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ORCHIDLADY56
Posts: 1,098 5/7/13 9:57 P
Thank you Claire! I appreciate the link and you pointing me in the right direction to understand this!
Lady Di from the Land of Lincoln
SPARK-JEAN
SparkPoints: (87,501)
Fitness Minutes: (36,101) Posts: 5,709 5/5/13 10:17 A
Thanks Claire!
Leader: Loving Our Kidneys Do you know about the silent killer,Chronic Kidney Disease? CKD is the 8th leading cause of death in the USA. LOVE your kidneys.
KNOW the facts, 9 out of 10 adults have Chronic Kidney Disease (CKD) and do not know it.
Alfred Adler emphasized that where we have come from is not as important as where we are striving to go.
Eastern Time Zone - Awesome A's Team
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CLAIREHASGOALS
Posts: 2,313 5/5/13 5:09 A
Here's a link to a short ditty that explains what they are in plain English. I try to read some of the stuff I find on-line and it's so techy medical gabble-dee-gook.
You'll have to cut and paste: my phone doesn't like the "add a link" feature. Hope this helps!
Claire ******** "I believe in an America where the separation of church and state is absolute." John F Kennedy
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ORCHIDLADY56
Posts: 1,098 5/3/13 10:30 P
Hey guys! Can someone explain to me the relation between creatinine and Bun result - or is there one? My creatinine is 1.2 and has been for the last four years - which is ok for me with the 1 kidney. But the Bun result always seems to be at the high end of what they call normal. My current year blood work shows normal bun at 7-21 and mine is at 21. Any advice or explanation would be welcome.
Lady Di from the Land of Lincoln
SPARK-JEAN
SparkPoints: (87,501)
Fitness Minutes: (36,101) Posts: 5,709 5/2/13 9:43 A
Keep up the great work Claire!
Leader: Loving Our Kidneys Do you know about the silent killer,Chronic Kidney Disease? CKD is the 8th leading cause of death in the USA. LOVE your kidneys.
KNOW the facts, 9 out of 10 adults have Chronic Kidney Disease (CKD) and do not know it.
Alfred Adler emphasized that where we have come from is not as important as where we are striving to go.
Eastern Time Zone - Awesome A's Team
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DARLENEK04
Posts: 22,328 5/1/13 9:57 P
Oh Claire, that is wonderful news....
If you always do what you've always done, You'll always be who you've always been!!!!!!
"Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying "I will try again tomorrow!"
Mary Anne Radmacher
Darlene PS:
A good laugh and a long sleep are the best cures in the doctor's book.
- Irish Proverb
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CLAIREHASGOALS
Posts: 2,313 4/30/13 10:37 P
I saw my nephrologist today. I was so anxious to hear my test results since I've consumed a river of sugar. I was expecting a lecture. I got pays on the back! My eGFR is 52. I've been between 50 & 53 for about 3 years. Everything else I eat is absolutely within my prescribed kidney diet - I'm definitely doing that part right. (I had a couple slices of banana for the first time I. 4 years the other day and it was so creamily lucious).
All my other blood levels are normal: phosphorus, potassium, creatinine EXCEPT not surprisingly my glucose, which is 140! Eek.
Instead of the lecture about candy etc she told me to put real cinnamon - buy the sticks and grind it, not the ground in a jar for cooking type - in a lot of my food. She says the cinnamon helps insulin work more effectively.
I'm smiling!
Claire ******** "I believe in an America where the separation of church and state is absolute." John F Kennedy
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CLAIREHASGOALS
Posts: 2,313 1/28/13 3:24 P
I've got my blood work order and I'm seeing my doc in a few weeks. I'm dreading the news - I've been off a proper diet since the last time I saw her in August.
How is everyone else doing with their tests?
Claire ******** "I believe in an America where the separation of church and state is absolute." John F Kennedy
current weight: 156.0
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DARLENEK04
Posts: 22,328 9/5/12 7:53 P
If you always do what you've always done, You'll always be who you've always been!!!!!!
"Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying "I will try again tomorrow!"
Mary Anne Radmacher
Darlene PS:
A good laugh and a long sleep are the best cures in the doctor's book.
- Irish Proverb
Pounds lost: 72.0
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SPARK-JEAN
SparkPoints: (87,501)
Fitness Minutes: (36,101) Posts: 5,709 9/5/12 6:09 P
Keep up the great work Claire! You are doing something right or your numbers would be bad!
Jean
Leader: Loving Our Kidneys Do you know about the silent killer,Chronic Kidney Disease? CKD is the 8th leading cause of death in the USA. LOVE your kidneys.
KNOW the facts, 9 out of 10 adults have Chronic Kidney Disease (CKD) and do not know it.
Alfred Adler emphasized that where we have come from is not as important as where we are striving to go.
Eastern Time Zone - Awesome A's Team
Pounds lost: 8.0
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CBEVNOW
Posts: 6,192 9/5/12 3:53 P
Good for you Claire, just keep it up. Sometimes i think its how good our kidneys are working at the time of the tests.
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
So, even though I'm not eating a good diet and not exercises, my #s are better than they've been in a while - go figure.
Claire ******** "I believe in an America where the separation of church and state is absolute." John F Kennedy
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CBEVNOW
Posts: 6,192 9/2/12 10:45 P
Jean, no problem, i know how it goes, we all have other things going on. But our Kidneys our a priority (most of the time) meaning we all get caught up in other things in our life. I hope your new Dr. works out for you. I have been looking again for a new Neph. i do like this one but he doesnt spend much time with me or other patients, kinda wants you in and out. The one office girl is not very nice with people who come in. I think they should hire someone with CKD so they can relate to patients. My thinking any way. And they charge you so much, so you should be able to be with the Dr. at least more than 10 minutes. C
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
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SPARK-JEAN
SparkPoints: (87,501)
Fitness Minutes: (36,101) Posts: 5,709 8/29/12 8:50 P
Caroline I have my blood work done every three months - I used to see my neph once a year due to keeping my numbers in good shape - then NOT at all due to my pcp... I just started with a new one - she wants to see me back in Oct - that will be a two month span - we will see -
Looking over my paper work I am maintaining stage 3 with stage 2 readings - she diagnosed me with stage 2... even though I told her I am in stage 3... we all know why that is!
At any rate - I have the itchy skin, tiredness all the time, kidney pain and other issues.. I have learned to live with it...
sorry for the late reply - geez I did not catch up at all this month - I am too busy with mom and dad Jean
Leader: Loving Our Kidneys Do you know about the silent killer,Chronic Kidney Disease? CKD is the 8th leading cause of death in the USA. LOVE your kidneys.
KNOW the facts, 9 out of 10 adults have Chronic Kidney Disease (CKD) and do not know it.
Alfred Adler emphasized that where we have come from is not as important as where we are striving to go.
Eastern Time Zone - Awesome A's Team
Pounds lost: 8.0
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CBEVNOW
Posts: 6,192 8/25/12 2:25 A
Darlene, here is the site on the Wheat Grass site. evergreenjuices.com. Do you take B-12 It helps a lot also for perking you up as they say.
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
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DARLENEK04
Posts: 22,328 8/22/12 9:35 P
I couldnt crunch on it, because my teeth won't take the pressure....too many fillings...lol
However, I see my Nephrologist in a couple weeks, so will ask him about the wheatgrass but my guess is he will look at me like I am crazy.
go ahead, if you don't mind and send the website and we shall see what they say and what he says...
Thanks for all your research and help, Darlene
If you always do what you've always done, You'll always be who you've always been!!!!!!
"Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying "I will try again tomorrow!"
Mary Anne Radmacher
Darlene PS:
A good laugh and a long sleep are the best cures in the doctor's book.
- Irish Proverb
Pounds lost: 72.0
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CBEVNOW
Posts: 6,192 8/21/12 11:32 P
I do believe the Iron meds are helping me. I am also taking Organic Wheatgrass in the form of frozen cubes. You can make it into a juice or put in a smoothie if you want. I really have gotten sort of use to it. I put it in a little bowl and crunch on it like a ice cube. I will take a sip of water or ice tea after each crunch.. Now i did check with my Renal Dietitian and she said it was ok. It is suppose to help with digestion and it has so far and helps with your energy and it has, and all over immune system. If any one is interested i do have the web site you can go to and check it out. Check with your Renal dietitian or Dr. before using.
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
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CBEVNOW
Posts: 6,192 8/6/12 2:45 P
Darlene, sorry im a little late on this. I always go to Amazon and check there prices with Swanson. I have found by comparing a few sites these 2 are the lowest in prices. Also i find that the products i use, you usually have to go to a health food store and the one we have locally is more expensive so its easier for me to order. Amazon has no shipping fee nor tax, so sometimes this is much mopre cheaper. I hope this helps. Caroline
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
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DARLENEK04
Posts: 22,328 7/29/12 8:45 P
Can you share the name of the place online???? where you get your vitamins???
If you always do what you've always done, You'll always be who you've always been!!!!!!
"Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying "I will try again tomorrow!"
Mary Anne Radmacher
Darlene PS:
A good laugh and a long sleep are the best cures in the doctor's book.
- Irish Proverb
Pounds lost: 72.0
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CBEVNOW
Posts: 6,192 7/29/12 7:01 P
I have to start taking Ferrous Tabs for iron. B12 and and continue on my Renal Caps The Ferrous Tabs at the drug store have Dicalcium phosphate in them, so i am going on line to check out the site where i get my D3 and E I have to take these for at least 3 months and then be checked again. I usually buy the brand of Jarrow, or Carlson----they do not have fillers in them, so you get the real thing. Caroline
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
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CBEVNOW
Posts: 6,192 7/23/12 6:09 P
Well i just love this, you 2 have no symptons, so i hope you stay that way. I guess i will know by. Wed.. The best to Me, Caroline
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
current weight: 20.0 over
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DARLENEK04
Posts: 22,328 7/22/12 9:56 P
Claire,
Im with you....I have no symptoms.
Darlene
If you always do what you've always done, You'll always be who you've always been!!!!!!
"Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying "I will try again tomorrow!"
Mary Anne Radmacher
Darlene PS:
A good laugh and a long sleep are the best cures in the doctor's book.
- Irish Proverb
Pounds lost: 72.0
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CLAIREHASGOALS
Posts: 2,313 7/21/12 10:11 P
That makes a big difference, too - I don't have these other issues or symptoms. If the doc didn't tell me I had something wrong, I would have no clue.
Claire ******** "I believe in an America where the separation of church and state is absolute." John F Kennedy
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CBEVNOW
Posts: 6,192 7/21/12 12:46 A
I am still in stage 3, and i think that's is to long to wait for me any way. I will see Neph this Wed. so i will know something i hope as to why i have been so weak and tired all the time. something has to be causing this, and I'm not use to feeling like this.
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
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CLAIREHASGOALS
Posts: 2,313 7/21/12 12:41 A
Just like our diet requirements, C, the frequency of our tests is individualized. When I first started seeing my nephrologist, I saw her every 3 months. As I moved my eGFR up out of the forties into the 50's and then 60's, she extended my visits to 4 months then 5 then 6 and this last time I was told not to come back for 8 months.
If my numbers drop again the next time I see her, I'm sure my she'll have me back more often.
I see my PCP every 6 months to check my sugar A1C and my thyroid since I have Hashimoto's.
Claire ******** "I believe in an America where the separation of church and state is absolute." John F Kennedy
current weight: 156.0
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CBEVNOW
Posts: 6,192 7/21/12 12:12 A
My last one was 6 months, i think we with CKD shold at least have it done at least every 3 months. I do know if i dont feel that great my primary care Dr. will do blood work. I just think 6 months is to long to wait. My opinion any way.. C
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
current weight: 20.0 over
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DARLENEK04
Posts: 22,328 7/20/12 8:50 P
My primary care does bloodwork every 4th month My nephrologist was 4 months now I think it is 5 months..
If you always do what you've always done, You'll always be who you've always been!!!!!!
"Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying "I will try again tomorrow!"
Mary Anne Radmacher
Darlene PS:
A good laugh and a long sleep are the best cures in the doctor's book.
- Irish Proverb
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ROSES17
Posts: 6,663 7/20/12 7:23 P
About every 5 months.
Lottie Eastern North Carolina
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CBEVNOW
Posts: 6,192 7/20/12 5:45 P
Question---How often do you have your Lab, or Blood work done?
Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.
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