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9/1/14 10:11 P

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Every time I try to get with an exercise routine I go into Chronic Fatigue. I can't take any meds for pain...major side effects. I was in a pain clinic and they put me on the Fentnyl patch. I kept telling the MD that I was having problems with it, but, he wouldn't take me off. One night I woke up to a total body rash with the itching. I took Benadryl and cut my dose of the Fentnyl in half...went into bad withdrawals. I called the MD, but, no one was there to help me...they said only MY MD could adjust the med. When I finally got in to see the MD, he titrated me off the patch and put me on Lyrica. Well, that put 60 lbs on me and also interfered with my Macular Degeneration...causing bleeding in my eyes. I called to get in to see the MD x 3 and was refused...they said my appt was 2 weeks away. I told them that this was a medication issue, but, no go. I did turn the MD into the powers that be telling them about the bad care I was receiving. I finally got in to see him and was titrated off the Lyrica.

Exercising, even very mild type, causing me a lot of pain and Chronic Fatigue. I'm not sure how I'm going to lose the weight without the ability to exercise. Very frustrating.

Take care of your body, it’s the only place you have to live.


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
8/11/14 5:00 P

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Oh, how I love improving. I work with an awesome doctor of nutrition team. These doctors are certified in nutrition and other health support issues. They have guided me through all kinds of stumbling blocks in my information and overcoming bad habits. They have taught me many ‘how to get me better’ steps. The best part is the feel of slightly more energy as time goes by. They dispense above average doses of vitamins, minerals, amino acids, and enzymes found in clean pharmaceutical grade value of supplements; thus fewer nasty preservatives or fillers.

These doctors have me using the ‘hormones in balance’ charts to interpret lab results in preliminary fact sessions to make big changes. We actually lower my daily pain; increase my nightly sleep quality and time; and this allows me to drop pounds sensibly. They recommended to me bioidentical hormones and digestive supplements to carry the burdens for me until my energy is much higher again; like progesterone skin creams; testosterone tables; I use no prednisone or synthetic cortisol, just adrenal extracts in capsules from bovine (cow) sources; and thyroid T3 thyroid support from porcine (pig) sources. My estrogen adapts around these.

The plan is to avoid creating more toxins than my body can flush in a 24 hour period. I smile more laugh more. I avoid three main things: standard even organic foods of heavy liver work and keep up my journaling help me to find them; I reject late night distractions that may keep me up past 11 PM (as per circadian rhythm healthy patterns); and I do without synthetic medications and things with specific fillers often the ones high in citric acid and/or sulfur content and preservatives.

My changes remove stinking thinking bitterness; and we adapt my diet to what does make me better. So I take out the crap, shrink my lap and dream of recharging my adrenal fatigue in a snap. All of these habits I have changed help me to avoid the big toxin building, hidden swelling and pain keeping trap.

Read this book which is required reading by my doctor. It is good for persons with Post Traumatic Stress Disorder and you and me; by Dr James Wilson entitled:
Adrenal Fatigue the Stress Syndrome of the 21st century.


The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
SEDONACAT's Photo SEDONACAT SparkPoints: (66,390)
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8/7/14 5:53 P

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Thank you all for your good tips and responses. We are all in this together.

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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 93
8/7/14 12:47 P

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I hope it helps you. I just went to my doctor again because my pain has been so bad lately. She is sending me to physical therapy. I hope they don't hurt me.

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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8/7/14 9:21 A

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OK team, I' m doing stretching this week -- using the various vids, articles and demos for different ideas each day. The point is not to incur injury in this 63-year-old, mostly sedentary, fibro-ized body. Want to start my walking program again, but without the hip issues. Slso want to start strength training again, but without joint injury. Small steps. emoticon

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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8/3/14 10:00 A

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Thanks for your research and sharing, Donna. Great info.
I have to start over with a gentle exercise program because I have a sore hip, shoulder and knee from my current efforts. And I didn't do much to earn these issues. I guess my body had atrophied.
I'll start this time with gentle stretching, then add the Qi Gong video on SparkPeople. Then, very short walks. (My longer, faster walk earned me the sore hip.) I'll do strength training without my 2.5 lb. hand weights (caused shoulder issue), be very careful with squats (knee injury) and I'd like to be more consistent with meditation.
I guess this covers it until I build up a little more tolerance for more vigorous exercise.


I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 93
8/2/14 4:51 P

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I was just doing some reading about exercise that helps fibro. It said to stay light and not try to push too hard. I was reading several different websites so I don't have the links to share but basically I just googled "Exercises to help Fibromyalgia pain". It said to only use light weights for strength training and to try to not push yourself to the point where you will have pain which sets off a cycle of pain that makes exercise too difficult to keep up. It says with cardio it is more important to go longer at an easy pace than to push yourself to improve and set off a flare up. I have a tendency to push myself to beat my previous times/speeds etc. Problem is I usually end up unable to get out of bed the next day or sometimes longer. They recommended water aerobics in a warm pool and yoga more than strength training. There isn't a place here where I live that has a warm pool but I did hear that a certain pool is the warmest so I'll look into that one. I have the wii fit and I used to use that a lot but my kids lost the disks for it. There is a new wii U thing now so a new wii fit too. I looked on youtube and found videos for the "wii U fit plus" and it really doesn't look much different than before except now the wii U has a handheld console. The graphics on the main screens look different and more childish but the main exercise pages are exactly the same.

Anyway, my 17 year old son pointed out that since the new wii thing is out the older version will be cheap now so my husband went down to the Game Stop in the mall and got a replacement disc for the original wii fit plus for just a few bucks! They also have the old wii consoles there for really cheap too. It really is great for the yoga, stepping exercises and strength training exercises. If anyone is interested in that I would definitely look into getting a used one especially since the new version isn't really different for the wii fit part. We also have the xbox 360 which has a fitness thing too but I don't like it as much. My livingroom isn't big enough and it has a bar that "sees you" so it can project your body on the screen. It really is neat and even has ti chi but it always says I messed up no matter how hard I try because it picks up the furniture too. That one would be great for anyone that has the space.

Anyway, now that I have the disk I'll let you know later how I do after use the wii fit again for a while. Right now I'm having some horrible time with asthma and IBS emoticon

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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7/24/14 10:09 P

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Yep. I frequently get sore muscles and joints from relatively light strength training. I wonder when I'll be conditioned well-enough not to have these issues, or if it's just always going to be this way. Others' input?

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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SVAN13MARTINS's Photo SVAN13MARTINS SparkPoints: (11,507)
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7/23/14 2:45 A

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I posted before about cardio giving me energy. It does, greatly. However, I have so much trouble doing the cardio because I'm sore from the strength training. Anyone have this issue?

"God has not given us a spirit of fear, but of power and love and a sound mind." 2 Timothy 1:7


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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 93
7/20/14 8:00 A

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Yes it is. Very lonely. I'm glad you have let someone else know. I hope you end up finding a good doctor. It isn't always easy as so many of them don't understand Fibromyalgia at all. I also have RLS and my doctor is clueless about both.

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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SEDONACAT's Photo SEDONACAT SparkPoints: (66,390)
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7/20/14 6:23 A

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DonnaGreenJean, I actually don't have anyone here "in house" as DH is at sea but I shared with a neighbor who has checked on me. I've never had any prob with the flu vaccines either so this is what's so strange. My neighbor is also a nurse. We nurses are the worst patients as we try to take care of everything ourselves. If I'm not better by tomorrow I will see my doctor. The big problem is since we moved to FL 2 yrs ago I have not found a good fam doc and haven't seen a rheumatologist since I left VA.

Thank you for your concern. Fibromyalgia is a lonely disease, isn't it?
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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 93
7/19/14 11:02 P

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Sedonacat, it really sounds like you should talk to your doctor about that. I've never had a pneumonia shot but I am pretty sure I've read someone else say they had a flare up after one. I've only had flu shots and haven't had any fibro pain from them. Just the usual sore/stiff arm where they gave it.

I'm worried about you though. Is there someone at home with you in case you fell and hurt yourself and needed medical help?

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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7/19/14 9:51 A

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I try to do it (cardo) in the morning but right now I am so accident -prone that in the afternoon it is hazardous to do much of anything. I was doing stretching when I fell back over the nightstand. I am lucky I didn't break my back, seriously, since I have osteopenia.

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SVAN13MARTINS's Photo SVAN13MARTINS SparkPoints: (11,507)
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7/19/14 9:47 A

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I find that cardio gives me energy for the rest of the day. Something about filling the lungs with that much oxygen or oxygen in the bloodstream... I hate cardio but love the energy!

"God has not given us a spirit of fear, but of power and love and a sound mind." 2 Timothy 1:7


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7/19/14 9:44 A

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OK has anyone else had a severe flare post a vaccine? I got a pneumonia one a mo ago and besides having increased pain, the fatigue that hits every afternoon for HOURS has been almost debilitating. I have crashed my head into a counter, walked into walls/doors and this week fell backwards over the nightstand so I have huge bruises over my spine and left kidney. I actually have a hematoma over it. I am MISERABLE. Any and all suggestions would be greatly appreciated. Of course, my DH is at sea until Sept.

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7/16/14 11:38 A

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Ha! It turned cool yesterday and I wanted to take a shawl to our "under the stars" musical theatre. I had to empty three shelves in three areas of the house to track it down. Plus, there's the cabinet I emptied looking for the black strap molasses.
Guess what I get to do today, since I was too used up to put things away yesterday?
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I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
7/15/14 12:04 P

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Last week my DH asked me if I remembered that he had been looking for somebody to loan him a half-inch drill bit. I told him I did remember that. Then he asked me if I remembered what he was going to use it for. Well, to this day neither of us can remember what the heck he was going to do (or did!!!) with it. Ya just gotta laugh!

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Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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7/15/14 10:10 A

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Yeah,, I get it. We all get it.
Seems like I'm looking for something I can't remember where I put every day. Ugh.
Need to try walking more. It could send oxygen to this forgetful brain.
emoticon

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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CAROLIAN's Photo CAROLIAN SparkPoints: (107,622)
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7/15/14 4:45 A

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I have been so fatigued lately I was all right till I had to take antibiotics for an abscess which spread right along my bottom gum since then I feel as though i am spaced out I keep forgetting thing am clumsy the dr said it would take a couple of month for things to return to normal whatever that may be as the a/b muck up your system
I push myself to do things but I have no concentration and once I was queen of multi tasking cant even remember if I went to the loo or whether I was watering the greenhouse.
I am going through a patch of putting things away and not being able to find them or searching for something usually my wallet and it is in my bag all the time
I went to bank one day and tried to cash money with my bus pass and use my bank card instead of bus pass on the bus.
Luckily they know I have a problem with lupus/fibro and they make allowances You just have to laugh at yourself or else you would cry Have a good Weejk xxx


My name is Carol I live in UK Leader of DISABLED/FIBROMYALGIA & MORE
Northern English Lassess
Northwest England
Co Leader Fibro Friends
Fighting Fibromyalgia
FMS support


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7/7/14 10:43 A

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To add friends on SoarkPeople, I believe you first need to create your SparkPage.

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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BUSYMOMMY630 SparkPoints: (735)
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7/6/14 10:36 P

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I would like to add you as a friend but I'm not sure how..... LOL. Any insight? Thanks!

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7/6/14 10:35 P

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Hi. They give me 50000 mg of vitamin d every so often. It's been tough. Haven't tried b 12 but interested in exploring.

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7/6/14 12:58 P

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Yes, I so get that. Folks think I'm a goofball sometimes. Oh well, the real me, buried under the fibro fog and fatigue, is a bright and useful person. So I just keep going forward in spite of some of my sillier faux pas.

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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SEDONACAT's Photo SEDONACAT SparkPoints: (66,390)
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7/6/14 7:27 A

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I had a Pneumonia vaccine almost 3 weeks ago which threw me into a major flare. The pain was incredible for several days and I couldn't sleep. That's eased up but the overwhelming fatigue/malaise that I get EVERY afternoon by 1 PM is awful. I am so foggy that I've walked into walls. This has got to end!!!!!!!
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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 93
7/5/14 3:54 P

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I forgot to mention the fatigue but that is where I was going when talking about listening to music or watching funny videos. Some people say to take whatever herbs or vitamins but I haven't found much that really seemed to make a difference other than Vit D and iron if low but making yourself comfortable and improving your mood helps carry you through it.

Has your doctor done any lab work recently? When I was feeling really bad they found I was very low on vitamin D. This time they found I'm low on Vit B 12. Sometimes I get boarder-line anemic and fixing those issues makes a huge difference in how I feel. This is the first time I've been low on Vit B12 so I have only been taking the supplements for 2 days. Hopefully I'll start feeling better soon.

Donna Jean

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Edited by: DONNAGREENJEAN at: 7/5/2014 (15:56)
Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 93
7/5/14 3:45 P

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I know exactly how you are feeling right now. Exactly. I know there isn't really a way to avoid it but I take Motrin after exercising (or before) to try to offset the "payback effect" from fibromyalgia.

My doctor is clueless about fibromyalgia and even though I've told her I can't exercise every day because this happens she just told me again that she wants me to exercise (cardio) 30 minutes every day. She doesn't understand about the paypack. I went walking yesterday slowly (about a 30 minute mile) and I could barely get out of bed this morning to get to the bathroom. I take the motrin and use aspercream for painful spots. That is the only topical thing I've found that helps. I also make myself get up and out of bed. It hurts but just getting out of bed and moving around really does help. I am still in my pajama's but I'm in the living room with my coffee listening to *happy* music (no my-wife-left-me-and-my-mama-shot-my-papa-c
ountry). There are so many things you can do that help lift your spirits. It may sound dumb but if you go onto youtube and look for cute animal videos like the cats missing their landings or even babies laughing until they can't breath at bubbles or whatever.... those things do make you feel better. Oh and if it is sunny go lay out in the sun. The heat is amazing for the pain.

I like to crochet and I love to read but when I'm hurting I just can't focus on it so I just surf the internet to keep my mind on something I'm interested in. I can't crochet but I can look at patterns. I can look for free ebooks online that I might be interested in reading later. I can chat with a friend. Speaking of friends, feel free to add me as I can use some myself. It really helps to have friends that really do know what it is like to live with fibromyalgia.

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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7/4/14 12:19 P

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I'm having a rough time with the fatigue. I did some of the exercises (mainly strength training) on here and I felt great. 2 days later my muscles are in pain and extending past the exercised area and my fatigue is up and and my mood is down. Any recommendations?

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6/22/14 10:48 A

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Great job on the 19 minutes!
I like your motivational thought process of thinking of those who suffered more than we fibro folks do, and therefore, we can do it!
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Thanks,
Joyce

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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DONNAGREENJEAN's Photo DONNAGREENJEAN Posts: 93
6/22/14 2:52 A

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I always have this problem too and in the winters it is way worst (I live in Alaska). Now that summer is here it has been rainy and windy.... lots of overcast days and I think it has something to do with the pressure. I always feel bad on those days. Anyway, I make these little goals in my head and then I think about people who have suffered more than me like the Jews during the holocaust or African American slaves. That usually helps me get moving.

I've had the hardest time losing weight. I always have pain when I exercise and since it has been raining so much lately I can't really go for a walk. I do love to read though and I have a stationary bike. I have been reading on my stationary bike and just going at a very casual pace and trying to gradually increase the time spent doing that. This morning I made it to 19 minutes and that is a huge record for me. Now I am so excited to make it to 20 minutes and that excitement is what I needed to feel better and to help me push myself harder.

Donna Jean - fibro fighter

"Come what may, all bad fortune is to be conquered by endurance."

-Virgil


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6/20/14 8:48 A

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You are so right. Keep moving. Small steps. Forward.
Joyce

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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NEWVINE's Photo NEWVINE SparkPoints: (104,046)
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6/12/14 10:46 A

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I find sunny days are better so on those days I add 5 min. to exercise. Today is dark and rainy and I am tired but did my exercises and will rest before I go to work tonight. We have to keep moving no matter how little we do. emoticon emoticon

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6/12/14 10:10 A

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Thanks for responses and keep them coming, please!
We can do this.

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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JAMER123's Photo JAMER123 SparkPoints: (237,140)
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6/11/14 11:18 P

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I agree that the less one does, the less you not only feel like doing but don't have the strength to do. I have been trying to put it a little by walking a little farther every week. The last 2 days I have been paying for it too. Tonight it is very difficult to walk with the pain in both feet. So one learn where the line is and what one needs to do when it is reached. Stay as active as possible but take the breaks your body is telling you to take.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

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AMARANTH13's Photo AMARANTH13 Posts: 97
6/11/14 1:11 P

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I was lucky enough to find a job which doesn't mind that I'm using a wheelchair, even if I could walk for 5 or 10 mins it would exhaust me immediately. THe wheelchair lets me move around without using that much energy, and so I can be up for 5 hours in a row, 4 of which for work, then I nap in my cubicle for an hour, then another 5 or so hours I can sit up. I do some simple stretching and very light exercise (walking to the mailbox is exhausting enough) right before I go to bed for the night, and if I don't overdo it I can keep the same schedule the next day. I've been very lucky I could set it up this way because I have to support my husband who has more health problems than I do. What I find helps if I get really fibro foggy and tired at work is taurine, I don't use the energy drinks but when I found htey help me I got just natural taurine powder to add to my water. It gives me a bit of tummy trouble sometimes but the mental energy is worth it for me. I only use it when I'm more exhausted than normal though, I don't want to get used to it. So both assisting devices like the wheelchair, using taurine, and taking an hour nap during my lunch hour is how I fight the fibro fatigue.

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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 541
6/11/14 12:54 P

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Every time I would complain to my mom about being tired and having no energy to do anything, my mother (who is now 94 years old) would tell me "the less you do, the less you want to do." That always ticked me off a little, but now I'm beginning to think she was right. (Isn't that the way it goes with our moms?) Anyway, when I started exercising -- very slowly at first -- and nothing too strenuous -- I did start to have more energy. I might have been exhausted right after the activity, but as I continued to exercise, day by day I started to feel a little stronger. It doesn't take much, just a short walk and some gentle stretching can help get you going. Like the commercial says, "A body in motion stays in motion." Just don't overdo. emoticon emoticon

Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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SASSYTHING52's Photo SASSYTHING52 Posts: 11,096
6/11/14 11:35 A

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i know what you mean plus my thyroid is like a jumping jack

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O-JOY!O-JOY!'s Photo O-JOY!O-JOY! SparkPoints: (35,634)
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6/11/14 10:50 A

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Hello Fibro Friends,
The hardest thing for me on my quest for improved health, which includes losing 10% of my weight! is finding some "get up and go."

It's like something is weighing me down in my chair, recliner, etc. Even when I'm making myself do the necessary household chores, I typically do no more than that.

Yet I know aerobic and muscle-building exercises are so very important.

HELP! Can you share any tips to fight fibro fatigue from holding us back?

Thanks, Joyce
emoticon

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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