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LADYB2013's Photo LADYB2013 SparkPoints: (1,211)
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7/13/13 4:37 A

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this is amazing. hearing about the coffee. i love it. but did not know it had a good impact on fibo. please do tell me more. i thought i was doing bad by the 2 cups a day that i do drink. thanks

LADY


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DEENY44's Photo DEENY44 Posts: 14
7/9/13 11:54 A

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Hi - I love seeing people that manage their fibro pain with nutrition and exercise rather than pain meds.....I went through pain rehabilitation in 2006 at Mayo Clinic and have been part of fibro research since then....I have found the purest nutrition supplements that work at www.livebetternow.myshaklee.com . This month there is a free membership with any purchase which saves you $20 and then allows you to order anytime at a 15% discount on products.......Vitamin D is very low cost and 100% natural :)



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CTTAGENT's Photo CTTAGENT Posts: 1,616
7/2/13 10:16 A

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The best thing I have found is exercising, starting out with short routines. I have also learned that it is very important to do the cardio before weight training. Since for me temperature plays a huge part, I will wear a sweatshirt until my body returns to normal, and that has really helped with my ability to exercise.

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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
6/22/13 5:04 P

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Hi everyone. IMMagic knows what she is talking about. I have often liked her tips and suggestions. And like her I get weather sick, too. When the barometer point fall so does my health contentment.

My add-ons are also vitamins and brain pleasers. I use 5-HTP, 5000IU’s of vitamin “D”, extra “B” vitamin complex plus more “B5” known also as Pantothenic acid and more “B12” in capsules. My blood work monitors everything at regular reviews to add-on something or take off what is not needed at this time. My Fibromyalgia is nicely suppressed with clean things in me.

My newest is a custom formula of natural ingredients that work as either a hot or a cold as the body needs called adaptogens. It is a really special blend labeled Energy-Xtra put out by Pure Encapsulations brand in extract strength. I buy it from a doctor who sells supplements without additives and preservatives because I feel pain when I consume them. It has the nice Siberian Ginseng also called eleutherococcus in Latin, ashwagandha, cordyceps sinensis (Chinese mushroom use for cancer fighting) to list a few famous heroes. It has been recommended by my nutritional doctor for energy. It helps like a tonic, soothes any jangled nerves and helps pull lactic acid (like sore muscle aches) toxin build up to flush them out of the system. Kind of spendy and it has positive side effects of cleansing in them.

Hey I found the basics at this store:
www.doctorsnutrition.com/store/pc/vi
ew
Prd.asp?idproduct=460&idcategory=43#de
tails:

ashwagandha (Withania somnifer) extract (root): 400 mg.
(standardized to contain 5% withanolides)
cordyceps sinensis (mycelia) (certified organic): 400 mg.
Eleutherococcus senticosus extract (root): 250 mg.
(standardized to contain 0.8% eleutheroside E&B)
schisandra (Schizandra chinensis) (berry): 100 mg.
Rhodiola Rosea extract (root): 100 mg.
(standardized to contain 3% total rosavins and min. 1% salidrosides)
(hypo- allergenic plant fiber added to complete capsule volume requirement)
other ingredients: organic brown rice

I am sensitive to many things so I stay away from prescription drugs to use natural things without synthetic stuff and this blend works nicely for me. I sleep better this way and still get some exercise preventing muscle loss. emoticon

Edited by: MARGIE100%PURE at: 6/22/2013 (17:08)
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Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
6/15/13 10:56 P

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I have other stuff besides fibromyalgia to think about, especially when it comes to fatigue! LOL

Vitamin D is one of them... In a normal person, vitamin D goes to the liver which changes it to calcidiol, and the kidneys take that and change it into an even more biologically active form, calcitriol. It helps use calcium, helps regulate all cell growth, neuromuscular and immune function, and reduces inflammation... so it makes sense that not enough would be an issue for someone with fibro, which is now sometimes, incidentally, listed as a neurological disorder rather than rheumatic... I HAD been taking prescribed doses of 50,000 IU vitamin D2 twice a week... it wasn't enough, serum levels were "Profoundly low"...I only have 25% kidney function right now, so it wasn't getting converted... I now have to take the end product, calcitriol, three times a week.

It had no affect whatsoever on my fibro. I still hurt like crazy, especially on rainy days... but I DO have more energy. I miss ONE DOSE and I sure notice! LOL

Take it by all means, but the blood tests aren't a bad idea and you do need to keep your doctor in the know, since too much CAN cause problems... and get the D3, it helps faster!... lol
Kathy emoticon


"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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JAMER123's Photo JAMER123 SparkPoints: (232,614)
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6/15/13 9:21 P

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So true, there isn't a cure all for FM. But it sure helps one feel better if there is something we can take that eases to symptoms. My holistic Dr. has begun to study FM and hopes to specialize in it as well as emergency medicine. Maybe some day we will have some answers.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
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TOPAZ-TURTLE's Photo TOPAZ-TURTLE Posts: 536
6/15/13 10:53 A

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Most people living in the upper part of the States are somewhat deficient in Vitamin D. My gynecologist participated in a nationwide study and was very knowledgeable about it. Vitamin D is vital to our health, but if not taken in the proper dose it may be toxic since it is not water soluble. You may want to have a blood test to determine the level of Vitamin D currently in your system. My first test showed that I was in the very lowest range. My doctor prescribed a mega-dose of Vitamin D for one month, then tested me again. It was still low, and I continued the mega-dose for another month. When tested again, I was at the proper level and was put on 2000mg daily. After three months, I was tested again and my level was still normal. At this point my doctor said that 2000mg was the dose I should stay at indefinitely.

Interestingly enough, when I asked the doctor if this would help me feel better as far as my aches and pains and fatigue, he said, "No." Suffice it to say, Vitamin D is vital to the healthy function of our bodies, but that doesn't necessarily mean we will feel better. It is not a "cure all" for the ailment of fibromyalgia and its accompanying symptoms.

Cathy, Co-Leader
Fibromyalgia and Exercise Team

"Any day that my gratitudes exceed my expectations is a good day..."


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SGR1097530 SparkPoints: (3,573)
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6/13/13 11:19 P

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Thanks...going to try to up my vit d and see what happens. emoticon

JAMER123's Photo JAMER123 SparkPoints: (232,614)
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6/13/13 9:27 P

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I do 6000 IU Vit D a day. Plus 2-3 large cups of coffee. Slowly increasing exercise helps as well. Lots of possibilities and they work for each person differently. Give something a try for a couple months and change if it's not working.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


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SVERBICKI SparkPoints: (320)
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6/13/13 6:02 P

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I do the drops and was told 4-5000 for vitamin d

EDNASHUKIS's Photo EDNASHUKIS Posts: 337
6/13/13 5:25 P

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Calcium and Magnesium and 3 to 5 cups of coffee with caffeine a day. My doctor told me he couldn't help any more but I did a web search and found the coffee thing and it helped me plus exercise, I know it seems contraindicated but the exercise helps a lot too, I do about 3 hours at a time, 3 - 5 days a week. I had to start out with about 10 minutes and gradually go up. It took me a long time to get to this much, I ride my bike for 20 minutes a day, swimfor 30 mins a day and walk in water for 30 mins...and do Tai Chi for 30 to 45 mins 6 times a week. This I too started gradualy and worked up to the 45 mins. I would suggest Scott Cole, he is available at Amazon.com I have the one for back, balance and mobility and for weight loss, the weight one is almost aerobic and the most fun, but it took me a while to work up to it. I love Tai Chi for fitness, not the marshal arts one. Edna Hope this helps emoticon emoticon I am 73 yrs old.

Edna Mae Shukis

It isn't over until the fat lady sings and someday I hope not to be that lady!


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DEWIE1945 Posts: 66
6/13/13 4:59 P

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My doctor suggested magnesium. I take 200 units plus whatever is in my multivitamin. You can take higher amounts depending on what you system will tolerate, think milk of magnesia. I also take a prenatal multi since it has a little more iron than usual. I tend to run a bit anemic. I am 67, and I do get kick out of saying I take pregnancy vitamins. :)

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6/13/13 3:58 P

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How high of a dose did you start both at. Currently I'm on multi w/ D and also a liquid dose of 1000 IU a day. Tried coq10 but at reg. dose (100mg) and stopped as I didn't see a change and it is quite expensive

SVERBICKI SparkPoints: (320)
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6/13/13 3:20 P

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Actually I found large doses of beta-carotene, coenzyme Q10 and vitamin d high doses along with your daily vitamins. I started really high as high as I could with out worrying about side effects. I am still tired but I am not sleeping 20 hrs a day. I found them both at Walmart

SGR1097530 SparkPoints: (3,573)
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6/13/13 2:39 P

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If I could just have a little more energy... I am constantly fatigued even worse if I have a flare. Has anyone found a magic pill??

Edited by: SGR1097530 at: 6/13/2013 (15:59)
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