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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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1/20/13 12:08 A

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Thank you. I do need to remind myself that my normal is not other people's normal. Coming to terms with that is easier sometimes than other times. There is definitely a learning curve, and it, too has plateaus. I have the next two days to rest and recuperate, and gear up for the rest of the work week. And I need to remember to remember my limits.

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/19/13 8:24 P

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I want to praise you for what you do. What most people call lazy, people like us make great exertions doing what others consider simple. But we still do what we can when we can. And that is all right with us because we know our limitations.

Mark
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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1/19/13 8:15 P

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Mark, I hear you. I do what I can, as much as I can, because there is too much fun stuff to do, to sit and do nothing. Granted, I modify as needed. Today was our 'Day of Service' where I live, and I helped out with the Pacifica Beach Coalition, a community service group I belong to. While I couldn't help pull ice plant out of the beach dunes, or help much with planting native dune plants, I was able to get people signed in, answer questions, and feel useful and like I was part of the event. Even though I only made it until 11:30, at least I was there. And got a lot of walking in, too. (Came home and slept for several hours, and am grateful not to have small children at home!)

I need to remember that I can only do what I can. And if it takes a year (I hope not, but still...) to lose those last 10 pounds, then it will. I still need to live and cope and have fun in the meantime, right? Generally I'm fairly postive about my life, focusing on what I CAN do, what I CAN eat (I'm gluten free), and the joy of my family and living near the ocean. Neither of my jobs is onerous, and I actually really like one of them, and there are built in days off with them both because I work in education.

This past week was particularly rough with both fibro and OA, and I get grumpy and down when it all dumps on my head this way. Next week will be better. It has to be. emoticon


One day at a time...
1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/19/13 7:33 P

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I love your "One day at a time, one meal at a time, and as a wise member here once said, one CHOICE at a time." Very well said.

A lot of people tell me that they can not believe what I do with having Fibro, Severe Arthritis and Severe Asthma. I just push my way through the pain and do it and overall I have found that being active helps reduce the pain. Now if I can only find a true remedy for Fatigue.

I hate the people who have the attitude of think you are lazy. I get enough of that from my own family let alone have doctors say it. I want to slap them all. But then that is not a good thing. I do not know how many people who have told me to go back to work. They do not understand that my body is trying the best it can do just to get somewhat healthy. What energy I have goes into that and there is not much left for anything else.

A Positive attitude also helps a lot. I knew there are days when we are just down with the gloom and doom. And when you have those days there is not much to do about it. Just avoid the ones that will attack you. And then try to uplift your self as much as possible.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


 current weight: 199.0 
 
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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1/19/13 5:02 P

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Honestly, I don't discuss much with my doctors. They haven't been very helpful in the past. As long as they will let me have the few meds I have found to be useful, we pretty much leave each other alone other than yearly check in visits, and appointments with the ortho doc to manage my hand problems. About 90% of my health improvements I have achieved on my own, through research and trial and error of lifestyle changes such as eating gluten free. The docs, even the rheumatologist, really don't know how to manage fibro other than offering me pharmaceuticals that I refuse to take, such as lyrica and cymbalta. Scary, those. My body has enough problems processing the world around me, without adding chemicals that will cause other problems.

Not to sound pompous, I'm an RN, have researched and know more about fibro as it relates to me personally than the docs do. They've never offered me anything new or truly useful other than Armour thyroid and a couple other prescription meds that are useful, in low doses and as I tolerate them.

That said, I don't discuss my weight with them, either. I do expect congratulations when I show a weight loss when I do have to go to the doc for something, though. I've had too many doctors over the years tell me I'm lazy, I'm cheating on the 'diet', Weight Watchers works for everyone, etc etc etc. I don't need that.

Please don't think I am ranting at you about all this! I'm just ranting in general, and making a point.

*Your* point about patience is spot on, and I need to remember it. I'm hoping my body is just adjusting to the weight loss up til now (it IS a new phenomenon for me, after all!) and is resting up for the next few pounds it's willing to let go of.

One day at a time, one meal at a time, and as a wise member here once said, one CHOICE at a time. Sigh.

Peace,
--Beth.

One day at a time...
1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/17/13 12:13 P

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Your end goal should be what your doctors tell you that you should be at. Do not give up. That last stubborn ten pounds might be hard but eventually you will get there. You might be at a plateau right now and those are hard to get past except with Patience.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


 current weight: 199.0 
 
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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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1/16/13 7:41 P

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Oh, my friends, I agree fully about the good days/ bad days concept. Yesterday was a good day. I had energy, little pain, got through my work day and even took a good walk with my Ellie dog. Today, not so much, but we still managed a bit of a walk. Unfortunately, those good days are elusive and rare.

I find that if I allow my calories much above 1500 per day my weight begins to creep up. If I could exercise more consistently I could probably enjoy more calories, but the consistent exercise thing eludes me. I want to retire from my job, but really can't do that until 2015 unless circumstances change. So, between now and then I have to spend more energy earning a living than I'd like to.

So how do I translate that into losing those last stubborn 10 pounds? I know my arthritis and maybe the fibro will be better without that weight, it's a realistic goal weight, and psychologically I need to be at that weight range to feel confident I will never go back to where I was on the scale. I don't see the fat converting to muscle without consistent exercise. I admit I *have* considering setting where I am now as my end goal, but it's not really a reasonable thing to do, is it?

So. What now?

One day at a time...
1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
1/16/13 10:47 A

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I am like Peggy. Some days I can do more, some days the fatigue and or pain is so bad I can hardly get the essentials done. You just have to listen to your body there. When I go for my walks with my dog, it all depends how I am feeling on how long of a walk we go on. Some days it is just to the corner and back. But I got out and was moving.

I was stuck on a plateau for over 6 months. My doctor said it was because I was converting fat to muscle and the weight stayed the same. I also lost two pants sizes in that time. So do not worry much about those plateaus.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


 current weight: 199.0 
 
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PEGGIE57's Photo PEGGIE57 SparkPoints: (93,056)
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1/15/13 11:55 P

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I do more some days & less other days. Right now it's even harder because I have a torn meniscus in my right knee which hurts alot & also keeps me off balance.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
1/15/13 3:14 A

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Depends on your job... When I worked at a desk, I found it helped if I added a bit of that "movement" to the workday itself. I was almost literally tied to the seat by my telephone lines--an average of 350 calls a day. When it was possible, I added more walk and talk, lees email and phones. I used breaks as a chance to go for a stroll, or visited the weight room our bosses provided during my lunch break.

...can't help with walking the dog, it's something you just have to bite the bullet and DO...unless you want to clean house for other reasons than daily grind... LOL Make it less of a marathon maybe, so you can get the exercise without the moans and groans. Its mote important to DO it than it is to work at it so hard that you dread it and don't want to get it done...!

And let us know. Having someone to tell your progress (or lack of) to really helps.
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"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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PURPLEDRAGONM's Photo PURPLEDRAGONM SparkPoints: (8,503)
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1/15/13 12:57 A

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When I come home from work exhausted and hurting, how do I muster the energy to take the dog for the walk we both need, before it's full dark outside? How do I not reach for food I really don't need, in an effort to capture some energy? Ten less pounds, that's all I'm asking for. Really. And it's not happening.

I'm stuck, plateau'd, scale hasn't moved in weeks except for bouncing up and down the same roughly one or two pounds. (Ok, I gained a bit over the holidays, but that is mostly all gone. I'm stuck again.) It's like my body likes this new weight level, but I don't.

I know I need to walk more, move more, do more. But how, when getting through the work day takes almost everything I have?

Hoping for answers,
--Beth.

One day at a time...
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