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Posts: 407
2/9/10 8:44 A

Mine is still on the top bones of my feet right below where I tie my shoes. ouch!

Posts: 41
2/9/10 8:03 A

Fibromyalgia is winning the fight today. Pain in the knees is bad.

Edited by: HEALTHYJOANN at: 2/9/2010 (08:04)

Posts: 407
2/9/10 5:43 A

Great idea Susan!!:)

Posts: 130
2/8/10 9:47 P

Well then I would find some kind of stool that I can sit in the shower and turn on the hot water and just sit there in the hot shower until I run out of hot water.

Posts: 407
2/8/10 9:44 P

I would love to take a hot bath, but my bathroom is so small all that is in there is a shower. And it resembles a phone booth. Better not drop the soap! LOL

Posts: 130
2/8/10 9:42 P

At times I have found that either a heating pad, (which I keep within arms reach all the time) or a hot bath helps.

Susan

Posts: 261
2/4/10 7:58 P

The pain I have in my toes, is most of the time on my right foot, some time on the left. It feels like electric shocks. I have heel pain most of the time.

I have tried everything for my itchy back and shoulder blade. Chiropractors, Massage, creams etc. nothing ever takes it away.

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Posts: 407
2/4/10 3:42 P

That is exactly what I have BB!! The pain makes me gasp. Literally. My son knows now when he hears that sound, I'm hurting badly.

Posts: 127
2/4/10 2:58 P

I think one of the vertebra in my spine is out of alignment. My "spot" is just numb - not itchy. I see the Dr. tomorrow ans will ask him about it.

I have the thing with my foot when I take a step it REALLY pains but it is on the top of my foot above my two last toes. It takes my breath away, it hurts so bad when it happens.

BB

Posts: 261
1/31/10 8:27 P

Hey BB, In the middle of my spine I have a constant locked feeling but to the left of it and right to the corner of the shoulder blade it is numb at times and extremely itchy all the time.

You could scratch it with a jagged piece of glass till it bleeds and I would not care. I drives me nut. Sometime it feels like something if pricking me. Its the weirdest thing.

current weight: 238.0

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Posts: 127
1/31/10 3:21 P

Well, it is another cold day here in Ontario Canada. I am stiff and achy all over. I have a numb spot in the middle of my back to the laeft of my spine. Does anyone else get that sensation? I have had it in the past but not for a long while now.

Hope everyone is staying warm and not suffering too much with the fibro pain.

I am anxiously awaiting the return home of my daughter and new son-in-law from their honeymoon. I expect they have taken lots of photos to share and also family members where going to put the photos they had taken at the Wedding on CD's for them so I am anxious to see them. It was a really nice Wedding and I am still re-running bits of it through my mind. She was a beautiful bride (thought I may be a bit biased eh?) and he was a handsome groom! I will post a few pics at some point.

Hugs to all,
BB

Posts: 407
1/31/10 6:52 A

Yes, I believe Peacelover your mother saved your life that day! I used to climb up on the counter, and grab the jar of honey. After I sucked on the honeycomb, I put it back in the jar. Nobody ever found out. But, after all, I was only four years old

Edited by: REFUGE51 at: 1/31/2010 (06:53)

SparkPoints: (5,974)
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Posts: 626
1/31/10 5:13 A

LOL did you snore in court? I would have. I get that nappy feeling too. When a child, I waited for Mom to fall asleep when she napped with me. That became my time to explore the house. Never forget when I climbed up on the kitchen counter and got into the vitamins that Dad took. They looked like an interesting candy. I no sooner had the lid open when my Mom was standing behind me. She was ready to catch me when I jumped. Now a nap is awesome.

Posts: 407
1/30/10 10:26 P

Oh no! Too funny in retrospect.

Posts: 130
1/30/10 10:25 P

Fell Asleep waiting in court one day about a month ago. Not a good thing to do

Posts: 407
1/30/10 10:24 P

I remember when I was a kid and I had to be told to take a nap, but I would rather have kept playing. Haha, Now I'm all too ready for one:)

Posts: 261
1/30/10 10:04 P

Exactly I could be sitting on the couch and fall asleep sitting straight up. You would think I had Narcolepsy. LOL

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Posts: 407
1/30/10 9:55 P

Yep. Me too! I'm surprised I don't have the indentations of the keyboard on my forehead from how many times I've nodded off before catching myself just in time. LOL

Posts: 261
1/30/10 9:19 P

Hey Refuge, I have the same problem somewhere between 2 and 3 every day I crash. I could be on the pc, watching TV or doing laundry it doesn't matter what. I feel like someone drugged me and I must go to bed and sleep.

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Posts: 407
1/30/10 7:27 P

My son and I took our 3 labs to the dog park. They weigh at least 100lbs each. But it was good to get out after all the snow and cold weather. It was kind of muddy so we only stayed 10 minutes. The dogs were so happy after being cooped up.

I came home and took a nap. I'm so tired every day at 2:30pm for some reason. Seems my eyes start closing around that time just like a little baby! LOL

Edited by: REFUGE51 at: 1/30/2010 (19:28)

Posts: 130
1/30/10 6:41 P

I started out having a Great Day, but I think I was feel so good that I over did it and now I am paying for it. One of the sad parts of having Fibro is that it tends to manage us better than we manage it. It's hard to make things work out the way we need to and still get everything done that needs doing.

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Posts: 626
1/30/10 7:55 A

I hope for a good day today. Got up early with my beloved Sampson patting my mouth with his paw. He wanted breakfast at 5 a.m. And since he is needing to gain weight he is allowed to eat whenever he wants.

Posts: 130
1/29/10 11:43 P

Refuge,

I take Lortab and a few other things, but I try not to take anything a lot of times. What I was describing was pain at it's worse. Luckly I don't get that bad to oftern.

Posts: 407
1/29/10 10:56 P

That is horrific Susan! What are you taking for pain?
Sometimes, I feel like something is lifting the bones up and trying to bring them through my skin. This happens especially on the tops of my feet.

Edited by: REFUGE51 at: 1/29/2010 (22:57)

Posts: 130
1/29/10 10:02 P

Refuge,

For me it's more like a constant pain. Like someone is driving something like the end of a broom handle into my joints with constant pressure, like a vice.

Susan

Posts: 407
1/29/10 6:15 P

Oh poor peacelover. I know and I'm sure all the rest of us, how painful that must have been. The only way I can explain my pain to those who have no idea, is to tell them to imagine a small ball peen hammer (a really tiny one) and a tiny man holding it bringing it up to his shoulders and slamming it down on each bone in my foot reducing them to gravel and all I can do is gasp or moan each time he brings the hammer down , then moving up to the shin bones, and up up until he reverses his order and the evil little man does this 24/7

Or imagine a small electric train is traveling along your muscles and using the bones as their rail and after it goes up the train track of your body, it must come down. And so it does... 24 hours per day.

It's not enough to state that the pain, with it's digging and pulling motion radiates 24/7. All you'll get is a blank stare.

Edited by: REFUGE51 at: 1/29/2010 (18:18)

SparkPoints: (5,974)
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Posts: 626
1/29/10 4:44 P

When we had the last bad bout of storm weather the leg pain was excruciating. Took propping and about 5-6 hours to fall asleep.

Posts: 407
1/29/10 10:27 A

That sounds like me. I start to feel those shattered bone pain and feverish flush when the weather is heading our way even before it is forecast. I hate that pain.

Posts: 261
1/29/10 9:54 A

I know how that feels Terry. My body starts to ache at least three days before a storm. Especially the legs and back with a low grade headache the gets worse with each day.

My husband and I would check the barometer when I would start getting bad. There was always a change in the pressure.

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Posts: 1,456
1/29/10 8:18 A

As storm heading up the coast. Looks like we'll miss the worst part. Put my body sure feels the barometric change!

current weight: 172.0

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Posts: 626
1/28/10 9:34 P

It does help to think of the good things. I don't focus on the date of death but the date of birth. That is when my parents came into this world and later met and then chose to have me. The stories they told and the joys they shared are what I try to focus on. When one leaves this world, they are on another journey - which is what I believe. My parents were great dancers, the kind who would have everybody watching. I have this imagery of them dancing. It makes me smile. Dad's first wife is there too. And she never got over him. Hope she is okay with this.

Daughter is well and I am off and on with fibro pain, until the next storm.

Posts: 407
1/26/10 5:52 P

My dad told us she wanted to be left alone and even my mom said I was hindering her recovery by writing her. She welcomed my nephew she raised, but her girls were out of the picture. She even hid her phone number from us, but he had it. My dad said it was because the cancer went to her brain.They didn't live together, but he still took care of her.

Posts: 78
1/26/10 5:36 P

Refuge...
I don't mean that year. I mean for the years to come.
Did your dad ever tell you what was up with your mom. Did she refuse to see everyone or just her girls? It just seems so weird. Especially for a narcissist.


Edited by: LEXXIWITCH at: 1/26/2010 (17:40)

Posts: 407
1/26/10 3:40 P

It did ruin my birthday but now I think of the good things:)

Posts: 78
1/26/10 3:03 P

OMG, your birthday! I hope it didn't ruin your b-day for you.
One of my closest friends - her nightmare of a mother died the day before hers. Thing is... the entire family sincerely thinks she did it on purpose. That she wanted to either ruin a b-day or Christmas. So it was a b-day. Imagine being such a miserable person ppl have that low of an opinion of you.
Fortunatly, I'm the least sentimental person I know. I can feel for the other ppl that are left, but for myself... every little.


Edited by: LEXXIWITCH at: 1/26/2010 (15:06)

Posts: 407
1/26/10 2:43 P

Does the word sociopath or narcissist sound familiar when you really start thinking of how you are treated by your family members Lexi? Once I realized I have both of them in my family, it was like a lightbulb went off. I was spending my life blaming myself for everyone else's problems when I am the mentally healthy one!

My mother did not want to see any of us. We had to sneak phone calls to our dad for updates on how she was doing. She sent back letters we had written her as well. My father called me on my birthday to tell me she had just died. This Feb. 8th will be three years since that call. My mother is finally at peace.

Posts: 78
1/26/10 2:27 P

Refuge...
Do you mean, yourself included?

My mom doesn't want my sister doing anything for her. She dumped my dad's job of taking care of her totally on me. I get so pissed off. I keep telling her to also rely on her other daughter, the one who is getting half of everything, but isn't lifting a finger for it. No, conveniently, they can't stand each other, so as I have my entire life, I pay for that.
Also I get it from my sister's side. On one hand, she's jealous - on the other, she is happily skipping through this time with absolutely no responsibility. And it's just fine with her.

Continuing the saga....
After I got back from Vegas,I finally told her she's too juvenile and self-absorbed, basically too high maintenance for me to deal with. I don't want to put any more precious energy - I have so little of - into her fantasy of us being "close". IE.. she talks about herself/I try to solve her problems.
She wrote back -- soooooo sorry, she didn't realize(when someone is pleading with you that they need help - kinda hard to say you didn't know they needed anything) BUT, she loves me enough to TRY and change. That made me absolutely livid since that's her code-words for WHY SHOULD I PUT MYSELF OUT FOR ANYONE. She says that stuff expecting to be congratulated for thinking about trying to make an effort. So I wrote back, don't think you can placate me. If you want to change do it for yourself, not me. I don't need her checking in with me wanting to be reassured ad nauseum that she's doing it right and can we discuss her some more. Errrr....
So I haven't heard from her since. After all, I refused to tell her how wonderful she was for again promising what she had been promising for the last 2 years...

Posts: 407
1/26/10 1:16 P

And mine to you:) Hope we all with chronic and autoimmune disorders discover a miracle that reduces the weight and the pain, both physically and emotionally.

Posts: 261
1/26/10 10:57 A

Wow that was stress Refuge51 if I could not have been with my mom the pain it would have caused me. At the end she was in hospice and I was with her 24 for the last 5 days of her life. I slept in a Jeri chair by her bed. My younger sister was also there the whole time.

And your doggy I can't imagine. I have two beautiful standard poodles that mean so much to me. No wonder your heart took such a beating.

And now my heart goes out too you

current weight: 238.0

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Posts: 407
1/26/10 10:50 A

Awww get better Peacelover!! And give your daughter and yourself a gentle hug from me.

Posts: 407
1/26/10 10:48 A

My stress became unbearable when my mom got terminal cancer and stated for her daughters to stay away from her. Around the same time, my beautiful old lab got thyroid cancer and died and my heart was so broken from both those tragedies, I got cardiomyopathy.

Well, I tried to kick my sugar and refined carbs for four days now and have lost 7lbs.I still hurt though. Guess that's why it's called a chronic disease.

SparkPoints: (5,974)
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Posts: 626
1/26/10 7:29 A

Yes, all the stress from what you went through didn't help.

We had a bad wind and cold spell last couple days. I was up all night night before last with severe pain. All the meds I take couldn't touch it. I propped my legs and eventually swelling went down. Finally gave up and got up. Worked for awhile and went to bed at noon yesterday and slept until 4. Better last night. Slept for 5 hours! ROFL! Achey today but have to take daughter to the doctor. She has a swelling in her neck after having a sinus cold. I think wind is better and hope roads are clear. At least I am not driving. Thank God for sisters.

Posts: 261
1/24/10 8:51 P

My Fibro started after my hysterectomy and got worse after my Lyme disease and when my mother died.

current weight: 238.0

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Posts: 407
1/24/10 8:03 P

Don't mind at all, everyone is welcome on here to moan and groan right along with the rest of us!! Soft hugs to you

Posts: 646
1/24/10 7:40 P

Hi guys, hope you don't mind if I jump in your discussion. I remember hurting before I gained my weight also; and the fatigue has been with me FOREVER!!!

Posts: 407
1/24/10 2:58 P

I need to lose at least 100lbs. But I was skinny up to age 32 and still hurt like heck.

Posts: 78
1/24/10 1:57 P

Someone did a thread about losing over 100 lbs, but they didn't say if it helped the fibro.

Posts: 407
1/24/10 11:12 A

I remember I began hurting at age 16. Right after the Hong Kong flu. As my life became more stressful, the pain increased.

Posts: 1,456
1/24/10 10:25 A

I really don't remember a time that I wasn't extremely tired. Don't really remember when the pain started. And, I've battled my weight since i hit adolesence.

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Posts: 407
1/24/10 9:16 A

So was I. I was slender, muscular and could dance. Now I am proud just to be able to lift myself from my chair. I heard that if you hurt now and are very overweight, maybe you'll hurt half that much if you lose all the extra weight. I could go for that.
Second day of no sugar ladies! I'm getting kind of bitchy already. LOL

Posts: 78
1/24/10 12:08 A

Numbness in my left outer thigh from walking or standing. It's from a bulging disk. I blame most everything on the fibro, cus the fibro is responsible for most everything. I was the healthiest person I knew before this.

Edited by: LEXXIWITCH at: 1/24/2010 (13:32)

Posts: 407
1/23/10 5:27 P

Yes! I get that and a lot more can be blamed on fibro than we may imagine. I also get numb on my left breast although not often, and on my lower abdomen. And yes on my thigh much more commonly. You're not crazy unless we both are.LOL

Posts: 1,456
1/23/10 4:24 P

Odd symptom checker: (I tend to blame everything on the fibro...then eventually check in with my doc) I have a numb area on my leg. On my thigh, a few inches above my knee, from mid-front towards the outer aspect of my leg...the area is about the size of my palm. I noticed it a couple of years ago. It's like the top several layers of skin is numb, but it itches down deep sometimes so bad that I leave bruises from scratching. (I did say something to my doc, he wasn't real impressed with it) Anybody else have this or any other wierd symptoms?

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Posts: 407
1/23/10 1:09 P

Bonniebee I hope you are feeling much better! I just noticed today that there is green grass beneath all this snow! And the sun is peeking out of the clouds. This May will be a Springtime I will definitely be looking forward to.

As for diet, I did it again, I gave up sugar for what is now 6 hours. lol. Wish me luck!! I think due to the fibro and our problem with our adrenal glands sending all carbs straight to the fat building room of our bodies, I may succeed now that I know I may just lose these extra pounds once and for all. Lots of hugs everyone!


Edited by: REFUGE51 at: 1/23/2010 (13:10)

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1/23/10 12:01 P

Hello fellow fighters!

This has been one of "those" winters! Got sick right at Thanksgiving time, and have been coughing ever since. Which as we all know does wonders for the Fibro! not to mention my other back ailments! Spring will get here eventually! It has been reasonably warm but very rainy. Hard to get out and move, so I try to keep up some kind of movement in the house.

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Posts: 407
1/22/10 7:41 A

Hopefully Lexi you're not in that horrible flooding area! Lightning on the water...sigh.. I do so miss California.

Posts: 78
1/21/10 10:25 P

When I lived in the high desert, humidity around 15%, I always felt fine. Even when it was in the 100s. Now that I'm back at the beach, I feel like my joints are twice their size. And the climate change summers, OMG. San Diego never got above 80 with humidity in the 30s. Now it can be 100 with 75% humidity. Killer!
So many lightening storms right now. My window faces west so I see the lightening over the ocean. Purdy.

Posts: 407
1/21/10 9:36 P

Don't get me wrong ladies, I love warm weather, just not humid weather. I cannot catch my breath in that type of climate. I especially love thunderstorms although my body doesn't feel the same way.
I know what you mean about the ac. An all over ache just settles in right to the bones.

Edited by: REFUGE51 at: 1/21/2010 (21:36)

Posts: 1,456
1/21/10 9:25 P

And I very rarely use the A/C, especially in the car. That cold air blowing on my neck and shoulders makes nasty pain. I'm not much fun to travel with

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Posts: 261
1/21/10 9:23 P

I live in Florida and if it hot and humid I swell and have pain all over worse in the spine and if the air conditioner is too cold watch out I can hardly move. My body seems to do better when the air is dry but hot. I never never never feel right. Always in pain and my weight doesn't help that is why I am here.

current weight: 238.0

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1/21/10 9:18 P

Funny-I love hot and humid. Cold hurts. And, mostly, big weather shifts are the worst. And, here in the Mid-Atlantic region, the weather can go from one extreme to another in just a few hours.

current weight: 172.0

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Posts: 407
1/21/10 9:12 P

I live in Nebraska now and the cold weather isn't what hurts because our snow is always so dry. But now with it melting, my body aches all over. The muscles around my shin bones especially hurt, and my knees on both sides of the kneecap. Hell, I just ache all over! When Spring rolls around, I really feel like I have broken bones, so I know what you mean about humid weather. Much as I would love to move to a warmer climate, Florida and Hawaii are too humid for me.

Posts: 78
1/21/10 7:56 P

Marla...
On the food plan you can take off Sparks recommendations and just add in your own. It's pretty self-explanatory. There is even a place to add your own foods to the list. And to make a favorites list. All kinds of flexible things.

I know carbs are not good but dang if I don't hypnotically run for them when the slightest thing goes wrong. The "auto-pilot" damage I can do is amazing.

Refuge...
Not too bad. It's not that cold here, although it's raining like crazy. Still in the mid-50s. Hot and humid is what kills me.

Edited by: LEXXIWITCH at: 1/21/2010 (20:05)

Posts: 407
1/21/10 6:37 P

Funny, I am beginning a low carb diet on the 1st. I find when I let the refined and starchy carbs go, I automatically lose weight. I will succeed this time.
I have to. Friends I haven't seen in 40 years want to get together. I was a skinny kid and a skinny adult up to age 32. It was downhill from there and oddly that's when I really began to feel aches and pain radiating throughout my body. I had moved from California to Oklahoma and changed my eating habits from fish and salad to fried and refined comfort foods.

Oh well, seeing my friends again will be a great incentive! LOL

Marla, you should be able to still do the Spark and modify your eating plan in my opinion anyway. I don't write down my foods, but I am going to start when I start my low carb diet.
Hugs everyone!

Edited by: REFUGE51 at: 1/21/2010 (18:41)

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1/21/10 6:28 P

Just got back from my wonderful, supportive doctor and he has suggested some changes to my nutrition plan to help my pain. He said to research the low-glycemic diet and it might help. I have been eating according to the Spark plan for 2 weeks and have lost 8 pounds but my pain has really increased. Turns out the bagels and other "white" carbs I have been eating are turning to sugar in my body. I know I am carb sensitive and do much better mentally and physically with low carb. I have been off sugar since Christmas but was not thinking about my body converting the "white" carbs to sugar very quickly in my body.
Can I still do The Spark program and just modify my eating plan? Also, is there a place to just write down what you eat everyday and not just substitute on the already designated plans?
Thank you all for being there!!
Marla

Posts: 407
1/21/10 4:31 P

Awww well it just wasn't the right time, you are very correct there. How are you feeling today? It is so cold and wet here with all this snow trying to melt a little, my body is sad because she hurts.

Posts: 78
1/21/10 4:27 P

I know, huh. Bad timing. We met when he was visiting a friend here in Ca. And I just, I mean just, left a husband who was the male = of my abusive, negating mother. Not much in the mood for a guy looking for a wife, no matter how good a guy. I wrote him about a year after he went home, a hi, you still alive kind of letter. That's when I mentioned the weight. That was about 20 years ago.

Posts: 407
1/20/10 9:29 P

Oh my gosh and he's an ex? How old is he?

Posts: 78
1/20/10 7:29 P

Refuge... that's funny. Reminds me of something an ex BF told me. I had gained 50 lbs and he told me not to worry cus when I lost it my muscles will stay strong from carrying the weight. Sweet guy!

Posts: 407
1/20/10 9:36 A

Welcome Kittycat48! Great to have you here. I would like to know just why we are not thin when we have such tight muscles? You would think we'd be as firm as anyone who lifts weights or runs LOL

On a positive note, just think what's beneath our fat. Once we lose the weight, we won't be flabby because our muscles are so toned.

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1/20/10 8:29 A

Thanks for your words regarding pain and exercise. I have had fibromyalgia for going on nine years, and have maintained a good level of working out. Although it alleviates the pain some after, it never changes the fact that my muscles are stiff, and I have pain constantly. Atleast the fact that I am not alone is comforting. Cathy

Posts: 407
1/19/10 6:26 P

I like those crackers better than I ever did the ones with peanut butter inside Lexi. My favorite carb in regard to a salty snack is Cheetos. I can't stop after just a few. LOL

Posts: 27
1/19/10 5:13 P

MUCINEX *** MUCINEX *** MUCINEX *** MUCINEX

Will the person who talked about Mucinex please contact me? I went back to try to find the post, but I couldn't. I have a couple of questions. I responded to that post, but can't figure out who it was.

Thanks so much!!
Kathy

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1/19/10 4:07 P

Also weight gain since carbs turn right to fat for us. Lovelovelove carbs. I crave them. Right now, those mini cheese crackers. Mini ritz type cracker with gritty powdery cheese stuff in the middle. yumm!

Posts: 407
1/19/10 3:52 P

http://articles.mercola.com/sites/articles
/archive/2010/01/19/Foods-That-Chronic
-Pain-Sufferers-Need-to-Avoid.aspx
This is an interesting article but what caught my attention was this excerpt:
Cut down on carbs. About 90 percent of fibromyalgia patients have low adrenal functioning, which affects metabolism of carbohydrates and may lead to hypoglycemia.

Posts: 407
1/19/10 2:34 P

I try to stretch every day, but it is painful because my muscles are so tight! I'm totally inflexible and I don't make any headway either Lexi. None whatsoever, just the hope I won't hurt too much each day. I gotta admit some days are much better than others. But when I hit a bad day, it's really bad.

Hugs to ya all

Edited by: REFUGE51 at: 1/19/2010 (14:36)

Posts: 78
1/19/10 1:42 P

True Refuge...

The only sure fire predictable factor for me is stress. I know if I reach a certain reaction level, I'll be hurting big time of at least a week. The caffeine, sugar, carbs, sometimes they hurt, but not always and not always to the same degree. Exercise gives me a sense of well-being, but does nothing to alleviate the pain - nor does it aggravate it. Stretching is great, but the next morning I'm just as stiff. I never make any progress with it.

Just have to experiment for a while. What bothered you one day may have no effect the next.

Posts: 407
1/19/10 7:06 A

Nuts are very good for your heart. Just go easy on them. And of course I roast mine in the oven for a few minutes before I eat them. Pecans are my favorites, walnuts give me a headache. Some people claim what we eat affects our fibromyalgia Grandmalena, but not always. I hurt when it's raining , when I eat chocolate, fatty, sugary foods and I hurt when I don't and the sun is shining. This condition is so unpredictable! I do take Vicodin for pain. It is the only medication that works for me. Swimming probably helps too in warm water. And I have walked many times before all this snow. My body became stronger, but the pain remained and the walks set me back a couple of days because even walking is difficult(but I have other health issues as well) So in reality, what works for one person may not for another.

Welcome and soft hugs to you

Edited by: REFUGE51 at: 1/19/2010 (07:09)

Posts: 14
1/19/10 1:28 A

My diabetic Dr. told me not to eat nuts because they would cause weight gain.
I need help with Fobromyalgia.