It sounds like you have an awful lot on your plate lady. I'm glad you've begun therapy again. It sounds like you have a lot to sort through and a good therapist can be a lifesaver in that process. I know, I've been there. It means you have to ready to be honest with yourself and do some hard work, but if you are, and you can, it's amazing how letting go of emotional baggage can help you feel better physically.
I'm also glad to hear you have an appt with a rheumatologist soon. He/she will be much better equipped to help you deal with your symptoms than your PC doc. I've never heard of somebody being on both Lyrica AND Savella for fibro myself, but I don't claim to be an MD. It just sounds like you're on a lot (I'm in no way questioning your need for them at ALL) and I know from experience when you're on a lot it kinds of gangs up on you and works to sedate you. I'm on disability myself for fibro, arthritis and a brain injury that causes migraines that cause me to pass out and exhibit stroke-like symptoms and have minor seizures which we have, thankfully, finally been able to bring under control after several years. So I too take a multitude of meds every day and spend a lot of time sedated and sleepy.
It can be SOO frustrating when you're in constant pain and bone tired all the time with no end in sight. But it WILL get better!! Fibro symptoms wax and wane and you really do have SOME control over the intensity of your symptoms and that control can have a big impact on your mental outlook!!
It sounds like you're already on the right track exercising and making changes to your diet. Perhaps with your troubles staying awake and your pain levels, it's an indicator that you're overdoing the excercise at this point in time and you need to back off a little. Unfortunately, we fibro patients can't "go for the burn" like we've been been taught so doing the 10-15 of exercise we can do without bringing on a flare makes us feel like we really haven't done much. So we try to do a "real" workout. And some can get away with it for a few days, a week if they're lucky, and then the hammer drops. My suggestion would be to back off on your workouts a little bit and see if that helps.
Two additional things I found helpful that you might want to discuss with your rheumatologist are testing your thyroid and getting B vitamin complex injections for energy. There are tons of B complex pills on the market but if a patient is having severe energy issues the injections get into your bloodstream faster and you lose less of the potency through the digestive process. Thyroid issues are common amongst fibro patients and I would highly recommend you have yours checked. You need to have your T-3 and T-4 checked seperately rather than doing just a single compiled thyroid test. Rarely in my experience with fibro patients does the compiled test show the true picture.
I wish you the best of luck and will certainly keep you in my thoughts and prayers. If you have any more questions or would like to talk further, don't hesitate to contact me offline!
Courage isn't always a lion's roar- It is sometimes the heart at the end of the day saying, "I will try again tomorrow."
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