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6/25/14 9:31 A

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Thanks for providing this transcript. I have had a hard time finding this much information all put together in one place. I wish I had found this months ago. Today I have an appointment with a rheumatologist and I feel less stressed knowing I'm armed with correct information.

Do one more thing than you thought you could do.

Shut out all of your past except that which will help you weather your tomorrows.
William Osler


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ABERLAINE's Photo ABERLAINE Posts: 6,304
12/30/13 11:53 A

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Thanks to Newview, here's a transcript of a discussion that took place a Stanford University. She posted it in the New Members Forum and I thought it would do well here, too.

This evening I was watching a satellite discussion on Fibromyalgia study by Doctors at Stanford University. The Doctor who spoke on this study was Dr. Sean Mackey, Ph.D, Dr. He spoke on determining Fibromyalgia, pain management and the other symptomatic illness that often accompany FBS. I am attaching the info I found on the web afer viewing the show, I think it will help those who are still dealing with confused doctors or with Social security. Remember, the doctors and you must use very specific terms in order for you to qualify for disability of this ailment.
Good reading and good luck. Try to print out this post as it has websites and phone numbers if you want additional information.


Although fibromyalgia is often considered an arthritis-related condition, it is not truly a form of arthritis (a disease of the joints) because it does not cause inflammation or damage to the joints, muscles, or other tissues. Like arthritis, however, fibromyalgia can cause significant pain and fatigue, and it can interfere with a person’s ability to carry on daily activities. Also like arthritis, fibromyalgia is considered a rheumatic condition.

You may wonder what exactly rheumatic means. Even physicians do not always agree on whether a disease is considered rheumatic. If you look up the word in the dictionary, you’ll find it comes from the Greek word rheum, which means flux – not an explanation that gives you a better understanding. In medicine, however, the term rheumatic means a medical condition that impairs the joints and/or soft tissues and causes chronic pain.

In addition to pain and fatigue, people who have fibromyalgia may experience:

sleep disturbances
morning stiffness
headaches
irritable bowel syndrome
painful menstrual periods
numbness or tingling of the extremities
restless legs syndrome
temperature sensitivity
cognitive and memory problems (sometimes referred to as “fibro fog”)
a variety of other symptoms.
Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.

Who Gets Fibromyalgia?
What Causes Fibromyalgia?
How Is Fibromyalgia Diagnosed?
How Is Fibromyalgia Treated?
Will Fibromyalgia Get Better With Time
What Can I Do To Try To Feel Better?
What Are Researchers Learning About Fibromyalgia?
Where Can I Get More Information About Fibromyalgia?
Key Words
Who Gets Fibromyalgia?
Scientists estimate that fibromyalgia affects 5 million Americans age 18 or older. For unknown reasons, between 80 and 90 percent of those diagnosed with fibromyalgia are women; however, men and children also can be affected. Most people are diagnosed during middle age, although the symptoms often become present earlier in life.

People with certain rheumatic diseases, such as rheumatoid arthritis, systemic lupus erythematosus (commonly called lupus), or ankylosing spondylitis (spinal arthritis) may be more likely to have fibromyalgia, too.

Several studies indicate that women who have a family member with fibromyalgia are more likely to have fibromyalgia themselves, but the exact reason for this – whether it be hereditary or caused by environmental factors or both – is unknown. One study supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) is trying to identify whether certain genes predispose some people to fibromyalgia. (See “What Are Researchers Learning About Fibromyalgia?”)

What Causes Fibromyalgia?
The causes of fibromyalgia are unknown, but there are probably a number of factors involved. Many people associate the development of fibromyalgia with a physically or emotionally stressful or traumatic event, such as an automobile accident. Some connect it to repetitive injuries. Others link it to an illness. People with rheumatoid arthritis and other autoimmune diseases, such as lupus, are particularly likely to develop fibromyalgia. For others, fibromyalgia seems to occur spontaneously.

Many researchers are examining other causes, including problems with how the central nervous system (the brain and spinal cord) processes pain.

Some scientists speculate that a person’s genes may regulate the way his or her body processes painful stimuli. According to this theory, people with fibromyalgia may have a gene or genes that cause them to react strongly to stimuli that most people would not perceive as painful. However, those genes – if they, in fact, exist – have not been identified.

How Is Fibromyalgia Diagnosed?
Research shows that people with fibromyalgia typically see many doctors before receiving the diagnosis. One reason for this may be that pain and fatigue, the main symptoms of fibromyalgia, overlap with many other conditions. Therefore, doctors often have to rule out other potential causes of these symptoms before making a diagnosis of fibromyalgia. Another reason is that there are currently no diagnostic laboratory tests for fibromyalgia; standard laboratory tests fail to reveal a physiologic reason for pain. Because there is no generally accepted, objective test for fibromyalgia, some doctors unfortunately may conclude a patient’s pain is not real, or they may tell the patient there is little they can do.

A doctor familiar with fibromyalgia, however, can make a diagnosis based on two criteria established by the American College of Rheumatology (ACR): a history of widespread pain lasting more than 3 months and the presence of tender points. Pain is considered to be widespread when it affects all four quadrants of the body; that is, you must have pain in both your right and left sides as well as above and below the waist to be diagnosed with fibromyalgia. ACR also has designated 18 sites on the body as possible tender points. For a fibromyalgia diagnosis, a person must have 11 or more tender points. One of these predesignated sites is considered a true tender point only if the person feels pain upon the application of 4 kilograms of pressure to the site. People who have fibromyalgia certainly may feel pain at other sites, too, but those 18 standard possible sites on the body are the criteria used for classification.

How Is Fibromyalgia Treated?
Fibromyalgia can be difficult to treat. Not all doctors are familiar with fibromyalgia and its treatment, so it is important to find a doctor who is. Many family physicians, general internists, or rheumatologists (doctors who specialize in arthritis and other conditions that affect the joints or soft tissues) can treat fibromyalgia.

Fibromyalgia treatment often requires a team approach, with your doctor, a physical therapist, possibly other health professionals, and most importantly, yourself, all playing an active role. It can be hard to assemble this team, and you may struggle to find the right professionals to treat you. When you do, however, the combined expertise of these various professionals can help you improve your quality of life.

You may find several members of the treatment team you need at a clinic. There are pain clinics that specialize in pain and rheumatology clinics that specialize in arthritis and other rheumatic diseases, including fibromyalgia.

In June 2007, the U.S. Food and Drug Administration (FDA) approved Lyrica* (pregabalin) as the first drug to treat fibromyalgia. Doctors also treat fibromyalgia with a variety of medications developed and approved for other purposes.

* Brand names included in this booklet are provided as examples only, and their inclusion does not mean that these products are endorsed by the National Institutes of Health or any other Government agency. Also, if a particular brand name is not mentioned, this does not mean or imply that the product is unsatisfactory.

Following are some of the most commonly used categories of drugs for fibromyalgia.

Analgesics
Analgesics are painkillers. They range from over-the-counter acetaminophen (Tylenol) to prescription medicines, such as tramadol (Ultram), and even stronger narcotic preparations. For a subset of people with fibromyalgia, narcotic medications are prescribed for severe muscle pain. However, there is no solid evidence showing that narcotics actually work to treat the chronic pain of fibromyalgia, and most doctors hesitate to prescribe them for long-term use because of the potential that the person taking them will become physically or psychologically dependent on them.

Nonsteroidal Anti-Inflammatory Drugs (NSAIDs)
As their name implies, nonsteroidal anti-inflammatory drugs, including aspirin, ibuprofen (Advil, Motrin), and naproxen sodium (Anaprox, Aleve), are used to treat inflammation. Although inflammation is not a symptom of fibromyalgia, NSAIDs also relieve pain. The drugs work by inhibiting substances in the body called prostaglandins, which play a role in pain and inflammation. These medications, some of which are available without a prescription, may help ease the muscle aches of fibromyalgia. They may also relieve menstrual cramps and the headaches often associated with fibromyalgia.

Antidepressants
Perhaps the most useful medications for fibromyalgia are several in the antidepressant class. Antidepressants elevate the levels of certain chemicals in the brain, including serotonin and norepinephrine (which was formerly called adrenaline). Low levels of these chemicals are associated not only with depression, but also with pain and fatigue. Increasing the levels of these chemicals can reduce pain in people who have fibromyalgia. Doctors prescribe several types of antidepressants for people with fibromyalgia, described below.

Tricyclic antidepressants – When taken at bedtime in dosages lower than those used to treat depression, tricyclic antidepressants can help promote restorative sleep in people with fibromyalgia. They also can relax painful muscles and heighten the effects of the body’s natural pain-killing substances called endorphins. Tricyclic antidepressants have been around for almost half a century. Some examples of tricyclic medications used to treat fibromyalgia include amitriptyline hydrochloride (Elavil, Endep), cyclobenzaprine (Cycloflex, Flexeril, Flexiban), doxepin (Adapin, Sinequan), and nortriptyline (Aventyl, Pamelor). Both amitriptyline and cyclobenzaprine have been proven useful for the treatment of fibromyalgia.
Selective serotonin reuptake inhibitors – If a tricyclic antidepressant fails to bring relief, doctors sometimes prescribe a newer type of antidepressant called a selective serotonin reuptake inhibitor (SSRI). As with tricyclics, doctors usually prescribe these for people with fibromyalgia in lower dosages than are used to treat depression. By promoting the release of serotonin, these drugs may reduce fatigue and some other symptoms associated with fibromyalgia. The group of SSRIs includes fluoxetine (Prozac), paroxetine (Paxil), and sertraline (Zoloft).

SSRIs may be prescribed along with a tricyclic antidepressant. Doctors rarely prescribe SSRIs alone. Because they make people feel more energetic, SSRIs also interfere with sleep, which often is already a problem for people with fibromyalgia. Studies have shown that a combination therapy of the tricyclic amitriptyline and the SSRI fluoxetine resulted in greater improvements in the study participants’ fibromyalgia symptoms than either drug alone.

Mixed reuptake inhibitors – Some newer antidepressants raise levels of both serotonin and norepinephrine and are therefore called mixed reuptake inhibitors. Examples of these medications include venlafaxine (Effexor) and nefazodone (Serzone). Researchers are actively studying the efficacy of these newer medications in treating fibromyalgia.

Benzodiazepines
Benzodiazepines help some people with fibromyalgia by relaxing tense, painful muscles and stabilizing the erratic brain waves that can interfere with deep sleep. Benzodiazepines also can relieve the symptoms of restless legs syndrome, which is common among people with fibromyalgia. Restless legs syndrome is characterized by unpleasant sensations in the legs as well as twitching, particularly at night. Because of the potential for addiction, doctors usually prescribe benzodiazepines only for people who have not responded to other therapies. Benzodiazepines include clonazepam (Klonopin) and diazepam (Valium).

Other Medications
In addition to the previously described general categories of drugs, doctors may prescribe others, depending on a person’s specific symptoms or fibromyalgia-related conditions. For example, in recent years, FDA has approved two medications – tegaserod (Zelnorm) and alosetron (Lotronex) – for the treatment of irritable bowel syndrome. Gabapentin (Neurontin) currently is being studied as a treatment for fibromyalgia. (See “What Are Researchers Learning About Fibromyalgia?”) Other symptom-specific medications include sleep medications, muscle relaxants, and headache remedies.

People with fibromyalgia also may benefit from a combination of physical and occupational therapy, from learning pain management and coping techniques, and from properly balancing rest and activity.

Complementary and Alternative Therapies
Many people with fibromyalgia also report varying degrees of success with complementary and alternative therapies, including massage, movement therapies (such as Pilates and the Feldenkrais method), chiropractic treatments, acupuncture, and various herbs and dietary supplements for different fibromyalgia symptoms. (For more information on complementary and alternative therapies, contact the National Center for Complementary and Alternative Medicine. See “Where Can I Get More Information About Fibromyalgia?”)

Although some of these supplements are being studied for fibromyalgia, there is little, if any, scientific proof yet that they help. FDA does not regulate the sale of dietary supplements, so information about side effects, proper dosage, and the amount of a preparation’s active ingredient may not be well known. If you are using or would like to try a complementary or alternative therapy, you should first speak with your doctor, who may know more about the therapy’s effectiveness, as well as whether it is safe to try in combination with your medications.

Will Fibromyalgia Get Better With Time?
Fibromyalgia is a chronic condition, meaning it lasts a long time – possibly a lifetime. However, it may comfort you to know that fibromyalgia is not a progressive disease. It is never fatal, and it won’t cause damage to your joints, muscles, or internal organs. In many people, the condition does improve over time.

What Can I Do To Try To Feel Better?
Besides taking medicine prescribed by your doctor, there are many things you can do to minimize the impact of fibromyalgia on your life. These include:

Getting enough sleep – Getting enough sleep and the right kind of sleep can help ease the pain and fatigue of fibromyalgia. (See “Tips for Good Sleep”.) Even so, many people with fibromyalgia have problems such as pain, restless legs syndrome, or brainwave irregularities that interfere with restful sleep.

Exercising – Although pain and fatigue may make exercise and daily activities difficult, it’s crucial to be as physically active as possible. Research has repeatedly shown that regular exercise is one of the most effective treatments for fibromyalgia. People who have too much pain or fatigue to do vigorous exercise should begin with walking or other gentle exercise and build their endurance and intensity slowly. Although research has focused largely on the benefits of aerobic and flexibility exercises, a new NIAMS-supported study is examining the effects of adding strength training to the traditionally prescribed aerobic and flexibility exercises.

Making changes at work – Most people with fibromyalgia continue to work, but they may have to make big changes to do so. For example, some people cut down the number of hours they work, switch to a less demanding job, or adapt a current job. If you face obstacles at work, such as an uncomfortable desk chair that leaves your back aching or difficulty lifting heavy boxes or files, your employer may make adaptations that will enable you to keep your job. An occupational therapist can help you design a more comfortable workstation or find more efficient and less painful ways to lift.

If you are unable to work at all due to a medical condition, you may qualify for disability benefits through your employer or the Federal Government. Social Security Disability Insurance (SSDI) and Supplemental Security Insurance (SSI) are the largest Federal programs providing financial assistance to people with disabilities. Although the medical requirements for eligibility are the same under the two programs, the way they are funded is different. SSDI is paid by Social Security taxes, and those who qualify for assistance receive benefits based on how much they have paid into the system; SSI is funded by general tax revenues, and those who qualify receive payments based on financial need. For information about the SSDI and SSI programs, contact the Social Security Administration. (See “Where Can I Get More Information About Fibromyalgia?”)

Eating well – Although some people with fibromyalgia report feeling better when they eat or avoid certain foods, no specific diet has been proven to influence fibromyalgia. Of course, it is important to have a healthy, balanced diet. Not only will proper nutrition give you more energy and make you generally feel better, it will also help you avoid other health problems.

Tips for Good Sleep
Keep regular sleep habits. Try to get to bed at the same time and get up at the same time every day – even on weekends and vacations.
Avoid caffeine and alcohol in the late afternoon and evening. If consumed too close to bedtime, the caffeine in coffee, soft drinks, chocolate, and some medications can keep you from sleeping or sleeping soundly. Even though it can make you feel sleepy, drinking alcohol around bedtime also can disturb sleep.

Time your exercise. Regular daytime exercise can improve nighttime sleep. But avoid exercising within 3 hours of bedtime, which actually can be stimulating, keeping you awake.

Avoid daytime naps. Sleeping in the afternoon can interfere with nighttime sleep. If you feel you can’t get by without a nap, set an alarm for 1 hour. When it goes off, get up and start moving.

Reserve your bed for sleeping. Watching the late news, reading a suspense novel, or working on your laptop in bed can stimulate you, making it hard to sleep.

Keep your bedroom dark, quiet, and cool.

Avoid liquids and spicy meals before bed. Heartburn and late-night trips to the bathroom are not conducive to good sleep.

Wind down before bed. Avoid working right up to bedtime. Do relaxing activities, such as listening to soft music or taking a warm bath, that get you ready to sleep. (A warm bath also may soothe aching muscles.)

What Are Researchers Learning About Fibromyalgia?
NIAMS sponsors research that will improve scientists’ understanding of the specific problems that cause or accompany fibromyalgia, in turn helping them develop better ways to diagnose, treat, and prevent this syndrome.

The research on fibromyalgia supported by NIAMS covers a broad spectrum, ranging from basic laboratory research to studies of medications and interventions designed to encourage behaviors that reduce pain and change behaviors that worsen or perpetuate pain.

Following are descriptions of some of the promising research now being conducted:

Understanding pain – Research suggests that fibromyalgia is caused by a problem in how the body processes pain – or more precisely, a hypersensitivity to stimuli that normally are not painful. Therefore, several NIAMS-supported researchers are focusing on ways the body processes pain to better understand why people with fibromyalgia have increased pain sensitivity.
Previous research has shown that people with fibromyalgia have reduced blood flow to parts of the brain that normally help the body deal with pain. In one new NIAMS-funded study, researchers will be using imaging technology called positron emission tomography (PET) to compare blood flow in the brains of women who have fibromyalgia with those who do not. In both groups, researchers will study changes in blood flow that occur in response to painful stimuli.

Researchers speculate that female reproductive hormones may be involved in the increased sensitivity to pain characteristic of fibromyalgia. New research will examine the role of sex hormones in pain sensitivity, in reaction to stress, and in symptom perception at various points in the menstrual cycles of women with fibromyalgia and of women without it. The results from studying these groups of women will be compared with results from studies of the same factors in men without fibromyalgia over an equivalent period of time.

Another line of NIAMS-funded research involves developing a rodent model of fibromyalgia pain. Rodent models, which use mice or rats that researchers cause to develop symptoms similar to fibromyalgia in humans, could provide the basis for future research into this complex condition.

Understanding stress – Medical evidence suggests that a problem or problems in the way the body responds to physical or emotional stress may trigger or worsen the symptoms of any illness, including fibromyalgia. Researchers funded by NIAMS are trying to uncover and understand these problems by examining chemical interactions between the nervous system and the endocrine (hormonal) system. Scientists know that people whose bodies make inadequate amounts of the hormone cortisol experience many of the same symptoms as people with fibromyalgia, so they also are exploring whether there is a link between the regulation of the adrenal glands, which produce cortisol, and fibromyalgia.

Another NIAMS-funded study suggests that exercise improves the body’s response to stress by enhancing the function of the pituitary and adrenal glands. The hormones produced by these two endocrine glands are essential to regulating sleep and emotions as well as processing pain.

Improving sleep – Researchers supported by NIAMS are investigating ways to improve sleep for people with fibromyalgia whose sleep problems persist despite treatment with medications. One team has observed that fibromyalgia patients with persistent sleep problems share characteristics with people who have insomnia, such as having erratic sleep and wake schedules and spending too much time in bed. This team is testing whether strategies developed to help insomnia patients will also help people with fibromyalgia achieve deep sleep, which eases pain and fatigue. Preliminary results show that sleep education, which teaches good sleep habits, and cognitive behavioral therapy, which includes sleep education and a regimen to correct poor habits and improper sleep schedules, both reduce insomnia.

Looking for the family connection – Because fibromyalgia appears to run in families, one group of NIAMS-supported researchers is working to identify whether a gene or genes predispose people to the condition.

Another team is trying to determine whether fibromyalgia is more common in people with other conditions, such as serious mood disorders, that tend to run in families. Specifically, the group is studying the prevalence of psychiatric disorders and arthritis and related disorders in people with fibromyalgia and their first-degree relatives (parents, children, sisters, and brothers) as compared to people with rheumatoid arthritis and their relatives. The group is exploring whether clusters of conditions exist in families, which might shed light on shared risk factors or disease processes.

Studying and targeting treatments – NIAMS recently funded its first study of a drug treatment for fibromyalgia. The study will measure the effectiveness of gabapentin, an anticonvulsant medication, in reducing symptoms of fibromyalgia. Gabapentin has been found to relieve chronic pain caused by nervous system disorders, and it was recently approved by FDA for the treatment of persistent, severe pain that can follow an episode of shingles.

Scientists recognize that people with fibromyalgia often fall into distinct subgroups that adapt to and cope with their symptoms differently. They also realize that these subgroups may respond to treatments differently. One NIAMS-funded team of researchers has divided people with fibromyalgia into three groups based on how they cope with the condition. Relative to other chronic pain patients, those in the first group have higher levels of pain and report more interference in their life due to pain. They also have higher levels of emotional distress, feel less control over their lives, and are less active.
The second group reports receiving less support from others, higher levels of negative responses from significant others, and lower levels of supportive responses from significant others. Those in the third group are considered adaptive copers; they have less pain, report less interference in their lives due to pain, and have less emotional distress. Members of this last group feel more control over their lives and are more active. On the premise that the better you understand the subgroups, the better you can tailor treatments to fit them, the researchers now are trying to design and test different programs for each group, combining physical therapy, interpersonal skills training, and supportive counseling.

Where Can I Get More Information About Fibromyalgia?
National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892–3675
Phone: 877–22–NIAMS (226–4267) (free of charge)
TTY: 301–565–2966
Fax: 301–718–6366
E-mail: NIAMSinfo@mail.nih.gov
www.niams.nih.gov
National Center for Complementary and Alternative Medicine National Institutes of Health
P.O. Box 7923
Gaithersburg, MD 20898–7923
Phone: 888–644–6226 (free of charge)
TTY: 866–464–3615 (free of charge)
Fax: 866–464–3616 (free of charge)
E-mail: info@nccam.nih.gov
www.nccam.nih.gov
Social Security Administration
Office of Public Inquiries
Windsor Park Building
6401 Security Boulevard
Baltimore, MD 21235
Phone: 800–772–1213 (free of charge)
TTY: 800–325–0778 (free of charge)
www.ssa.gov/disability
American College of Rheumatology/Association of Rheumatology Health Professionals
1800 Century Place, Suite 250
Atlanta, GA 30345–4300
Phone: 404–633–3777
Fax: 404–633–1870
www.rheumatology.org
Advocates for Fibromyalgia Funding, Treatment, Education, and Research
P.O. Box 768
Libertyville, IL 60048–0768
Phone: 847–362–7807
Fax: 847–680–3922
E-mail: info@affter.org
www.affter.org
Fibromyalgia Network
P.O. Box 31750
Tucson, AZ 85751–1750
Phone: 800–853–2929 (free of charge)
Fax: 520–290–5550
E-mail: inquiry@fmnetnews.com
www.fmnetnews.com
National Fibromyalgia Association
2121 S. Towne Centre Place, Suite 300
Anaheim, CA 92806
Phone: 714–921–0150
Fax: 714–921–6920
www.fmaware.org
Tenemos disponible información en español y personal bilingüe.
National Fibromyalgia Partnership, Inc.
P.O. Box 160
Linden, VA 22642–0160
Phone: 866–725–4404 (free of charge)
Fax: 866–666–2727 (free of charge) or 540–622–2998
E-mail: mail@fmpartnership.org
www.fmpartnership.org
Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357–0669
Phone: 800–283–7800 (free of charge) or call your local chapter (To find your local chapter, check your phone directory or visit the foundation’s Web site.)
www.arthritis.org

Key Words
Adrenal glands – A pair of endocrine glands located on the surface of the kidneys. The adrenal glands produce orticosteroid hormones such as cortisol, aldosterone, and the reproductive hormones.

Analgesic – A medication or treatment that relieves pain.

Arthritis – Literally means joint inflammation, but is often used to indicate a group of more than 100 rheumatic diseases. These diseases affect not only the joints but also other connective tissues of the body, including important supporting structures, such as muscles, tendons, and ligaments, as well as the protective covering of internal organs.

Chronic disease – An illness that lasts for a long time, often a lifetime.

Connective tissue – The supporting framework of the body and its internal organs.

Cortisol – A hormone produced by the adrenal cortex, important for normal carbohydrate metabolism and for a healthy response to stress.

Fibromyalgia – A chronic syndrome that causes pain and stiffness throughout the connective tissues that support and move the bones and joints. Pain and localized tender points occur in the muscles, particularly those that support the neck, spine, shoulders, and hips. The disorder includes widespread pain, fatigue, and sleep disturbances.

Fibrous capsule – A tough wrapping of tendons and ligaments that surrounds the joint.

Inflammation – A characteristic reaction of tissues to injury or disease. It is marked by four signs: swelling, redness, heat, and pain. Inflammation is not a symptom of fibromyalgia.

Joint – A junction where two bones meet. Most joints are composed of cartilage, joint space, fibrous capsule, synovium, and ligaments.

Ligaments – Bands of cordlike tissue that connect bone to bone.

Muscle – A structure composed of bundles of specialized cells that, when stimulated by nerve impulses, contract and produce movement.

Nonsteroidal anti-inflammatory drugs (NSAIDs) – A group of drugs, such as aspirin and aspirin-like drugs, used to reduce inflammation that causes joint pain, stiffness, and swelling.

Pituitary gland – A pea-sized gland attached beneath the hypothalamus at the base of the skull that secretes many hormones essential to bodily functioning. The secretion of pituitary hormones is regulated by chemicals produced in the hypothalamus.

Sleep disorder – A disorder in which a person has difficulty achieving restful, restorative sleep. In addition to other symptoms, people with fibromyalgia usually have a sleep disorder.

Tender points – Specific places on the body where a person with fibromyalgia feels pain in response to slight pressure.

Tendons – Fibrous cords that connect muscle to bone.

Acknowledgments
NIAMS gratefully acknowledges the assistance of Deborah Ader, Ph.D., NIAMS, NIH; Karen Amour and Lynne Matallana, National Fibromyalgia Association, Orange, CA; Michele L. Boutaugh, M.P.H., Arthritis Foundation, Atlanta, GA; Daniel Clauw, M.D., and Leslie Crofford, M.D., University of Michigan, Ann Arbor; and Tamara Liller, National Fibromyalgia Partnership, Linden, VA, in the preparation of this booklet.

The mission of the National Institute of Arthritis and ­Musculoskeletal and Skin Diseases (NIAMS), a part of the U.S. Department of Health and Human Services’ National Institutes of Health (NIH), is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases. The NIAMS Infor­mation Clearinghouse is a public service sponsored by the Institute that provides health information and information sources. Additional information

Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
Leader: Buffalo Bills
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Dream it. Do it.


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ABERLAINE's Photo ABERLAINE Posts: 6,304
10/20/13 5:00 P

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Here is a link to the magazine, Arthritis Today, mentioned in the previous message if you wish to subscribe to it. But the online version has some interesting articles as well:

tinyurl.com/lg89og6

Also, there's an active arthritis team here in SP. You can find it at:

www.sparkpeople.com/myspark/groups_i
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ividual.asp?gid=4663


Edited by: ABERLAINE at: 10/20/2013 (17:03)
Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
Leader: Buffalo Bills
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Dream it. Do it.


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10/13/13 8:06 A

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Most of you probably know this, but for those who don't I'll share. Arthritis Today usually has an something about fibro every month in it. At least once a yr, it will cover the drugs used with indications, side-effects, etc. Since many of us with Fibro also have other conditions like arthritis, etc., the info on exercise and treatments can be quite helpful and it's the latest evidence. I highly recommend this magazine and have subscribed for yrs.

Deena

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Hi all, this info was a lifesaver for me! emoticon
Have a nice day! emoticon
Elle

www.fibromyalgiatreatment.com

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Very interesting thread. I read the article mentioned here, very informative. My fibro has been really active lately. Can't seem to get it to slow down. I need to go back to the chiropractor, but that costs money. I hope you all have a great Monday. Take care... emoticon

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This article was very helpful for me. I have since began taking the Pancreatin and Betaine HCl. I have no side effects but have found that I really need to take these at breakfast in order to see a difference.

http://www.healingwell.com/library/fibro
/article.asp?author=cartmell&id=2

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Hi Elle. Thanks for that link and suggest of the book

Mark
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10/13/12 1:44 A

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Hello I'm new to the group. I greatly recommend the book "What Your Doctor May Not Tell You About Fibromyalgia" By Dr. St. Amand and Claudia Craig Marek. It's an eye opener. It's helped me so much! You'll be surprised to say the least!!
(Get it on the cheap at www.betterworldbooks.com emoticon )
Let me know what you think!
~Elle~




Edited by: ELLE1277 at: 10/13/2012 (01:45)
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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
9/15/12 3:01 P

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Starr. I hope every thing works out for your DD. It is hard to start over but sometimes we just need to.

Mark
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TEENYSMOM's Photo TEENYSMOM Posts: 4,188
9/14/12 10:24 A

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Hi there all my friends. I have not been on here very much the past couple of months, but I think of you all several times every day.

My oldest DD moved "home" last month. She had lived in California for 11 years, and we had seen her only once in all those years.

Trying to help her get settled has been time consuming and very tiring for me. And on top of all that, she & I have been going to the gym together 3 to 4 times a week.

It seems like DD is getting no where quick as she tries to get a place to live, buy things that she needs & get settled. But I know that she will get there adventually.

She was approved to get a low-income apartment, but it will be at least the end of next week before she will be allowed to move in. And right now, aside from a very few personal things, she has only a bed & bookshelf. That is it. No pots, pans, dishes, chairs, towels, rugs, table.....when I say she has nothing, I mean she is literally starting from scratch.

Well my sweet friends, I must go. I just took some Tramadol a bit ago, and am feeling the pain subside and getting sleepy.

I hope you will have a great weekend. Maybe we can talk over the weekend for a bit

emoticon to all.

~~Starr~~

HAPPY 2014. MAKE IT A FUN & HEALTHY YEAR!

"RIP MY SWEETIE, I LOVE & MISS YOU." MARCH 3rd 2014


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8/15/12 11:23 A

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I just started a new discussion for Exercises for Fibromyalgia that was from WebMD.
www.sparkpeople.com/myspark/team_mes
sa
geboard_thread.asp?board=0x41x49470355

I hope that some, especially new people just starting out with exercise will find this helpful.

Mark
Leader: Gluten Free and Healthy
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Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
4/28/12 12:10 P

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You are right about cost. I buy (or stock up on) mixes when they are on sale. Also, my sister is making her own mixes with flours bought in bulk. It is a trial and error thing, but since December of last year, she has really made some incredible things. And it's much cheaper. She makes a master mix once every other weeks and because she buys everything in bulk, it costs like $4.00. When she wants to make biscuits or cake or something else, she just scoops and measures. Good luck to you. I know you will find what works for you.

The pounds are sliding off...


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DAISYGIRL77's Photo DAISYGIRL77 Posts: 158
4/28/12 8:22 A

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I guess the biggest thing I'm afraid of is the cost. I know it would probably even help my daughter that has severe exczema. I should give it a try. Especially since there are so many products out there. I do like the King Arthur flour mixes. We tried a gluten free coffee cake last week and it was pretty good. Thanks for your input.

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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
4/26/12 6:52 P

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Actually I'm gluten free and have noticed that my symptoms have all but disappeared. When I do feel bad, it's a day or two as opposed to weeks. or months. The body pains aren't nearly as severe.

I have to say that I did this after getting really sick and cutting my diet down to fruits and veggies only. I ate some cake at my husbands b-day party and the day after and realized that my skin was itching. I previously thought that I had to get rid of my cats (thank goodness I didn't).

I resented going gluten free because all of my favorite foods contained gluten (cake, pie, pasta, couscous, beer, bread - I was a bread girl). The adjustment was hard but I wouldn't go back now. When I want any of the other items, I get gluten free versions. Eating out is hard as well. I find it easier to cook my own food. And do so. There is a gluten free bakery nearby but they are expensive so I cook my own foods. But I've adjusted so much that when I ate a gluten free bun with a burger a few weeks ago, I didn't like it. The bun was too much.

The side effect is that I lost 30 lbs without changing anything else. Now I'm trying to lose the rest of the weight. In the year and a half since going gf I have been sick once - and I work around small sick kids all of the time. It may be something for you to try. I stuck to it because of the way I feel.

The wheat leads to inflammation which increases pain in the body from what I understand, but I'm not an expert.

The pounds are sliding off...


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DAISYGIRL77's Photo DAISYGIRL77 Posts: 158
4/26/12 5:38 P

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Yes I read the fatigued to fantastic but I'm just lost when it comes to the diet aspect. I was told to try whieght watchers but there again is more money being spent. I have people suggesting I go completely glueten free or preservative free. I understand some of it but I don't think that is why I came down with chronic fatigue and fibromyalgia.

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4/25/12 11:11 P

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My chiropractor gave me a diet. The thyroid diet. And it's too much to detail now, but in general, there were things I could eat everyday, things I could eat twice a week and things to eat once a month, depending on whether or not my fibromyalgia was acting up. He did some other things for me that allowed me to be symptom free (or just feel better) with out taking all of the Enzymatic supplements. I hope that helps. Have you already received the book? If so, what did you think of it?

The pounds are sliding off...


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DAISYGIRL77's Photo DAISYGIRL77 Posts: 158
4/25/12 2:33 P

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Glad you liked it too. Is there a specific diet that we should follow? My doctor gave me no info at all on what I should do.

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4/25/12 2:00 P

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I have and I read it. It was fantastic. I heard him talk at Elephant Pharmacy in Berkeley. He was talking ago;ut the Enzymatic line of products. They were amazing and I bought them on condition that I could return them. But there was no need for me. They were expensive ($225 per month) and I was on disability at the time so I couldn't do that. I went on to other things. But the book is good. He has another book on.

He also had a book Three Steps to Happiness which was good as well. He sold it at the event. But I haven't been able to find it. This book has exercises in it.

Hope you enjoy the book as much as I did.

The pounds are sliding off...


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DAISYGIRL77's Photo DAISYGIRL77 Posts: 158
4/25/12 9:00 A

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Good Morning! I as wondering if anyone has heard of the book From Fatigued to Fantastic! by Jacob Teitelbaum, M.D. I found his book very informative in helping me decide what vitamins and minerals I should start taking. I was just diagnosed a couple of weeks ago so everything is so new to me.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
4/23/12 6:45 A

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www.amazon.com/Full-Catastrophe-Livi
ng
-Wisdom-illness/dp/0385303122

I've made this a link, so you can just click... Thanks, Haaladances!

Edited by: I.M.MAGIC at: 4/23/2012 (06:48)
"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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HAALADANCES's Photo HAALADANCES SparkPoints: (20,483)
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4/22/12 11:59 P

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This isn't specifically for Fibro, but this book was recommended to me at the time that I was dealing with Lyme, Fibro, and divorce -- it's kind of a classic on using meditation techniques to cope with stress:

Full Catastrophe Living by Jon Kabat-Zinn.
http://www.amazon.com/Full-Catastrophe-L
iving-Wisdom-Illness/dp/0385303122

There might be a copy in your local libraries.

I found it very helpful. I just wish I was disciplined enough to meditate every day!

You must be the change you want to see in the world -- Gandhi


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WRITINGDIVA1's Photo WRITINGDIVA1 Posts: 294
4/17/12 11:55 P

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So glad I found the reading room! Can't wait to get started.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
3/26/12 9:28 A

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I agree, emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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POPPY1010's Photo POPPY1010 SparkPoints: (22,242)
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3/26/12 4:22 A

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A good article, thanks for sharing x

“When the power of love overcomes the love of power, the world will know peace.”
~Jimi Hendrix~

"Only one thing registers on the subconscious mind:
repetitive application - practice.
What you practice is what you manifest."
Fay Weldon


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CINDERRELIC's Photo CINDERRELIC Posts: 7,621
2/22/12 10:31 P

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Here is an excellent article on linking fibromyalgia to depression and anxiety, low cortisol levels, hypthyroidism, and other physical problems.

www.everydayhealth.com/fibromyalgia/
10
1/fibromyalgia-link-to-depression-anR>xiety.aspx?xid=aol_eh-fibro_1_201202
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_&aolcat=AJA&icid=maing-grid10%7
Chtmlw
s-main-bb%7Cdl19%7Csec1_lnk3
%26pLid%3D137464


Edited by: CINDERRELIC at: 2/22/2012 (22:33)
Strength Training:
"Strength is the capacity to break a chocolate bar into four pieces with your bare hands -- and then eat just one of the pieces." - Judith Viorst

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KERRY4614's Photo KERRY4614 Posts: 646
2/19/12 11:10 P

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I am a timer user too. ( I used to be a teachers so I those at home now as well.) I have one hanging from the rack on the butcher block table, one by the computer, one next to wear I sit down. I sit down longer than I work standing up though. emoticon

My life tomorrow will be the result of my attitudes and the choices I make today.




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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
2/19/12 10:53 P

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I think I've mentioned "pacing" a number of times... lol

I live with a timer. It goes off after I've been working for a set amount of time, and I rest for that length of time... and then go on to the next task. You'd be amazed at how much I can get done in bits and pieces! LOL

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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ALASKASKY's Photo ALASKASKY Posts: 6,159
2/16/12 9:14 A

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It is hard to rest but so important. I do the same thing. I feel guilty, because I think of all the things I could be doing. But once I get some rest I feel better and ready to take on the next day.

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2/11/12 4:44 P

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These posts are so helpful. Thank you so much. I often beat myself up for needing to rest, but when I rest, I DO manage my symptoms better. I have to make caring for myself a priority.

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2/11/12 1:53 P

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emoticon

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RMCAFEE23's Photo RMCAFEE23 Posts: 10
1/20/12 3:07 P

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I just searched for "figuring out fibromyalgia" on my kindle and I am currently downloading it. thanks for sharing!

Edited by: RMCAFEE23 at: 1/22/2012 (19:37)
Roxanne
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1/20/12 1:53 P

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Good attitude... which goes a LONG way, thank goodness! LOL

Good luck with the MRI...
Kathy emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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PICKIE98's Photo PICKIE98 SparkPoints: (267,040)
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1/19/12 10:33 A

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Thank you Kathy for the support.. Neurosurgeon immediately ordered a MRI,, I cannot get in until next week for medical reasons, but then he will follow up with me.
I am praying it is a good prognosis.. If it is just the fibro or spinal arthritis that I have had since 1ge 19, I am okay with it,, it is what it COULD be that makes me wonder,,
I never worry over something I have no control, so I enjoy this time and will take it as it comes,, no other choice, right??

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1/18/12 8:31 P

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I agree with ABERLAINE, with fibromyalgia it's VERY important that you prioritize your time and energy. They are limited commodities for NORMAL folks, and more so for us-- If I were you, I'd be careful to spend both where they will do the most good... and spending time with my loved ones definitely has more importance than any volunteer work I may choose to do. Volunteer opportunities abound, but I only have one family, and one set of friends. Aren't they worth my time--especially if I need their help to even be ABLE to do the other things? I love them, so why not prove it, y'know?

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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ABERLAINE's Photo ABERLAINE Posts: 6,304
1/18/12 7:06 P

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I have a few suggestions that have helped. (This is Renee's answer to a new member.)

"1. Be positive - in all things. Losing weight, exercise, your personal worth. You are very important, especially in God's eyes.

"2. Be determined to complete a goal; no matter the size of the goal. Don't be discouraged if you have a flare up.

"3. Know your limitations - as I read your email, I noticed that you keep yourself busy. Five hours of work, volunteer work, your children, home and yourself. Family is important and spending time with them, as you know, is very important. You might want to look at your daily activities and see if you can dwindle something out; that way when the weekend comes, you have time for them.

"4. Delegate - if you can't do something (i.e. housework, laundry, etc) assign someone in your home to help, especially if the children are old enough to do any chores. I had to do this, even though the house wasn't how I wanted it, the work got done.

"5. Exercise - this is probably the hardest, because it can cause a flare up. I have a walking buddy that I met on this site and we try to walk our local mall M-F, and we walk slowly, and do anywhere between 2 - 4 miles. She walks my pace. Find a buddy who would like to help you that will encourage you and yes, maybe be a drill sergeant on days that you don't feel walking.

"6. Lose weight - yeah, I know, hard. It is. In August 2010, I stepped on a scale at my mother's house and it topped over 300. I said, "No way! and started to lose weight by using SparkPeople, keeping track of food intake, exercise log and journal. I really got serious this past August and have lost 55lbs. I want to lose another 100lbs. Granted, even when you lose your weight you will still have flare ups, but you will feel better about yourself.

"7. Take vitamins. I take Fish Oil for both the FM and Osteoarthritis. I have real bad knees and have to wear braces on both legs to get around. Fish Oil is great, also take a b12 or complex B vitamin. This will give you good metabolism.

"8. Find a friend who you can confide in, that you can tell anything to. This is the best stress reliever, and the less stress, the less flare ups.

"I know I have said a lot, but these are things that I like to remember to help me. Since Sunday, I have had a bad flare up, but I still walked today, and rested afterward. I hate to hear that you are so bad for the weekends. I use to be that way and decided I had to change the way I was living and had to revamp how I was going to spend my days. Please, if you would like, I can be there for you. If not me, find someone, use this group. The people are very knowledgeable. Medication is good, but don't let it control you. I found Lyrica worked best for me, but my insurance stopped paying for it. The last advice I have for you and it is probably the most important, find a doctor who know about and believes that FM is real. I was pushed from one RA to another, with them telling me it is not their field and nothing than can do. Very discouraging.

You take care and God Bless, Renee"

Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
Leader: Buffalo Bills
-----------------
Dream it. Do it.


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BEKAHBELL's Photo BEKAHBELL SparkPoints: (7,387)
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1/17/12 12:33 A

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I didn't look back through all the pages, but wondering if anyone has read or heard of the book "figuring out fibromyalgia" ?? I found it through a fellow fibro girl on pinterest and downloaded it on my kindle last night, I'm now 1/2 way through and it's AMAZING. Highly recommend it!!!

Bekah :o)



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1/16/12 1:30 A

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I'd cross my fingers for you, but they might get stuck that way! LOL

You'll do fine... And HAPPY BIRTHDAY! (in case I forget! LOL)
emoticon

Edited by: I.M.MAGIC at: 1/16/2012 (01:30)
"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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PICKIE98's Photo PICKIE98 SparkPoints: (267,040)
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1/13/12 2:42 P

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Thanks you all,, I will let you know, I have an appointment with him just before my birthday,, hoping for a great BD present of no problems.. Jan 18..

SIX YEARS SPARKING!!

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
1/13/12 2:08 A

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I agree, CINDERELIC. A lipoma is a benign fatty tumor. In and of themselves, they are pretty harmless--but they can put pressure on nerves or push things out of alignment, depending on where they are located. And if you have that skin sensitivity, the skin over them is stretched and protruding a bit more, so it's more likely to get irritated by exposure to rough fabrics etc. Having your doctor take a look will confirm whether it IS a lipoma or something else, and he should be able to tell you too whether its in a place that needs to be dealt with.

So try not to worry, talk to your doctor as planned, and get the facts-- and see where things go from there.

We all want to know what happens, so keep start up a thread if you need to--just keep us posted, ok?

Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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CINDERRELIC's Photo CINDERRELIC Posts: 7,621
1/12/12 3:16 P

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You are doing the right thing by showing it to your doctor. However, worrying does more harm than good and doesn't produce any positive results unless it spurs us to action which you have already done, so I would rest in knowing that I was going to talk to a professional about it and go from there.

Strength Training:
"Strength is the capacity to break a chocolate bar into four pieces with your bare hands -- and then eat just one of the pieces." - Judith Viorst

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1/12/12 2:28 P

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Cinderrelic,, I read the part about lipomas,, I have had none of that so far, but when I was receiving a hot stone massage in December, the therapist told me I had a big lump on my spine at the base of my neck,,she massaged it but it is still there,,
I forgot about it because I thought it was tension which she usually massages out,,
until today DD was applying Minagan to my back and neck and she told me I have a huge lump on my spine,, I froze!!! It is the size of her fist..

I have an appointment with my neurosurgeon for a routine post-op check, I am going to show it to him,, that is next Wednesday.. should I worry? It was scary when I remembered it was there last year..
emoticon

Edited by: PICKIE98 at: 1/12/2012 (14:29)
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12/19/11 9:19 A

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Coldness definitely affects my flares especially in my hip joints so I do all my walking inside.

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We are what we repeatedly do. Excellence then, is not a an act, but a habit - Aristotle

Today is going to be a great day. How do I know? Because I'm going to make it so!

Patti - EST


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I WAS DIAGONISED LAST FEB. NOT IN PAIN ALL THETIME BUT THE LAST 2 DAYS HAVE BEEN BAD. IT IS COLD IN SOUTHERN INDIANA AND I WALKED OUTSIDE A FEW DAYS AND I THINK MAYBE THAT IS WHAT CAUSED THE FLARE UP. REALLY DON'T KNOW ABOUT FIBRO EXCEPT I DON'T LIKE IT.

GOD BLESS EVERY ONE THAT VISITS THIS PAGE JESUS IS LORD

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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
12/12/11 9:54 P

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Excellent article. Thanks for sharing it!

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PEPPYPATTI's Photo PEPPYPATTI Posts: 36,546
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Great article! Thank you for sharing it! I really suffer from the sensitivity to touch-I knew it was a symptom but to see it explained helps. Thank you again!

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CINDERRELIC's Photo CINDERRELIC Posts: 7,621
12/10/11 11:41 A

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www.everydayhealth.com/fibromyalgia/
st
range-signs-of-fibromyalgia.aspx?xidR>=aol_eh-fibro_2_20111205_&aolcat=AJA
&i
cid=maing-grid10%7Chtmlws-main-b
b%7Cdl
5%7Csec1_lnk3%7C118998


This is a great article. It describes :

Allodynia which is extreme sensitivity to touch, “This increased skin sensitivity and pain from touch is hypothesized to occur for a number of reasons,” says Jacob Teitelbaum, MD, medical director of Fibromyalgia & Fatigue Centers. “Over one-third of people with fibromyalgia develop a small fiber neuropathy caused from the chronic pain. In addition, the chronic pain causes amplification of pain signals in the brain itself, as well as changes in three key neurotransmitters related to pain.”

Sensitivity to fragrance and it also mentions sensitivity to light and sound.

Of course it includes fibro fog and elaborates on that.."Some of the common signs of fibro fog include a difficulty with word finding or substitution, loss of short-term memory, and occasionally even episodic disorientation that lasts for about 30 to 60 seconds... He explains that there is no single cause for fibro fog; rather, it can be caused by a combination of many factors including low thyroid levels, poor sleep, hidden infections such as Candida, and alterations in blood flow to the temporal lobes of the brain, which regulate speech.

Paresthesia. Paresthesia is an unexplained feeling of tingling and numbness that people with fibromyalgia may experience. Often it's related to anxiety or nervousness over the disorder and can be accompanied by rapid, deep breathing. This in turn can lead to acroparesthesia, a tingling in the hands and feet from lack of carbon dioxide.

Lipomas. These benign fatty tumors that can appear as lumps in various parts of the body are not directly related to fibromyalgia, but they may cause you to experience more discomfort than the average person does.

Excessive sweating. Some people with fibromyalgia perspire heavily and may even believe they have a fever. This is due to what’s called an autonomic dysfunction within the hypothalamus, the almond-sized area in the brain that controls sleep and regulates sweating, bowel movements, and other automatic body functions. “The autonomic dysfunction causes the increase in sweating," Teitelbaum says. Some medications and lifestyle changes that can keep you cool and dry may help with this fibromyalgia symptom.

Strength Training:
"Strength is the capacity to break a chocolate bar into four pieces with your bare hands -- and then eat just one of the pieces." - Judith Viorst

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ALASKASKY's Photo ALASKASKY Posts: 6,159
12/10/11 6:52 A

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I'm Flaring this week, but am trying to keep moving. emoticon

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Awoke in a fibro fog this morning with quite a bit of paid but once I got moving everything sorted itself out. I did my hour on the treadmill while watching the parade-I am glad I didn't give myself the day off as is a holiday. I am really working on consistency.
Hope you all have a Happy Thanksgiving!

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This thread has helped me a lot. An underwater treadmill? How cool is that?????

My PCP is great, is a great listener and will do anything I ask for my care and comfort,, he knows I would never do anything on my own, like stop a med or whatever without telling him or ASKING him first..
I can no longer afford to go to the rheumatologist, there was no progress there anyway.. all he did was order repeat labs of things he already knew about me. These costs left me with no coverage until next year...
I learn a lot here, more than in his office.. thank you all for your sharings..

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11/22/11 7:32 A

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"If you deny yourself everything because you're so focused on the mirror or the scale, then when do you get to enjoy life?"


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We are what we repeatedly do. Excellence then, is not a an act, but a habit - Aristotle

Today is going to be a great day. How do I know? Because I'm going to make it so!

Patti - EST


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
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I LOVE water aerobics!--takes so much stress off the joints... and makes moving easier and more effective at the same time! LOL

One of the PT places I went to had an underwater treadmill... sweet! emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

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DUSTYPRAIRIE's Photo DUSTYPRAIRIE Posts: 8,666
10/28/11 7:50 A

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My primary doc, the one that seems to be more up on fibro than even my specialist, ok'd me to do water aerobics on the condition the pool is warm.

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emoticon For sharing your information with me. I'm in PT right now, I think I'll have a chat with them to give me exercises I can do that won't hurt my hips and yet help my FMS.

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ABERLAINE's Photo ABERLAINE Posts: 6,304
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This has become more of a discussion forum. Let's keep it that way and use the other Reading Room to post links ONLY. That way new members will be able to find the links easier.

Thanks.

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
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Definitely the wrong rheumatologist! A good one DOES deal with fibromyalgia, which is an inflammatory disease and therefore in his/her supposed area of expertise. On the other hand, it is true that there is only so much they can do about the pain issues. If the usual round of drug therapies don't do the trick... they're stuck. My rheumatologist believes I have something else in addition to the FMS, but all the tests have come up negative... and he's at that point now where if nothing changes I just see him twice a year.

I AM seeing a neurologist because I have been diagnosed with diabetic neuropathy that has taken an atypical path, and he sent me to physical therapy--and that therapist has taught me more than all the seven rheumatologists and physical therapists I have seen put together.

Exercise has always been the only thing that offered me any chance of progress. It does NOT ease the pain, but it makes a difference in my energy level, my stamina, and my emotional outlook--so even when I hurt, I can still get things done! I'm still walking that narrow line between doing enough and doing too much, but I have a semblance of normality to my life that was missing before. Although...

Lately, I spend WAY too much time exercising! emoticon

Except for a one-month follow-up, the sessions the insurance will pay for are over next week, and I'll be on my own. I'm going to see if I can use that last session for the eval AND to revamp my workouts so I'm not doing the same ones every day the way I am now--getting some repetition injury symptoms and don't want to go there--but I'm not giving up until I CAN do them every day, without the problems! LOL

Is this the right forum for this kind of discussion? I'm thinking it should be on an open thread...
Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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KERRY4614's Photo KERRY4614 Posts: 646
10/15/11 8:59 A

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I went through the same thing you did. The GP sent me to a rheumatologist and he took 23 x-rays and next visit told me he could do nothing for me and he was sorry for my pain. Do they have advanced pain management where you are? I finally went to a pain management specialist a month ago and this is the first physician that seems to be helping me.

My life tomorrow will be the result of my attitudes and the choices I make today.




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MY Rheumotologist told me she couldn't help me any more that I had FMS and OA which didn't need a Rheumotologist. I was told my regular doctor could take care of me. BUT after reading some of the things you guys have put on here I think she's wrong. I do need a specialist but which one do I need? Do I get a neurologist or a different RA doctor? What do you guys think?

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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
10/14/11 5:22 A

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With fibromyalgia you want a rheumatologist and/or a neurologist. The rheumatologist deals with the inflammation side of things, the neurologist on how things work in the nervous system and the brain.

I am liking my neurologist more and more--seems to me now that about half of my symptoms are as much neuropathy from my diabetes as they are the FMS... and it's amazing how much more help I get from him than from my rheumatologist, even if the rheumatologist IS the expert on the fibro! LOL

Either one, a great place to start!

Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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Thanks for all of the information. I've had FMS since 1994. At least that's when I was diagnosed. Not much information was known then. I think it's great that all this research and information is now available to us.
Thanks for sharing.

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Given Moment Is Yourself
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KERRY4614's Photo KERRY4614 Posts: 646
10/9/11 10:40 A

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arthritis.about.com/cs/fms/a/fmscaus
e.
htm


I wanted to share this link from About 101 fibromyalgia. This specific link shares the specific research and history about fibromyalgia . This newsletter covers Fibromyalgia 101. emoticon

My life tomorrow will be the result of my attitudes and the choices I make today.




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I am so thankful for all of you, I had probably had this awful sickness for two to three years when I had a name for it. Have known what it is for about six months. I am retired and 75 and had never been sick very much always doing two or three things at the same time never sitting still and then this stopped me in my tracks. I do crafts and sewing I was always collecting things to do when I retired and now that I'm retired I don't feel like doing anything.

I have been thinking about how to manage and do some of the things I want to, I hate exercise but am going to have to do some but finding how to do without tiring myself out to much and how to eat the right food and which supplements to use. I have a primary doctor but he does not know much about fibromyalais and do not know what kind of specialist to go to.

I am married and my husband helps with everything, he is my second DH and we have been married 16 years and have a large family. I'm sure I've told you more than you ever wanted to know, but again sure glad I found you. I'm from Arkansas

. emoticon emoticon emoticon

Edited by: NELLIEBLUE at: 10/8/2011 (21:21)

♥ .•*´¨ ) ..•*¨) -:¦:-
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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
9/23/11 1:26 P

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You're not alone now... we've all been along the path of pain.

Moving does make a difference... and for me, even when it still hurts, at least it's easier to work through it!

emoticon
Even baby steps count!

Kathy emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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9/23/11 10:35 A

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I had sepsis for 3 months and after and during I was in so much pain to get out of the bed to walk to the bathroom had me gabst for breath. When I move anything it hurts so much ...I always think before I move. I gain 50 more lbs in the last 2 years because of not moving..I was on the gymnactics team in HS and love to strecht I almost cry when I streatc use to love it..this week is the first time im trying to move more to be healty in 2y. I take pain pills but I swear it doesnt help...it does make me feel looser ..Im very stiff ..swimming makes me feel almost painfree and when the water is cold its even better...pain is better with cold water than hott....I could cry daily because of the pain...Dr says my body turn on something when I had sepsis....I will now try to give up wheat to see if that helps....pain is 24 / 7. Im not addicted to pain pills and I dont take them alot..because Im afraid of that happening. Lyica seems to help with stiffness...I really try not to leave my house because it hurts to put on my clothes and do my hair...I must start leaving my house and I must live my life. I hope working out will ease my pain after a while of doing it ...the pain is a 9 to 10 when I walk after 20 min I cant lift myleg to get into the car and have to pick it up with my hands to get into the car. Im very tired also ....but Im going to change my life somehow and I will move more and do more ..I dont know anyone who has pain Ive been alone in this

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9/13/11 2:56 P

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LANEYPUDDLESMOM,

I swear I feel your pain, I was in pain for years but it wasnt until 2004 that an acupuncturist did preliminary testing and told me it was FMS. Honestly, they've given me so many pills for years that most of it don't seem to work anymore.

Since early 2010, I finished law school and started working out regularly. Even when I'm in pain, I workout because just the stretching, doing cardio (which brings natural heat to the muscle) and stretching has help tremendously to my pain. The heat therapy patches help get through the day when pain is too bad too, or hot baths with Epsom salts. If you want more information on the type of workouts, send me a message and I'll be glad to help.

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9/13/11 2:50 P

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Breala, in my case I had the symptoms very early.. since early 20s but they didnt even wanted to do testing but when they finally did, they did test for Lyme Disease, Lupus and a bunch of other diseases... I do remember it was $140 worth of blood work.

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Thanks Martha - it does look like a great resource. I've signed up. emoticon

Sonia

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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
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The National Fibromyalgia and Chronic Pain Association is offering free online subscriptions to their brand new bimonthly magazine. It looks like it will be a great resource for us. If you are interested in looking at the inaugural issue or subscribing, go to:
www.fmcpaware.org/fibromyalgia-a-chr
on
ic-pain-life-inaugural-issue


Martha
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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
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Interesting articles... and funny/odd how few of them seem to apply for me. The only things that might apply are relatively mild physical and chemical trauma! LOL

And I've been tested for all kinds of food sensitivities... nada, except the artificial sweeteners! THOSE are NASTY!

I'm glad the info is available, it may help someone else...
Kathy
That's the thing about fibro--so many paths to the same end! emoticon emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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MARTHASPARKS's Photo MARTHASPARKS Posts: 2,718
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I found another great article on food and fibro. To read it go to: www.realage.com/check-your-health/ch
ro
nic-pain-management/eat-foods-to-easR>e-fibromyalgia?src=nl&dom=realage&li
st
=tod&link=tttr&ad=fibro&cbr=cym_
pr&eid
=1010643088&memberid=29085119#fbIndex1


Martha
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I wish you all JOY and the fulfillment of your dreams.
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ABERLAINE's Photo ABERLAINE Posts: 6,304
9/12/11 7:00 A

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Causes of fibromyalgia:

tinyurl.com/6hyk74k

Heredity
Trauma
Connective tissue diseases
Infection
Catastrophic stresses
Chemical exposure

Nancy
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Leader: Buffalo Bills
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Dream it. Do it.


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
8/7/11 12:56 A

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I made this a link for convenience...

www.prohealth.com/library/showarticl
e.
cfm?libid=8441
Thanks, BREALA!
Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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Hi new to the site looking forward to getting to know you guys and learning about one of my illnesses. FMS is a royal pain literally so any advice is welcomed. By the way my name is Sandra.

The Best You Can Be At Any
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-Elizabeth Alraune sosmegod


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Has anyone here had tests to rule out chronic Lyme Disease when being diagnosed for FM? I found a very interesting and exhaustive web site that talks about Late Stage Lyme disease and how it is often mistaken for FM. In case you are curious please visit the following site to learn more: http://www.prohealth.com/library/showartic
le.cfm?libid=8441

I stumbled upon it because I have recently been plagued with Heart issues not explained by my Fibro Myalgia. Any way, If you happen to give it a read, I would love to read your thoughts and opinions on the topic.

The people who believe they can change the world are the people who do!


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
7/4/11 6:14 A

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Here's a link for that:

www.fmcpaware.org

emoticon , SEDONACAT!

Edited by: I.M.MAGIC at: 7/4/2011 (06:15)
"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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7/3/11 8:06 P

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National Fibromyalgia & Chronic Pain Association

Founded in 2010, the National Fibromyalgia & Chronic Pain Association is an organization whose mission is to educate and execute advocacy programs regarding access to care, scientific research, diagnosis and treatment for people suffering with chronic pain from fibromyalgia and overlapping conditions.

For more information, visit www.fmcpaware.org



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6/30/11 6:22 A

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I just saw a great webinar about the reasons we can't get to delta sleep. It's a little technical, but still worth watching. You can find it here:

fmcpaware.org/

Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
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ABERLAINE's Photo ABERLAINE Posts: 6,304
6/6/11 5:24 A

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I posted this monstrous list of fibro symptoms on our "Symptoms" forum, but I figured you all should take a gander at it, too.

chronicfatigue.about.com/od/whatisfi
br
omyalgia/a/fibrosymptoms.htm


Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
Leader: Buffalo Bills
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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
5/24/11 12:31 A

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Glad you found the team, LANEYPUDDLESMOM!

The discussion topic you've tapped into here is our 'READING ROOM' where you can find tips and references and links to such things for all kinds of information regarding FMS...

If you click the team name at the top of the page, it takes you to a list of discussion topics where you can join in and ask questions and share experiences--and meet all kinds of new friends who've been where you are right now!

Welcome to the team!
Kathy emoticon

"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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LANEYPUDDLESMOM's Photo LANEYPUDDLESMOM Posts: 643
5/23/11 11:33 P

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Hi, I am new to this site. I want to learn more about Fibromylgia. I have been in pain now 17 years. Finally all the doctors I have been to, are saying it is Fibromyalgia. Not happy to hear that, but I am glad to finally have a diagnosis on the problem. I have been taking all kinds of OTC meds. Nothing seems to help. Aspirin may be the best, but nothing has taken all the pain away. Hope to learn more. Laney

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BISCO_'s Photo BISCO_ Posts: 2,200
5/12/11 4:46 P

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Today is National Fibromyalgia Awareness Day - pls post in your status to increase awareness!!


-:¦:-
*´¨¨)) -:¦:-
¸.♥ .·☆´¨¨)).·*¨)
((¸¸.♥´ ..·´ ☆**☆.¸¸.♥´ Bis
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FLUFFYBEAR71 SparkPoints: (0)
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5/12/11 11:28 A

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Here is a good article from Fibro-myalgia.com. It deals with relationships with other people. My husband is not the most understanding when it comes to my pain tolerance. He thinks he can grab or poke me in certain place and I feel so much pain from it. This causes me to feel so weak. I hope this article will help you as it helped me.

Fibromyalgia and You – Manage Your Relationships

By Kelly Eveleth

What do you say to others when "Fibromyalgia" enters your vocabulary? Do you share with others that you now have a name for your chronic health issues? Or, do you keep the label to yourself? This article is not about defining fibromyalgia as so many articles available do. Nor, is it a list of answers so you can better manage the pain. Rather, the question is, what do you do to manage your relationships? Fibromyalgia, like many other chronic health conditions, stresses the relationships in your life.


You have three different kinds of relationships. You have relationships with otherpeople. You have a relationship with yourself. You have a relationship with a higher power; the name you have for this higher power depends on the spiritual belief system you choose. Fibromyalgia exists in all of these relationships. The relationship you have with yourself is the one in which you have the greatest control. Depending on your spiritual belief system, varying degrees of control exist in the relationship you have with a higher power. The relationships you have with others you have what I call influence – in a healthy relationship you do not control some one else's behavior. Rather, you have opportunities to shape the kind of relationship and interaction you want.

Interacting with all the people in your life takes energy. Some people require more of your energy than others. Some people give you energy. Managing your energy level is a primary concern when learning how to manage fibromyalgia. Different entities will recommend various products to help you have more energy. These products may or may not help and they can be a financial burden. So, consider the relationships you have with family, friends, and groups of people (such as those you may work with). Here are some suggestions:

•List all the different people you interact with in your day. To keep this idea from being overwhelming, keep a list journal. At the end of the day, write down the names that you can remember with whom you interacted.
•Highlight the people you experienced a positive energy when interacting with them.
•Consider ways in which you can detach yourself from those who are more draining.
The suggestions above are only the beginning of learning how to manage your relationships with others. Try this for a minimum of three days. Consider if this activity helps you think about your interactions with others. How much time do you spend with others? Who do you seek out to spend time with? Do relationships exist that you may be able to let go of? Who do you want to share the word "fibromyalgia" with? After several days, look closely at how you are feeling about these relationships.

So, how do you manage your relationship with your higher power? Do you become angry? Do you blame? Do you run away? Do you spend more time focused on this particular relationship? Consider your behaviors. Here are four things I suggest doing when managing this relationship:

•Clarify what you really believe. Go back to the basics or foundations of your spiritual belief system.
•Make a decision, really you do have a choice, to use these core ideas to strengthen you or to weaken you.
•Seek supporting resources for your spiritual life. Maybe you know of a spiritual guide or written material that you need to focus your energy upon.
•Ask for help when you need it.
Some people may say, "I don't have a relationship with a higher power." I disagree. We are created beings. Many different beliefs exist as to how we came into being. This writing is not a debate about which belief system is the correct one. What is important is that every individual at least acknowledges that a higher power exists. And, you have some kind of relationship with this higher power, even if it is minimal in your life.

The relationship which affects the outcome of fibromyalgia the greatest is the relationship you have with yourself. You have the greatest control as to how you respond to the conditions of fibromyalgia. The medical profession provides options for managing the physical elements of this condition. As a human being, you have the option of how to interact with fibromyalgia. Changing the past or pretending that fibromyalgia does not exist are not options. "IT" has happened. A name has been given to the symptoms. Fibromyalgia is now in your vocabulary. So, what do you do? Here are my thoughts:

•Forgive yourself. Get rid of the statements, "If I only…"
•Listen to your body. Fibromyalgia is a unique condition. The medical profession can assist you in managing your health and medical specialists also rely on you to pay attention to the signals and messages your body gives.
•Be proactive, not reactive. In other words, learn all you can about your specific needs so you can make good decisions.
•Live. I don't know how else to say it. Live! Know yourself and live each day, enjoying the moment.
I am not a medical specialist. I am not a psychologist. I am a woman who received the word "fibromyalgia" into her daily vocabulary. Fibromyalgia never goes away. It is always with me and that which I have shared are the actions I have consciously taken to manage my relationships. I am a learner and a certified life coach. I have learned that working harder to manage life issues is not the answer. Working smarter is a better way to live.

To gain additional free suggestions and resources to strengthen your spirit, visit KJ's Cottage owned by Kelly J. Eveleth. Kelly shares her expertise from the perspective of being a Life Coach and Professional Educator. http://www.kjscottage.com

Article Source: http://EzineArticles.com/?expert=Kelly_Eve
leth
http://EzineArticles.com/?Fibromyalgia-a
nd-You—Manage-Your-Relationships&id=24
97941
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PICKIE98's Photo PICKIE98 SparkPoints: (267,040)
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3/30/11 6:36 P

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I am taing pure concentrate of tart cherry for my arthritis pain,, taking fish oil as alternative to relafen.. My family doc and I are experimenting on pain and side effects issues with Rx drugs,, will let you know,,

SIX YEARS SPARKING!!

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ABERLAINE's Photo ABERLAINE Posts: 6,304
3/21/11 3:15 P

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A fairly comprehensive site on fibromyalgia. Might be worth a visit.

www.everydayhealth.com/fibromyalgia/
fi
bromyalgia-and-chronic-fatigue-syndrR>ome.aspx


Nancy
Co-Leader: Fighting Fibromyalgia
Co-Leader: The Breakfast Bunch
Leader: Buffalo Bills
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Dream it. Do it.


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CTTAGENT's Photo CTTAGENT Posts: 1,613
3/19/11 12:45 A

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Interesting article on pain.

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TURNERHUNT SparkPoints: (1,036)
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3/7/11 2:06 P

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WOW, just read the article on the fatigue of fibro. Very interesting about the 50% idea to store up energy. I have a horrible time not overdoing it when I feel good but this may just be the right thinking for me! Keep the articles coming!

Edited by: TURNERHUNT at: 3/7/2011 (14:07)
BB2693's Photo BB2693 Posts: 198
3/6/11 9:26 P

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Article on Chronic Pain in Woman's Day
www.womansday.com/Articles/Health/Li
vi
ng-with-Chronic-Pain.html


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INRATHLETE's Photo INRATHLETE Posts: 2,051
3/6/11 6:46 A

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About 4 months ago, I found a company for supplements that seem to make me feel better. healthresources.net Not cheap. But, I have noticed that I just am able to cope better. I haven't missed a day of work since taking them. You might need to read through the different products, see which symptoms you need to address. I take a multi, a hormone balancer, krill oil, joint soother and...something else. fibro fog moment in progress. Also, I started taking EmergenC a few weeks ago. I had been working a lot, It was the dead of winter (not my favorite time of year) and I was afraid I was going to get too run down. So, I got it as an immune booster. But, I have noticed that it really seems to give me an energy boost. I take it 2 or 3 times a day, depending on how I'm feeling. After going through the first box, I hadn't re-supplied and noticed that my energy was really fading. (not like I have a lot in the first place). So, I got more. When I ran out that time, once again, noticed that energy fade. So now, I think I'll be keeping a back up box. And, finally, I've been taking B12 injections a couple times a week for a few months.

All this stuff together seems to be helping to control my symptoms. I've actually signed up for the 5K Your Way team and have started running for the first time in my life! And, I'm in my 50's.

The fact that all these supplements seem to help makes me wonder if there is some kind of nutrient absorption issue that makes me feels so rundown

Terry in Central MD

"I am fearfully and wonderfully made"

calorie range 1300-1600

STRONGIS THE NEW SKINNY!


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I.M.MAGIC's Photo I.M.MAGIC Posts: 12,820
3/2/11 9:24 P

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www.martinez-lavin.com/Fibromyalgia.
ht
m


"The real secret of success is enthusiasm..." Walter P. Chrysler said it, I believe it. That's what I want in my life--to give my imagination a chance, to live with energy and enthusiasm!

Ralph Waldo Emerson said 'Life belongs to the energetic.' But you don't have to be frenetic and hyper--some energy is quiet and steady, like a heartbeat... and that works too! LOL

Life comes in specific increments, which we receive as a gift of one moment at a time. That's why it's called t


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BB2693's Photo BB2693 Posts: 198
3/2/11 9:07 P

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I just found this interesting article. Well worth reading I think.

Fibromyalgia The Misapprehended Pain

http://www.martinez-lavin.com/Fibromyalg
ia.htm

Edited by: BB2693 at: 3/2/2011 (21:16)
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