Author: Sorting Last Post on Top ↓ Message:
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,598
12/31/12 11:27 A

Community Team Member

My SparkPage
Send Private Message
Reply
DAKOTA4411 , You can vent all you need to - we are here to support you. I think most of us (me) have been busy with family and the holidays.

I have not heard of them - I would call and ask your questions directly. Or call your local hospital they may be able to give you information on the facility.

Happy New Year Team!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


 July Minutes: 495
 
0
250
500
750
1000
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/31/12 8:04 A

Send Private Message
Reply
Anyone ever heard of a weight loss place called TrueBody? Doc wants me to go see the doctor that has it in the city and get some kind of bodpod testing to see how much body fat I carry and if their doctor will take me as a patient. I never heard of it, so wondered if you all had? I know I am seriously overweight but I struggle losing pounds and I think its mostly edema fluid I lose and not weight.

They do have a website but I didn't learn much from it, so wondered if any of you had heard of it, sorry I have not been posting lately, all I seem to do is vent, so I thought I would not post and make people upset, sorry if I did that to you all!

Ellen
KAYAK001's Photo KAYAK001 SparkPoints: (8,506)
Fitness Minutes: (3,646)
Posts: 718
12/31/12 12:24 A

My SparkPage
Send Private Message
Reply
christmas goodies are gone now, so we can get back to eating the veggies and fruit and see if we cant get the scale to move in the right direction.


alec emoticon

 current weight: 290.0 
 
336
306.25
276.5
246.75
217
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/26/12 3:30 A

My SparkPage
Send Private Message
Reply
I hope every one had a great Christmas. I hope you didnt over eat---LOL. Its hard at the Holidays. I always cook every thing my family likes, and it seems its always mostly what i cant eat.
We had Ham, Turkey, Homade Noodles, Gravy, Sweet Pot, Green Beans, Dressing, Salad,My celery with a cream cheese filling i make. and my Raw Cranberry, with oranges and walnuts, with Stevia i make in my food processor. . My famous, lol ,peanut butter pies, a jello dessert, so every one will be eating for 2 or 3 days whats left over goes in the freezer.
So post what you had to eat.
Do you have plans for New Years. We usually stay home and enjoy the evening together.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/26/12 3:10 A

My SparkPage
Send Private Message
Reply
Jean sorry about your brother in law. Take care of your self. I havent been posting much lately, my computer is acting up. I think its time for a new one, dred this.

Ellen congrats on your GFR. yes you must be doing something good. Keep it up.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,598
12/21/12 5:38 A

Community Team Member

My SparkPage
Send Private Message
Reply
Hi team,
My brother in law passed away this morning. He had lung cancer.
I will not be on the team this week - going to spend time with my family.
My son is coming home from California tonight.

God Bless you all - Love your kidneys.
See you next year.
Jean


Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


 July Minutes: 495
 
0
250
500
750
1000
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/19/12 6:54 P

Send Private Message
Reply
Got to kidney doc today, GFR is 60 so thats good, must be doing something right or it just goes up and down at will.

Ellen
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/19/12 6:56 A

Send Private Message
Reply
Good Morning everyone! Suppose to go see kidney doc today but the streets are icy and I don't drive on ice, so I may have to cancel but I hate to as I have not seen him since august and I have zillions of things to ask him. I could call a cab as I have the money but my stomach is acting up not sure if I'm gettig a bug or its my IBS which is severe, it does this off and on so I never know, and I got kids coming home ad a friend who came for 4 days from Phoenix to stay with me, not a good time of year for her to come but she does business software all over the us and she was going to be in Mn so she thought she would come see me.

So if its icey I might not make it, hope I do but then at noon its suppose to start snowing and thats bad as I won't get home till later.

Ellen
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,598
12/16/12 10:18 A

Community Team Member

My SparkPage
Send Private Message
Reply
Hi Ellen,
Your sparkpage is set to private - I cannot visit your page to offer you some encouragement and support - it is OK if you want to keep your page private - but I do want to encourage you to not give up.

Hi team - there is so much to catch up on - I will not be able to do it.
I am physically and mentally exhausted!

I am doing goodies today - will try to post a blog so everyone can catch up with me.

I hope you all are loving your kidneys.
God Bless you!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


 July Minutes: 495
 
0
250
500
750
1000
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/15/12 10:05 A

Send Private Message
Reply
Hi everyone! Hope everyone is ok with you all! I got my son and his wife coming the end of the week from Iowa, to spend xmas with me and go to church.Its raining but not freezing its 37 out but later will start snowing. I have not been on for awhile, I think I gripe too much and it turns people off, so I'm sorry I Just get so discouraged with doctors here, I hope you all have a good day and if I'm not back on a good happy holiday season. God Bless!

Ellen
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/7/12 4:46 P

My SparkPage
Send Private Message
Reply
It still doesnt matter, if Dr. in same system, go for it. Its your health and your body and your money. Most Dr. want you to get another opionion.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/7/12 2:23 A

Send Private Message
Reply
Yes avera Mckennan is a hospital campus with all different types of doctors, I would have to go to the other hospital campus and it would be in the system so they would know all of them I went to a sanford doc, so that will make the avera doc mad, so its kind of tough as their either one hospital or another, no private docs.

Ellen
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/6/12 10:46 P

My SparkPage
Send Private Message
Reply
I dont sleep well either so i know where you are coming from. Yes you have the right for a second opinion.Good DR. dont get ticked off, they want you to get a 2nd opinion , but dont use a Neph. in the same office.
Is the Avera system a hospital or ins. .what is it?

C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/6/12 2:11 A

Send Private Message
Reply
Hey Ladies, I am unable to sleep alot of the time, been going on for years, do I have the right to get a second opinion even though its going to tick off my doc who is not really a nice guy anyway, no bedside manner. i have had edema in my face and hands and feet and legs for yers and no one paid any attention to it, they let me fall thru the crack, I did talk to the renal dietican a bit and though she can't help me she said the sleeplessness is also could be due to ckd and I've had this for years, where I dont' sleep at night, I've also had the edema since I was 46 and no doctor knew why or so they said.

I would like to stay with the avera system but I would like a second opinion as now when his nurse called me back she is not making sense to me and I think I need to talk to someone else, so I know I will make my doc mad but he's made me mad, and I want a second opinion, thats my right, right?

Ellen
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/5/12 3:36 P

Send Private Message
Reply
A davita renal dietician called me back from here in the city she said she was very sorry but she does not work with anyone who is not on diayslsis but she referred me to a regular dietician at hy vee, which I already called one last night, she told me her work load is so high they only let her work with diaylsis patients so I have to go to a regular dietician, guess I live in the wrong city, as big as this place is I thought it was going to be easy to find someone, but no one in the kidney business gives a hiney!

Ellen
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/5/12 3:34 P

My SparkPage
Send Private Message
Reply
Ellen, at least you got a answer from the regular dietitian. she sounds like she knows something about CKD. There are different diets for people with CKD. My diet will be different then yours etc. Its all according to what your blood work says.
FOR INSTANCE---MY Phosphorus is always high, My Potassium, i have no problem with. We all should watch our sodium. The amount of liquids i consume may be different from yours. When i went to a regular dietitian she just told me i dont know any thing about CKD, it was a waste of my time and hers, but at least she told me this.
I say go for it and see the regular Dietitian, let her know hor frustrated you are and have been. This is a big problem with being diagnosed with CKD, no one seems to know. If you go keep us posted, as to what happens. When you are Dibectic there are classes you can go to and CKD it seems has been left behind, my opion any way.

Best to you---Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/5/12 9:32 A

Send Private Message
Reply
Found out there is a avita diaylsis center at the hospital I use, so just called them but the lady who answered the phone said she doesn't think the renal dieitcian would help me as I'm not on diaylsis, she would leave my name and number for her to call me back, but she said they only really deal with patients on dialsys so she doesn't think they can help me. Wow no one wants to help you, so I guess its the regular dietician at Hy vee who I Did call and she scared me so bad, she asked me are you going on diaylsis, and I thought what!? She said she had to know as there were different diets, for people with ckd or on diayalsis, and I never heard of that, so I about had a heart attack when she asked me that, so not liking this already!

Ellen
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/4/12 10:22 P

My SparkPage
Send Private Message
Reply
Ellen, try a dialysis center in your area, there should be a dialysis center in your area somewhere. They might be able to help you. A dialysis center always has a Renal Dietitian on staff.
I am so glad DaVita at least is trying to help you. I hope you can find another Nephrologist. I am wishing you the best of luck on this journey. And yes stress can make you feel very bad, try to say dont stress, dont stress. Stress damages our immune system, so take care.
where do you live? look on the internet for a dialysis center near you. ok , i see where you live now.

Caroline

Edited by: CBEVNOW at: 12/4/2012 (22:23)
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/4/12 7:51 P

Send Private Message
Reply
No there is no davita by me only thru the diaylsis at the hospital, but when I called the number on the davita website the lady said you could call them and maybe they can help you or maybe they can direct you to someone who can help you.

My kidney docs nurse called me back said there was no renal dietician for me I would have to go thru a hy vee store to get one, a regular dietician, and I'm having trouble with my knee and have to see a knee surgeon, and my stomach is a mess, probably caused by more stress, and I'm not a happy person today, so sorry to dump on you guys, I think you an relate though, have a good night!

Ellen
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/4/12 6:02 P

Send Private Message
Reply
Ok problem with kidney doc, I had to call them back his nurse said there is only a dietiican in the area no renal dietican, I can go to any hyvee super market and talk to a dietician but I did that a year ago when I first moved here and she told me hogwash that was so stupid that I knew better, so kidney docs nurse said this, your at stage 2 and I said no stage 3 and she said no you gfr is 51 its stage 2 and I said no its not its stage 3, so she said she's looking at the chart and she said he put stage 2, so I said thats not in my range, so they don't even know the right stage for petes sake! And there are no renal dieticians and no one gives a hiney, sorry but I'm a little ticked off here, so then she tells me the dietican at the hospital will cost me out of pocket about $120.00 well I can't afford it right now, so I told her just forget it, I'll call someone else, I am so not happy with my kidney doc, he's got no personaity and he can't even get the range right, like where did he go to school, oh yes I remember Afghanistan is what it said on his bio, so I get a little mad, will go to davita but don't think they have one in this area, I thought I Looked before, but that could have been the kidney foundation and they only had one in Minnesota, I tell you they got no brains here!

Ellen
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/4/12 4:35 P

My SparkPage
Send Private Message
Reply
Ladies, --- do any of you have a DaVita Center near you. If you do call them and tell them what your problem is about your diet and foods, things you dont understand about your 3rd stage or any thing related to CKD. They have classes you can go to about diet, etc..
There is one here in Knoxville, and they were so nice to me, when i called them , ( this is when i was about 6 months into CKD and i still couldnt get any information from my first Neph.) They even gave me the cell number of ther dietitian for DaVita. Just tell them you very badly need help, that you want to slow down the progress of this disease, and you really need help.
DaVita is a dialysis center, they are trained for this. Sometimes they will give you a name of a good Nephrologist. I looked up several Neph. from this area on line, the one i have now is supposed to be one of the best in this area. So far they are right, she is awesome. Sets down with me and listens , she ask me questions and i ask her. Always washes her hands before doing the eye, heart back thing, mouth, etc. Not one time did the other 2 Neph. i had do this. I dont even think they knew my name..
I hope this might help you all some way, best to you.
Caroline

Ellen keep calling ther office, call every day, twice a day if you have to, tell them you are serious and need some answers. You go girl.

Kay, dont let them do this to you, be firm and insist, I got so upset a couple of times i started crying, this did get there attention. Its your life and who pays the bill? you do.

Edited by: CBEVNOW at: 12/4/2012 (16:39)
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/4/12 8:29 A

Send Private Message
Reply
I hear you Alec, it makes me want to beat on him and scream at him! They just don't seem to care till its too late, and then I think its just the mighty dollar theiy go for,

Ellen
KAYAK001's Photo KAYAK001 SparkPoints: (8,506)
Fitness Minutes: (3,646)
Posts: 718
12/3/12 10:43 P

My SparkPage
Send Private Message
Reply
lighthouse gal, i know what you mean. while i like my DR., his answer to CKR diet is just"eat more fruit & Veggies and loose some weight", my own research online and this group have been a lot more help. alec

 current weight: 290.0 
 
336
306.25
276.5
246.75
217
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/3/12 8:10 P

Send Private Message
Reply
I am really not liking my kidney doc at all, I called him last weds to let me see a renal dietican and get a menu of what I can and can't eat, and he has yet to call me back, they dont' take stage 3 seriously, so my primary called and said I have to ask the kidney doc as they dont' really know, so I"m ready to can the kidney doc and go to the other hospital and use them and not this guy. They don't take stage 3 seriously here, so I"m still waiting and I have to go to the store and I dont' know what to buy! Grr! Sorry to vent I just get so mad!

Ellen
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,598
12/2/12 12:28 P

Community Team Member

My SparkPage
Send Private Message
Reply
Hi ladies,
Yes, pain meds are bad for our kidneys. We used to have an active link about pain meds, but it has been deactivated by the NKF I will check into current updated info and post it soon!

Please be on guard! Be your own best advocate for your or your spouses CKD and medications. Always ask for medications that are 10 years or older - they have been proven to be safe or they would not still be on the market, as there are so many recalls on newer meds.

Out of everything on the market - Tylenol is best for CKD as far as I know - I will still do the research and post asap. (please give me a bit of time - homework day today - take care of mom and dad still most days.. ect)

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


 July Minutes: 495
 
0
250
500
750
1000
CBEVNOW's Photo CBEVNOW Posts: 6,285
12/2/12 3:21 A

My SparkPage
Send Private Message
Reply
Ladies you are so right to check your meds out. I cannot imagine a Dr. telling your husband to take Tylenol Pm every night. My nephrologist said i could take Tylenol for pain only if i needed it very badly. I only take it ever so often. Advil is worse than Tylenol.
Usually your Nephrologist will tell you not to take any thing except Tylenol .
I am very lucky i have a good Pc Dr. for he always says oh thats right you cant take this because of your CKD.
Ellen i think we all have our medical problems you are not alone. and the feet thing i know what its like. Try to do the best you can, thats all you can do.
Every one have a great today, and take it easy, its God's day of rest.

Caroline--Bev.


Edited by: CBEVNOW at: 12/2/2012 (03:22)
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


 current weight: 20.0  over
 
25
12.5
0
-12.5
-25
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/1/12 1:27 P

Send Private Message
Reply
I found out after reading your post all the pills my primary has me on are bad for your kidneys, so I got a call into him anyway so going to ask him to change them or why not? I wonder if all the pills they make are bad for the kidneys, they all say kidney or liver damage. I don't think docs look stuff up anymore like in the PDR they just dole out stuff, so I got to see when or if they call me back monday for the ear nose and throat referral about the pills, wow what a mess!

Ellen
AEHEGE's Photo AEHEGE Posts: 2,774
12/1/12 10:55 A

My SparkPage
Send Private Message
Reply
Ellen, you are smart to look up your meds yourself. My DH who has either two cases of acute renal failure or actually CKD has been taking a blood pressure pill which we found out is harmful to the kidneys as well as he was taking Advil PM for some time and the doc said to change to Tylenol PM and when I checked that out I found it is also harmful when taken for a long time. So yes, do your own checking. The doctor probably knows better, but doesn't have the time or simply doesn't take the time to check everything out.

--Anne from Idaho
BLC 17 - 25 Powerful Prism Panthers team.

www.blcpanthers.com

www.fitbit.com/user/22K64D


 current weight: -1.9  under
 
5
2.5
0
-2.5
-5
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/1/12 7:42 A

Send Private Message
Reply
I looked up Mobic the pill that the ortho wanted me to take, I cant' take it so will have to call the pharmacy, it makes kidney disease worse and I have severe acid reflux and IBs and it messes with your system can be fatal, so not even going there, will call the pharmacy and tell them I cant' take it, the doc didn't check my records out too good I would say,

Ellen
DAKOTA4411's Photo DAKOTA4411 Posts: 1,009
12/1/12 4:56 A

Send Private Message
Reply
Hi All! Had to go to two docs yesterday am had a bad dizzy spell int he ortho's office, she asked me if that happens alot and I said yes but the Neuro told me that happens as I age and she said whose your Neuro and I told her, and she said call your pimary when you get home and tell him what just happened and if he can't help you, have him refer you to and ear nose throat doc. She said that kind of a vertigo spell was bad, and I was scared, as it lasted longer than they ever had before. So I called my primary but it was late and they did not call me back, but the yprobably will monday and I told the recieptioist what had happened and its not the first time.

Went to foot doc and he put something in my insert so my foot does not roll to the left, he said I have strained tendons and thats why they burning and pain and we would try this and see if it helps, ortho said my hips and knees are bad, esp the left one as is shows its out of alighment with arthritis and thats why the severe pain in my knee on walking and sleeping.

But she thinks its really coming from the hips, so she sent me home with exerises, to do as I would not take theh steriod shots and I can't afford PT so she told me to try this for a few weeks if the pain does not go away come back its probably the hips, and she put me on pill I have to pick up called Mobic. So I spent most yesterday in docs offices, and course I pay out of pocket costs so I was not happy.

I hope you girls are all in better shape then me, see what alot of weight does to your body, and I"m stuck on a plateau again, don't know if I can get this 100 pounds off or not, anysuggetsions ladies?

Have a good day all sorry to be so chatty and lengthy!

Ellen
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,598
11/30/12 3:37 P

Community Team Member

My SparkPage
Send Private Message
Reply
emoticon emoticon emoticon emoticon emoticon

Merry Christmas and Happy Holidays Team!
May you all be healthy and loving your kidneys!
Jean

emoticon emoticon emoticon emoticon emoticon emoticon

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


 July Minutes: 495
 
0
250
500
750
1000
Page: 1 of (1)  

Report Innappropriate Post

Other Loving Our Kidneys General Team Discussion Forum Posts

Topics: Last Post:
Please read: side affects of antibiotics 5/15/2013 9:05:11 AM
June Love Your Kidneys 6/30/2014 9:47:09 PM
May Challenge: Healthy Family Makeover... 4/30/2013 6:14:02 PM
Today on Spark: Character Counts When It Comes... 6/20/2013 10:07:37 AM
News on Wendy 11/25/2013 8:08:23 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=0x36692x51030336

Review our Community Guidelines