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LILYDOG11's Photo LILYDOG11 SparkPoints: (62,993)
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3/2/13 6:59 P

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I have not heard of this condition but have made prayers for this person who suffers from this.

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LINDAKAY228's Photo LINDAKAY228 Posts: 16,259
2/26/13 9:57 A

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I have heard of it and the problems it causes. My thoughts and prayers will be with her.

Linda

Last is just the slowest winner."-C Hunter Boyd







 
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PEPPYPATTI's Photo PEPPYPATTI Posts: 36,537
2/26/13 7:08 A

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No, I have not heard of it but she will be in my thoughts & my prayers! emoticon

Team Leader of the Tennessee Team
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Team Leader of the SP Class of April 13-19, 2014


We are what we repeatedly do. Excellence then, is not a an act, but a habit - Aristotle

Today is going to be a great day. How do I know? Because I'm going to make it so!

Patti - EST


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MSLADYBUG3's Photo MSLADYBUG3 Posts: 1,679
2/25/13 4:20 P

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I am not familiar with it either, but I know a God who able, and the word says that when we pray he hears us......and I know he will answer. Lifting you up in prayer..... emoticon

Life is a succession of lessons which must be lived to be understood.
Ralph Waldo Emerson

STITCH4EVER's Photo STITCH4EVER SparkPoints: (23,246)
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2/25/13 3:22 P

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I FEEL SO BAD FOR ALL YOU ARE GOING THROUGH. I TOO HAVE BEEN HAVING SERIOUS ISSUES FOR WEEKS NOW AND AM SICK TO DEATH OF ALL THE TESTS AND THE POSSIBLE DIAGNOSES THAT TURN OUT TO BE WRONG. DON'T YOU JUST GET TIRED OF IT ALL? I KNOW I SURE DO!

ERIN
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GOOZLEBEAR's Photo GOOZLEBEAR SparkPoints: (159,437)
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2/25/13 1:52 P

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Sending up prayers for this special person. Thanks for sharing. emoticon emoticon

Sandi
My hubby and I have just celebrated our 51th wedding anniversary, can't believe we've been married that long! We have 2 children and 4 grandchildren and live in Tallahassee, Florida.

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LMMIMI's Photo LMMIMI SparkPoints: (77,809)
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2/25/13 1:43 P

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emoticon

Lois - Minnesota

Indian Proverb - When you were born, you cried and the world rejoiced. Live your life in such a manner that when you die the world cries and you rejoice.

The will of God will never take you where the Grace of God will not protect you.

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KATHYJO56's Photo KATHYJO56 SparkPoints: (205,851)
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2/25/13 12:33 P

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I have not heard of this before and it doesn't matter to me whether she is a member of this particular team. emoticon emoticon

KATHYJO56
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GABIBEAR's Photo GABIBEAR SparkPoints: (118,079)
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2/25/13 12:02 P

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I have not heard of this either. I send my prayers to LStarr.
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DBELLE39's Photo DBELLE39 SparkPoints: (174,836)
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2/25/13 11:19 A

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Sending up prayers.

Donna B.

Starting Weight 181
Goal Weight 133

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NPA4LOSS's Photo NPA4LOSS Posts: 33,732
2/25/13 11:00 A

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emoticon & emoticon

Nola

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KRYS210's Photo KRYS210 Posts: 55,859
2/25/13 10:54 A

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emoticon prayers said!

Krys
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1CRAZYDOG's Photo 1CRAZYDOG Posts: 44,681
2/25/13 10:23 A

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Never heard of this. But will remember this woman in mhy prayers. Has to be difficult to deal with.

HUGS

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NOMORESTALLING's Photo NOMORESTALLING Posts: 33,551
2/25/13 9:56 A

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She may not be a member of this particular team but Our LSTARR7 has a very special request. She would like to know if other people on Sparks have a health issue called Chiari Malformation, She was recently Dx with this and is looking for support.


Chiari Malformation

Chiari malformation is a congenital (i.e. present at birth) structural problem at the base of the skull that affects the brain and spinal cord. In fact it is not a malformation of the brain at all. More accurately, the lower portion of the skull, the portion known as the posterior fossa, is too small to accomodate the lower portion of the brain. As a result, a portion of the cerebellum called the tonsils is forced to protrude into the spinal column. This results in compression of the brain stem and spinal cord and interferes with the flow of spinal fluid. It is the compression of the brain stem and spinal cord that is primarily responsible for the symptoms. We have learned that compression that is sufficient to cause symptoms can occur even when the cerebellar tonsils protrude by as little as 1 millimeter.

Symptoms
Headache – This is the most common symptom of Chiari malformation. The headache is often pressure like and usually begins in the back of the head often radiates behind the eyes. Coughing, laughing, bending forward, sneezing or looking up can worsen the headache. Headache may be confused with migraine.
Neck Pain – often pressure like and radiating down the spine and across the shoulders.
Dizziness/vertigo – often worsened by extension of the neck
Vague pains throughout the body
Impaired balance
Clumsiness
Chronic nausea
Foggy thinking, poor memory and concentration
Frequent or urgent urination
Irritable bowel syndrome
Auditory Symptoms – ringing in the ears, decrease in the ability to hear or sensitivity to sounds
Difficulty swallowing
Changes in the voice – This can include hoarseness or the inability to regulate the voice when shouting or singing.
Visual Symptoms – including double vision, sensitivity to light, blind spots.

Types of Chiari Malformation (CM)

Type I involves the extension of the cerebellar tonsils (the lower part of the cerebellum) into the foramen magnum.There are usually no other associated malformations of the brain. This is the only form of Chiari malformation to present in adult life.

Type II involves the extension of both cerebellum and brainstem tissue into the foramen magnum. Type II is always accompanied by a myelomeningocele — a severe form of spina bifida- and therefore is recognized at birth. We do not treat Chiari II malformation.

Type III is the most serious form of CM. It is quite rare and involves the protrusion or herniation of the hind part of the brain through a defect in the skull. This diagnosis is also evident at birth. We do not treat Chiari III malformation.

Some people describe a Chiari 0 malformation. This is simply a Chiari I malformation in which the cerebellar tonsils do not protrude by the standard 5 mm. These are the patients that are frequently misdiagnosed because of the failure of the current diagnostic criteria to accurately reflect the underlying neurological problem. Many of our patients would fall into this category.
Testing and Diagnosis

The diagnostic process begins with a complete medical history and physical examination. These are followed by a complete neurological evaluation that will assess your specific symptoms and neurological functioning. The patient with a Chiari 1 malformation may have an entirely normal examination. In such cases, it becomes more difficult to determine if Chiari is indeed the problem and if surgery is indeed the best solution. In such cases, the judgment of an experienced neurosurgeon becomes very important. When the neurological examination is abnormal, the pattern of abnormal findings can make it very easy to pinpoint the problem to the cervical spinal cord and brain stem.

Patients may have difficulty with coordination, balance, eye movements, sensation and strength. The reflexes may be too active or not active enough. Reflexes that are never present except when the spinal cord is not functioning normally- pathological reflexes- may also be detected.

Magnetic Resonance Imaging (MRI) is best diagnostic tool for detecting Chiari malformation. This test provides the doctor with detailed anatomical information regarding the structures at the base of the brain. The criteria for diagnosing a Chiari malformation however have been very arbitrarily determined. This results in some doctors adhering to rigid standards – 5mm of tonsil herniation- before making the diagnosis of Chiari, even in the face of typical patient symptoms and obvious neurological findings. Hence many patients with Chiari go undiagnosed and untreated for years. We have developed some MRI imaging strategies that demonstrate the critical problem – brain stem compression- more clearly. These MRI techniques allow us to identify some Chiari patients who would otherwise go undiagnosed. Our imaging techniques involve the use of 3-D imaging of the brain and cine imaging – a movie of the brain- that allows us to determine if the brain stem is being compressed by the pulsating arteries that surround it. Examples of this imaging can be found on our web site.
Incidence of Chiari Malformation

The incidence of Chiari 1 malformation is not known because we have yet to fully understand the problem and arrived at a meaningful MRI standard for making the diagnosis If the 5mm standard of tonsil herniation is used, the incidence would seem to be less than 1% of the population. Brain stem compression due to tonsil herniation less than 5 mm – “Chiari 0”- is likely to be very much more common than that. For reasons not yet understood, Chiari malformation is much more common in women than in men. (3:1 women:men)
Treatment

Some people with Chiari malformation have no symptoms and do not require treatment.

Some symptoms of Chiari malformation such as headache and dizziness may be effectively treated by medication. Medication alone, however, will not correct the root cause of the symptoms: the brain stem compression. As a rule, when the Chiari malformation causes symptoms that seriously impair the patients quality of life, it is best to consider surgery.

Surgery for Chiari malformation is basically about creating more room for the brain. Surgery relieves compression of the brain stem and spinal cord and improves circulation of the spinal fluid.

MARION

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