Author: Sorting Last Post on Top ↓ Message:
SEASONS__CHANGE's Photo SEASONS__CHANGE SparkPoints: (15,120)
Fitness Minutes: (4,528)
Posts: 5,998
5/13/12 8:45 P

Send Private Message
Reply
Sorry you had that experience MOTINURSE. I'm there with you on the amazement of the lack of education in this day and age. But it's there nonetheless. I've met some of the strongest people in my life through this journey.

Stress wrecks havoc on the body. Thanks for the tips on how to stay grounded.

Hopefully, this finds you and your partner happy and healthy.

Kelly

“How beautifully leaves grow old. How full of light and color are their last days.” John Burroughs

~Kelly


 current weight: 212.0 
 
234
219.25
204.5
189.75
175
MOTINURSE SparkPoints: (4,231)
Fitness Minutes: (1,190)
Posts: 33
5/13/12 5:06 P

My SparkPage
Send Private Message
Reply
it never ceases to amaze me how ignorant people still are in 2012. I have also experienced the same.Once my partner went to get tested, he is sero-negative, and the lady at the test site told him he should forget about me and go back to his country and get married...so much for trained professionals. I also had an attorney give him the same advice. What is wrong with people???? The stress you are experiencing is REALLY bad for you. especially for your heart. Maybe you could look for a stress busting yoga class--or a DVD of the same. I find it helps me.

every day is a new beginning


 current weight: 168.6 
 
218
201
184
167
150
PHEBESS's Photo PHEBESS Posts: 32,215
5/9/12 8:26 P

Community Team Member

My SparkPage
Send Private Message
Reply
Some days it can't come too soon!

"Dance as if no one is watching."


 Pounds lost: 45.0 
 
0
22.5
45
67.5
90
SEASONS__CHANGE's Photo SEASONS__CHANGE SparkPoints: (15,120)
Fitness Minutes: (4,528)
Posts: 5,998
5/9/12 8:10 P

Send Private Message
Reply
Ahhh, very exciting! I hope you have a good camera! Well deserved retirement I might add.

“How beautifully leaves grow old. How full of light and color are their last days.” John Burroughs

~Kelly


 current weight: 212.0 
 
234
219.25
204.5
189.75
175
PHEBESS's Photo PHEBESS Posts: 32,215
5/9/12 8:06 P

Community Team Member

My SparkPage
Send Private Message
Reply
Pretty well - we're getting things organized for our travelling retirement.

"Dance as if no one is watching."


 Pounds lost: 45.0 
 
0
22.5
45
67.5
90
SEASONS__CHANGE's Photo SEASONS__CHANGE SparkPoints: (15,120)
Fitness Minutes: (4,528)
Posts: 5,998
5/9/12 8:03 P

Send Private Message
Reply
Wow, thanks for the information. I didn't know.

By the way, I hope he's doing well.



“How beautifully leaves grow old. How full of light and color are their last days.” John Burroughs

~Kelly


 current weight: 212.0 
 
234
219.25
204.5
189.75
175
PHEBESS's Photo PHEBESS Posts: 32,215
5/9/12 12:32 P

Community Team Member

My SparkPage
Send Private Message
Reply
Just about 2 weeks to get approved locally - HIV/AIDS is on the list of automatic disabilities, plus he had had PML (progressive multifocal leukoencepholopathy) several years earlier. Plus depression (on meds) due to the HIV/AIDS. So all of that stuff is on the automatic disabilities list, and his case just rushed through! We were both amazed!

Other cool thing about SS disability - you get paid at a higher rate than the regular retirement, and that rate continues til age 70 - then at age 70, you get regular Soc Sec payments but at the rate as if you had retired at age 70, so that's the maximum possible rate you can get.

Not that the SS disability is much - DH also gets retirement. But the SS disability income is more than one paycheck (two weeks of work) for me as a teacher!

"Dance as if no one is watching."


 Pounds lost: 45.0 
 
0
22.5
45
67.5
90
SEASONS__CHANGE's Photo SEASONS__CHANGE SparkPoints: (15,120)
Fitness Minutes: (4,528)
Posts: 5,998
5/8/12 9:44 P

Send Private Message
Reply
Hmmm, I didn't know about that. How long did it take to get approved?

“How beautifully leaves grow old. How full of light and color are their last days.” John Burroughs

~Kelly


 current weight: 212.0 
 
234
219.25
204.5
189.75
175
PHEBESS's Photo PHEBESS Posts: 32,215
5/8/12 8:53 P

Community Team Member

My SparkPage
Send Private Message
Reply
Wow, sad situation!

My husband was able to go on disability quite easily - HIV/AIDS is on the list for permanent disability, if anyone is in a similar situation.

"Dance as if no one is watching."


 Pounds lost: 45.0 
 
0
22.5
45
67.5
90
SEASONS__CHANGE's Photo SEASONS__CHANGE SparkPoints: (15,120)
Fitness Minutes: (4,528)
Posts: 5,998
5/8/12 6:53 P

Send Private Message
Reply
From TheBody.com

Stressed Out and Stigmatized at Work: What Can I Do?

Nine years of HIV and stress
Question: My wife and I tested positive for HIV in 2003. We don't know how or when we got it. We believe "till death do us part" and hold to that vow in our marriage. We are 'in this' together. I have a pretty amazing wife to have that idea.

When we were first diagnosed, my CD4 counts were in the 100's and my viral load was in the 100K's. I guess that is considered 'full blown AIDS'; and I had it. My wife's counts were pretty low too but not as low/high as mine. [Over these years I have experienced depression, lymphoma, and pneumonia. Happily we have been able to have two children who are healthy.] I've returned to school and will graduate in 2013.

Maybe it sounds like everything is going well, and it is for the most part, but I have this feeling of large amounts of stress on me. My job is unreal and I loathe it. I have to have the job because it's the way I can get a virtually free education, but there is SO MUCH STRESS!!! We were in a meeting the other day and one of our 'top producers' was stating how we would be shocked to find that types of students we have walking the halls of the school. He went on to say, "We have a student walking these halls with HIV!" Everyone gasped. And then he went on to say, "But I sure as hell ain't gonna touch him." People chuckled...My heart sank when he said that. I felt very low. I have the stresses of normal, everyday life (maybe more so at times) compiled with living daily with HIV. I feel extremely overwhelmed at times, short-tempered and am eating to relieve stress.

I've read that stress can be an issue for a person with HIV. Again, I work in an environment that is probably the most stressful I've ever worked in my entire 22 year professional life. Sometimes I wonder if I would have the option of going out on a temporary disability for mental-health.

Your advice?


Response from Dr. Fawcett

Thanks for writing. You and your wife are certainly survivors and deserve lots of credit for the hard work you've put into staying healthy.

The stress you describe at your workplace, so intertwined with stigma, is a major concern for any person living with HIV (or for that matter, any other stigmatized group). With their guard down, people will speak their truth and it creates both pain and anger if we identify with whomever is being described. I know you need the job for your education but I really caution you to evaluate other ways (student loans?) to achieve that goal. The type of intense, chronic stress you describe is really harmful to your health.

Stress causes the body to fall into "flight or fight" mode, creating a cascade of hormones that prepare us for an intense experience. When that experience continues over time, these hormones begin to have a negative impact on our bodies. There are direct correlations between stress, declining CD 4 counts and numerous other illnesses and conditions.

There are some things you can do. Speak with your physician about your stress and disability. In the meantime, have a strong support group with whom you can ventilate your experiences and get feedback. Utilize breathing, mindfulness and other relaxation techniques to bring your body back to a state of calm. Finally, you might want to consider seeing a therapist who could help you learn skills to deal with the specific stressors in your life.

Good luck!

-David

“How beautifully leaves grow old. How full of light and color are their last days.” John Burroughs

~Kelly


 current weight: 212.0 
 
234
219.25
204.5
189.75
175
Page: 1 of (1)  

Report Innappropriate Post

Other Positive Positives HIV / AIDS and Our Supporters General Team Discussion Forum Posts

Topics: Last Post:
How I Got Over My Depression and Back on My Feet! 12/6/2013 5:11:04 PM
vent time 10/14/2013 7:21:29 PM
What Can You Do If You're Fired For Being HIV Posi 7/4/2013 10:06:27 PM
Stopped Taking Meds: What's My Life Expectancy? 7/19/2013 9:18:25 AM
Is Aging With HIV Making Me More Tired? 11/13/2013 5:25:33 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x37262x47978164

Review our Community Guidelines