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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
6/14/12 1:52 P

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Often when one area of your body is injured, it will aggravate your fibro. I'm recovering from major back surgery and just started physical therapy. Both of those have triggered a bit of a fibro flare. With things like knee injuries, back injuries and surgery, you have to grin and bear it, up your stretching strategically (the pool is a great place to do this) and rely a little more on medication until things calm down.

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STEPHANIEME's Photo STEPHANIEME SparkPoints: (996)
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6/14/12 9:07 A

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Hi Starr! My worst ever fibro flareup also involved knee pain. It was very debilitating. I found that water exercise was the key to being able to move at all. I did very light stretching and walking in a pool for months and finally was able to do more. Pain killers would not touch it and being the water or bed were my only real respites from pain. If you have access to a pool, try it.



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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
6/13/12 10:18 P

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Starr -

I understand what you are saying. I don't have health insurance and was kicked out of my job after I got sick. I did the chiropractor/chinese medicine thing for two years. My medical doctors were absolutely horrible to me and not helpful at all. In fact, my occupational therapist managed to give me exercise after exercise that left me in worse shape each time I did them. My workers comp doctor treated me, told me I had fibro and refused to treat me for it. One thing I was forced to do was to take charge of what was going on for me. Much easier for me after I lost my insurance. I went into some debt seeing the chiropractor but it was worth it. I went from being able to stand for only 10 min at a time to being able to stand for two hours pain free. He also helped me with my exercise so I did what I could under his guidance.

The Chinese medicine school was a godsend. I got a full treatment plus herbs for a total of $30.00 as opposed to the $125.00 I used to pay for each treatment. The doctor told me that my problem was that I waited too long before getting treatment that I needed a lot more assistance. There are solutions out there, and I really want to encourage you to find what is best for you.

Good luck to you!

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SPIRIT42013's Photo SPIRIT42013 Posts: 1,020
6/13/12 7:33 P

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My pain is more constant, like the flu. If it weren't for Lyrica, I probably wouldn't be able to get out of bed. And there are days when it lays me completely low, like a flare-up. My muscles always hurt, just some days unbearably, even with Lyrica. And I refuse to take narcotics, unless I'm having surgery for something.

I wish you luck! emoticon

"It is only with the heart that one can see rightly; what is essential is invisible to the eye." St. Exupery


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TEENYSMOM's Photo TEENYSMOM Posts: 4,081
6/13/12 10:46 A

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Jacqueine,

It is hard to not give up when every time I go to the doctor she wants to refer me to another doctor who wants to do more tests, all of which takes more time and more money for what? Just to tell me that I have fibro & CFS and that there is nothing, aside from what is already being done, that can be done for me. I feel like a wasted person, a lost cause. Because there is so much that I cannot do because of these stupid diseases.

Starr

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
6/13/12 12:44 A

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Hi Starr,

I was where you were about 9-10 years ago and I can tell you that it gets better. Everyone has a different journey with CFS and Fibro so the solutions are different fore everyone. I discovered that 1) my body speaks to me and 2) I need to listen. that sometimes means doing things I don't want to do, yet need to do. You will figure it out. Don't give up.

Jacqueine

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PICKIE98's Photo PICKIE98 SparkPoints: (264,648)
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6/12/12 2:58 P

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A whole new level of pain today: The only way I can describe this one is it feels exactly like a crucifixion. Hot, metal spikes being thrust into the tops of my feet and hands, through each finger,from end to end. cannot stay on here longer..

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6/6/12 3:06 P

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I think you are both right about the barometric pressure,, it has affected my arthritis for 38 years and now this,, every pressure point,every joint are being stabbed with hot electric needles about every five minutes.. As far as the joints locking up, I take glucosamine and chondroitin with MSM to keep them as lubricated as my bod will work to do,, but slow movement, like when sitting in a chair, lifting legs and bending elbows, seems to keep me loose.. I have noticed locking up on my legs lately,,

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COOPER1971 SparkPoints: (85)
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6/6/12 7:15 A

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the weather and barometric pressure are my worst enemies.. I am a human barometer for sure and feel that most of the Fibro people suffer the same. I am fighting with the Social Security people as I am unable to work due to my constant pain. Im in so much pain that they wallow me 6 Hydrocodones a day plus tramadol every 6 hours

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6/5/12 7:08 P

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I have noticed my FM flare ups have sometimes been caused by the weather and high pressure where I live, right now it is raining and had a drop in temperature from yesterday. My FM and RA are acting up horribly today to the point that I can only really sit and try to stay warm otherwise my joints will lock up. Other days it can be caused by what I am eating, I am allergic to wheat and when I am around it (if it is airborne) my FM and RA will act up. I am trying to find out how prevent my joints from locking up as much, does anyone have any suggestions?

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6/5/12 3:18 P

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I feel like Starr: I am in the second day of a total body flareup.. took me five mintues to type that last sentence..
Pain pills do not relieve it, merely knock me out,, but thees hot, electric needles shooting through every bone, joint and deep tissue have not stopped since SUnday night..
not sure what I will do,, cannot afford to be home from work,, working in pain sucks too.. I'll toss a coin,, going to take a pill and chill..

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JAMER123's Photo JAMER123 SparkPoints: (207,126)
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5/27/12 3:32 P

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Having it checked out by a Dr. is the best way to find out information. If it doesn't seem like the Fibro pain, then find out what the cause may be. There is also deep tissue massage that helps with the pain but you have to find the RIGHT therapist who knows about FM and how to work with it! My therapist always asks me when I walk in "Now where is the most discomfort for you?" She knows it frequently changes. My Dr. has a lot of confidence in the massage therapy. Good luck on finding some comfort for you!

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

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DEADEND-DREAMER's Photo DEADEND-DREAMER Posts: 1,971
5/27/12 2:07 P

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I agree with Kathy. Though I have pain that comes and goes on a regular basis it's a good idea to have it checked. My daughter has knee pain that comes and goes caused by a small bit of bone she has floating around in there.
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~Dianna in WA is running to the light!

Challenged with fibromyalgia, diabetes T2, Myofascial pain syndrome, Osteo-Arthritis, chronic bursitis, glaucoma and severe dry eyes.

Medication reduced to 1 - 500mg tablet of metformin daily.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
5/27/12 1:15 P

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It's not uncommon for fibromyalgia pain to pick an area and concentrate on it for a bit, before moving somewhere else... but it's also not uncommon for fibromyalgia symptoms to mask a real problem.

Just an example, I had a similar issue with intermittent pain in my shoulders, and wrote if off as the fibro--but it got bad enough one night that I landed in the ER and they took xrays--and found hard calcium deposits in the muscles and tendons! The pain was intermittent because they'd shift and put pressure on a nerve, and then they'd shift again... the deposits were due to a parathyroid issue which in turn was caused by a vitamin D deficiency related to my kidney disease...

Sometimes, it pays to call your doctor and rule out any possible problems.

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

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5/26/12 10:47 P

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Hi Starr~~
I do have pains that just "pop up" when ever and where ever it wants. For the most part, I have the most problem with my entire back. Also, with the the neuropathy in my feet that is there most the time, but I really prefer my feet to be cold as the heat makes them swell and painful whereas the cold decreases the pain. A person never knows where the FM is going to show up.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

"Be not afraid of going slow; be afraid if standing still" (Chinese Proverb)

With God all things are possible.

If you have the courage to begin, you have the courage to succeed.
~ David Viscott

MN. Sparks Fat Kickers Team Leader www.sparkpeople.com/myspark/


 
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SASSYTHING52's Photo SASSYTHING52 Posts: 10,750
5/26/12 10:34 P

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mines been hurting like that last couple days i was afraid my knees was going out i thought im 60 i guess thats not too young

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TEENYSMOM's Photo TEENYSMOM Posts: 4,081
5/26/12 10:03 P

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Hello everyone, I was diagnosed with fibro & CFS just over 2 years ago, but have just discovered a "new" pain this week. And it just about has me unable to walk. It is a really bad pain in my left knee. As far as I know, I have not done anything bad or "weird" to my knee, but it sure does feel that way.........most of the time. But I don't understand how it can be killing me with pain one minute and be fine the next and then an hour later be fine again. Or one day hurt all day, and very little or not at all the next day. How do pains just pop-up and then go away like that? It makes me think that people think that my pain is all in my "head". But I know that you all know that my pain is NOT in my head!! Don't get me wrong, I am glad that the pain is not there all the time, like it is with other parts of my body, but it is just strange for it to pop in and out like that.

I am SO SICK of Fibro & CFS.....I hate, hate, hate them!!!!!

~~Starr~~

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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