Author: Sorting Last Post on Top ↓ Message:
MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
3/1/12 8:36 P

My SparkPage
Send Private Message
Reply
Prednisone isn't usually helpful with fibro but for RA it is a godsend. I used Plaquenil very early on for RA but never for fibro. Ask for different meds; there are so many that are potentially more helpful. I take Lyrica and Savella, supplemented with Vicodin.

Martha
Central Time Zone
(1 hour slower than EST)
I wish you all JOY and the fulfillment of your dreams.
Baby Step Spark People Team Co Leader
Fighting Fibromyalgia Team Co Leader
Spirited Underdogs Challenge Team
EL


 Pounds lost: 5.0 
 
0
11.25
22.5
33.75
45
VALMARK's Photo VALMARK Posts: 147
2/26/12 10:16 A

My SparkPage
Send Private Message
Reply
Can anyone on this forum get Proproxyphene? It was the only drug that has ever helped me with the pain/fatigue of fibromyalgia. They took it off the market in America. I'm not sure why. I'm taking lots of hydrocodone APAP 10/325 along with Gabapentin together but the drugs only last about 3 hours which makes for a long day. I've been a sufferer for 12 years now. I miss the longer hours of being pain free between doses of Proproxyphene. Anyone here from Canada or Mexico?

"People will forget what you said, people will forget what you did, but people will never forget how you made them feel." ~Maya Angelou

http://www.mckenna.com/default.aspx?pi
d=9


 Pounds lost: 0.0 
 
0
13.5
27
40.5
54
I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
2/26/12 3:03 A

My SparkPage
Send Private Message
Reply
I started having visual effects with the Plaquenil and was taken off it--not by the rheumatologist who prescribed it, but by my opthalmologist, she didn't like it. I'm diabetic, and the kind of changes going on... and when I told my rheumy, he agreed. He did tell me that steroids don't usually have any affect on fibro, so if you're getting relief from the symptoms, they are not from the FM... Fibro is neurological, not inflammatory, and prednisone is an anti-inflammatory. You might want to do some research and confirm that, I haven't looked into at this point yet. But is sounds to me like if it isn't really helping, you should consult your doctor. Don't try going off it on your own, PLEASE! It must be done under medical supervision, as just stopping can cause some serious systemic side effects!...

And good luck, m'dear. I hope you can find a way of dealing with the symptoms that will help!
do check out some of the older threads for ideas...
Kathy emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


 Pounds lost: 42.0 
 
0
21.25
42.5
63.75
85
SEEKER4PEACE's Photo SEEKER4PEACE SparkPoints: (90)
Fitness Minutes: (0)
Posts: 8
2/25/12 7:18 P

My SparkPage
Send Private Message
Reply
I have concerns about my FM medications. I've been on a low-dose course of prednisone and high dose of Plaquenil for almost a year. I've seen my weight steadily climb despite diet & exercise, swelling in my face and neck, and lots of difficulty sleeping. I've also been warned that prednisone can cause cataracts and Plaquenil can cause other vision problems, heart problems, etc. I'm not even sure that either has been that effective.

Does anyone have experience, advice, insights about either of these meds (Prednisone, Plaquenil)? My doctor has commented that I'm not likely to lose weight while on either, despite my efforts. Does anyone know a way to counteract the weight gain of these meds?

"The journey of a thousand miles begins with a single step."


 Pounds lost: 4.6 
 
0
17.5
35
52.5
70
I.M.MAGIC's Photo I.M.MAGIC Posts: 12,841
2/20/12 8:28 P

My SparkPage
Send Private Message
Reply
Vitamin D, oh YEAH! lol

I have CKD... which means for some like me that SEVERE vitamin D deficiencies can be problematic. I was taking 50,000 iu of vitamin D2, and it wasn't enough. Now I take 4000 mgs of D3 daily, PLUS .025 mcg of Calcitriol (the hormone version which is the end product of ingesting vitamin D2 & D3) three times a week... and waiting to see if it helps. Testing is in a few months, since it takes that long to make a difference...

Do get checked, it does affect the fibro too!

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


 Pounds lost: 42.0 
 
0
21.25
42.5
63.75
85
ROTTLADY's Photo ROTTLADY SparkPoints: (43,095)
Fitness Minutes: (25,410)
Posts: 4,525
2/20/12 4:52 P

My SparkPage
Send Private Message
Reply
My firbro and other neuro issues have on max dose of Lyrica and some other neuro meds. Nothing works the same for each of us and it also makes pain management a nightmare!


 current weight: 243.0 
 
294
270.5
247
223.5
200
MOON.NSTARS's Photo MOON.NSTARS SparkPoints: (7,177)
Fitness Minutes: (3,397)
Posts: 507
2/20/12 2:08 P

My SparkPage
Send Private Message
Reply
Hello,

Have you tried gabapentin? It's an anti-seizure med, but it also works for people with FM. The 'regular' FM meds aren't covered by my prescription insurance, so this is the only one I've been on. I've only been on it a week, but it's definitely working. If you decide to try it, make sure you follow your doctor's instructions on how to take it. I had to start out with taking one 100 mg capsule once a day and I will be working up to 3 100 mg capsules three times a day. I increase what I take one pill at a time and have to wait 2-3 days before I add another one.

Have you had your Vit. D level checked? Most doctors don't include it when they order lab work, so you have to request it. Low levels can increase your pain levels, especially deep bone pain. Mine was pretty low last fall and since I started taking 2,000 IU a day, the bone pain in my legs has stopped. It took about a month before it went away, but it hasn't come back since then.

emoticon I hope you will soon find a few things that help you. Walking your puppy is a great way to keep from being inactive.



 current weight: 270.0 
 
270
257.5
245
232.5
220
PAMSCHWETZ SparkPoints: (20,705)
Fitness Minutes: (13,676)
Posts: 47
2/20/12 1:36 P

My SparkPage
Send Private Message
Reply
heat and topical pain relievers like icy hot,muscle rub seem to help some....also I get dried cherries from Aldi. I heard they are anti inflammatory and safer than taking ibuprofen or naproxen or aspirin or aleve which I alternate when needed...My doctor has me on gabapentin three times per day. It is supposed to help with the pain and I have numbness and tingling too...I have been on that awhile now and seemed to notice a little difference in the numbness tingling department like it seemed to be helping but I don't notice much help pain wise....I feel like I am just getting used to living with the pain...I tried doing a fifteen minute walking exercise I found on RealAge.com you can watch online for free that seeemed to help cuz I was not able to do any type of exercise due to too much pain and I seem to feel better when I make myself try to do that. It goes by fast and I am able to do the simple moves. My range of motion is not much but I do what I can. I also have osteoarthritis in my knees and hips and ankles....ugh...I mostly rest but try to get some type of exercise that does not cause pain but actually helps get through it...if it starts to hurt while doing it pace yourself and go slower or stop. Hope some of this information may help my fellow fibro sufferers here.



Total SparkPoints: 20,705
 
20,000
21,249
22,499
23,749
24,999
SparkPoints Level 13
HIPCHICK717 Posts: 29
2/20/12 12:13 P

Send Private Message
Reply
I wish that I could offer some help. I take 150mg Lyrica twice a day, 25 mg savella twice a day and provigil to keep me alert enough to work. Vicodin as need for pain...the struggle is never ending. I exercise everyday and it helps a lot. I had to push and learn what works for me. It's been sixteen long years and my employer has kept in the same position all that time because I can't do enough to "shine" like I used to. Acceptance of yourself is key. I'm so sorry that you are having a hard time, but you have found the right place. There are sooo many of us reaching out to help. Keep stong!

 current weight: 181.0 
 
188
178.5
169
159.5
150
SARAHTAIT's Photo SARAHTAIT Posts: 26,276
2/20/12 11:12 A

My SparkPage
Send Private Message
Reply
Fibro is so hard to treat....meds that help one person don't help another. So sorry to hear that you are having to struggle to keep working. I can tell you that I took ultra for years which helped me keep working....it is non narcotic but greatly helped my pain.

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


Leader:

Yorkie Lovers

Fibro Sisters


 current weight: 180.0 
 
268
237.25
206.5
175.75
145
CAROLHARMON's Photo CAROLHARMON Posts: 354
2/20/12 10:50 A

My SparkPage
Send Private Message
Reply
Hi, I am sorry to hear about yoour trouble with pain meds. My Dr. has me on 75mg of lycria two times a day and cymbalta two times a day. I cqn take Naproxim when needed nd if that does not work vicodon. I try to stay away from the last two but some times I need it. You re in the right group for lots of info and friends to help you with infromation. Hang in there and talk to your dr. emoticon emoticon

 current weight: 262.8 
 
262.8
227.1
191.4
155.7
120
50AND2FAT's Photo 50AND2FAT Posts: 46
2/20/12 10:36 A

My SparkPage
Send Private Message
Reply
I was diagnosed with Fibromyalgia 25 years ago. I have been through more pills than I could ever count. My weight makes it worse but not taking meds to get some relief seems not an option. Lyrica helped tremendously but the dosage/taking it in the day makes me sleepy and cannot keep a job. Unfortunately I was turned down for SS disability in 1990 when they thought it was all in my head. I now cannot get it because I went the past 20 years not making enough to qualify. So I am trying to work but I just do not have it in me to not show I am in so much pain 24/7. I feel let down by the medical community and it makes my depression hard to hide. I am now checking out some alternative solutions. I am trying to meditate at least one time a day. I also am adding unsweetened cherry juice concentrate in what I drink(water/crystal light, etc). I heard it is an anti-inflammatory and it seems to help. I walk my new puppy every day. I think if I had a fibro buddy it would help keep me on the spark-plan to lose weight. Anyone have any answers?

 current weight: 235.0 
 
235
226.25
217.5
208.75
200
Page: 1 of (1)  

Report Innappropriate Post

Other Fighting Fibromyalgia General Team Discussion Forum Posts

Topics: Last Post:
What to eat?!? 12/30/2013 4:09:01 PM
Changes coming. 8/10/2014 3:39:22 PM
So proud of myself 10/6/2014 11:49:56 PM
I'm back! 3/27/2014 11:18:15 PM
Ideas to battle boughts of fatigue ? 5/2/2014 7:22:51 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x41x46674995

Review our Community Guidelines