Thanks, I will definitely use this to help explain things. For my daughter the "spoons" represent time more than energy, because everything takes a lot longer for her. This works for the whole family of someone who needs care as well, in the sense that we can't just take things for granted and our choices are limited. If we want to go out for dinner, we have to figure out which places are accessible, will there be parking close by, etc. People always want me to serve on boards and be in organizations, but there is only so much time and energy to go around.
Ellen in Siena "Security is mostly a superstition. It does not exist in nature ... life is either a daring adventure or nothing." --Helen Keller
current weight: 180.0
Fitness Minutes: (4,174) Posts: 96 5/2/10 10:23 P
I liked this. MS stole a bunch of my daughter's spoons for good and the physical symptoms come and go so each day is diferent in terms of energy and ablity to walk, get dressed, etc. Emotionally she is on a rollercoster, all over the place. But she does not look sick!
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