. I was used to taking care of him after operations. He's had so many.

Physically caring for a post-operative patient does mean hustling around and bringing him the things he needs and taking him to his appointments for post recovery therapy. Allan had physical therapy for cardiac patients and I'd take him there.

But you say your husband has severe depression. Now that's another matter! That complicates things! That makes the caregiving much harder!

The first topic listed on this team is Chat Your Way through 2016! Will you join us there? Talk and get support!
emoticon

 current weight: 143.0 
 
168
153.5
139
124.5
110
JENNA3's Photo JENNA3 SparkPoints: (70,498)
Fitness Minutes: (39,390)
Posts: 2,702
4/19/16 8:39 P

My SparkPage
Send Private Message
Reply
My name is Jenna and I am new to being a caregiver. I am caring for my husband, who recently had a double bypass heart surgery. He is still recovering from the surgery and has severe depression. I am trying to get him help right now, while I care for him physically.

-Jenna
Surgery date: 9/25/2015
Team Beachbody Coach
http://www.teambeachbody.com/jcpmoore


 Pounds lost: 84.2 
 
0
25.5
51
76.5
102
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
2/7/16 8:46 P

My SparkPage
Send Private Message
Reply
What a lovely picture! It's so good to be able to see the faces of the people we meet here! (I don't have a good picture, and if I did, I don't know how to post it.)

Oh, I hope you get those stones cleared out, and that infection cleared up! (We have infection problems here, too.)

 current weight: 143.0 
 
168
153.5
139
124.5
110
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
2/7/16 8:44 P

My SparkPage
Send Private Message
Reply
Hello, Better Me...yes, lots of people who are not caregivers do not understand just how it is to take care of a high maintenance person who isn't going to get well.

 current weight: 143.0 
 
168
153.5
139
124.5
110
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
2/2/16 10:28 P

My SparkPage
Send Private Message
Reply

I hear you loud and clear. Hope you have the help you need and get the time to take care of yourself. That seems to be a problem for all 24/7 Caregivers. Many Caregivers feel guilty about taking time for themselves and eventually wish they had done so. Hope his surgery goes well.

Drop by the Chat Room when you can and lets chat. Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
ALRAET's Photo ALRAET Posts: 319
2/2/16 2:31 P

My SparkPage
Send Private Message
Reply
It has been rough for a while, my D has an antibiotic resistant bladder infection that he picked up in the rehab hospital in 2008. He has had numerous bladder infections and only one intravenous antibiotic works. He has been on an IV pump at home since Oct 2015 and is finally going for surgery next Monday to remove the stones in his bladder and kidney in the hopes of clearing out the infection.I wasn't sure before Christmas if he was going to make it through the holiday but he did and now he is low risk and can have the surgery.You just have to hang in there and do the best you can. I have had him home since Dec 2008 and he has deteriorated in the last year but I can still manage and will not consider a nursing home.

Edited by: ALRAET at: 2/2/2016 (17:47)
Remind yourself that it is okay not to be perfect.


 current weight: 228.0 
 
265
239.5
214
188.5
163
BETTERME57's Photo BETTERME57 Posts: 251
1/3/16 8:10 P

My SparkPage
Send Private Message
Reply
I am a caregiver to my spouse and I understand all too well the ups and downs we go through and the challenges we are faced with. It is nice to find a group to befriend and talk to on a daily basis that understands the responsibilities we assume because we truly love and want only the best for the ones we love. Thanks for having me and I hope to get to know many of you in the group here.

Edited by: BETTERME57 at: 1/3/2016 (22:57)
 current weight: 323.0 
 
344
327.5
311
294.5
278
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
11/23/15 11:46 A

My SparkPage
Send Private Message
Reply
Welcome, join the team in the Chat Room in General Discussion Group and let's have a Chat.
Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
11/22/15 6:30 P

My SparkPage
Send Private Message
Reply
Hello, Truth...we're over on the '2015...let's chat' sticky topic. Come on over and tell us what's happening.

Yes! You're overwhelmed! I can identify! Caregivers get overwhelmed, and people who aren't caregivers often just don't get it.

I hope we'll see you.
emoticon emoticon

 current weight: 143.0 
 
168
153.5
139
124.5
110
TRUTHNOW2's Photo TRUTHNOW2 SparkPoints: (45,697)
Fitness Minutes: (89,187)
Posts: 4,385
11/22/15 5:57 P

My SparkPage
Send Private Message
Reply
I am caregiver to my dad.... we have no other family... i have very few friends or even people to talk with on the phone...

i am overwhelmed...

and just got a phone call about needing to get over there.. oh geez..



-SharonNY
266.6 pre 17Day Diet... lost 10.8 pounds with severe back and knee injury..
255.8 17DD- for one year of cycles.... lost 80 pounds!!!
175.4 Mid Aug 2012- sept 2013 yoyoville
9/25/12 172.6 BLC23 9/25/13 189 12/18 183.2
BLC24 183.8 4/9/14 178.6 BLC25 4/30 178 7/23 172.6
BLC26 9/17/14 179.6 12/10 181 BLC27 1/14/15 184.0 179.4 BLC28 5/20/15 182.4 8/12/15 176.0
BLC 29- 175.6 169 BLC30 173.6 5/4/16 170.8 BLC 32- 8/31/16 188.4 9/7/16 188 FBI level9-Secret Agent


 current weight: 191.6 
 
267
238.5
210
181.5
153
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
10/1/15 9:06 P

My SparkPage
Send Private Message
Reply
Hello, Elizabeth... I see you here. And now I'm going over to the Let's chat forum and see you there.

 current weight: 143.0 
 
168
153.5
139
124.5
110
MIMAWELIZABETH's Photo MIMAWELIZABETH SparkPoints: (365,842)
Fitness Minutes: (146,475)
Posts: 16,269
10/1/15 6:20 P

My SparkPage
Send Private Message
Reply
My first priority is my DH, who has had ESRD and been on dialysis for over four years; plus recent other health problems the past several months, which resulted in major surgery on 9/30/15. In addition to physical care for DH, I take care of all finances for us and for my MIL, who has had Alzheimer's for a few years.

While I work "behind the scenes" for MIL, I don't have any direct contact with her care. That is shared by DH, as much as he can, and his DD (her GD). The majority of the responsibility, however, is provided by professional caregivers; despite the high cost, that has literally saved us physically and mentally.




Pacific Time - 5% Awesome A Team - EL
Elizabeth - BLC Invincible Indigos

My son Scott's memorial:
www.youtube.com/watch?v=AopgOKaOUwY

"I'm not telling you it's going to be easy.
I'm telling you it's going to be worth it."

"Losing weight is hard. Being fat is hard.
CHOOSE. YOUR. HARD!"


 Pounds lost: 64.0 
 
0
30
60
90
120
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
9/13/14 8:04 P

My SparkPage
Send Private Message
Reply

Welcome HAPPY0408 to our Caregiving family! Be assured you are not the only one looking for that time for ourselves. Join us when you can in the Thread 214..Lets Chat.
We gather there when possible and share our tips and problems. Please,join us so we all can learn from each other.

Looking forward to getting to know you. Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
HAPPY0408's Photo HAPPY0408 Posts: 3,044
9/13/14 7:49 P

My SparkPage
Send Private Message
Reply
I am a Caregiver in every part of my life. I have a Spouse with Tuberous Sclerosis which causes him to have seizures and a slight learning disability. I also am a Adult Family Home Provider in which I take care of 2 ladies in my home (one has Down Syndrome and the other had Mental Impulse Disorder). I also work at an Adult Day Care Center outside of the home. I need to figure out a way to find time for myself especially exercising. I am feeling stressed and overwhelmed lately since I have not taken enough time for myself lately. I need to get back into exercise but it is a struggle getting up in the morning as I would need to get up at 5 am to exercise during the week before anyone else gets up. I do not like getting up that early. I really need support right now. Thanks!

 current weight: 205.2 
 
205.2
198.9
192.6
186.3
180
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
3/17/14 8:28 P

My SparkPage
Send Private Message
Reply
Hello, Brenda...we're all over on the other thread, the 2014 Let's Chat. That's where much of the visiting and talking is going on.

I'd like to hear from you and how things are for you. I am the caregiver to my ol' Sweetie, but I myself am 72, and there may well come a day when I need my daughter to care for me, and I don't want to be a burden on her! What do caregivers of aging parents have to do? What struggles do they have? And what can I do NOW to insure that she isn't loaded down with me at some future date?

Look what I just did! Here you are needing support with the caregiving you're doing, and here I am wanting to learn from you!

I hope that we can give you the support you need even as we learn from you. And I hope you will learn from us as well. Let's support each other and learn from each other as well.

You didn't say what's happening with your mother. Is it Alzheimer's or some kind of dementia? There's a great blog that may be of use if that's the case.

http://www.alzheimersreadingroom.com/

Welcome aboard, and I hope we'll hear from you.

 current weight: 143.0 
 
168
153.5
139
124.5
110
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
3/17/14 1:55 P

My SparkPage
Send Private Message
Reply

Hi, and Welcome. Join us in the Chat Room and met everyone! Some one is usual around to answer questions or give a few tips. At the same time, reading the posts there may let you know that you are not the only one dealing with a worry some problem.

Looking for ward to meeting you!

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
BJHARRIS549's Photo BJHARRIS549 SparkPoints: (83,098)
Fitness Minutes: (55,740)
Posts: 1,612
3/17/14 1:16 P

Send Private Message
Reply
I'm a caregiver to mother.

I ♡ walking every day !


 December Minutes: 0
 
0
33.75
67.5
101.25
135
LAURANCE's Photo LAURANCE SparkPoints: (245,852)
Fitness Minutes: (74,840)
Posts: 4,720
3/13/14 8:19 P

My SparkPage
Send Private Message
Reply
A month later and I found your post.

Wow, cancer...my mother died of breast cancer, and she had this awful open wound that was kept stuffed with balm of gilead. Yes, cancer sure is awfully disfiguring.

I'm having an opposite problem. Stress from caregiving is causing me to gain belly fat, which comes from cortisol which comes from stress.

OTOH I have had the experience of losing weight because of intense stress.

For the most part we seem to be on the Let's Chat 2014 thread. I hope we'll see you there.

 current weight: 143.0 
 
168
153.5
139
124.5
110
FOCUSONME57's Photo FOCUSONME57 Posts: 5,085
2/20/14 4:36 P

Community Team Member

My SparkPage
Send Private Message
Reply
Hi Sandy and welcome!

Look forward to hearing from you in our chat thread.






 Pounds lost: 62.0 
 
0
41
82
123
164
STITCHINGNAN's Photo STITCHINGNAN Posts: 12,523
2/16/14 6:57 A

My SparkPage
Send Private Message
Reply
Welcome from me too, do pop into our general chat thread where we share up sand downs and support and learn from each other, Irene in
England

Irene in Nottinghamshire UK
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
2/15/14 9:07 P

My SparkPage
Send Private Message
Reply

An you take care of yourself! See you when you can pop in ... don't be a stranger.

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
MCDEANE52's Photo MCDEANE52 Posts: 7,282
2/15/14 6:20 P

My SparkPage
Send Private Message
Reply
Thanks, Michele, for the welcome. I'll be here as often as I can and I'll be posting, too, as I love people and talking. LOL
Take care of yourself. Later.

Peace Out,
Sandy







 current weight: -11.0  under
 
15
7.5
0
-7.5
-15
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
2/13/14 11:57 A

My SparkPage
Send Private Message
Reply

Welcome ... glad to have you with us. In answer to your question, weight I have not lost but have maintained as best I could. I have been a Caregiver to DH for close to two years recently and off an on for the past 20 years from various surgeries. Last November the stress of the last two years, presented me with a Big Stage Heart Attack. That was the worst this last round of Caregiving has left me. Perhaps some of the other Team Caregivers have run into your problem an can give you a few pointers,

Looking forward to seeing you more on the threads.

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
MCDEANE52's Photo MCDEANE52 Posts: 7,282
2/13/14 11:34 A

My SparkPage
Send Private Message
Reply
Hi all! I'm a caregiver to my significant other of over 18 years. Ron, that's his name, has Stage 4 cancer ~ both lungs and continuous tumors on his right shoulder. That's the hardest part, the shoulder is an open wound that just keeps getting worse. They over-radiated the area and burned 2 (at least) of the bones plum in two~ So I have 5 spots where the bone is on the outside of the skin and that's not a pretty site~!
All this has caused me to lose way more weight than I wanted to. My goal was 165# and I'm weighing 110.2# as of yesterday.
Has your caregiving done anything to you like it's done to me? I have never heard of it before but having the problem is a real bummer to me.
I'm glad that I found this team and I hope I can get some good information and maybe I can be of help to someone else. You take care and I'll see you soon!

Peace Out,
Sandy







 current weight: -11.0  under
 
15
7.5
0
-7.5
-15
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
10/8/13 9:40 A

My SparkPage
Send Private Message
Reply

emoticon Ree, glad you could pop in. That Book Club sounds interesting. What book were you reviewing? Have not been reading lately, just waiting till the DVD comes out, then watch it. Just can not find the time as of late. Hope things continue to go well for you and hubby. Enjoy the Season. emoticon

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
STITCHINGNAN's Photo STITCHINGNAN Posts: 12,523
10/8/13 1:15 A

My SparkPage
Send Private Message
Reply
Last evening I was at a monthly book club I goto. M husband knew where I was going and I was home by 9 15 but found him in a bit of a state asking where where you.?
I think he fell asleep woke suddenly then couldn't find me.
I do need my breaks so think in future I will write it down in big letters where I am and put my phone number in too. He had yet in his diary anyway but it may reassure him to see where I am and can call me if he has to, I did not sleep for ages then thinking it over , Ree

Irene in Nottinghamshire UK
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
10/7/13 8:43 P

My SparkPage
Send Private Message
Reply
Same here for hubby, however the temps are staying in the 50s at present around here. So believe it is time to hunt his sweatshirts and sweat pants so at least he has the warmth of them.
Spent this afternoon whiching the squirrels rump along the electric an phone lines. So far he has not wanted to have breakfast out or even go grocery shopping. He sees his old buddies at breakfast and visits with the clerks at the grocery store. As of yet has not mentioned Driving.

Have a better day tomorrow!

Edited by: MICHELE142 at: 10/7/2013 (20:45)
Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
TRCOUNTRYGIRL's Photo TRCOUNTRYGIRL Posts: 461
10/7/13 4:40 P

My SparkPage
Send Private Message
Reply
thanks Michele. She gets out on her deck when the weather is not to cool or hot. Her bedroom right now is in our sunroom so she can look out and enjoy the weather.

 Pounds lost: 9.4 
 
0
14
28
42
56
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
10/5/13 9:50 P

My SparkPage
Send Private Message
Reply

Glad to hear MOM is holding her own. Is she able to get out and notice the change of Seasons? At one time home bound patients would tell the change of Seasons by the clothing worn by those who gave them care. Now though with the climates doing a give and take it seems to be harder for some to tell. emoticon emoticon

Have a better day tomorrow!

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
TRCOUNTRYGIRL's Photo TRCOUNTRYGIRL Posts: 461
10/5/13 9:23 P

My SparkPage
Send Private Message
Reply
Hi she is holding her own right now...good days and bad. I am pretty stressed at times trying to handle work and everything I have to do at home but I am trying to stay positive and strong for her. Plus my sister is not handling it well and being a complete jerk to my mom right now. I just try to take it one day at a time.

 Pounds lost: 9.4 
 
0
14
28
42
56
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
10/4/13 8:36 P

My SparkPage
Send Private Message
Reply

Nice to have you with us. How is your mother doing? Better yet how are you handling the situation?

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
TRCOUNTRYGIRL's Photo TRCOUNTRYGIRL Posts: 461
10/4/13 4:09 P

My SparkPage
Send Private Message
Reply
I am taking care of my mother who is terminally ill with end stage heart failure due to 4 severely damaged heart valves and TIA's. We have Hospice helping with her care now. My boyfriend and I live with her and I work full time as well.

 Pounds lost: 9.4 
 
0
14
28
42
56
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
9/30/13 5:59 P

My SparkPage
Send Private Message
Reply

First let me congratulate you and your husband for offering them care and shelter. Second it is not unusual for family members to shy away from the elderly when they are in need of support and care.

Believe me you are not alone in your situation. Your feelings are shared by many. Feel free to pop in an vent or ask what ever you may need. We all, in some way have been there or have had the same or similar problems either in the past or now.

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
TBWELLS01's Photo TBWELLS01 SparkPoints: (54,698)
Fitness Minutes: (88,145)
Posts: 713
9/30/13 12:36 P

My SparkPage
Send Private Message
Reply
My husband and I are guardians for his mother and her sister. We have been caring for them for 4 years now. They live in our home and take up all our home time. Somedays I feel like crying and other days I just feel so sad. There are happy days too. MIL has never was a kind person and the disease has only made her worse. Her sister has always been a friendly, agreeable person. How in the world can they be sisters? We have agreed to allow them to stay with us 6 more months then we will have to place them in a nursing home. Husband brother does not want to help with care, however, we provide a financial report every month.

To stay balanced, we practice Tia Chi and Kung Fu. Believe me, we need he time away from the ladies.

I have lost 25 pounds here and have maintained for about 2 years now. I need the emotional support and maybe other people who undersand the pressures we deal with everyday.

Becky emoticon

Edited by: TBWELLS01 at: 9/30/2013 (12:39)
"Excellence can be attained if you:
Care more than others think is wise,
Risk more than others think is safe,
Dream more than others think is practical,
Expect more than others think is possible."



 Pounds lost: 7.4 
 
0
3
6
9
12
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
6/6/13 11:48 P

My SparkPage
Send Private Message
Reply

Welcome ... the time and closeness your are spending with your Mom will provide many happy and endearing memories for you and yours. It may be exhausting ( and it is ) but it is rewarding as well. Feel free to share your concerns with us and ask questions or even vent when needed. We have all been there and many of us still are. Ideas can be learned and tips can be shared. Again Welcome to our little family.

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
CHERYLHURT Posts: 41,409
6/6/13 7:45 A

My SparkPage
Send Private Message
Reply
I am caregiver to my Mum who lives 30 minutes away. We had been living in CA and Mum was in SC. When her second husband died after just 2 years of marriage, he was 92, she didn't want to come back to CA. Said SC was the most beautiful place she'd lived and she's from England! So my beloved hubby and I sold our place in CA and moved to SC. I have 2 sisters in CA, neither is interested in helping in any way, shape, or form, just waiting for her to die so they can get some money! Honest! We chose to live in a lovely town close to Mum but a place we would like living in the rest of our lives. He town wasn't pretty at all. Anyway, hubby drives to her place 3 days a week to either pick her up for church, take her to her volunteer position at a school, then I drive her home from volunteering and from church, then spend the rest of the day with her. She just turned 87. I am SO grateful to have time with her but it is exhausting, and very costly! We are going thru 2 tanks of gas a week PER VEHICLE! But the best way to honor my Dad is to care for my Mum whom he cherished. They adored each other for 54 years and gave me the example of a wonderful marriage. I am so blessed!

MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
5/31/13 10:54 A

My SparkPage
Send Private Message
Reply

I truly understand what you are going through and very slowing trying to get through to DH just how and why he is changing. That at times is easy until you keep hearing him tell his friends and family that he is just fine. He is still driving however, it seems when he goes by himself, the time away from home, is increasing. My main concern at present is the finances, as I am finding to many mistakes with the check book and bills that never make it out to the mailbox. He tells me I need to handle it yet, comes behind and does it his way.

Your DH tells you he is forgetful, mine denies it to no end. Sounds like we both have a progressing challenge ahead of us.

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
STITCHINGNAN's Photo STITCHINGNAN Posts: 12,523
5/31/13 10:04 A

My SparkPage
Send Private Message
Reply
I am caregiver to my husband who has the start of Alzeimers . As yet it's not too much of problem but who knows what the future holds. He accepted the diagnosis as the brain scan proved it he could not disagree. But in his mind he hasn't changed at all.
He agrees he's forgetful, but isn't everyone.! He wants to carry in doing what he has always done.
There is no driving now he hated giving up but it had to be and he has accepted that
.i am slowly taking over paperwork and finances but everything is a battle.

There had to be a call to the bank today I wanted to do it, but no he say i am alright doing that! But he had to keep asking me questions all the time on where do we live. What's our phone number etc and goes off track when trying to explain a problem . I do not want to take everything away from him he's had to give up on many things he enjoyed doing. I am not yet legally responsible for everything , the legal work is going through slowly .
He is still fit, we try to walk each day round our small town. He reads even if he does lose track of the story, he likes tv but often doesn't know the characters or the story line .
.We have long conversations some days and he's almost the man I married. I know every case is different but I hope to find some ways of helping him and myself. I am ok physically and mentally I do not sleep much and get tired by day but I can cope usually! Irene ,

Irene in Nottinghamshire UK
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
5/2/13 8:37 P

My SparkPage
Send Private Message
Reply
Having some problems with hubby's memory. Doc. thought he may have stroked last year when he fell and broke his hip. Found out last week that his oxygen Saturation in his blood was at 90, a drop of 8 points since last year. The lack of oxygen to the brain, was causing his memory loss, mood swings, loss of appetite, and aggressive behavior. Sats are still low and if they drop below 90 he goes on oxygen. ....... Me: walking on eggs shells around him, 11 years now cancer free, still anemic from those radiation treatments and enjoying watching GD develop into a 7 year old equestrian competitor in the Hunter Class. Three weeks ago she won 3 ribbons in one meet. Just love it. Weather finally breaking around here so we are finally able to get out in the sun for a change. Looking forward to this weekend and spending time with my daughters and the GD. Have a good day tomorrow and a Great weekend.

Michele

Edited by: MICHELE142 at: 5/2/2013 (20:45)
Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
CTUPTON's Photo CTUPTON SparkPoints: (169,836)
Fitness Minutes: (39,830)
Posts: 13,802
5/2/13 7:04 P

My SparkPage
Send Private Message
Reply
Hi MICHELE! The sunshine is a welcome change. I planted 2 things outside today. that felt wonderful. I have been going to water aerobics lots. I have made many friends there. And the people are almost always "up." So it helps my mood.

what's new with you?

Chris

Time to stop farting around and get serious about eating healthy. Start exercising again. The move is DONE.
GOAL: Reduce A1C,BP,tryglicerides,and weight. HOW? Low carb plan with lots of veggies and water aerobics at least 3X week. I was doing this but moving stress has halted my good habits. Time to get this going again. I am worth it.

CAREGIVER SUPPORT PLEASE SEE THESE LINKS:
www.caring.com/
www.agingcare.com/



 current weight: 252.0 
 
252
250.25
248.5
246.75
245
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
5/1/13 10:50 P

My SparkPage
Send Private Message
Reply

this person is smiling for the: flowers popping up, weather warming, and the sun is around longer. Now it would be great if Sprig would stay around for at least a month.

Hey, Chris,...how have you been?

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
CTUPTON's Photo CTUPTON SparkPoints: (169,836)
Fitness Minutes: (39,830)
Posts: 13,802
5/1/13 6:02 P

My SparkPage
Send Private Message
Reply
The current spring-like weather seems to be making everyone smile. What a big help that is. Chris

Time to stop farting around and get serious about eating healthy. Start exercising again. The move is DONE.
GOAL: Reduce A1C,BP,tryglicerides,and weight. HOW? Low carb plan with lots of veggies and water aerobics at least 3X week. I was doing this but moving stress has halted my good habits. Time to get this going again. I am worth it.

CAREGIVER SUPPORT PLEASE SEE THESE LINKS:
www.caring.com/
www.agingcare.com/



 current weight: 252.0 
 
252
250.25
248.5
246.75
245
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
3/20/13 11:06 A

My SparkPage
Send Private Message
Reply

Sorry to hear about the Dialysis.....have had several friends having problems as well, one seems to have more problems with the infusion cath. more than anyone I ever heard of. How are you both handling all this? Are you able to get some time for yourself? Take care of yourself, sounds like you will be in for the long haul. Your right, need that Positive attitude and high spirits to get through this.

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
BIZZYFED's Photo BIZZYFED Posts: 16
3/20/13 7:04 A

My SparkPage
Send Private Message
Reply
Not so good this week...we've been trying to start peritoneal dialysis but had to go back to the Access Center to see why hubby has pain when the try to fill him with fluid. They also worked on his fistula and weren't happy with the results so want him back in two weeks if problems at dialysis. Now we have to go to a specialist for his pd catheter to fix the problem. Trying to stay up but wearing out! Hard to see my hubby struggle with all of this...just have to try to stay positive and take one day at a time. emoticon

MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
3/20/13 12:30 A

My SparkPage
Send Private Message
Reply

How is everyone doing with their periods of emotions? Know for a fact I not handling my periods of moodiness and emotions right now. Can not wait for that sun to show it's self once an for all.

Stay well!

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
2/18/13 10:24 A

My SparkPage
Send Private Message
Reply

Even though DH is doing more for himself at present, after a year I still find myself....frustrated an teary-eyed several times a week. DH is trying hard to get himself back to the point he was before his fall. He refuses to admit what the docs. told him that his fall caused a stroke and had residual with his memory. When I see his frustration with not remembering ... knowing that
if I had been home he may have not fallen, that is the time I tear and need a place alone to cry it out.

emoticon

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
BIZZYFED's Photo BIZZYFED Posts: 16
2/18/13 7:27 A

My SparkPage
Send Private Message
Reply
Hi there-- we haven't met but I just joined this team as a caregiver and saw your post. I go through my crying episodes too...even out in my barn surrounded by my three very loving donkeys to comfort me. :-) Just remember that it's ok to cry...I have found it very therapeutic to cry and feel better after letting my frustrations go. Remember that you are surrounded by your Spark friends and we can find comfort in those that share similar burdens in life. Hope your day goes better!! emoticon

FAWNZIB's Photo FAWNZIB SparkPoints: (10,643)
Fitness Minutes: (6,671)
Posts: 3,491
2/17/13 8:29 P

My SparkPage
Send Private Message
Reply
Very hard month here. I have major crying episodes by myself some days-

If nothing ever changed,there'd be no butterflies


 current weight: 177.0 
 
189
171.75
154.5
137.25
120
SBECKER526's Photo SBECKER526 Posts: 1,510
2/16/13 2:14 P

My SparkPage
Send Private Message
Reply
It is always good to get your hair done. My husband likes to see me looking good. He claims he feels better and more alive.

I am on my way to better health!


 December SparkPoints: 0
 
0
50
100
150
200
BIZZYFED's Photo BIZZYFED Posts: 16
2/15/13 6:23 A

My SparkPage
Send Private Message
Reply
Thank you Michele! Yes...I finally got a haircut and highlight yesterday. I think my last hair treat was last September or October. I think my own neglect is a combination of guilt and just not caring anymore. However, joining a group with people who understand how I feel has sparked new interest in learning to cope with my "new normal." I'll keep in touch. Jana

MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
2/14/13 10:16 P

My SparkPage
Send Private Message
Reply

Welcome to the Team. Hope your DH is doing well and you are also. Are you able to get any "Me Time" in for yourself? As you said caregiving as stressful and one big roller-coaster ride for each of us. That is one reason all care giver support groups recommend time away or free time for ourselves, whether it's coffee with a friend, Hair salon, exercise or a nice warm bath.
Yet, that time allowed does depend on each caregivers situation.

Hope to be seeing you on the Threads an in the Chat-Room when you are free!

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
BIZZYFED's Photo BIZZYFED Posts: 16
2/14/13 3:44 P

My SparkPage
Send Private Message
Reply
Hello -- I'm a caregiver for my husband who is diabetic, has CAD (had five bypasses in April 2010) and is now on dialysis. My degree of caregiving is nothing compared to many but it's enough to carry stress to a degree of neglecting myself. My husband's health problems began in 2006 so I've been on an emotional roller coaster for awhile. I was thrilled to search "peritoneal dialysis" on Spark People and found a new friend who is also caring for her husband who is on dialysis. It was so nice to read blogs that I could relate to and made me feel so much better. She also found this caregiver team and encouraged me to join. So...here I am! Glad to be here and hope to be helpful to someone else too.

MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
1/31/13 8:42 P

My SparkPage
Send Private Message
Reply
Welcome an Thanks for lending your expertise to are membership, glad to have you aboard.
Our members have various experiences with their caregiving and all types of situations that they have had to deal with throughout their caregiving. Amongst the team there is plenty of
support, encouragement, and motivation, so do not hesitate in asking for help or venting now and then as you need to.

Hope to see you when you have the chance!

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
ZENCUBED's Photo ZENCUBED SparkPoints: (2,363)
Fitness Minutes: (936)
Posts: 16
1/31/13 2:01 A

My SparkPage
Send Private Message
Reply
Hello there,

I am new to Spark People and am excited to have just found this team. I am sole caregiver to my 24 year old son who has cerebral palsy and is quadriplegic. Things have been especially challenging since a major anterior-posterior spinal fusion surgery in Feb, 2010. Ryan has been on and off bed rest (due to recurring skin breakdown)...unable to attend the day program he belongs to for any length of time. As entertaining as I can be :-) he misses the activities at "school"and exposure to friends. He only leaves the house for monthly Dr visits. A former Special Education Teacher, I now stay at home to care for him 24/7. While I am so blessed to have him in my life...along with my other 3 children (ages 14 to 28), I realize I have spent the better part of my existence living for everyone but myself...and under high levels of stress. This is the first time I have reached out to virtual strangers for support. Ordinarily I like to just stay upbeat, positive and provide encouragement to others - not revealing to anyone how hard things can be...not thinking about how we have been living in limbo...waiting for Ryan to get better for nearly 3 years.

ReRe, thank you for your recent message. We are not alone....and I am truly grateful. Let's work on taking care of ourselves...filling our own love tanks sufficiently so we have plenty more to share with those around us. Hugs! ~Shana


 current weight: 170.0 
 
187
177.5
168
158.5
149
REREBIGMAMA's Photo REREBIGMAMA Posts: 951
1/28/13 11:25 P

My SparkPage
Send Private Message
Reply
Hi Everyone...

I'm not new, but have been away for a long time. Well, I'm back and giving it another try. Hopefully, this year will be the year I learn to take care of me, as well as my daughter and dad.

I'm caregiver to my daughter, who is in renal failure and to my dad, who is 89 and has dementia. They both live with me. In the past, I have had a difficult time making time for myself. My life is extremely busy, as I also work full time. 3 years ago I moved to PA from So. FL, where I had lived for 31 years, so my son could help me. He has made my life tolerable again and helped to decrease my stress level to where it is now manageable. My daughter is a tremendous help with my dad, also.

Well, just wanted to say "Hi" and let some of you seasoned members know I hadn't fallen off the face of the earth.

ReRe

They call me ReRe.....

The only way you fail.....
Is if you quit!

Life is too short not to be happy and have a good time!!



 current weight: 216.2 
 
240
217.5
195
172.5
150
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
1/28/13 8:15 P

My SparkPage
Send Private Message
Reply

Nice to hear from you an Hope your DH manages to get some relief soon. Treatments are not usually the pleasant way to relax and enjoy what life we have. Positive attitude helps so much to help one through the treatments for cancer. Feel free to stop in anytime, for help, support and encouragement. You can also vent away if you need too, cause you need stress relief as well. Keep us posted on DH when you have the chance.

Michele

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
FAWNZIB's Photo FAWNZIB SparkPoints: (10,643)
Fitness Minutes: (6,671)
Posts: 3,491
1/28/13 11:58 A

My SparkPage
Send Private Message
Reply
My husband,diagnosed with Ewing's sarcoma-- blue cell tumors on fathers day last year. Stage 4 doing well and just did 24 radiation sessions and will be doing more chemo in a few weeks. His tumors are through his spine and under one arm. He certainly is tired of everything but we work to keep him fighting!! I have my cries,but then move on..best to all of you on here.

If nothing ever changed,there'd be no butterflies


 current weight: 177.0 
 
189
171.75
154.5
137.25
120
MICHELE142's Photo MICHELE142 SparkPoints: (187,814)
Fitness Minutes: (177,648)
Posts: 15,183
1/3/13 8:20 P

My SparkPage
Send Private Message
Reply

Anytime, let me know how things turn out.

Michele - Central Ohio


Warriors In Pink~~Administrator
Classy Quitters~~ Administrator
Caregivers Support ~~ Administrator


" Finish each day and be done with it. You have done what you could."
~Ralph Waldo Emerson



 December Minutes: 840
 
0
32.5
65
97.5
130
HAPPYGIRL1033's Photo HAPPYGIRL1033 Posts: 314
1/3/13 7:05 P

My SparkPage
Send Private Message
Reply
these are great suggestions, Michelle. thank you so much. I will definitely be checking them out.

 current weight: 183.6 
 
210
192.5
175
157.5
140
Page: 1 of (5)   1 2 Next Page › Last Page »

Report Innappropriate Post

Other Caregivers Support General Team Discussion Forum Posts

Topics: Last Post:
Asking for prayers 2/22/2016 8:30:11 PM
Seems like it is a long goodbye 2/5/2016 11:32:29 AM
2015.....Let's Chat! 4/12/2016 2:53:44 PM
My life is changed, forever. 1/17/2016 7:56:55 PM
One of those days 3/7/2016 8:41:06 PM



Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x4565x6714673

Review our Community Guidelines


x Lose 10 Pounds by January 18! Sign up with Email Sign up with Facebook
By clicking one of the above buttons, you're indicating that you have read and agree to SparkPeople's Terms & Conditions and Privacy Policy and that you're at least 18 years of age.