The worse part I have found is that you can't rest when you have an autistic son, a daughter with severe allergies and exczema and a wild 3 year old. I'm always on the run. My husband works all week and is only home on weekends. I just want to get some of my life back but I can't seem to catch up. One thing I have found you tell someone what you have and they seem to think you are crazy. Or if you would just get off your butt and exercise you would feel better. lol Ok i'll try that the next time I'm not so tired and not in so much pain. lol
Fatigue: gently exercising (QiGong, yoga, belly dance, water walking)
Pain: massage therapy; warm baths with epsom salts, baking soda, and sea salt; the steam room and heated therapy pool are great.
For both, I have found that minimizing stress, and minimizing my reactions to stress, have been essential in reducing fatigue and pain.
I slowly got rid of toxic/drama people in my life and focused on the ones that were supportive, good people. It wasn't until I eliminated them from my life that I realized what an energy sinkhole they were.
I have found that meditation is really helpful for reducing my stress, and studies have shown a positive correlation to our perceptions of pain.
I've learned to delegate, and to ask for help.
I hope some of this was helpful!
You must be the change you want to see in the world -- Gandhi
Pain and fatigue are constant companions for those of us with fibro but they can be managed. Listen to your body. Never make major abrupt changes to your diet or exercise...introduce change slowly. Get restorative sleep. Understand that sometimes the fatigue is actually pain but since your brain has an overload button, it will save you from intense pain by exhausting you so that you quit pushing it past its limits. It seems counter intuitive but exercise helps both pain and fatigue. Since I have been on bed rest until the back rebuild, my fibro has been vicious - because I am not moving. Stretching every day helps. Check your vitamins, especially magnesium. Water exercise, and warm baths soothe as do massage. With massage, you think it will feel better if someone digs in there deeply but it has to be fairly light or you'll trigger more pain. Energy work like Reiki or quantum touch helps. Meditation does, too. Many things help for a while but then the fibro will morph and you'll have to use a different type of coping mechanism. Treating yourself with kindness, gentleness and loving respect instead of being agitated and angry about the unfairness of having this helps. Recognizing that you are not Super mega Woman (or Man) and making others in your life share the work and responsibilities will help - most of us are Type As or Type A+++ personality types. Resign from your job as Ruler of the Universe and The Fixer of everything for everyone. Most of us have been victimized or abused, physically or psychologically, keeping our bodies in a state of fight or flight and burning out our adrenals, so working on a healthy dose of self respect and self esteem actually do help. Educate yourself and work with health care professionals who understand fibro. Refuse to accept treatment from anyone that is not kind and respectful- and that means from yourself, too! Fibro is a very real, serious physiological problem but your attitude and education affect its destructive properties. Whenever your system is threatened - when you get ill, have surgery, are under more than usual stress, the fibro will flare. Mine has been very well managed until January when some new and serious health issued manifested. I was diagnosed with fibro 25 years ago, when it was first recognized as a syndrome, though I'd had it for years before that. I have used every conventional and alternative method known to man to fight it and have taken every medication every prescribed for it. Trust me, you can manage fibromyalgia and live a great life but the first step is to make yourself your priority - probably for the first time in your life.
Martha Central Time Zone (1 hour slower than EST) I wish you all JOY and the fulfillment of your dreams. Baby Step Spark People Team Co Leader Fighting Fibromyalgia Team Co Leader Spirited Underdogs Challenge Team EL
I firmly believe in Pacing yourself and listening to what your body is telling you. I sometimes have to push through and I always pay for it BIG TIME. People can't see fibro and don't understand how it effect each one of us differently.
I have finally, finally learned to STOP as soon as the "fibro" fatigue hits. If I can just STOP and rest for a good 30-45min, I can avoid an episode. I don't like to stop, but years of disobeying my body and trying to push isn't worth it. Then I get the pain and the fatigue. Stretching out in the community pool seems to help the pain. I get in the deep water and just stand there, lightly treading. It helps me elongate my sore muscles and stretch gently without a lot of effort. Of course you have the exhaustion of getting dressing after the pool stuff, but if you sit in the dressing room, wrapped in a towel, you can get back together in stages and take as long as you need. I also find for me the resting needs to be in a recliner, if possible, with my feet up. If I stop as soon as I need to, I really can avoid an episode. Hang in there. It's such an inconvenient illness, isn't it? Gentle hugs to all. Barb
The scale doesn't determine who I am. It is made of metal, nuts and bolts. It has no feelings, no compassion.
My worth comes from who I am in Christ Jesus. I mess up too much on my own, but I can do everything with God's help.
I have had an account for a pretty good while, but I am just now starting to get active.... it has been so wonderful to be able to "talk" to people who are going through or have gone through the same thing. Before this, I found the land of fibromyalgia to be such a lonely place :(
I am not sure which is worse for me, the pain or the fatigue. I have tried all sorts of things... some work for a while and then stop, others never make me feel any better. What are your best "weapons" that you have found to fight the pain and the fatigue?
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