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CBEVNOW's Photo CBEVNOW Posts: 6,324
10/18/13 1:49 P

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Well done Jean. I have had Blood work done 2 times in the last 2 months. I am waiting on my results for last week to get here. I will be in the mail today.


Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
10/14/13 12:36 P

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Jean,

Congrats!


Claire
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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,798
10/8/13 2:29 P

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Thank you so much for posting about your meeting!

I got my labs back today - I am officially in stage 2 kidney disease.

YES, my neph doctor changed my status... my numbers have been consistent for about 2 years, now. My 1st neph said my status would never be changed - he said as long as my numbers fluctuate, because i was stage 3 when diagnosed, I will always be stage 3... well my new neph changed my status.

The status of stage 2 or 3 does not worry me, what worries me is this disease period. I will continue to work towards stage one readings (which is where my numbers are) and not advance this disease to any higher stage.

My numbers: Creatinine is .91
gfr 65
bun 15

Doing a happy dance over here... emoticon emoticon emoticon emoticon

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,342
9/21/13 7:57 P

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Learned a lot about testing and results at the recent meeting. Our speaker was the head of the lab at the local medical center. It is a 40,000 square foot lab, and he started by showing a powerpoint presentation of how the lab works and what happens to samples. He explained the population "norms" on the lab results and also what numbers were and weren't important and why.
Very informative. I would encourage anyone to talk with their doctor or the lab techs to have their numbers and values explained.

Lady Di
from the Land of Lincoln
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,798
9/12/13 2:13 P

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This is very cool! Most people cannot make heads or tails in regards to their blood work. I think everyone who has a lifelong illness/disease should know how to read their lab results.
Please share with us how your next meeting goes.
thanks.

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,342
9/12/13 8:55 A

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Our local transplant support group is having someone come in the next meeting to specifically go over how to read lab results. I think it is a great idea. It is so hard to understand sometimes what some of the numbers and readings mean, plus trying to read their meaning in context with CKD.
Hubby and I are looking forward to attending and I know us (and a number of others) are planning to bring lab results with us along with our questions.

Lady Di
from the Land of Lincoln
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,798
9/10/13 8:56 A

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emoticon Keep loving your kidneys!
Our kidney function goes down with age, just like everything else in our body loses function as we age.

Continue to take care of you!
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
9/9/13 8:16 P

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Saw my nephro last week.

EGFR down to 49 from 52. She says the calculation includes our age - my birthday was last week so the added year drives down the eGFR even if I'm doing the same things. I find that a bit confusing. Are my kidneys doing less well or not?

She also said I'm drinking too much, probably a drug I'm taking is drying my mouth out. So, I'm gonna chew more gum and use dry mouth products and see if that helps.

Potassium, phosphorus, etc are all normal.

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,342
5/7/13 9:57 P

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Thank you Claire! I appreciate the link and you pointing me in the right direction to understand this!

Lady Di
from the Land of Lincoln
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,798
5/5/13 10:17 A

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Thanks Claire!

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
5/5/13 5:09 A

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Here's a link to a short ditty that explains what they are in plain English. I try to read some of the stuff I find on-line and it's so techy medical gabble-dee-gook.

http://answers.webmd.com/answers/1198396
/what-is-bun-creatinine-ratio

You'll have to cut and paste: my phone doesn't like the "add a link" feature. Hope this helps!


Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
ORCHIDLADY56's Photo ORCHIDLADY56 Posts: 1,342
5/3/13 10:30 P

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Hey guys! Can someone explain to me the relation between creatinine and Bun result - or is there one? My creatinine is 1.2 and has been for the last four years - which is ok for me with the 1 kidney. But the Bun result always seems to be at the high end of what they call normal. My current year blood work shows normal bun at 7-21 and mine is at 21. Any advice or explanation would be welcome.

Lady Di
from the Land of Lincoln
LIFE-FAITH's Photo LIFE-FAITH Posts: 7,798
5/2/13 9:43 A

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emoticon emoticon emoticon
Keep up the great work Claire!

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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DARLENEK04 Posts: 28,293
5/1/13 9:57 P

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Oh Claire, that is wonderful news....

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
4/30/13 10:37 P

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I saw my nephrologist today. I was so anxious to hear my test results since I've consumed a river of sugar. I was expecting a lecture. I got pays on the back! My eGFR is 52. I've been between 50 & 53 for about 3 years. Everything else I eat is absolutely within my prescribed kidney diet - I'm definitely doing that part right. (I had a couple slices of banana for the first time I. 4 years the other day and it was so creamily lucious).

All my other blood levels are normal: phosphorus, potassium, creatinine EXCEPT not surprisingly my glucose, which is 140! Eek.

Instead of the lecture about candy etc she told me to put real cinnamon - buy the sticks and grind it, not the ground in a jar for cooking type - in a lot of my food. She says the cinnamon helps insulin work more effectively.

I'm smiling!


Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
1/28/13 3:24 P

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I've got my blood work order and I'm seeing my doc in a few weeks. I'm dreading the news - I've been off a proper diet since the last time I saw her in August.

How is everyone else doing with their tests?

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
DARLENEK04 Posts: 28,293
9/5/12 7:53 P

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emoticon emoticon emoticon

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,798
9/5/12 6:09 P

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emoticon emoticon emoticon emoticon

Keep up the great work Claire! You are doing something right or your numbers would be bad!

Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,324
9/5/12 3:53 P

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Good for you Claire, just keep it up. Sometimes i think its how good our kidneys are working at the time of the tests. emoticon emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
9/5/12 3:02 P

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Got my blood tests from 8/17 testing:

eGFR 53 (stage 3)
Potassium 3.6 (normal range 3.5-5.2)
Creatinine 1.14 (0.60-1.40)
Sodium 144 (135-145)
Phosphorus 3.0 (2.5-4.5)

So, even though I'm not eating a good diet and not exercises, my #s are better than they've been in a while - go figure.


Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
CBEVNOW's Photo CBEVNOW Posts: 6,324
9/2/12 10:45 P

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Jean, no problem, i know how it goes, we all have other things going on. But our Kidneys our a priority (most of the time) meaning we all get caught up in other things in our life. I hope your new Dr. works out for you. I have been looking again for a new Neph. i do like this one but he doesnt spend much time with me or other patients, kinda wants you in and out. The one office girl is not very nice with people who come in. I think they should hire someone with CKD so they can relate to patients. My thinking any way. And they charge you so much, so you should be able to be with the Dr. at least more than 10 minutes.
C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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LIFE-FAITH's Photo LIFE-FAITH Posts: 7,798
8/29/12 8:50 P

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Caroline I have my blood work done every three months - I used to see my neph once a year due to keeping my numbers in good shape - then NOT at all due to my pcp... I just started with a new one - she wants to see me back in Oct - that will be a two month span - we will see -

Looking over my paper work I am maintaining stage 3 with stage 2 readings - she diagnosed me with stage 2... even though I told her I am in stage 3... we all know why that is!

At any rate - I have the itchy skin, tiredness all the time, kidney pain and other issues.. I have learned to live with it...


sorry for the late reply - geez I did not catch up at all this month - I am too busy with mom and dad
Jean

Dad: BIBLE: Basic Instructions Before Leaving Earth

Leader:Loving Our Kidneys
Kidney Failure is the 8th leading cause of death in USA


"Seventy years are given to us! Some may even reach eighty.
But even the best of these years are filled with pain and trouble;soon they disappear, and we are gone."(Psalms 90:10)

You cannot change your life until you change something
that you do every day.
~John C. Maxwell~


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CBEVNOW's Photo CBEVNOW Posts: 6,324
8/25/12 2:25 A

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Darlene, here is the site on the Wheat Grass site. evergreenjuices.com. Do you take B-12 It helps a lot also for perking you up as they say.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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DARLENEK04 Posts: 28,293
8/22/12 9:35 P

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I couldnt crunch on it, because my teeth won't take the pressure....too many fillings...lol

However, I see my Nephrologist in a couple weeks, so will ask him about the wheatgrass
but my guess is he will look at me like I am crazy.

go ahead, if you don't mind and send the website and we shall see what they say and
what he says...

Thanks for all your research and help,
Darlene

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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CBEVNOW's Photo CBEVNOW Posts: 6,324
8/21/12 11:32 P

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I do believe the Iron meds are helping me. I am also taking Organic Wheatgrass in the form of frozen cubes. You can make it into a juice or put in a smoothie if you want. I really have gotten sort of use to it. I put it in a little bowl and crunch on it like a ice cube. I will take a sip of water or ice tea after each crunch.. Now i did check with my Renal Dietitian and she said it was ok. It is suppose to help with digestion and it has so far and helps with your energy and it has, and all over immune system. If any one is interested i do have the web site you can go to and check it out. Check with your Renal dietitian or Dr. before using.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,324
8/6/12 2:45 P

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Darlene, sorry im a little late on this. I always go to Amazon and check there prices with Swanson. I have found by comparing a few sites these 2 are the lowest in prices.
Also i find that the products i use, you usually have to go to a health food store and the one we have locally is more expensive so its easier for me to order. Amazon has no shipping fee nor tax, so sometimes this is much mopre cheaper. I hope this helps.
Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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DARLENEK04 Posts: 28,293
7/29/12 8:45 P

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Can you share the name of the place online???? where you get your vitamins???


If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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CBEVNOW's Photo CBEVNOW Posts: 6,324
7/29/12 7:01 P

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I have to start taking Ferrous Tabs for iron.
B12 and and continue on my Renal Caps
The Ferrous Tabs at the drug store have Dicalcium phosphate in them, so i am going on line to check out the site where i get my D3 and E
I have to take these for at least 3 months and then be checked again.
I usually buy the brand of Jarrow, or Carlson----they do not have fillers in them, so you get the real thing.
Caroline emoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CBEVNOW's Photo CBEVNOW Posts: 6,324
7/23/12 6:09 P

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Well i just love this, you 2 have no symptons, so i hope you stay that way. I guess i will know by. Wed.. The best to Me, emoticon
Caroline

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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DARLENEK04 Posts: 28,293
7/22/12 9:56 P

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Claire,

Im with you....I have no symptoms.

Darlene

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
7/21/12 10:11 P

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That makes a big difference, too - I don't have these other issues or symptoms. If the doc didn't tell me I had something wrong, I would have no clue.

Claire
********
Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
CBEVNOW's Photo CBEVNOW Posts: 6,324
7/21/12 12:46 A

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I am still in stage 3, and i think that's is to long to wait for me any way. I will see Neph this Wed. so i will know something i hope as to why i have been so weak and tired all the time. something has to be causing this, and I'm not use to feeling like this.

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CLAIRE_LEFT_SP's Photo CLAIRE_LEFT_SP Posts: 2,802
7/21/12 12:41 A

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Just like our diet requirements, C, the frequency of our tests is individualized. When I first started seeing my nephrologist, I saw her every 3 months. As I moved my eGFR up out of the forties into the 50's and then 60's, she extended my visits to 4 months then 5 then 6 and this last time I was told not to come back for 8 months.

If my numbers drop again the next time I see her, I'm sure my she'll have me back more often.

I see my PCP every 6 months to check my sugar A1C and my thyroid since I have Hashimoto's.



Claire
********
Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.
CBEVNOW's Photo CBEVNOW Posts: 6,324
7/21/12 12:12 A

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My last one was 6 months, i think we with CKD shold at least have it done at least every 3 months. I do know if i dont feel that great my primary care Dr. will do blood work. I just think 6 months is to long to wait. My opinion any way..
C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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DARLENEK04 Posts: 28,293
7/20/12 8:50 P

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My primary care does bloodwork every 4th month
My nephrologist was 4 months now I think it is 5 months..

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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ROSES17's Photo ROSES17 Posts: 11,095
7/20/12 7:23 P

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About every 5 months.

Lottie
Eastern North Carolina


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CBEVNOW's Photo CBEVNOW Posts: 6,324
7/20/12 5:45 P

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Question---How often do you have your Lab, or Blood work done?

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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