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IMAVISION's Photo IMAVISION Posts: 17,960
6/21/14 2:10 P

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Sadly so very true! emoticon




"Blessed is the nation whose God is the Lord." ~ Psalm 33:12 --- IN GOD WE TRUST

I urge you --- Don’t be a part of any system that leaves God out!

“There is a plot in this country to enslave every man, woman, & child. Before I leave this high & noble office, I intend to expose this plot.” ~ John F. Kennedy (seven days before his assassination)

Have you ever wondered about the plot that President Kennedy alluded to?
O-JOY!O-JOY!'s Photo O-JOY!O-JOY! SparkPoints: (35,634)
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6/20/14 8:46 A

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An amazingly accurate description of life with fibro. Thanks for sharing.

I loved the "Golden Rule" that was on our childhood rulers back in the 50s. It's as important today as it was back then:
Do unto others as you would have others do unto you.


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SYLSITT's Photo SYLSITT SparkPoints: (2,171)
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6/19/14 1:31 P

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I'm glad I decided to investigate this poem. Debra, you really describe the suffering, both physically and psychologically - not only do our bodies "betray" us, but the people in our lives emotionally disconnect from us causing us even more pain. It seems like everything I do sets me back for a day or two or three or four its the uncertainty that I deplore. I have remissions where it troubles me less, but this last flareup has me in distress. It goes on and on without a break forcing a life in a body of ACHE. Thank you all for understanding FMS

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MSMASLIN's Photo MSMASLIN SparkPoints: (4,605)
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2/22/14 11:25 A

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I am beyond impressed. That is so perfect. Thank you for sharing!

There will be an answer, let it be.


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GIMLEY77 SparkPoints: (5,113)
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2/21/14 9:21 P

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That was beautiful and so very true! Only one`s who have fms can understand. thank you

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2592SC's Photo 2592SC SparkPoints: (7,604)
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6/23/13 7:16 P

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emoticon emoticon

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QC1078's Photo QC1078 SparkPoints: (0)
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1/20/10 9:25 P

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emoticon and so very true!

"If you have inner beauty, you will always have outer beauty."

I don't just want to lose weight but change my life!

"DANCE like no one is watching, LOVE like you'll never be hurt, SING like no one is listening, LIVE like it's heaven on earth." -william purkey


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SHIRLAB88's Photo SHIRLAB88 Posts: 399
10/12/09 8:03 P

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Great poem, thank you for sharing. Nobody really understands the pain except for those with this affliction, because you can't see (or feel) that we are ill. emoticon

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GOING_TO_LOSE's Photo GOING_TO_LOSE Posts: 632
10/5/09 9:17 A

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emoticon So true and so nice to hear.

Words to live by..Family...Faith...Friends.

Everything in moderation but love and faith.


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GRANNYNANC Posts: 3
10/4/09 5:18 P

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This is so very true - it brought tears to my eyes. Thanks for expressing my feelings so well!
Nancy.


SASSYTHING52's Photo SASSYTHING52 Posts: 11,101
10/4/09 1:11 P

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awesome poem thank you for sharing

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MLDONNELLAN Posts: 67
10/3/09 8:11 A

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Thank you, Debra, for expressing so eloquently what it is like to live with this demon we call fibro. It is obvious fibro has not impacted your creative genius. The demon can wreck havoc with the body, but it can also clarify the mind.

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10/2/09 11:35 P

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Amazing poetry. Obviously, fibro has not robbed you of your creative fire. Keep it burning -- you nailed this life-"style" so perfectly! Thank you.

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10/2/09 10:53 P

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Very serendipitous! I have fibro, RA & herniated/ruptured discs in neck & low back. I look fine, but I know what you mean when it comes to other people looking at you like you want sympathy or pity. I just want my old life back. I want to work, I want to clean house, I want to do dishes, I want to fold laundry, I want to enjoy my 3 little granddaughters, I'm 53 yrs old I'm too young for an old body like this.......

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POMPOM7's Photo POMPOM7 Posts: 124
10/2/09 5:16 P

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WOW!! What poetic justice!! Thank you!! This is fantastic and so symbolizes our pain!! Believe me my friends and family will get copies of this one!

My restart! March 3/2013.


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10/2/09 4:01 P

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Hell Fire's Rain... A Fibromyalgia Poem By Debra V.
LearnFmNow
Saturday, September 12, 2009 at 11:11 AM
Hell Fire's Rain

Mornings of stiffness filled such with pain,

my soul slowly draining in hell fire's rain.

I'm alone with this coward that won't set me free;

fibromyalgia just won't let me be.

Such an unfitting term to picture this beast;

Wrapping me tightly in hell fire's feast.

Hours of sleep spent only in vain, he beats at my body inflicting more pain.

Invisible silence, the most evil trick;

no evidence to prove that I am so sick.

Twisting my muscles he drains me of life,

No energy left to be mother or wife.

Trudging through motions of everyday tasks,

No one can believe me, and no one will ask.

Sympathy not a desire of mine,

If they ask I shall say that "Today I am fine"

No need to mention what leaves them confused;

So I walk alone in hell fire's shoes.

Unrelenting miseries don't leave for long, My life is the lyrics of hell fire's song.

I feel like the servant of everyone's call,

I believe that my body has given its all.

Yet I cannot stop and lie down in my bed,

I suppose I would wither when joy is all dead.

Explanations bring stares blank and so cold,

They refuse to believe what they are told.

I do not appear to have some disease,

I should be" Able to do what I please".

Oh sweet disbelief reveals their mistrust,

As I continue to do all that I must.

If they swirled for a moment into my body of pain,

They could feel all the embers of hell fire's rain.

They would awaken to an invisible monsterous flu;

feel a body that's stiffened and refuses to move.

They could feel what it's like to be so dismissed,

sitting alone in the silence of hell's fire's mist.

They could tell everyone how sick that they feel;

They would know how the monster hides as it steals.

He burns, he twists, he is tingling and numb;

he is sharp, he is dull, he is hell fire's sun.

With medical jargon they will never explain what it is to live in hell fire's rain.

You would call me crazy if I said "I'm in pain"...... I could never explain hell fire's rain.

by Debra Ann Van Ness

a fibromyalgia patient



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