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WHOA-MOMMA's Photo WHOA-MOMMA SparkPoints: (344)
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7/22/12 4:40 P

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Hello Crys,

I agree with others who suggest you find a new Doctor!

I'm on the high end of the Opiate Therapy Spectrum! My PM Doctor is a Skeletal / Muscular Specialist who suffers from Fibro himself, so he not only believes in the disease, he has an aggressive long term treatment method that works for him AND his patients. He has cured me in some sensitive areas that even Physical Therapy did not relieve - Pelvic Floor pain & Chronic Muscle spasm from periurethral cysts!. I see him every 2-4 weeks. He makes me do several painful stretches at least 8 times per day to elongate effected muscle groups. He gives me shots in my back and calves to numb and "relax & re-boot" chronic problem spots. And he prescribes me Norco, and Oxycodone that I take daily *strictly* as prescribed! I've been blessed to be working with this Specialist for over five years, so I truly am one of the lucky ones.

Narcotic Pain Management is the only medicine that relaxes my system enough to function somewhat normally. Long before I was diagnosed with Fibromyalgia I suffered with RLS - Restless Leg Syndrome for years, then the restless muscle syndrome spread to my arms too! This was the onset of Chronic Muscle Spasm Disorder, and maybe early symptoms of Fibromyalgia (?). I dunno, this does effect everyone differently! There are many down sides to Opiate Therapy. For example: I don't drive any more. I have a good driving record, and I *feel like* I am alert enough to drive daily, but if there was an accident - even if it was the other guy's fault - I would be in legal trouble with the meds in my system... Other issues include tollerance that does change over time. It is very important for me to use only as much as I truly need because in the event of sudden severe pain like surgery etc. it's impossible to get relief from standard dosage IV pain management - That's scarry!

And yes I too have run into problems with new Bureaucratic standards and restrictions, especially if I end up in the Emergency Room and my Doctor is out of town. I recently ran out of pain medication and my Dr. was unavailable to call in a refill to my pharmacy. So I went to the Express Care unit of my local Hospital. OMGosh, the 'Practitioner' denied me a 24 hr supply because he looked at my long term medication history, and he decided that I was a drug dealer or something... 'talking about how the hospital has to do too much paper work, and report to the DEA for writing me a prescription for 12 tabs of Norco!?!

I empathize with the medical professionals who have to do extra paper work now, but it's wrong to deny a short supply of medication to a chronic severe pain patient - because of long term tolerance and paper work!

Stepping down from my soap box now! lol

Well Crys, I hope you find the help you deserve. Be Careful!!

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/16/12 1:49 A

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You're right, ABERLAINE!

I stand corrected! LOL emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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PICKIE98's Photo PICKIE98 SparkPoints: (277,819)
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1/13/12 2:37 P

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i wonder how many MEN these docs will prescribe meds to, but not women,, just saying.. Sometimes it is a MCP issue(Male Chauvinist Pig) hard to believe in this day and age.. I agree about the Ultracet,, I use the generic Tramadol for days I do not work, since a 200mg Ibuprofen knocks me out for hours! I am so sensitive..
I heard for years when Vicodin came out, how it is so addictive and is a rec drug,, When I just had surgery in September(carpal tunnel) they gave me the big "V". I was terrified, so did not take anything for pain for two days,, whew, I finally broke down and had m DD follow me around like a Nazi guard fearing I would be high, stumble, fall,etc.. I waited for hours for it to even take a nudge of the pain away, took another, nothing,, 1500 mg in three hours and I felt nothing, so took one of my Tramadol.. fell asleep in the chair and felt better,,
everybody's system is different, that is why it IS important to be monitored by the doc..
apparently, yours gets his kicks by watching you beg for your rights,, dump this guy like a sack of poo and go to a real doc!!!

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VALCARAZ's Photo VALCARAZ Posts: 125
1/13/12 2:06 P

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Believe me, I've encountered a couple of doctors like yours... and I know what you're going through. Dont just look for another one.. RUN! Because doctors like that are so arrogant and ignorant at the same time that they refuse to admit they're mistaken in their diagnosis.

I dont know where you're from, but Dr. Mark Guariglia in New Jersey has a fibro care center and the testimonies in his webpage are amazing. He helped me find some doctors and supplements to help me in Puerto Rico because I dont have many options here. I'm sure someone in this group may recommend a good doctor in your area. If not, ask Dr. Guariglia to see if he can refer someone closer to you.

Hope you feel better soon!!

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ABERLAINE's Photo ABERLAINE Posts: 6,376
1/13/12 9:15 A

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Kathy, everyone's exceptional in one way or another!! emoticon

Nancy
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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/12/12 10:44 P

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Aberlaine, you're right about Vicodin in MOST cases, but ... Like anything else, there are exceptions. I wonder, does that make me exceptional? hm.... nah. emoticon

Kathy emoticon

"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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SASSYTHING52's Photo SASSYTHING52 Posts: 10,913
1/12/12 10:21 P

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its getting very hard on drs giving medicine i get loritabs but i have to visit ever 3 moths for year then every 6 months then once year my other dr i didnt have take the test or nothing but the dr i got now is a pain specialists

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,839
1/12/12 8:32 P

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I've been on Vicodin for a number of years, because my rheumatologist tried everything else and they either didn't work, were bad for my already damaged kidneys, or I had bad reactions--including ER visits! But when he moved away, and I started with a new rheumatologist, the new one refused to write my refills. I asked why, and he said that federally regulated pain killers are not advised anymore for fibromyalgia patients except under extreme circumstances, and not only did it sometimes involve HOURS of paperwork, it puts the doctors at a higher risk for lawsuits--and that those on "controlled substances" are now normally referred to a "Chronic Pain Management" facility instead, where they teach other pain control methods--and treat addictions. He offered to send me to one if I wanted... but I hate taking ANY kind of pills, and my primary care physician prescribes it for me now. She and I have a deal. If I EVER show signs of abuse of the privilege, she will stop and refer me to the facility herself, but that will never happen. And since 2010, the bout with cancer, no one questions the need for pain control now... but I wouldn't wish that on ANYONE--especially just to get pain meds! LOL

I take a very small dose twice every day, and larger doses during major flareups--or post surgery LOL. That's it. It's the only thing that helps... and if I could function without the help, I would.

There are lots of other things I do though: ice on occasion, warm (not hot) baths, pacing, meditation, exercise...

It's a lot of work, but worth it!

LIFE is GOOD!

If I can do this... and I CAN... give life a try and see what YOU can do!

Kathy emoticon emoticon

Edited by: I.M.MAGIC at: 1/12/2012 (20:34)
"The real secret of success is enthusiasm..." thanks, Walter P. Chrysler. I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called


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CRYS01's Photo CRYS01 Posts: 254
1/12/12 7:27 P

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Thank you for the information and what not. I have an appointment with my doctor on feb 2 and so I will talk to him then and we will see how I proceed. If he still is un-moving I will have to look into another doctor who will take me seriously. :)

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ABERLAINE's Photo ABERLAINE Posts: 6,376
1/12/12 6:33 P

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Ultram or Ultracet (with Tylenol) are the best pain medications you can take for fibromyalgia. Fibro pain does not respond to narcotic-type medicines like vicodin and percocet.

Here's a link to an article that lists most of the medications which help the symptoms of fibromyalgia.

www.healthcentral.com/chronic-pain/f
ib
romyalgia-198950-5.html


Karen Lee Richards has been writing about fibromyalgia for a long time and is very knowledgeable about the disease.

Nancy
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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/12/12 5:48 P

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Wow! Thank you for sharing that!

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ROTTLADY's Photo ROTTLADY SparkPoints: (43,095)
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1/12/12 5:42 P

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It is EXTREMELY important to get a good knowledgeable doctor.I was with Kaiser in San Jose ,California and they did not deal with anything and there solution was to put me in a power chair give me pain medication and they told me "to learn to live with it". I moved four years ago and got a new neurologist and I am walking. I am slow but I am blessed by each step I take. She started me on Lyrica and it did help me(I also gained a lot of weight) She has arranged tests,surgeries and therapy to help me get moving. I tell her she is my guardian angel.I thought I was going to be stuck in that chair forever and the quality of my life and what I could do for myself sucked!
Get a new doctor and fight for yourself and be pro active for your health!

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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/12/12 3:27 P

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I tried Savella and after 2 doses, I was a MESS! I threw it in the trash. Glad it works for some of you though. Theres got to be something out there to help us.
Cindy

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HIPCHICK717 Posts: 29
1/12/12 2:05 P

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Do these jerks really think that we enjoy taking any of these drugs!??!? Our lives are already difficult. Who would make this up?

I understand your frustrations, you owe it to yourself to find a Dr that will treat the entire "you" and not just what they feel like.

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SMIDGON's Photo SMIDGON Posts: 4,240
1/12/12 11:23 A

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I must tell you this, in S.W. Ohio where I live it appears to be you have to past a criteria before you get the service. Last summer, hubby took me to the ER with b.p, 224/120. They wouldn't admit me. Kept me for 4 hrs. in ER, until finally it was down to 100/120. That is still 'shocky'. They said for me to see my family dr.. I had an appt. for tues. And, this was only fri prior!

Come to find out, hospitals around here you have to 'pass' criteria. New health care plan. I wonder if ages have anything to do with it. I am 71! Dr. says I need an sleep apena test, but, first, I have to see a special dr.. Guess to see if it would be worth there will. Scary, isn't it?

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

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CINDERRELIC's Photo CINDERRELIC Posts: 7,621
1/12/12 11:06 A

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What is really scary is this seems to be a trend in our area with physicians refusing patients that may need pain medication. I would love to know if this is a nation wide trend or if it is just a policy which has been recently made and implemented in our area.

I am pretty much allergic to narcotics as they make me throw up and I feel awful....almost worse than the pain...so I have had to find other ways of dealing with pain so this did not affect me.

However, a friend who has FM and was on some pretty potent pain killers found herself without a doctor for a while and no one would take her when this policy was implemented. After almost 6 months of applying to doctors and getting denied and having to go outside the system she finally found a doctor who would take her in the system.

She was then sent to a psychiatrist who finally came through with some older medications that actually have fewer side effects than some of these new ones and she is doing much better.

However, it would be so much better if those of us with FM didn't have to go through so many avenues to get the necessary help just to feel human. On the other hand some of these NEW pain killer drugs are not what they are cracked up to be and can have devastating effects, so maybe the trend back to medications with fewer side effects is not necessarily a totally bad one.



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SMIDGON's Photo SMIDGON Posts: 4,240
1/12/12 10:56 A

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I agree with Sarah and the rest. My med of choice is Savella! The weather, stress and a lot of other things can increase it.

I agree, find another doc..

"All things work together for the good of those who love the Lord, and are called according to His purpose."

Romans 8:28

~+~ Janet


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CRYS01's Photo CRYS01 Posts: 254
1/12/12 10:55 A

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Ok I was wondering. I mean he is a nice guy in general except when it comes to that, then he is like NO! I will try to talk to him about it again and if nothing comes about it I will see to possibly switching doctors

Thank you guys!

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SARAHTAIT's Photo SARAHTAIT Posts: 26,054
1/12/12 10:49 A

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Your doctor is a jerk. He is one of those who really doesn't understand or believe in fibromyalgia. I am in severe pain with it....am on a fentanyl patch plus vicodin for breakthrough pain. I started out on ultra which allowed me to work for many years until the fibro progressed to where I am now. Ultram is a non narcotic pain reliever that wired really well for me. I feel you should find another doctor who knows and understands about the pain of fibro!
Hugs,
Sarah

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STARSAPPHIRE57's Photo STARSAPPHIRE57 SparkPoints: (38,725)
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1/12/12 10:35 A

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I agree you need to find out why... I really feel you need to find another doctor who will really evaluate you and treat your pain and other symptoms! A rheumatologist is probably best...

"Popping ibuprofen like candy" can have very serious side effects--bleeding ulcers, liver damage/failure, etc.--potentially fatal issues! And, it is not even helping your pain! I do understand the feeling that you have to take SOMETHING...I am in constant pain and my pain medication only takes the edge off of it. We have upgraded our insurance and I am going to my PCP in a couple of weeks and get a referral to a rheumatologist (she offered previously--I just had to wait for the better insurance coverage).

Please be your own advocate and get the healthcare that you need. All patients have a right to pain management (Medicare, JCAHO standards-not just my opinion)...

Sending positive energy & bright blessings to you, Pam emoticon

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CRYS01's Photo CRYS01 Posts: 254
1/12/12 10:25 A

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He says he doesn't want to give me narcotics for things like fibro.

Afraid I will become addicted or something I guess. Highly unlikely as I've been on pain meds before I was diagnosed. I actually don't LIKE taking them unless I absolutely need too. I don't think he believes me though.

Edited by: CRYS01 at: 1/12/2012 (10:25)
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DIANAPHOENIX's Photo DIANAPHOENIX Posts: 354
1/12/12 10:13 A

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I don't understand your doctor's refusal - have you asked why he won't prescribe? If you have a dr who "doesn't believe" in fibromyalgia, or if your doctor cannot give you a valid explanation of why he doesn't think pain meds are appropriate for you, get another doctor. I'm not saying shop for a doctor who freely prescribes pain meds, but one who will work with you to manage your pain.

I take a non-narcotic pain medication (Ultram) every morning, and if needed again later in the day. I also have Vicodin that I take very rarely, mostly for occasions when the pain would keep me from doing something I really want or need to do. Taking the ultram in the morning seems to stop the onset of pain.



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CRYS01's Photo CRYS01 Posts: 254
1/12/12 9:58 A

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So I have a question about medications. My doctor absolutely REFUSES to give me ANYTHING for pain and I was wondering, is this a normal thing? Or is my doctor just an a-hole. Because I see a lot of people on different types of medication but my doc downright REFUSES me any type of pain killer or the like.. and popping ibuprofen like candy doesn't do anything.

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