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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,524
7/19/12 8:25 P

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I am familiar with this crying jag lack of deep sleep signs of extreme tired. I want to offer a different perspective.

There are some organs the doctors have a good handle on and this kind of tired does not show loudly on the diagnostic radar. This kind of tired does NOT RECHARGE WITH SLEEP. Body fatigue is one more symptom of being unable to avoid pain and live with deep tissue swelling.

I hear you and know the lack of concern in the medical community. The awful quote of 97% of adrenal fatigue is not seen by the naked eye and even some doctors have this overtired problem themselves. Until scars and irreparable damage are seen to the point as high as 97% of the organ is not working before we get to this topic or before some doctors do anything but recommend sleep and pills (medicated sleep that does not work for toxin pulling and Prednisone performance fades and the organ dies anyway under this type of care) See Addison’s Disease.

The problem must be corrected by you in natural solutions and lowered stress lifestyle changes. The modern Prednisone synthetic medication steroid relief is the biggest MD tool. It fades with time and does not address all the symptoms; has negative side effects; while other solutions are available. Many MD’s do not know them. They are taught at the orthopathic types of medical care. ‘Beyond-beyond standard medical school classes.’ Some of the techniques are Social Security Disability benefits honored so they must work! They are found under a different medical heading of naturopathic and nutritional doctor’s care. With proper support 80 % of the people with this type of medical care could go from deep fatigue to recovery. Get tested.

Good luck to you in getting the answers you seek.

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
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Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
MAREYEKA's Photo MAREYEKA Posts: 106
7/15/12 4:12 P

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I don't know what type of work that you do, but are either flex hours or telecommuting options?

many times, just being able to take a bit of control over your work hours can make a huge difference in how we feel.

Just a thought.

in Montreal, Canada

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I.M.MAGIC's Photo I.M.MAGIC Posts: 13,148
7/12/12 11:19 P

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MARTHASPARKS hit it on the nose with the sleep thing... I have a sleep disorder, and man oh man do I know when things are out of whack! LOL Good quality sleep may be hard to get for us, but it's also a necessity...

My rheumatologist tried every drug in the book and I couldn't tolerate anything--some even put me in the ER with the first dose!
I do find meditation to be quite helpful at times... and I too take Vicodin twice a day. My rheumatologist wasn't comfortable prescribing it, but my primary physician and I work together with it, we have a sort of "contract" that if I use more than a certain amount, she cancels the refill... Never gonna happen though, I HATE the stuff and the only reason I take it is because I can keep the pain to a dull roar. Doesn't mean pain free, just reasonably functional. With a few exceptions... lol

I deal with a lot too--check out my SparkPage! lol-- so you're not alone in dealing with multiple issues. thing is... emoticon

Listen to the cues your body is giving you. Check out vitamin deficiency possibilities--vitamin D is another key one... Eat high anti-oxidant foods... in this weather, I recommend trying a little ice therapy. It sure beats the heat! LOL

We all do what we can...
Be well.
Kathy emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!
P.S. I looked up enthusiasm, and it says the root words mean God within... interesting...!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes one mome

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7/12/12 12:12 P

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You are dealing with al lot. I have some suggestions. Since you are already on Savella and Lyrica, I doubt the rheumatologist can do much except offer you an antidepressant:try cyclic, Prozac, Wellbutrin or Cymbalta. Don't turn up your nose at that since depression meds not only help the pain but they also help the mood swings. You won't be fired if you're productive and well liked so focus on being pleasant at work. It's not easy when you feel like your body is wracked with pain but studies show that popular people are rarely fired unless the company is going out of business. I recommend a book called Fibromyalgia Up Close and Personal by Mark J Pellegrino, MD. He has fibro and his book is the most comprehensive one I've read in 20 years do researching fibro. Mine is pretty well managed now and I am mostly off Vicodin. I take 1-2 a week since I recently had major back surgery. I used to take 4-5 7/750 a day. I have had a ton of success with Reiki and meditation. Reiki isn't covered by insurance, though, so I eventually took the classes so I could do it myself. Massage help unless you get someone who doesn't know what they are doing and digs hard which feels great but actually aggravates the condition. Warm soaks and the hot tub help me, too. I use a soak in my bath at night sometimes that is called Liquid Needles. It zaps the pain so at although you know it's there, it's so dull that you can sleep. I'm not sure where you can get it but you can call the manufacturer Developmental Natural Resources 800.886.6222 to see where it is in your area. Sleep is critical for us, so if you have trouble sleeping ask your rheumatologist or primary care doctor for help with that. Bless you and good luck!

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NEWVINE's Photo NEWVINE SparkPoints: (270,089)
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7/12/12 10:54 A

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emoticon You have taken the right steps to helping your self. Listen to what you are being told and ask questions. Change doesn't happen over night, but the being tired all the time is scary. Vitamin B helps me. No one likes to slow down and loosing your job is always in the back of your mind. Good Luck Someone here always has an answer or can tell you where to find help.

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HIPCHICK717 Posts: 29
7/12/12 10:41 A

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Thank you so much. I think that my previous doctor got carried away because he wants me to continue working, but he doesn't know how to control the pain an fatigue from the fibro. Its's been 2 years since its been this bad and its happened at work. I had to take a demotion to make sure that I could work.....unfortunately sitting in one spot all day is baaaad for the pain. I find this message board to be so encouraging and I am making notes in my phone to ask my doctor on Monday. I just have to make it through today and tomorrow. I live in Florida and I go to the beach a lot...its my Zen spot. My son is sixteen and he is a blessing. I thank God for all that I do have....but I would be lying if I didn't say that I could do with a good long cry right now. Does anyone have any other suggestions on what to ask when I get there to the doctor?

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SHERIFITZ1's Photo SHERIFITZ1 SparkPoints: (0)
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7/12/12 12:47 A

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It sounds like you have an awful lot on your plate lady. I'm glad you've begun therapy again. It sounds like you have a lot to sort through and a good therapist can be a lifesaver in that process. I know, I've been there. It means you have to ready to be honest with yourself and do some hard work, but if you are, and you can, it's amazing how letting go of emotional baggage can help you feel better physically.

I'm also glad to hear you have an appt with a rheumatologist soon. He/she will be much better equipped to help you deal with your symptoms than your PC doc. I've never heard of somebody being on both Lyrica AND Savella for fibro myself, but I don't claim to be an MD. It just sounds like you're on a lot (I'm in no way questioning your need for them at ALL) and I know from experience when you're on a lot it kinds of gangs up on you and works to sedate you. I'm on disability myself for fibro, arthritis and a brain injury that causes migraines that cause me to pass out and exhibit stroke-like symptoms and have minor seizures which we have, thankfully, finally been able to bring under control after several years. So I too take a multitude of meds every day and spend a lot of time sedated and sleepy.

It can be SOO frustrating when you're in constant pain and bone tired all the time with no end in sight. But it WILL get better!! Fibro symptoms wax and wane and you really do have SOME control over the intensity of your symptoms and that control can have a big impact on your mental outlook!!

It sounds like you're already on the right track exercising and making changes to your diet. Perhaps with your troubles staying awake and your pain levels, it's an indicator that you're overdoing the excercise at this point in time and you need to back off a little. Unfortunately, we fibro patients can't "go for the burn" like we've been been taught so doing the 10-15 of exercise we can do without bringing on a flare makes us feel like we really haven't done much. So we try to do a "real" workout. And some can get away with it for a few days, a week if they're lucky, and then the hammer drops. My suggestion would be to back off on your workouts a little bit and see if that helps.

Two additional things I found helpful that you might want to discuss with your rheumatologist are testing your thyroid and getting B vitamin complex injections for energy. There are tons of B complex pills on the market but if a patient is having severe energy issues the injections get into your bloodstream faster and you lose less of the potency through the digestive process. Thyroid issues are common amongst fibro patients and I would highly recommend you have yours checked. You need to have your T-3 and T-4 checked seperately rather than doing just a single compiled thyroid test. Rarely in my experience with fibro patients does the compiled test show the true picture.

I wish you the best of luck and will certainly keep you in my thoughts and prayers. If you have any more questions or would like to talk further, don't hesitate to contact me offline! emoticon

Courage isn't always a lion's roar- It is sometimes the heart at the end of the day saying, "I will try again tomorrow."

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HIPCHICK717 Posts: 29
7/11/12 7:14 P

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Hi guys ....I've been away from SPARK for awhile. I have spent a lot of time turning my life around and exercising myself towards a new body. I am still working on the diet....I take a new step each day. I thought that I was making a great deal of progress....I know that I have.
Lately I can't tell if it's just a flare up. I know that I can barely keep my eyes open at work or when I am driving (I've had a couple close calls). My body is stronger but my pain level is very high. I'm close to tears right now as I type this. I know that I am stressed with the fear of losing my job, not being able to find or keep a companion who cares to deal with me and my FM. Even with insurance my medical bills are high. I had my first therapy session in years. It seems that I need to love myself more ...which I guess we all forget to do. My Ex wants to the expense of my sanity.....I now have to have a roommate to make ends meet. and I can't get in to see a Rheumatologist for two weeks(first it was two months until I bitched and complained) because my primary care doesn't want to deal with FM. I take vicoden in the morning and at night, midofinil to stay awake, lyrica, savella, omeprazole for my stomache, bystolic and lisinopril for my BP ...I'm forty three.......HELP!!! Please any words of advice, a referral a cure(LOL)

Sorry I just needed to be able to spill the beans!!! Thanks for listening! I'm not sure how to get home because I am afraid to drive.

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