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2/23/13 10:14 P

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I too have a elevated CRP, ESR, diagnosed with fibro, Sjrogrens, arthrits and I have a COLD auto antibody. I have also had a reactive RA,ANA, SSA. I find that it is hard to get anyone to take my symptoms seriously. I also have Hashimoto thyroiditis and Hyperparathyroidism. Recently I have been having long periods of nausea and vommiting. Last week I had to go to the Urgent care at work and have two liters of fluid infused due to dehydration but yet my PCP keeps saying it is a virus. Can't believe I get that many viruses. I do have a history of gastritis so I will consult a gastro doc on my own. Anyway I need to lose this weight because it is killing my joints among other things!

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DOTSLADY's Photo DOTSLADY Posts: 10,018
2/22/13 11:08 A

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Way to go BEWITCHEDFENCER! Thanks for sharing. Continued wellness to you.

I just got a new hsCRP report: it's down to 1.3. emoticon emoticon emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
1/26/13 1:59 A

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Don't really know, I'll ask my oncologist if that's something she checks for, sine it's not on my other doctors' lab reports...

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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BEWITCHEDFENCER's Photo BEWITCHEDFENCER SparkPoints: (1,170)
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1/17/13 10:33 P

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I have been diagnosed with fibromyalgia for 11 years. My most recent doctor has been the one that has helped me the most and the main thing that he did for me was eliminate gluten from my diet. According to him a huge percentage of individuals with fibro are gluten intolerant. Since I stopped eating gluten I have felt so much better. I would recommend it to anyone looking for something to reduce inflammation or to feel better in general. Really. This helps so much!

DOTSLADY's Photo DOTSLADY Posts: 10,018
12/2/12 11:13 A

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Just wanted to make mention that I lowered my hsCRP FINALLY after trying different things. I quit eating foods that made my body hurt. I was once at 11 or 12 and now am under the "normal" reference range with a emoticon 2!!!!! emoticon . TYVM! emoticon

Consider an elimination diet and see if it helps. If it does, please come back and post as it might help someone else.


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
4/10/12 11:58 A

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My understanding is that the CRP is only an indicator of inflammation--NOT a diagnosis necessarily, since it has to be evaluated in conjunction with any other symptoms, blood tests and so on... if your cardiologist says it's okay and the second tests are coming back negative, I don't think I'd worry too much since he IS staying on top of it. Of course, if you don't trust him, you can always take the test results to another cardiologist... depends on what your insurance will allow, I suppose.
emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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ALASKASKY's Photo ALASKASKY Posts: 6,159
4/9/12 9:08 A

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I'm so glad you all are discussing CRP. My cardiologist runs the test and it always comes back high. But all he does is rerun the test and then it comes back negative. I'm confused about this. I keep asking what it means and I get the same answer you may have had some inflammation but nothing to worry about. What? CRP is also used to measure risk of heart attack...hello doc you are a cardiologist and I do have heart issues. I've been to a rheumatologist but all he did was prescribe expensive meds that made me sick. So I stopped going to him because I want an answer. I'll keep looking. That water therapy sounds like what I need. I did it once before and I felt better.

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4/8/12 11:24 A

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I have had a high CRP for years and now my ANA, RA are positive along with the SSA. My ESR is up and down. I went for a second opinion because the 1st Rheumy blew me off even with my positive blood test. I went to a new rheumy practice last Thursday and saw the RPA and I was so impressed that he took his time with me and really listened and looked at all my test results. He re-ordered a few test and based on the other test he said I definitely have arthritis, Fibro and probably Sjogrens. He is waiting on documentation from my eye doctor to officially call it sjogrens (he treated me for dry eyes) He also gave me a script for pool therapy. I think I will go to the YMCA and get started in the pool. My physical therapy through my job is booked up until 4/23 for the initial evaluation so it will be several weeks before I start PT. I do not want to go through anyone else because I do not have to pay a co-pay since I work for the same organization. Well I hope everyone had a great Easter!!!! emoticon

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DOTSLADY's Photo DOTSLADY Posts: 10,018
4/8/12 10:42 A

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Thanks for the thoughtful reply Kathy. I'm so glad you are getting some help with changes in care.

So, do you think your level is associated with your pain? That's really the crux of the question I'm wondering about.


KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
4/6/12 11:54 A

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Yeah, there is an inflammatory component to fibromyalgia. Inflammation is a natural response to injury or invasion, a part of the body's immune system response. CRP testing is another way to check for infection, and for the presence of certain rheumatoid type diseases (lupus, for example), as well as a test for the effectiveness of treatment efforts in various ailments... well, here's a link to one of the many web info sources, and you can read it out for yourself. One thing to keep in mind though, is that pretty much EVERY disease, injury, or illness is going to affect the CRP levels-- they all cause the CRP levels to spike and ebb...

www.webmd.com/a-to-z-guides/c-reacti
ve
-protein-crp

If I recall correctly, the category for fibromyalgia is changing... and perhaps rightly so... from a rheumatologist's venue (an inflammatory disease specialist) to the field of neurology. And I have to admit, sadly, that though I got some good advice from my rheumatologist, my neurologist's treatment program contained many of the same components, but with a different approach that was actually a lot more effective... Instead of sending me to physical therapy with someone whose main concentration was working with sports injuries and arthritic issues, he sent me to a physical therapy clinic that worked specifically with people who deal with brain and spinal injuries.

WOW, WHAT A DIFFERENCE! Now, granted, I have neuropathy related to something other than fibromyalgia (which is why I was referred to the neurologist), we did a lot of talking, and it turns out that he gets a LOT of fibromyalgia patients, and it was a really eye-opening experience. He and the PT specialist taught me SO much. And the exercises I was given were specifically designed to retrain and retain as much of the nerve function as possible... and my pain levels are a LOT easier to control!

Of course, all the same rules about not overdoing are still in place... LOL It's way too easy, when you start feeling better, to go into hyperdrive, where most of us seem to have lived before the FM hit us... emoticon

I guess what I'm trying to say is that CRP is only one small component of a larger and much more complex picture... It's important, yes, but if it were me, I wouldn't get too hung up on one particular measurement... especially when it's subject to interpretation, and three days later it could be totally different...

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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DOTSLADY's Photo DOTSLADY Posts: 10,018
4/2/12 11:16 P

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thanks, sarah. do you think your level is associated with your pain?

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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SARAHTAIT's Photo SARAHTAIT Posts: 25,763
4/2/12 3:28 P

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I have a high CRP too...it is a sign of inflammation or infection in the body...makes me wonder if fibro is some kind of inflammatory type disease.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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DOTSLADY's Photo DOTSLADY Posts: 10,018
4/2/12 12:58 P

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bit.ly/fibroaltmedicine

I went looking online and found this article from alternative medicine. emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DOTSLADY's Photo DOTSLADY Posts: 10,018
4/2/12 12:26 P

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I'm thinking the higher your C-reactive protein level, the more pain you're in?

Mine's been as high as 10-12, now it's down to 3.9 which is still too high (I've read you want way under 3 as much as possible). I read that it's associated with inflammation and infection, but not pain per-se. But with inflammation comes pain, so duh.

Mayo Clinic doesn't think it's related, and it's articles like this which have swayed my research into NOT thinking about it that way. bit.ly/HfmTCo

Quote:
"Various conditions can cause elevated ESR and CRP levels, including:

1. Infection
2. Rheumatoid arthritis
3. Inflammatory bowel disease
4. Cardiovascular disease
5. Cancer"


1. As far as I know, I don't have an infection anywhere - wouldn't my white blood cell count be high?

2. RA does run on my paternal side. But I don't have it that I know of. I may have osteo ... I haven't had an ESR in a long time, but it was negative when I did it.

3. Inflammatory bowel - well, I'm in my 6th year of getting diagnosed with celiac disease and I know I still have a leaky gut per urine and blood tests.

4. Cardiovascular disease. I don't think so. I had a heart attack in 2010 and my cath was clean. I could and might get a CT scan at some point to verify lack of calcium build up, though. I have a history of eating the SAD with emphasis on gluten and dairy - hence my heart problem, I dunno. After the heart attack is when I went dairy-free and is when more pain subsided. I continue to have idiopathic palpitations.

5. I don't have cancer.

FWIW, I think my pain is food associated. When my CRP was highest I was gluten-free (in a SAD-type diet way) and having dairy. When I quit gluten, my pain got better (w/sunshine), and I turned to eating more dairy, mostly yogurt and 1/2 and 1/2 or cream in coffee. When I had my highest CRP it was tested in January after the holidays and still eating dairy. When I quit dairy, my pain got better, too. FYI.

What do you think? What's your experience? Do you eat gluten and dairy or not, and can you say it affected your pain levels if you took them out of your diet?
emoticon


Edited by: DOTSLADY at: 4/2/2012 (12:51)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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