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MSMASLIN's Photo MSMASLIN SparkPoints: (4,605)
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12/31/13 11:16 A

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That poem just spoke for me. Thank you.

There will be an answer, let it be.


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GRAYLADY13's Photo GRAYLADY13 SparkPoints: (8,612)
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12/7/13 11:43 A

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Was it this one?



Hell Fire's Rain... A Fibromyalgia Poem By Debra V.
LearnFmNow
Saturday, September 12, 2009 at 11:11 AM
Hell Fire's Rain

Mornings of stiffness filled such with pain,

my soul slowly draining in hell fire's rain.

I'm alone with this coward that won't set me free;

fibromyalgia just won't let me be.

Such an unfitting term to picture this beast;

Wrapping me tightly in hell fire's feast.

Hours of sleep spent only in vain, he beats at my body inflicting more pain.

Invisible silence, the most evil trick;

no evidence to prove that I am so sick.

Twisting my muscles he drains me of life,

No energy left to be mother or wife.

Trudging through motions of everyday tasks,

No one can believe me, and no one will ask.

Sympathy not a desire of mine,

If they ask I shall say that "Today I am fine"

No need to mention what leaves them confused;

So I walk alone in hell fire's shoes.

Unrelenting miseries don't leave for long, My life is the lyrics of hell fire's song.

I feel like the servant of everyone's call,

I believe that my body has given its all.

Yet I cannot stop and lie down in my bed,

I suppose I would wither when joy is all dead.

Explanations bring stares blank and so cold,

They refuse to believe what they are told.

I do not appear to have some disease,

I should be" Able to do what I please".

Oh sweet disbelief reveals their mistrust,

As I continue to do all that I must.

If they swirled for a moment into my body of pain,

They could feel all the embers of hell fire's rain.

They would awaken to an invisible monsterous flu;

feel a body that's stiffened and refuses to move.

They could feel what it's like to be so dismissed,

sitting alone in the silence of hell's fire's mist.

They could tell everyone how sick that they feel;

They would know how the monster hides as it steals.

He burns, he twists, he is tingling and numb;

he is sharp, he is dull, he is hell fire's sun.

With medical jargon they will never explain what it is to live in hell fire's rain.

You would call me crazy if I said "I'm in pain"...... I could never explain hell fire's rain.

by Debra Ann Van Ness

a fibromyalgia patient






Happiness grows inside me.


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ABERLAINE's Photo ABERLAINE Posts: 6,475
10/27/13 9:51 A

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Hi, I recently received this message and have looked in several places trying to find the poem. But no luck.

If you read this poem or posted it to our forum, would you tell us where to find it? Thanks much.

Nancy

"Hello!
I have had chronic fatigue and fibromyalgia for a few years now and when I signed on to the site I found a beautiful poem that helped me through some of it.

It was about 3 months ago on the fibromyalgia group. Could you tell me where it is?

Thanks if you have the time."

Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
Leader: Buffalo Bills
-----------------
Dream it. Do it.


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