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CZESTES's Photo CZESTES Posts: 316
9/7/14 12:36 A

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Prednisone was given to me for several things and the last time my doctor determined I am allergic to steroids. They no longer give it to me unless absolutely dire necessity. It started off with hot and sweaty, but now it causes a rash and shortness of breath. I am so glad because I gain a massive amount of weight and become extremely lethargic when I am on it. It makes me feel like I have the flu. Aren't those wonderful side effects to have when the FM already creates fatigue and pain?
I understand your feelings. My husband goes with me to quite a few of my appointments. Doctors don't seem to listen to me. I feel like I am living in the 1800's when we were given drugs and brushed off with the label "hysterical woman." Like my husband repeating what I said really makes a difference.

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SVAN13MARTINS's Photo SVAN13MARTINS SparkPoints: (11,084)
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9/2/14 12:34 P

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Good for you for keeping up the fight! Everyday is a struggle anyway, but having a bad doctor who doesn't believe in you must have been incredibly hard. You are so strong!!!! Good luck with the prednisone. I'm sorry but I don't know much about it. Rest and new medication sound like the ticket for you. God bless you!

"God has not given us a spirit of fear, but of power and love and a sound mind." 2 Timothy 1:7


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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 86
8/11/14 5:57 P

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Thanks to everyone for your kind words. It means so much.

I woke up this morning feeling better than I have in a long long time. I guess the prednisone is helping. Yesterday I was so hot & lethargic I ended up going to bed early and I woke up late this morning. I guess I really needed the rest. I ended up going to sleep on the couch with front windows and back door open with screen door so air could flow through the house. We have an overhead fan there so I was finally able to get cooled off enough to sleep. Everyone else was cold but I was finally sleeping like a baby. Now I actually feel like going outside for a walk or maybe even trying out my son's new bike.

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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SEDONACAT's Photo SEDONACAT SparkPoints: (63,980)
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8/10/14 7:02 A

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I can't tell you how sorry I am that you had to go thru all of that with someone who is supposed to be a "healer". When we moved to FL, I lost all of my good doctors, my oncologist, internist, and my great rheumologist. I thought FL would have tons of good ones but I guess because their aging population keeps being replenished, why should they care?

Feel better soon....I hope that you go into a very long remission.
Gentle hug!

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BITTERCAT's Photo BITTERCAT Posts: 1,545
8/10/14 5:59 A

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I'm so sorry for what you are going through. Your doctor sounds awful. AWFUL. I hope and pray that you can find someone better and that maybe you can go back to that rheumy you liked so much. That woman should be ashamed of herself! :(

Jen M.

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O-JOY!O-JOY!'s Photo O-JOY!O-JOY! SparkPoints: (34,540)
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8/10/14 4:19 A

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I feel your pain, Donna, and hope your doctors find a way to make you comfortable enough to function in life. Chin up girl! This team of fighters is with you!


I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 86
8/10/14 12:23 A

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I'm only taking it for one week. This is only the second day and I've been so hot.

We can't really change insurance. This is what my husband's employment offers and it is their own insurance. They have a list of "preferred providers" and it is so hard to get someone local that is on it although sometimes that is a bonus. If there isn't someone local they will fly you and spouse somewhere to see one and cover some of the cost of means, lodging and travel. I had the hardest time though when I was still working there and I wanted to go to the closest city which is a large city with good doctors/specialist and the insurance wanted to send me to Arizona. It would have cost them so much more to fly me and my husband there and pay for meals and air fair and car rental fees etc. I was on the phone several times over a couple weeks before I convinced them to just fly me on a very short flight to the next city over so I could get back to work without losing too much time. The Rheumatologist I saw there is very very good. He is the one who diagnosed me with fibromyalgia and the reason I was able to get disability. I am hoping to be able to see him again this time.

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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JAMER123's Photo JAMER123 SparkPoints: (225,697)
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8/9/14 11:36 P

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Yes, prednisone does cause you to feel hot but not usually sweat. I have profuse sweating and it's probably from the FM as one of the symptoms. I am not on prednisone and not sure I would take it either unless necessary. Hoping you aren't on it long term. There are many different thoughts about it. Glad you finally took you hubby with you. You got action. Too bad it was so long for you. One thing I was going to as is if you can change health insurances. We are looking at a different one when open enrollment comes up. It is more portable as we travel a lot! It is one that doesn't require referrals so I can go anywhere I want. Just a thought. Good luck with your Dr. and a change in attitude by her!!

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 86
8/9/14 11:00 P

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I got my doctor's attention. I swear I have the lousiest doctor for someone with fibromyalgia. I had another doctor that was great and something happened and he suddenly left to work in another area. He is a fantastic doctor who actually cares. Anyway, they assigned another doctor for me and I've never liked her or felt she believed me. Right away she made it clear she didn't approve of the medications he had me on or how he had been treating me and she started changing everything. Anyway, basically she sneakily took away all my pain medication and left me with nothing but over the counter meds and motrin and I'm on cymbalta and currently getting off of Lyrica. I've been in so much pain and getting worse and worse and more and more fatigued, depressed and anti-social. I have been trying to find another doctor but this is a small city and there are not any specialist here that can help. I'd have to travel to the next city and have before. I just don't have the money to keep flying out.

Anyway, I finally got approved for disability and medicaid about a month ago and she seemed put off by that. I had to really push her to do some labs because I've been feeling so bad lately. They came back showing some issues with my liver but she didn't order labs to look into my increasing pain! So great, now I have liver problems... which she just assumes is fatty liver because I'm over weight. So I really started trying harder to find someone else for a doctor only to hear they don't take my insurance and especially wont take medicaid. They did give me some names and numbers to look into though and I ended up hitting a wall when they required a referral from my doctor. So I made an appointment with her and took my husband with me. This is when they realized that *maybe* my heart rate and blood pressure were up because I was in pain. Duh! It wasn't until I broke down and started crying and couldn't even answer her questions because I couldn't think that she really started to soften a little. She ordered some more labs to check for inflammation. My Sed rate was really high and another lab which I can't remember at the moment was also high. She is still waiting for the ANA but she called me right away to have me start on a week of prednisone. She was saying she may want to send me to the next city to see a Rheumy and a pain doctor. So even if I haven't found another doctor at least I finally got this one's attention. It only took two years! Too bad she didn't decide to care sooner so I wouldn't have had to suffer so long.

Has anyone else taken Prednisone before? I've only taken it for two days now and I'm wondering if that is causing me to feel so hot. I'm sweating so much I keep having to change my clothes.

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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