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Fighting Fibromyalgia

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TOPIC:   What Natural Means do you use to fight fibro? 


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MARGIE100%PURE
MARGIE100%PURE's Photo Posts: 1,500
12/8/13 4:15 P

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The Top Ten Nutrients FOR TIRED PEOPLE
recommended by doctors who treat tired fatigued and immune weakened people.
THIS HAS BEEN CONSIDERED THE MOST ADVANCED FIBROMYALGIA THERAPIES POSSIBLE
This list is suggested by The Doctors of the Hunter Hopkins Protocol
see the web site for more successful detail
http://www.cfstreatmentguide.com/hunter-hopkins-treatment-protocol.html

How many of these additional puzzle pieces that lead to more comfort in a tired achy body do you take? Do you take all 10 of these with dosage use supervised by a doctor and supported with decisions based on laboratory testing?
Do you practice the Stepwise Approach It is nutritional

1] A multi vitamin with lots of B vitamin types and roughly dosed at about 1 to 1 and a half a gram of vitamin C. (More vitamin C is used when the laboratory results indicate a huge need for so much more vitamin C as an independent supplement for doctor supervised higher amounts.)

2] A sometime shot of vitamin B12 by the doctor said to improve daily energy up to 10 percent per shot.

3] A vitamin D supplement with up to 2,000 IUs per day it does remove some of the morning stiffness and pain through the day.

4] An assured amount of calcium opposite side of the clock from and caffeine or from thyroid medications of about 1-1.5 grams per day [1,000 to 1,500mgs] along with a daily supplement of magnesium of about half the calcium. The magnesium is point 5grams-point 75 grams [500 to750 mgs per day; but maybe not for kidney troubled people.

5] A modern supplement D-ribose is called on to strengthen effective ATP, the body function by which natural energy is generated. All tired people want better energy! Some doctors dose out a high level of 5 grams 3xs per day then a decline to maintain the support at a lower dose of only 2xs per day. Wow the infection fighting energy sure does need some power to remove an infection pest. This stream lined sugar works great.

6] A new one on me is supplementing with NADH, also an ATP support for more energy. This awesome one is known for brain fog clearing and proven effective in modern cognitive testing is studies of tired people. This one is a long range tool because 3-6 months of consuming this supplement to see the sharper thinking responses.

7] A regular dosage of Acetyl-carnitine amino acid. This is found in protein foods but a supplemented additional amount can promote cognitive skills used beside NADH for energy and thinking improvement. This is one of the reasons that the urban legend of eating fish a day before a big test is circulated around colleges.

8] All the scientifically proven comfort begins with hormone balancing by you and your doctor using a missing link when stress and lack of sleep are habits DHEA will always run short. The decline of the body making less DHEA is a sign of natural and stress force fast types of aging. This hormone DHEA is a precursor to hormone starter basics by which the others are made. Only 25mg-50 mg for women and 50-100mg per day for men seriously prepares needed support so the body can go on to do other factory making of the cascade of other useful hormones for more comfort for a tired person.

9] A supplement of L-Lysine amino acid can discourage the awful eruptions of canker bumps on the mouth. Day supplementing of 1-2 grams per day above the regular sources in food helps suppress the dormant viral expression when immune weakness hits hard.

10] A nice 3-4 full grams of fish oil per day will help treat pain and to replace what the usual modern diet is missing especially when cholesterol needs adjusting as is a common condition in a nutritional support.




The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;


GRAYLADY13
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12/7/13 11:57 A

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I had some acupuncture done several years ago and it truly helped.

Happiness grows inside me.


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JEANINNEWCASTLE
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12/2/13 11:53 A

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WIANGEL, does this sort of acupuncture have a specific name? I'm just wondering how I find someone who can do that.


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WIANGEL
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12/2/13 9:59 A

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I've now been using acupuncture for my fibromyalgia and it is working wonders. The practitioner is medically licensed doctor from China that specializes in FMS. Not only do the treatments help with current pain but he is using electrical signals to help rewire my brain so, when I do get hurt or overdo it, my body is able to repair itself in a fraction of the time.

It is truly wonderful!

My FitBit page: www.fitbit.com/user/25TMLP

"When the past calls, let it go to voicemail, believe me, it has nothing new to say."

Original Starting Weight: 208lbs.


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SALESSE
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11/6/13 12:06 A

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Hi all

Did any of you try to do some Tapping for pain

When i first saw that about 2 ear ago i try it and the next day i had no pain, but i thought it was crazy and did not do it again until august this year . i noticed on Ytube there was many people doing it , so i said to myself i will try it again , and it really work, the pain went away now i do tapping every day with Brad Yates

Just go to Brad Yates tapping and there is many others but he is my favorite and the people just love him
It really work

He is also on facebook
Would lose to know if you try it

For pain i use to take 200 Codine contin , that is very strong med. and also i had to rub at different place and i always had pain.
hope you have good luck like i did
i was in pain for 20 yrs fibromyalgia































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SANVEAN83
SANVEAN83's Photo Posts: 124
10/31/13 10:27 A

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I've been taking an arthritis water class. I really enjoy it. At first I felt a little out of place, being 30 years old with a class full of elderly women, but I became fast friends with some of them & look forward to our chats. I even met another young girl in the class who has fibro, we now take the class together & have lunch every week. =) Which always helps for any person who ends up feeling isolated from their pain. Just getting in the warm water makes me feel a little better. I've also tried the stationary bike, while it hurts my left hip a bit, it's still pretty low impact & I look forward to doing it. So any exercise that I look forward to doing, I'll do! My rhematologist says that it's important to just 'keep moving'



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JENNIFER.IRVIN
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10/30/13 5:36 P

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Hi! I take epsom salt baths (for magnesium) with eucalyptus and lavender essential oils (soothing to muscles) I drink Zija (mlm nutritional drink message me if interested), I have reduced gluten to the occasional fresh milled (I do myself) organic wheat (once a month or so) Only intake raw or fermented dairy, Take Neurosed II (you can buy from nutrivine.com) and eat all natural and organic foods. I also stopped using chemical household cleaners and make my own. I am now medication free and managing just fine yay!!!.. I have a blog HomemakerGoneNatural.com if you wanna check out recipes and what not.


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SWIMMINGLAB
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10/22/13 8:42 A

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Hi,
I have had Fibro for 23 years now. I always recommend to people to get up and walk if you can and most important walk in a pool and swim. If you can get into an arthritis pool. (one that is very warm) This has helped me tremendously.



AANGELBAMA
AANGELBAMA's Photo Posts: 1
10/20/13 9:29 P

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Hi, just read your post and would like some info on where to find this "Two Old Goats" to use for fibro & arthritis. Thank you & God Bless!



PICKIE98
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10/7/13 3:53 P

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I use tart cherry capsules twice daily,,it also helps my arthritis,,
for overall pain, I use Minagin, a Native American salve that I apply two to three times a day everywhere, and it takes the pain away for hours.

SIX YEARS SPARKING!!

Lost 66 pounds!



 
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TIGGY6209
TIGGY6209's Photo Posts: 523
9/24/13 3:40 P

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Hi,

I use Biofreeze, but never really had much luck with arnica gel or any of the other OTC creams and gels. I think I tried them all. My pain doctor recently gave my an RX for a compound. It includes Keta/Baclo/Cyclo/Lidocaine and one other thing I know she sometimes tells the pharmacy to put in is Gabapentin. The company that makes it is called Brown's Compounding Center. The doctor gave me their info and told me to call and get registered with them and she would fax them an RX. They send you the first RX which is 60grams free. After that depending on how much you order it could be $60, which I think is the cost for 60grams. It does help, but you have to use it sparingly because it's expensive. 1-2 grams does cover about a square foot of your body and you have to rub it in good for a couple minutes. It lasts about 3-4 hours controlling the pain. Even if it's too expensive, it's worth getting the free trial for when nothing else helps.

A couple years ago I did get a compound from a compounding pharmacy in Maryland and it didn't help at all. This compound from Brown's actually has some of the meds in it that I take orally.

Karen



DECLARE74
DECLARE74's Photo Posts: 1,005
9/23/13 12:59 A

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Hi all I am using a couple of different "natural" things to assist me with my Fibro/chronic fatigue

I take calcium/magnesium tablets (helps with many things), spirulina blue (not standard spirulina - which has really helped with energy and immunity), iodine (improves thyroid function and has added bonus I don't sit here grey and freezing anymore) and 5htp to help me sleep/ balance mood - on top of that I try to keep each day as balanced as I can - exercise the same amount, get up and go to bed at same time etc

I also use a vibration machine some find this great others reckon it has made them worse - I love mine and wouldn't give it up :-)

at the start of this year I was on 27 prescription meds a day - I'm now down to 6 and the natural stuff and feel much better for it :-)

I've gone from needing a wheelchair to walking every day and yes I still have the bad days but they are less often and not as bad

Declare's 2014 Goals

110kgs (wedding weight)
97kgs (weight I met my hubby)
92kgs (lowest ever adult weight)
85kgs(original goal weight)
78kgs (healthy BMI and new goal)

NEW THINGS TO TRY 2014
Kayaking
Horse Riding
Going UP Mt Maunganui
5km Run


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PICKIE98
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9/1/13 7:14 A

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I try to stretch ,, maybe one arm towards my opposite shoulder.. It helps with stiffness.

SIX YEARS SPARKING!!

Lost 66 pounds!



 
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GABIRUSZCZAK
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8/14/13 1:40 P

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a long soak in a warm bathtub at the end of a long day... emoticon

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
FACEBOOK: https://facebook.com/gabriela.ruszczak
BLOG: serendipitysditchdigger.blogs
pot.com/


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MARGIE100%PURE
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8/7/13 12:21 P

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I avoid stimulants (coffee, caffeine filled camellia plant teas like black or green, Guarana), sugars (I have not eaten any cane sugar in 5 years or artificial sweeteners); and fermented things (especially ones of smoke processing like bar-b-que grilling or in the food drying steps, any kind of vinegar or food soaking in vinegar, stale rancid roasted nut and the oils like cocoa, cocoa nut almond or walnut; and I never fry in oil, cold servings are best for me), dehydrated things buried in citric acid. These foods create a Big ouch every time. They tend to make my liver function go slow and require cycling many times before being placed wherever. The liver does cycle often not just one pass.

So in summary I avoid stimulants, gluten, distillates, alcohol, citric acid, sulfur only served in extremely limited amounts in whole foods only 6 parts per million per day; see Housemouse.com for more details about sulfur effects cause pains. The guidelines are part of my food; medicine; health and beauty; and household cleaning products.

I get exercise very day mostly yoga, stretching, housekeeping and some physical therapy limiting my exercise attempts to avoid stressing to the point of over spent energy to hit high pain levels. This pain is from poor oxygen processing and lactic acid removal in my muscles; it also acts as a slow liver effect. I use only clean pharmaceutical grade supplements bio-identical hormones as needed (the doses change as I heal) -vitamins-minerals-enzymes-and amino acids obtained by my Doctor of Nutrition to get around additive problems that contain any of my no-nos and preservatives I have proven to my doctors that I need to do without. My only written prescription medicine is compounded to avoid trouble-IT WORKS!

Adrenal fatigue is one of my compounding complications because doctors failed to diagnose my chronic flaws early enough to protect my adrenal glands. The great ADR- mentioned by Jeaninnewcastle-has licorice Root and other things I have challenge diet eliminated under doctor supervision to use the similar product also by Pure Encapsulated Brand. I like their other goods, too.

My food choices had to become limited, to help my adrenal glands repair for better deep sleep recharging, to the easier to digest and gluten-free ones to please not tease my digestive track (My IBS is well healed). I can have many of them back when my adrenal system of the two tiny organs located on top of the kidneys and the thousands of lymph nodes throughout my body recover more soundly; monitored by my doctors. The results so far are heavenly. I have more than high hopes I see improvements. This highly selective food understanding and daily practiced yet complicated program nutritionally rich density reduces internal causes of pain really well so I can sleep. And I say without the pain I do not need prescription pain relievers and their nasty side effects.
www.housemouse.com www.doctorsnutrition.com 1-800-824-0194 emoticon

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;


JEANINNEWCASTLE
Posts: 1,826
7/21/13 1:11 A

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Lately I came out of a 7 month flare by taking all nightshades (tomato, eggplant, potato, peppers) out of my diet. It hasn't been easy because there are a lot of hidden nightshades. Potato starch in many forms (like dextrose) are everywhere.

I take ADR formula by Pure Encapsulations (for adrenals)

I take Mitochondria - ATP by Pure Encapsulations (for energy)

I take Selenium (200 mcg) to supplement my thyroid medication

I take digestive enzymes to help with digestion

The no nightshade diet however is what has helped the most. I went from having 7 months of constant pain to having one or two days of no pain with days of pain in between when I mess up on my diet (I'm still figuring it out).


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NMGRANNY
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7/19/13 12:25 P

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Have you tried water exercises? We have a water arthritis class at our local fitness center. emoticon

Twila

8/21/11 - Big Wild Life Runs
Snow City Cafe 5K, Anchorage, AK 42.01
11/1/11 - SparkPeople Trick or Treat Trot 10K 1:34.27
11/24/11 - Silver City Turkey Trot 5K 50:12
1/29/12 - Tinkerbell Half Marathon 3:00.15
3/17/12 - Lucky Laces 10K, Denver, CO 1:24.23
4/21/12 - Albuquerque Half Marathon 3:13.59
8/18/12 - Skinny Raven Half Marathon 3:04:04


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MARI465
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7/19/13 12:06 P

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Hi everyone, I am having such a hard time with rheumatoid arthritis and fibromyagia, I am 48 years old and recently just 3 months ago I stopped working because of my conditions. I can't do the 1 1/2 travel from home to the city anymore. I am in such terrible pain and totally exhausted. I am currently going through IV infusions (remicade), for the RA with my rheumatologist but it is difficult to determine if the pain I am experiencing is from the RA or fibromyalgia. Anyone has any tips on some exercises I can do to start moving again and getting some relieve, Desperately , need some help. I hope everyone is well.



TURTLESLOW14
TURTLESLOW14's Photo Posts: 7,052
7/12/13 2:09 P

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I use Nature Made CoQ10 right now. I also have to be careful about the cost of what I need to take and balance what would be good for me. This cost me 19$ for an 80 pill of 200 mg supply, which will last me for a little over two months. I have looked at many types and some are really expensive for what you get. Hope this helps

Lisa(AKA...Kitten)
Highest Weight 225(October 20, 2013)
Current weight :215 April 1st 2014
Determined Daisies April BSG Team
1st goal weight- 5% =11lbs--209
2nd goal weight -5%= 11lbs--198
3rd goal weight-5%= 10 lbs--188
4th goal weight- 5%=9 lbs--179
5th goal weight5%=9 lbs=170 lbs
6th goal weight 5%=9lbs--161 lbs
7th goal weight 5%=8 lbs--153
8th goal weight 5%=8lbs--145
9th goalweight 5%=7lbs--138
10th goal weight 5%=7lbs--131
11th goal


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UZ2BHIP
UZ2BHIP's Photo SparkPoints: (2,387)
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7/12/13 10:53 A

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For those who use CoQ10 is there a particular brand you like? I'm trying to be as "clean" as possible in whatever I take -- but I realize it's expensive so trying to make the best budget-conscious choice.


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ETCH12
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7/12/13 12:11 A

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I have tried many things. Too many prescription meds to list. I have had steroid injections. And my pain was for some time unbearable, I took oral steroids. My weight was out of control. I have found that taking amino acid has helped me very much. I can work out with out the horrible pain. I used Hers amino acid to begin with, now I'm trying pill form.

Every day is a new beginning.


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MEG-NATALIA07
MEG-NATALIA07's Photo Posts: 679
7/11/13 11:34 P

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UZ2BHIP - I am so sorry you are having such a bad flare. My heart goes out to you.

I work with a chinese medicine naturopath and acupuncturist for the nutrition therapy. He's helped me to build a protocol specifically based on my own body.

What I've found helpful is: vitamin D, dessicated adrenal (bovine), B6 niacinamide, Methionine, sea salt, Hepatrophin PMG, Beta TCP, Drenatrophin PMG, Astaxathin

and for sleep: Glycine, magnesium, Pure Tranquility liquid, Phenotropic, 5-HTP. Like I said, this is tuned to my body's needs, but I hope this helps even for you to research and get ideas for yourself.

As for the Tumeric, I buy it in bulk, the organic stuff really is good and tastes much better. (iherb.com) I use it for chicken, eggs, rice and soups--anything savory.

My go to recipe is getting chicken (thighs, legs, drumsticks whatever)...
layer in a pan.
SPrinkle garlic and a little cumin over top.
Cover the chicken meat with tumeric so that you can hardly see the meat (you may want to start with less and work your way up)
Sprinkle mushroom seasoning or salt and pepper.
Sprinkle oregaon or italian Herbs.
Cut fresh italian parsley over top, if you have it.
Add water until halfway covering the meat.
Bake at 375 for 60 minutes.
It's amazing.



GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
pinterest.com/willdance4joy/


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UZ2BHIP
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7/11/13 9:17 P

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Thank you so much for taking the time to post. I am experiencing the worst flare of my life this week and it frightens me that my fibro seems to be getting less manageable with age. I'm only middle-aged so it's hard to picture the future at this point. I usually don't let fibro affect my disposition like this but lately that has been more difficult. I used to take high doses of Vitamin D and CoQ10 and stopped - thank you for the reminder, I will start up again, at least at a lower dose until I see my dr. I know like most people the last time I was tested for Vitamin D it was very low. Someone told me about Biofreeze and I have been using that as a topical. I don't know what arnica gel is but I'll look it up. I was feeling better when I made myself get out and at least go for a short walk or go to the gym and do a light curves-like workout, but honestly I haven't been able to get out much lately. I have to find a way to power through this last bout. I know all the additional weight doesn't help either, hopefully this time it will stick. Meg - do you sprinkle turmeric on everything or do you cook specific recipes with it? Also, what type of nutritional therapy do you follow? Thank you so much for your insights and your ideas, I truly appreciate them.


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NMGRANNY
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7/11/13 7:41 P

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Exercise seems to help me. Start out slowly. A few years ago I set a goal to run a 5K and using a couch to 5K app for my phone, I achieved this goal. I continue to run using Jeff Galloway's run/walk/run program. Right now, I'm healing from a knee injury so I'm only walking and doing gentle water aerobics. I hope you find something to help you with the pain.

Twila

8/21/11 - Big Wild Life Runs
Snow City Cafe 5K, Anchorage, AK 42.01
11/1/11 - SparkPeople Trick or Treat Trot 10K 1:34.27
11/24/11 - Silver City Turkey Trot 5K 50:12
1/29/12 - Tinkerbell Half Marathon 3:00.15
3/17/12 - Lucky Laces 10K, Denver, CO 1:24.23
4/21/12 - Albuquerque Half Marathon 3:13.59
8/18/12 - Skinny Raven Half Marathon 3:04:04


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TOPAZ-TURTLE
TOPAZ-TURTLE's Photo Posts: 451
7/10/13 10:14 P

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SUNSHINE!! Yes!! I think that's why I like my aquatics class so much. I'm always in a much better frame of mind afterwards.
emoticon emoticon emoticon emoticon emoticon

Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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MEG-NATALIA07
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7/10/13 6:37 P

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Nutritional Therapy (includes whole food supplements and ones to help my adrenals and organs),
Acupuncture,
sunshine,
REST,
eating lots of tumeric, and using arnica gel for pain/inflammation
keeping to a completely gluten free, low sugar diet with tons of fresh stuff. (My brain fog has lifted a TON)
Sleeping in as much as possible on weekends.
Light exercise.
massage (thank you husband)


GRACE. BEAUTY. LAUGHTER. REST. COMPASSION. GOOD FOOD.


I love to cook and bake. I have compiled hundreds of recipes on Pinterest: Crowd pleasers: Traditional & Lightened versions of timeless favorites, as well as: gluten free, vegan, Paleo & Grain-Free... and a ton of Scones and desserts.
pinterest.com/willdance4joy/


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TOPAZ-TURTLE
TOPAZ-TURTLE's Photo Posts: 451
7/10/13 3:57 P

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I find that if I keep moving, I feel better. My optimum exercise routine is resistance training (at Curves) Mon & Fri, Arthritis Aquatics at YMCA (gentle water aerobics) Tues & Thurs, and basic, gentle yoga on Weds. I rest up on the weekend. It sounds like a lot, but I didn't start that all at once. I built up to it gradually over several months. Slow and steady is the name of the game. Likewise with massage -- I always tell a new massage therapist I have fibro and to start with very gentle massage. As I get used to it, and my body starts to relax, it may get a little deeper. I definitely don't want to feel worse after a massage, but it can happen if the therapist gets too aggressive. Also, my husband recently came home with a bottle of lotion called "Two Old Goats" for fibro and arthritis pain. It's a lovely blend of lavendar and other herbal remedies. When I have lots of muscle pain, I rub some of that on and it does help. It's only temporary relief of course, but it's enough to let me get some rest. Most likely any topical pain reliever would do the same.


Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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TURTLESLOW14
TURTLESLOW14's Photo Posts: 7,052
7/10/13 12:55 P

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Recently my DR recommended to me to take CoQ10 300mgs a day it helps to rebuild the energy cells and repair cells in general. I ran out for about a week and I was in a lot of pain so I can figure it is working for me and I am only taking 200mgs right now. I am also on a really high dose of Vit D3 from my DR 50,000UI once a week and that helps me a lot too. I only take tylonal now for pain that comes up. I wanted to get off my pain meds I was on because I gained over 30lbs while on it. I hope this information helps.

Lisa(AKA...Kitten)
Highest Weight 225(October 20, 2013)
Current weight :215 April 1st 2014
Determined Daisies April BSG Team
1st goal weight- 5% =11lbs--209
2nd goal weight -5%= 11lbs--198
3rd goal weight-5%= 10 lbs--188
4th goal weight- 5%=9 lbs--179
5th goal weight5%=9 lbs=170 lbs
6th goal weight 5%=9lbs--161 lbs
7th goal weight 5%=8 lbs--153
8th goal weight 5%=8lbs--145
9th goalweight 5%=7lbs--138
10th goal weight 5%=7lbs--131
11th goal


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UZ2BHIP
UZ2BHIP's Photo SparkPoints: (2,387)
Fitness Minutes: (1,651)
Posts: 52
7/10/13 12:46 P

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I think I've tried everything there is to try in the 14 years I've had fibro, with varying results. But I'm back to fight another day --- Is there anything in particular that has really helped you aside from pain meds? If you use certain vitamins would you let me know how many mg and what kind? I know things work different for different people, but my fibro is getting worse as the years go on and I want to try something different. Some days I really would love just a back/shoulder/neck massage - but then in actuality it hurts. Thanks for your help.


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