Me too, I have struggled terribly with RLS for 15 years or so. In more recent years it spread to my arms as well with involuntary muscle spasms in my arms too when I tried to sleep - it's AWFUL! Note: my mom and my brother have RLS too, but not Fibromyalgia.
I laughed at the soap bar cure, but hey - if it works that's a miracle! I wonder who ever thought of that? I'm wondering what night be in soap that is maybe absorbed through the skin to calm the spasms - maybe ash or glycerin?
Narcotic pain management is the only thing that truly helps me, and still I wake up every 4-6 hrs when the dosage wears off. I recommend all non narcotic options first though. Hot baths used to work, but only rarely. And sex, lots of sex, before going to sleep helps too!
Thanks again for all your input. My doctor mentioned quinine as well, but then backed off it after looking into it a little more. I do take calcium, and magnesium as well as the potassium. I am at a loss. I started Savella yesterday and am really mixed on my feelings so far. Quite frankly so far it is making me feel like total and complete dog poop, but I will give it a few more days to see if I can get past these effects. I think I may have found a little relief in my legs after the first dose, but the foggy feeling sucked. Again, I'll give it a bit of time to make a decision on whether it will do any good or not. The 106 weather could have contributed to the crappy feeling...I just want some sort of relief and hope. For the last 6 months things have just gotten steadily worse. :-(
Working on a 40 lb loss by my 40th birthday June 26, 2013
The bar of soap thing does work... and it's inexpensive and has no known side effects... lol
Just a quick note about the calcium, vitamin D etc.
Adding a few vitamin rich foods shouldn't be too much trouble... but you should really ask your doctor before just starting to take supplements. There are some hard to diagnose medical conditions that may make taking some of those things a no-no, even if it seems logical.
For example, I have kidney issues, and while one doctor said I should take calcium supplements, I was informed by my specialist that they are not recommended right now because I have a vitamin D deficiency related to the kidney problem. It takes close medical supervision to get the balance back again, and even with that, I ended up with calcium deposits in the soft tissue (muscles, tendons and ligaments) in my shoulders-- VERY painful, we all thought I'd torn my rotator cuff again until the xrays came back and I was sent off for more blood tests! Ouch...
So if you think you might need supplementation, ask your doctor to run some tests first to make sure that's what is going on, okay? Better to err on the side of caution...
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Two different doctors told me to drink tonic water each day because it has quinine in it which helps with the muscle cramping. It did help. But it tastes pretty nasty, so you might want to mix it with tea or juice or crystal light etc.
I love the soap idea! Going to try it for a backup! Thanks!
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Ok as a massage therapy student that has gone over this several times in class and one who also has fibro, it is a calcium deficency not a potassium deficency. Potassium deficency deals with the nerves not the muscles. I used to get the leg pain alot but once I started taking calcium citrate (not carbonate) this went away. Calcium not only is part of the bones but it deals with muscle contraction. If you don't have enough calcium your muscles can not move and relax in the ways that they should do so. Make sure that you use the calcium citrate and not the carbonate as it is better absorbed in your system so you get more of the benefits from it. Also make sure you take it with Vitamin D3 and also magensium if you are not getting enough of those as they help your body absorb the calcium so your body can put it to use.
I currently taking 1000mg a day, with 500 of that being taken in the morning and the other 500 being taken in the evening before bed.
Even though your Dr gave you potassium pills to take at bedtime, you might want to try upping your intake of potassium rich foods. You can track how much potassium you are consuming by adding it as an item on your Nutrition Tracker.
I have had fibro for awhile now and I am constantly amazed with all that fibro can do, I have leg cramps, restless leg and sometimes my whole body feels as if I have a sunburn when I have not been in the sun. So yes, to your question.. I would say it is fibro related.
My husband has restless leg syndrome and used to wake up in the night in horrible cramping pain. We heard that putting a bar of soap in bed with him eliminates this and, guess what? It works! Any ol' bar of soap will do, I guess, but we used a motel soap under the fitted sheet by his side of the bed. I know, wierd right? But it works.
"People will forget what you said, people will forget what you did, but people will never forget how you made them feel." ~Maya Angelou
Do any of you have issues with severe leg cramps? I'm talking 5 days later and still sore, stiff and twitching? This latest round started overnight Wednesday, I went to the doctor Thursday, but I can still feel it. The doctor suggested taking 2 vicodin, 1 muscle relaxer and 2 potassium pills at bedtime, and it is allowing me about 6 hours of sleep, but then I wake to tension in the calf again (which is much preferable to the literally screaming pain that woke me on Wednesday.) Just wondering if anyone else has dealt with this, if it is fibro related, etc? Thanks for any insight!
Working on a 40 lb loss by my 40th birthday June 26, 2013
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