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BEKAHBELL's Photo BEKAHBELL SparkPoints: (7,387)
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3/5/12 1:32 A

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hey girls. sorry, I kind of dissapeared. haven't been to spark people much. Things are going pretty well with me now, my whole family had a horrible virus that we've been dealing with for the past 3 weeks now. Thankfully it's mostly gone. My little one was left with an ear infection. Fibro is pretty mild right now. I've been taking my supplements and herbs & still on meloxicam. I do not have much pain to speak of. I have energy too, although not a "normal" amount.

Bekah :o)



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PICKIE98's Photo PICKIE98 SparkPoints: (276,905)
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3/2/12 3:17 P

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I have been in constant pain for a few weeks, but yesterday, I could not move,, had to work all day,, I thought I might pas out with the pain,, I take Tramadol only when I am near a place to sleep.. I have no other pain meds except Ibuprofin which I take nightly to get me to sleep for a couple hours just so I CAN work. Yesterday I took two Vicodin, one Ibuprofin and the pain was still indescribable. Everything on my body hurt except my face and hair.

Today it is slightly better, but I am going to make the call to my doc to get some pain management things from him. My nuerosurgeon diagnosed me with three bulging discs connecting C and L spine, so the arthritis and fibro are now merging with that..
The good news is:my carpal tunnel surgery went great and that is the best body part I now have,, my wrist!!
I am going to start scheduling those hot stone massages again,, one a week...

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3/2/12 12:49 P

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How is everyone doing? It's been a couple of weeks since anyone's posted here. I hope you're all doing well and everyone in your homes are healthy. We had a nasty stomach flu go through our house, but (thank goodness) it only lasted a couple of days for each of us. I've been in a flare the last couple of days. Work has been crazy and everyone's stressed out...everyone who works in public schools, kids, and parents. The teachers in BC are all going on strike, so school will be closed Mon - Wed. I should find out today whether or not I'm working those days. Add to that the way our weather's going...in the last week, we've had sun, snow, and rain and the temps have gone from below freezing to almost 50.* Today we have rain and tomorrow it's rain, snow, or both.

Martha - How did your biopsy go? Have you gotten results yet?

I hope you all have a great day!



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MOON.NSTARS's Photo MOON.NSTARS SparkPoints: (7,177)
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2/19/12 12:31 P

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emoticon I hope you feel better soon, Sarah. I'm having a rough day, too. I haven't completely adjusted to my new meds, and I've found out the hard way that I can't tell where that invisible line is. I did WAY too much yesterday and I'm paying for it now emoticon



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SARAHTAIT's Photo SARAHTAIT Posts: 26,036
2/18/12 12:07 P

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I'm struggling these days...winter is rough on me but these past few weeks have been the pits. I am fatigued and my pain level is beyond belief. Nothing is helping the pain levels right now.
My mood is so low and I know things can only go up from here!!!

"In all these things we are more than conquerors through him who loved us"
Romans 8:37


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2/17/12 2:34 P

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Hello everyone

I'm doing GREAT! New meds seem to be working and I have a 3 day weekend. Hope you're all feeling well and your weather is cooperating. It's been raining a lot lately, but it's not raining here today, so I'm happy.

How are all of you?



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2/13/12 9:12 P

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I am emoticon ...very busy day today, and tomorrow will be about as busy. I've done laundry, a lot of homework, went grocery shopping, ran a few errands, spent about an hour redirecting DS11 every couple of minutes (he was supposed to be doing dishes, but DH's video game was more entertaining than the sink), and most likely a few other things I've forgotten. I know I'll be paying for it tomorrow, but sometimes there just isn't much you can do about it.

Hope you're all having a great start to your week!



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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
2/12/12 11:28 A

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I hate the cold. I'm dealing with a lot more health issues than usual and am having a needle biopsy tomorrow for kidney issues. I already had enough. Like Kathy, I'm 57 and have been on disability for years, so I'm also on Medicare. I've three herniated discs (lumbar) and had cervical ones that required surgery. Getting weight off and careful exercise are managing the rest. I went to PT to learn the right ones to do - which could help you, Pickie.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
2/10/12 11:29 P

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Good luck with that, m'dear.

I'm 58 and on Medicare because of multiple medical issues (duh! LOL) but it took three years and a court hearing to get. You might want to think about starting the application process now...

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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2/10/12 11:28 P

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Hello emoticon

I'm doing pretty well today (a very nice surprise with the way the past several days have gone!). I went to the doctor after work for a refill, and asked if there was anything else I could try. He's put me on gabapentin, so I'm hoping things will be more under control soon. He also believes my speech and concentration problems are due to the toll my pain levels are taking on me. I'm keeping my fingers crossed that this will work well for me...there are so many things I've had to give up because of FM. I don't expect to get everything back, but it would be so good to have some of them.

Pickie - emoticon I'm so sorry you're having to deal with this on top of FM. I had spinal stenosis (x2) and two herniated discs in my lower back several years ago. I put off surgery for a year, but finally had to give in when it got to the point where I couldn't walk. What is your doctor having you do for it?

Kathy - I've been present when people have had to be taken to the ER in an ambulance because of a severe blood sugar crash. It's a very scary thing to witness, and a lot of the time, the people who had the blood sugar crash didn't remember anything that happened during it. emoticon I hope it doesn't happen like that for you.

As for the Vitamin D & B, I have had my D level checked a couple of times. Low levels of D can cause us to have more pain (specifically, deep bone pain). Mine was low the first time I requested it be checked, and my doctor has had me take 2000 IU daily since then. I had it rechecked a few weeks ago and had just barely made it up to the normal range. Since I've started taking it, the bone pain in my legs has completely stopped. I still have the skin and muscle pain, but every little bit helps emoticon

I hope you all get a good night's sleep and you have a great weekend! Meds are kicking in, so I'm off to bed.



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PICKIE98's Photo PICKIE98 SparkPoints: (276,905)
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2/10/12 1:03 P

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No, but I watched Dr. Oz yesterday and they suggested Vit B complex daily along with Vit D..
Kathy, MRI turned out that i have three bulging discs,, no tumors or growths so far.. he said the fibro is exaggerating the pain,, not being snarky, he means that it makes it feel worse than a non fibro or arthritic person like me would feel.. still kept the `10# weight lifting in effect for work though.. home too..
I was flabbergasted over the bulging discs,, right at C-L connection too,, next step is three ruptured discs,,
thank you all for your concern and prayers,, I absolutely HAVE to work another seven years to be eligible for Medicare.. if I retire now, I have no medical coverage,,,

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
2/9/12 9:48 P

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I have sugar every now and then. I have to. I'm diabetic! LOL

sounds weird, I know, but glucose or dextrose is the only thing that will raise a crashed blood glucose level fast enough to keep me out of the ER... I will have an occasional treat (a two inch piece of birthday or wedding cake, for instance) but I don't make a habit of it.

The thing I have problems with is partly due to vitamin deficiencies--specifically, B12 and D... you wouldn't BELIEVE how much I have had to take--and I'm STILL tired, just better than I was. The pain is another issue entirely!...

Have any of you been checked?
Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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2/8/12 6:47 P

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Yesterday went really well...just about as good of a birthday as I could get emoticon I overdid it today, though...went clothes shopping for myself at the thrift store after work. No benches in the regular stalls, and my pain level shot up while I was trying things on. Ended up with some good deals and I'll be putting them in the washer once my pain meds kick in. Hope you all have a lovely evening!



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BEKAHBELL's Photo BEKAHBELL SparkPoints: (7,387)
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2/8/12 11:23 A

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I've gotta tell you guys, last monday I gave up sugar again (well, added sugar) and again I have noticed a huge increace in enegry! I still have to be careful. I did too much on Monday, running around town doing errands, and then running kids various places. I had back pain that night & was really tired & out of it. had a hard time waking up (as usual) and was slow in the morning, but then was ok! Didn't take nearly as long to "recover" from a stressful day. a few months ago I would have been on the couch for 2 days after a stressful day. I also added a B complex supplement, so that may be helping as well.

Bekah :o)



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2/6/12 11:28 P

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I felt pretty good for most of the day. Fibro-fog hit this afternoon and things went downhill until about half an hour ago. I'm feeling quite a bit better now, though.



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2/6/12 2:09 P

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I did almost nothing all weekend,, work today was lots of pain,, all meds make me drowsy, so no pain meds, including ibuprofin or anything,, utnil I get home for the day,, I fall asleep in the chair ten minutes after taking a 200mg Ibuprofin. Still have pain when I awake, but nothing gets accomplished if I take it..
still no snow here today, but it is in the high 30's.

Edited by: PICKIE98 at: 2/6/2012 (14:10)
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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
2/6/12 1:09 P

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Yesterday was gruesome with very high pain levels and very low energy. I'm a bit better today and have my infusion in an hour.

Martha
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I wish you all JOY and the fulfillment of your dreams.
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NELLIEBLUE's Photo NELLIEBLUE Posts: 1,022
2/5/12 12:14 A

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I stay at home all the time and still forget my meds some, the other day I was feeling so bad and I looked and I had forgot meds from the night before.


Both of you have a good weekend suppose to be 51 tomorrow.

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2/4/12 1:01 P

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Forgot to mention, I'm having a MUCH better day today. I listened to DH and did the smart thing yesterday evening. I took the highest dose of pain meds the doctor said I can take, instead of half (or less, which is what I normally do). I had a good night's sleep and I'm sticking to regular tylenol this morning emoticon

Hope you all have a lovely weekend with beautiful weather. We have emoticon and temps in the 40s.



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2/4/12 12:14 P

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It wouldn't surprise me if there was. There seem to be apps for just about everything. Good thing I'm happy with my phone...the biggest feature is the slide-out keyboard lol WAY too much temptation with anything more advanced than that.

Do you have a secure place at work (a locked drawer?) where you can keep your purse? You could have a small container in your purse with one day's/morning's worth of meds so you'd have it on you if you forget it.



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BEKAHBELL's Photo BEKAHBELL SparkPoints: (7,387)
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2/4/12 2:27 A

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I was just thinking today I wonder if there is an app to remind you to take your meds/supplements. I need one! I forgot this morning (well, I didn't eat much breakfast, so I was waiting till lunch) then left home & forgot!!

Bekah :o)



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2/2/12 1:14 P

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I've thought about getting a pill holder that has slots for different times of the day. When I bought mine, I wasn't taking very much. Now, I can't fit my meds plus a multivitamin in what I'm using. The main drawback for me is it would take up more space.

I hope the checklist works for you! Just make sure you remember to use it emoticon I've had plenty of days when I've written out my checklist and either forgotten to use it or I've forgotten to mark off the things I've done.



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DEVIPUCKETT's Photo DEVIPUCKETT Posts: 95
2/1/12 7:38 P

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The checklist is a great idea - I'm gonna set one up on my phone :)

I've picked up a daily pill box with three slots per day and I've refilled my emergency pill box. So...I should be good for a while; I just have to remember where I put the pill box...

Thanks everybody :)

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2/1/12 12:49 P

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What a horrible start to your day! I've found the only way I can keep track of my meds is by using a 1 week pill holder and a timer for days when I'm in a lot of pain. I keep my meds in a desk drawer and my pill holder on my desk, so it's right in front of me. On really bad days, I have to use a list so I can check off when I've done something (eaten, taken meds, etc). If I don't do these things, I'm guaranteed to forget my pills and then I'm in real trouble.

I hope things go better for you both. It's cloudy and drizzly here...one minute it rains and the next it's just sprinkling. I woke up with the headache that started yesterday and my body is NOT appreciating the weather. Oh well...at least it's supposed to be sunny on my birthday! (next Tues.)

Hope you all have a great day today.



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PICKIE98's Photo PICKIE98 SparkPoints: (276,905)
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1/31/12 1:33 P

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Oh Devi, that is a bummer!! I forget my pills more lately too. but set them up a week ahead, put them on the vanity and cannot reach my toothbrush without moving them,, that helped.. I have never thought of an emergency pill thingie.. great idea..

the temps here have gone from 19 degrees this morning to 54 degrees now at noon!! Rain the next two days.. guess who is feeling the difference? I agree on that humidity thing..
on days like this I dream of lying in a hammock, soaking up some nice warm rays,, heating my bones up...



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DEVIPUCKETT's Photo DEVIPUCKETT Posts: 95
1/31/12 10:19 A

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I'm a teacher and I was getting ready for today's lessons when I just felt myself dragging...right now I am exhausted, my pain is rising and I'm starting to feel the fog set in my mind. I stopped for a moment and realized that I have forgotten to take my meds - again. And I've forgotten to refill my emergency pill box. Argh! So now I have to change speeds, shift my lessons to something that won't drain me to the point of no return, and replan the rest of the week to accommodate for my down day. I am so tired of being tired, forgetful, and in pain.

Edited by: DEVIPUCKETT at: 1/31/2012 (10:26)
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DEVIPUCKETT's Photo DEVIPUCKETT Posts: 95
1/31/12 10:18 A

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Humidity is my nemesis - I am so sensitive to it that I am a darn good judge of humidity percentages in the air. When its 50 degrees and everyone else is cool, I am sweating, hurting and miserable because the humidity is over 35%. Ugh. The worst part of this story is that I live in Austin!

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/29/12 7:32 P

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It isn't the cold so much for me, it's any time the barometric pressure changes. Rain? Oh yeah. From rain or cold to heat? Oh yeah. BIG storms, GINORMOUS pain. Oh yeah. emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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1/29/12 2:11 P

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Good morning emoticon

I hope you're all starting to feel a bit better by now. Winter just isn't the best season for us. Making sure I don't isolate myself, keeping warm, and staying hydrated are a few things that help me get through the cold months. And as others have said, making a point to appreciate good things can make a big difference, too.

I've noticed a big change over the last few years in how I feel. Three years ago (pre-diagnosis), the cold was what sent me into major flares. Now, it's the humidity. I did really well the week when we had sub-zero temps, but I'm a heck of a lot worse now that it's warmed up and started to rain. Has anyone else noticed this?



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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/29/12 1:29 P

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it really IS nice to know you're not alone! Welcome back!
kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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MANGO27's Photo MANGO27 Posts: 20
1/29/12 1:04 P

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Hi Everybody, especially the Newbies.

Haven't logged on in awhile and it's always so wonderful to check in with this Team.

Life has been rough lately but I finally got supplemental oxygen for my pulmonary fibrosis. Helps a fair bit and I can be up and around for more than 5 minutes now. Between bad lungs, the lupus and fibro, saying I've been discouraged is an understandment.

But the oxygen has given me encouragement that life could get better. And, as most of you know hope is a wonderful thing. So, back to watching what I eat, paying more attention to my supplements and meds, and working towards acutal exercise again.

It's embarrasing to wear the portable oxygen out to the supermarket or wherever and I've caught people making fun of me. But I am so grateful to be able to make it up and down a few aisles that I'm quickly getting over the embarrassment.

I'm back to researching my illnesses and taking a new look at reducing inflammation. Fish oil etc. Maybe a Zone-type menu. But it feels good to be back here. With fibro it is enormous value to hvae others who know what its like.

Love you all!

Mango

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BEKAHBELL's Photo BEKAHBELL SparkPoints: (7,387)
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1/29/12 3:06 A

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I'm sorry to those not feeling well :( a warm bath & hot tea sound wonderful for comfort! along the same lines as Kathy mentioned. I started a gratitude journal at the begining of the year. Each day I try to write down 3 or 4 things that I am thankful for. I read the book 1000 gifts and that is mentioned in there :) the author wrote a list of 1000 things she was thankful for and it changed the way she looked at life and she found true joy, even in the darkest times.

Bekah :o)



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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/27/12 11:23 P

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This time of year a lot of fibro folks have issues. Not enough sun, bad weather and more pain, fewer available activities... and the holidays are over but the bills aren't... they can all get us down.

There are all the usual things, a warm bath with candles, a good book, a favorite hobby... My favorite--and easiest-- trick is something I learned from "The Secret" by Rhonda Byrne. One of the people she interviews for the book mentions a 'gratitude rock', and I now have one.

You wake up in the morning and pick it up and say aloud all the things you are grateful for. Then you just carry it around in your pocket, and whenever you notice it, you are supposed to think about those things, and any thing else that you're grateful for that may occur to you throughout the day. When you take it out of your pocket at the end of te day, same thing. I found it isn't always easy, but once it begins to be a habit, you start breaking the depression cycle a lot easier each time. It's rather difficult for me now to stay depressed because just putting my hand on that little stone makes me smile. Pavlov, y'know? (It's better than drooling...) LOL


Kathy emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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VALCARAZ's Photo VALCARAZ Posts: 125
1/27/12 10:12 P

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Lilly, I totally feel your pain and frustration... my neck and back pain is pretty much out of control right now.. and I have to push through to keep studying.. my chronic sinus problem got me an infection, and even though I've been on antibiotics since Monday, I swear I feel worse. Nonetheless, believe it or not, I went and taught a Zumba class yesterday and one today... and according to them, one of the best. They said even though they were exhausted, I had so much energy they wanted to keep going. When I told them I'm sick and I can barely hear on my left ear right now, they were baffled. So hang in there, if I can do it.. so can you ;)

Don't worry, there will be better days!!

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1/27/12 9:24 P

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Thank you so much for your thoughtful words. It is important to not feel lonely, and I am good at isolating. It gives me great perspective on how I can be alone to recuperate without feeling lonely. I am trying to get use to the warmth needed to stay felling well. I was always a 'chill-baby'. There is more than one kind of warmth to use. Yes, I'll cuddle up in bed with hot tea, and heating pad soon. I'll be going there with warmth in my heart. emoticon emoticon

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1/27/12 7:54 P

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emoticon I'm sorry you're having such a rough time. Talking it out here (or with someone close to you who you trust) and letting yourself cry it out can help. I'm not the best role model with this...I absolutely *hate* getting emotional and I've rarely trusted people enough to show "weakness." But it really does help. Journaling can be a really good thing to do, too. Something else I just remembered...I've found that listening to music makes a big difference in how I feel.

When I start feeling really bad, I shut myself in my upstairs bathroom and give myself a few minutes to have a "mini breakdown." I usually feel better once I'm done, and afterwards I can make it through the next little while. Some days I'm counting the minutes I can last without having one...not a good way to be, but it's hard to get myself to let go.

I hope you feel better soon. Are you staying warm and drinking enough? Are you making sure you're taking your medications on time? Don't cut yourself off from your support, even if you feel bad. It can make you feel worse in the long run if you feel isolated on top of being sick.



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1/27/12 12:41 P

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I am sitting here about ready to cry. Not only am I dealing with the worse day of my fibro in months, I have tonsillitis that is pulling me down. I have not signed on for a few days and feel the need for your support. I am not trying to feel sorry for myself. I just want to hear how all of you handle this. It would help me greatly. emoticon

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1/27/12 12:22 P

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Good morning emoticon

I wanted to stop in and say hi before I get back to baking and studying. Our internet went out last night, but (thank goodness) it's working this morning. I have an online test to take today, so I was really stressed.

I'm glad I was able to make sense in my last post because I'm *really* not good with wording things! It think it took a couple of hours to write that post.

As for the dreaded fibro-fog...it's almost a daily occurrence for me. It kicks in between 4 & 6 most days. Luckily, it usually isn't *too* bad (meaning I lose things, forget what I'm doing, and people have to repeat themselves). On my bad days, it kicks in a lot earlier and I'm to the point where it takes quite a bit of effort to speak simple (3 words, max) sentences. I've noticed that if I keep my pain level in check, the fibro-fog isn't nearly as bad.

Hope you all have a lovely day emoticon It's time for me to do a little more studying before my test.



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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/27/12 12:07 A

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Hello all!

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VALCARAZ's Photo VALCARAZ Posts: 125
1/26/12 10:19 P

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Hi everyone!! I've been studying for the FL Bar (law) for the past month and is soooo frustrating with fibro fog and the flares getting worse and worse ... to the point I can barely move my neck ... and have to spend an hour in the morning stretching to be able to handle the pain.

So yes, I can relate to your frustration. Nonetheless, I'm still putting in the hours... study and workout wise.. hoping for a positive result.

Hope you have a great evening!!

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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/26/12 2:29 P

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Do any of you ever get that 'brain fog'? I felt like I was on a serious roller coaster for 3 months. I started taking supplements and I lost it, thank God. Just wondering...

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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/26/12 2:23 P

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Did you ever have the 'brain fog' where it felt like you were on a nonstop rollercoaster?
Mine lasted about 3 months. So very grateful it is gone now.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/26/12 1:58 P

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Depression goes hand in hand with most chronic illnesses, especially with the ones that have visibility issues like this... it helps to have someone to talk to... and sometimes you may need more than just a friend. Look into counselling if you need some additional ways to deal with the grief and strain...

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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BEKAHBELL's Photo BEKAHBELL SparkPoints: (7,387)
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1/25/12 3:22 A

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oops, double post :)

Edited by: BEKAHBELL at: 1/25/2012 (03:26)
Bekah :o)



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1/25/12 3:21 A

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I am not dealing with the harshness you described, and my pulling back from people happened before I knew about the fibro. My whole life changed. I went from working part time, homeschooling 2 kids, volunteering, to staying at home, putting my kids in school, and caring for a new baby. I had no idea why it was so hard for me to care for my little one. I thought it was just because I was getting older, because I was going back to the baby stage after 9 years. I had SO much more energy with my first 2 kids, we were always busy & having fun in the world. Now, I can barely muster up the energy to take my 2 year old to the park once every other week or so. I feel like I am cheeting him. When I quit my job, and stepped away from volunteering and homeschooling, most of my friends went with it. Now, they are still my friends, but I never see them and rarely talk to them. Just because I don't have enough "spoons". It was very hard for me to loose my close community of friends. I am so thankful though that I am close with my family and they have so far been wonderful. My mom especially has helped me so much with the baby since he was born. She is truly wonderful. I've definately been grieveing awhile over this.

Bekah :o)



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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/24/12 8:35 P

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THANK YOU! Your words sound so much like me, it's unreal! Everyone used to rely on me and I just kind of counted on it. I was so active at home, (I homeschooled), my daughters did artistic rollerskating (40+ hours a week) and we were heavily involved in not one but two churches! We were always on the run! Now, I can barely make it to the bathroom and I feel like I am letting everyone down; they make me feel that way too, no doubt about it. I feel like they are so disappointed in me and they have told me that they are tired of tippeetoeing around me amongst other things.
I SO appreciate having these teams that I can go to. This nonstop crying that I do has GOT to stop. I can't stand myself any longer. Thank you for letting me talk this out. I'm sure its not over, I am in the anger/resentment/grieving stage...not sure how long this is going to last...sigh...hopefully not too long. Thanks again; I apprreciate you.


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1/24/12 7:40 P

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Someone in another group explained coming to terms with this as being similar to experiencing a loss. We, and those close to us, go through a grief cycle...denial, anger, bargaining, depression, and acceptance. I've spent a lot of time in the anger and depression stages, but I'm working my way towards acceptance. It may seem more than a little melodramatic, but it does make sense. How many of us used to be the one others relied on? the one in control? always going? This illness changes us, and so we end up losing a part of who we were.

I used to be a single mom. I worked 40+ hours a week, went to school when I was able to, and was the one everyone called when they needed help. Now, working 1 hour a day is sometimes enough to leave me barely able to walk. I've had to change my career field, how I do things, and how I look at things. I'm really not the same person I was 5 years ago, and sometimes I have to remind myself that not being the same doesn't mean I'm any 'less.'

Some people just seem to be unable to accept the people we are after FM. It's not fair and it hurts, but the only thing we can do is try to educate them. If that doesn't work, it's time to re-evaluate whether or not it's worth it for you to have them in your life. Can you accept them as they are, including their inability to accept you? I know how hard it is, especially when relatives are involved...I've been there a few times.

emoticon I wish I knew something you could try to get them to understand. Please remember that you do have this group at least that you can turn to when you need to talk, even if we aren't "there." All of my best friends are online emoticon



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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/24/12 11:33 A

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Do any of you have problems with anger with all of this going on? I feel so abandoned lately. No one wants to be around me anymore. Just wondering if this is part of it or if it is something else? I was told by a family member that when they are around, I am mentally checked out so that's why they don't come around. Any of you dealing with anything similar?

Edited by: CWPRAISINJC1 at: 1/24/2012 (11:35)
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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/23/12 4:21 A

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It was hard for me to kick the habit of overbooking myself... little ol' type A behaviour, y'know? LOL

It still crops up now and then. and it sounds like you have the same issue... I have to MAKE AN APPOINTMENT with myself, so I get the rest I need... and it's SACRED time. Don't give it up for anything other than life and death, m'dear.

And cravings? The longer you can stay away from the sweet stuff, the more you'll notice how it drags you down when you DO indulge... the way you feel SHOULD be deterrent enough... but I know it's not. LOL

Look for natural, healthy substitutes for the things you normally grab... trail mix with dried fruit and nuts, instead of candy hearts, that kind of thing... get creative, come up with your own. You're a smart cookie and you already know what you need to do, m'dear. So...just do it! You can...

emoticon emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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SASSYTHING52's Photo SASSYTHING52 Posts: 10,899
1/22/12 10:27 P

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emoticon even tho its so hard

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1/21/12 11:48 P

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It's hard when you both hurt, huh? I'm pretty lucky both with a husband who has type 2 diabetes but he's so good about eating and exercising since his last doctor appointment! Also I take Lyrica and it seems to help with the pain. I'm so grateful for that! I am having trouble with what they call fibrofog----I was afraid something else was going wrong with me because I just can't think clearly sometimes---I hate that! It's hard to get up in the morning, before the pills kick in, but I've been having more good days then bad as far as pain is concerned!

I know that you believe you understand what you think I said, but I'm not sure you realize that what you heard is not what I meant.

It's hard to stumble when you're on your knees.


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1/21/12 11:46 P

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Hi Bekah,

I'm going on about half my usual 'spoons' today and my body is being awfully cranky. I handled the cold and snow from last week without any real problems, but it's a different story now that it's turned to rain.

You've been awfully busy lately! I hope you get a chance to slow down and let your body rest. For me, my diet and activity go down the drain as soon as a flare hits. My DH gets frustrated with me for overdoing things, too. It's a pretty frequent topic for us.

I'm not the best role model when it comes to eating right, but I have learned a few things that help. Realistically, I know I'm not ready to cut out all the things I like...especially since I use cooking/baking as a distraction when I'm having a bad pain day. The best way I've found to eat right is to find ways to make the foods I like good for me (reduce sugar, cut out salt, make food from scratch, and find healthy substitutions for unhealthy ingredients). Other than that, I keep a glass of water and healthy snacks on my desk at all times. I'm an emotional eater and it's really come in handy when I've gotten upset or frustrated.



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1/21/12 10:42 P

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last week I actually felt pretty good! I woke up feeling better than normal and had some enegry at the end of the day. I had been eating better since the begining of the year and I think it finally kicked in. I especially paid attention to sugar. Also been doing a little (very little) excersise (walking and yogo) Well. I am lacking in will power, so a few days ago I started eating poorly again. went to fast food, had some sweet tea, even a soda one day. And stupidly bought a bag of candy hearts and eat a handfull each night. I'm paying for it. On top of that it's been a busy few days and I feel pulled in many directions. And that is not stopping anytime soon. Taking my sister out for a birthday breakfast in the morning that a friend and I have planned for months. Then going to the movies with my hubby. I had plans to drive to another city with my sister on Monday to do a little photography expedition, but she's saying she might have to cancel and I'm really hoping she does so I can rest. My husband is not very happy with me today either. He just seems frustrated with the whole thing. He's not in the best of health, has back pain, knee pain, leg pain (from old injuries) and migraines. We are quite the pair.
Thanks for letting me vent a little :) would love to hear how you are doing? Any tips on getting and staying motivated to eat right???

Bekah :o)



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