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KTH1989 SparkPoints: (44)
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1/10/13 10:23 P

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Glad you are feeling a high percentage of improvement. Don't let the need for assistive devices bother you. I did at first, but I can't see not using my raised toilet seat or shower chair, shower safety bar. It's quite humbling at first, that's for sure, but better safe I say.

I'm glad to hear others have pity parties, I was at night, alone and feel like one coming on after reading all your posts. It helps to not feel so alone.

if I may share without breaking rules, I go to healthboards.com every day and post or just read under the arthritis and the back pain forums and it REALLY HELPS me to not feel alone and get great advice.

KTH1989 SparkPoints: (44)
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1/10/13 10:18 P

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I know what you mean about being afraid to fall-I have slipped once in a tiny amount of snow so I use a cane when wet outside at all. I hate that cane but feel so much safer with it. A fall would kill me about know. I'm tired of living in fear.



REVDOCTOR SparkPoints: (1,009)
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1/6/13 3:49 A

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Some days I am disable, on those days I can hardly walk with out pain, or having my balance off. My home is equipped with the things I need to be comfortable, I use a cain, I have a raised toilet seat, all of the furniture in my home is raised. I have adapted to my disability, and there are times I do get a bit depressed, not for long. My challenge is visiting I am not comfortable sitting too long, because my hips hurt, my knees hurt when I get up, so if the seating is too low, it is difficult to get up without assistance. People don't seem to understand this type of pain and discomfort. I still work at night, my job allows me to be comfortable. I have a disability parking sign, other wise I would not be able to shop. The shopping cart in the store is a life saver. I am not ready for the scooter. My arthritis has been with me for many years, however the last 2 yrs. it has taken over my body. I have accepted that I am disabled because due to the lack of accommodation there are some things I cant do with comfort, but I don't consider it a bad thing. I just have to learn a new way of accomplishing things at a slower pace. I don't want to lose my independance. Now if I can just get this weight down.....

KTH1989 SparkPoints: (44)
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1/1/13 1:01 P

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I completely understand how you feel. I had spine surgery in July. After ten days in the hospital I came home. I had home PT come and tell my husband to install a grab bar in the shower and to get me a shower chair that day. I also had a raised toilet seat with bars and a walker delivered that day. I had to and only could walk with the walker the first apx two months. I was so depressed, I couldn't put my socks on until this past month without a device either. I'm only 42. And when I was told I'd be up and walking the day after surgery I never expected this! I am now walking without anything but a cane when icy out. I also have a parking disability card. My kids found it "neat", I found it depressing!
My mother in law takes the methotrexate like you. I currently take Tramadol 100mg ER, lasts for 24 hours thank God. Hang in there, and make water exercise part of your routine as it's great for the joints.

MOMMY2KB's Photo MOMMY2KB Posts: 1,120
4/11/10 2:10 P

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I really want to try yoga. Somedays it's hard to look normal. It is amazing what weight lose can do though. I told my doctor that I feel like a 35 yeal old stuck with 80 year old joints. All he could do was agree. Kind of funny to me now.

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KKINPNW's Photo KKINPNW Posts: 13
4/10/10 10:03 P

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It can be very challenging sometimes. Some days my hip just kills me and I limp around trying to look "normal". As I was out running errands this afternoon, I was terrified I would fall again. I have lost 11 lbs so far and think as I continue with my beginner yoga and lose weight it will get better. But, I am there with ya. Sometimes I just want to hide.

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DORIS104's Photo DORIS104 Posts: 236
4/10/10 5:58 P

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Glad things are better...and you just have a pity party whenever you feel like it. If we didn't have pity parties, how could we cope?!?!? I think having a pity party gets everything out of your body and then you can think clearly again. So have a pity party, just don't make it every day....

emoticon emoticon

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MOMMY2KB's Photo MOMMY2KB Posts: 1,120
4/10/10 1:25 P

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The pity party has ended, thankfully. Yesterday I took my girls swimming which feels so good on the body. I had to up the pain killers, 6-8 Tylenol 3s per day as well as maintaining all others. The swelling in my fingers are not so bad, just my back and ankles are hurting more today. I will say I have had worse days than these last few, and I know that I will have many more good days. emoticon

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DORIS104's Photo DORIS104 Posts: 236
4/10/10 9:54 A

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How are you feeling today, Mommie? Hope things are going better for you. emoticon emoticon

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KKINPNW's Photo KKINPNW Posts: 13
4/9/10 6:30 P

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Hugs! emoticon

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DORIS104's Photo DORIS104 Posts: 236
4/8/10 10:52 P

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I will say a special prayer for you tonight that you will find the strength to overcome this feeling and be able to do as much as you can, but never give up. Just know that we are here when you need to talk and know that God is also there whenever we can't reply right away.He will be able to get you through this!!

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WORLANDWORM's Photo WORLANDWORM Posts: 558
4/8/10 9:36 P

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We all need a pity party now and then! It took me awhile to adjust to the fact I had to make a change , a
major change in my life! I know how you feel as anyone that has arthritis knows what pain is, so if you need to talk we are here!

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MOMMY2KB's Photo MOMMY2KB Posts: 1,120
4/8/10 8:43 P

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Thank you, I know that it will come in handy when I need it. Just throwing myself a pity party. The swelling in my spine has not improved. Today I can barely walk without pain. Feeling way to tired and cranky. My fingers are not working like I want them to. As a former piano player and teacher it frustrates me. My toes and feet are way too swollen.


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DORIS104's Photo DORIS104 Posts: 236
4/8/10 8:11 P

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I'm so sorry about your feeling this way and I hope that you will be able to improve with time. Like worlandworm asked, what is the cause for this? I know that you have arthritis, but has it become worse. I too have a handicap parking permit, but don't feel disabled because of it. I look at it as a blessing when I am not able to walk much and have to shop after work. I only use it when I have to, but at least it is there when I need it.

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WORLANDWORM's Photo WORLANDWORM Posts: 558
4/8/10 8:03 P

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I am so sorry to ear this. I have been unable to work since 2004 and I really miss it. But I also know that I could not work like I did . I too have a handicap plate on my car. What is the cause for your distress?

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MOMMY2KB's Photo MOMMY2KB Posts: 1,120
4/8/10 7:18 P

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I just found out that I need to get a raised toilet seat, hand grips for my shower and a parking permit to park in wheelchair parking. My doctor also told that I was not to return to work. This is what medication success is like. I was told I am having a 50-70% success rate with my meds (methotrexate)!!

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