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BGRN13's Photo BGRN13 SparkPoints: (8,535)
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7/3/12 3:39 P

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I think that all of the above posts make sense. I think we've all found that moderation is key with this condition. It's incredibly frustrating to not be able to do what we used to do so well or were even known for doing well (mine was gardening). Some days I feel like I can handle it and I'm fine. I can still water my flowers and have a few pots. I know that I can't go out and mow, weed whack, pull weeds, water everything by hand, and have high maintenance plants. We used our tax refund this year to do some landscaping in our yard and my #1 requirement for everything was that it was drought resistant and low-maint. So far, not too bad.

You kind of need to find that "happy medium" between doing an activity and knowing when enough is enough. I think it's different all of the time, but we are much more in tune with our bodies than "normal" people are. We tend to ignore signals that there's an issue, but our body will quickly remind us!

Be kind to yourself and try to find some way to enjoy what you used to do. Life is too short to spend it on the couch/in bed taking pain pills and watching others live their lives!

I'm here if you ever want to chat! emoticon

*Good moms have happy children and dirty floors."

*You must be the change you wish to see in the world." Ghandi





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ROBBIELEE's Photo ROBBIELEE SparkPoints: (16,284)
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7/3/12 1:48 A

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I've had fibro for twenty years. The hardest thing for me to accept was that my body would never be the same. I did grieve and sometimes still do. There are things I want to do so badly but I have learned that if I push myself I will end up down for days or weeks. I have learned (the hard way) to really listen to my body. If I'm doing something and I feel pain or I start to feel exhausted I know it's time to stop. I do exercise because I have found that exercise makes the fibro better as long as I don't over do it, but I try to stick to low impact exercise like walking or swimming.

Habit is habit, and not to be flung out the window.....but coaxed downstairs a step at a time.
--Mark Twain--


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BGRN13's Photo BGRN13 SparkPoints: (8,535)
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7/2/12 9:45 P

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Wow! Wish I could get that kind of attitude. I get really close & then something happens, I flare, & all of the hard work to change my thinking is wasted. Very frustrating.

*Good moms have happy children and dirty floors."

*You must be the change you wish to see in the world." Ghandi





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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
7/2/12 9:35 P

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I'm in my first big flare in years and I have to admit that exercise is excruciating. I refuse to define myself by my disease(s), though. A very wise rheumatologist told me 20 years ago to go through the grieving process for the health, strength and vitality I lost with the onset of my RA and fibro and after that to move ona redefine my new life in terms of what I could do , could be and could give. It was the best advice I have ever been given.

Martha
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I wish you all JOY and the fulfillment of your dreams.
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BGRN13's Photo BGRN13 SparkPoints: (8,535)
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6/30/12 11:42 P

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First, I love the optimism some of you have here! How awesome!

Jae, I often still grieve what I've lost and I've had it for over 20 years. But, I'm only 39 and I sometimes even get mad b/c I wonder what I did to deserve all of this. Not fair! I have a 12 yo son who wants me to do active things with him and I can't. I used to love to garden, but now have a hard time just watering a few pots and pulling the dead flowers off! If you ever want to "talk" about this stuff, please send me a message. There are few people who "get" how we feel about things!

And, I agree that slow and easy is the way to do it. From experience, I know that if you push too much or try to be "normal" like you used to be, you'll pay for it for the next day (or two, or three...). Sometimes I think we have to accept that our lives are different and that is our new reality. We can keep fighting it or do the best we can with what we now have.

Good luck to all!!!!! emoticon

*Good moms have happy children and dirty floors."

*You must be the change you wish to see in the world." Ghandi





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JAE_HENNINGTON Posts: 6,577
6/30/12 5:15 P

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question..does anyone go through grief because of what fibro has made them into. Does anyone just find themselves crying for no real reason.. well I do.. I dont know how to embrace myself and love what I still have.



Where there is no struggle, there is no strength.




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ALASKASKY's Photo ALASKASKY Posts: 6,166
6/25/12 11:45 A

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Thanks for really great advice. I was thinking this morning that I really need to find a balance with exercise. My mind want to do it all and do it the way I used to fast and hard. But the body is not willing. It 's a shame that I feel worse when I work out even though I know it's beneficial to keep moving.

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VALMARK's Photo VALMARK Posts: 147
6/25/12 10:17 A

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I love your optimism. Yes, your body is not 'yours' anymore; it belongs to the disorder. That's a humbling thought but it doesn't change the fact that you are still you. Don't give up but do compromise your self with your new abilities (instead of your new disabilities). Change the ways you deal with what you can't do anymore but keep the word CAN'T out of the picture.
Good luck and FORE!!

"People will forget what you said, people will forget what you did, but people will never forget how you made them feel." ~Maya Angelou

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SPEDTEACHER44 SparkPoints: (5,189)
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6/25/12 10:02 A

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Thank you both so much for your posts! I need to learn that I'm not the same person I was a couple of years ago. I will continue with my favorite activities, but at a slower pace and yes maybe a shorter game. :)

ANNIE0514's Photo ANNIE0514 Posts: 249
6/24/12 11:01 P

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I sympathize. I've always been very, very active and exercise is a huge part of my life, especially running. A little over a year ago, before fibro, I ran a 1:57 half marathon. Now I'm happy that I'm up to running 5 slow, solid minutes at a time. I have found that very gradually increasing the intensity and time of my running is what's working. A couple of months ago I couldn't run at all - if I did, I was in pain for 2 weeks. I couldn't even bike. Now I am running twice a week, up to 3 miles with 1 minute walk breaks between my 5 minutes of running, and biking hard 9 miles. It's taken me months to get the biking up, and I am doing 3 days of cardio a week and lifting weights 2 days. I have found that my body has to very, very gradually become used to moving - if I do too much, I pay for it the next day or for a week. I know that the days between are important for my body to recover. Good luck :)

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VALMARK's Photo VALMARK Posts: 147
6/24/12 9:31 P

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Like the Kenny Rogers song... "You got to know when to hold 'em, know when to fold 'em" My advice... Listen very carefully to your body. Play one hole of golf at a time, ride the cart in between holes. Reassess how you feel before you exit the cart for hole No. 2. If you're okay, play it and ride to No. 3. Listen again to your body. If you are fatigued, stop and rest a while longer before playing No 4 or go home. Tomorrow's another day. And so is the day after tomorrow.
Nothing is the same after fibromyalgia. So don't try to play golf the same. But don't give up on golf all together either.
My 2 cents,
Val

"People will forget what you said, people will forget what you did, but people will never forget how you made them feel." ~Maya Angelou

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SPEDTEACHER44 SparkPoints: (5,189)
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6/24/12 4:55 P

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I've been an avid golfer for years. My question is "How do you enjoy your favorite activities without paying for it for days afterwards?" Yesterday I played a round of golf and have had severe pain ever since. I can hardly move. Any advice on how to deal with this or prepare myself better? I really don't want to give this up.

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