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1COUNTRY_GAL
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7/21/12 4:56 A

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Thank you Clarie,you have been so helpful.I agree with you,it is time for a new doctor and a new Cardiologist,they are both not much help or supportive.It's the changing and all that goes with getting new doctors and telling your health stuffs over again.I am a terrible procrastinator and am way over do to see the Heart Doc.I will do what you suggest and try to get in with nephrologist and work on changing my eating habits too! emoticonemoticonDianaemoticon

Edited by: 1COUNTRY_GAL at: 7/21/2012 (04:59)
-:¦:- ♥ •*´Diana¨`*• ♥ -:¦:- ♥`*• ♥ ¦:- •*´¨`*• ♥ :¦:- ♥
"God grant me the Serenity to accept the things I cannot change,
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And the Wisdom to know the difference."

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CLAIRE_LEFT_SP
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7/21/12 4:02 A

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Honestly, I don't try to get a copy right at my appt. I call the day after and ask them to put a copy in the mail for me. They get to schedule the task into their day when they have time. I like that better than making them feel like I'm breathing down their throat waiting.

While your blood is drawn at the doc's office, they don't do the evaluation of them. Instead, they are delivered to an independent local lab who sends the results back to the doc's. So, there really isn't any reason to go to another place. You couldn't get them done without a doctor's order anyway. If you don't trust the doc enough to believe test results, you need a new doc anyway.

I think you need a referral to a nephrologist. Many PCPs don't believe an eGFR of 60 is anything to worry about, but they are wrong. Check your med insurance benefits - I don't need a referral for specialists. I can go to one if I feel I need to. If you have to have. Referral and your PCP won't give you one, ask your cardiologist for the referral. 1/3 of the people who have kidney disease also have cardiac issues.

eGFR of 60 isn't urgent, but you do need to change your diet now to keep your kidneys from deteriorating further. You cant learn everything at once; I was as frustrated as you when I first joined the team. It takes time to take it all in. Go to one of the websites we've recommended, find their nutrition section and start reading their dietary recommendations.

I've read it a zillion times and I still have to go back to it on a regular basis to look something up.

It's hard, but patience with yourself and your learning curve is a must.



Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.


1COUNTRY_GAL
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7/21/12 2:55 A

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That's okay,I see what you are referring to now and I see that that is there and it's 4,now I need to get records from past blood work,the doctors are really not giving of these records and it's like pulling teeth,why are they acting like they have something to hide? Garsh,they sure make it difficult to take charge oh our health.I have considered going out on my own and getting a separate blood labs to compare,I wonder what I would pay if I were to do that?

When I went to an appointment to go over these numbers,the only one she was concerned was my Cholesterol,can you believe that? My triglycerides were high,isn't that concerning?
Oh what fun they make it for us,eh?
So,to much potassium that is high is bad? Oh this is frustrating because I am worried about not enough and to much is bad too.In your opinion do you think they should check the potassium more often and how often do you think is best?
I understand you are not a doctor,but you have dealt with this and have provided me with more information than I will ever get from my Heart and Family doctor.Thank you so kindly!emoticonemoticonDiana

-:¦:- ♥ •*´Diana¨`*• ♥ -:¦:- ♥`*• ♥ ¦:- •*´¨`*• ♥ :¦:- ♥
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And the Wisdom to know the difference."

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CLAIRE_LEFT_SP
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7/21/12 1:05 A

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Sorry for the confusion on my phrasing. I meant what was your potassium level from your blood tests? And the answer to that below is 4.0. The normal range is 3.5 - 5.0, which indicates that you would probably have too little potassium if you weren't taking the suppliments. It's definitely something you want to watch carefully; if your next test shows 4.5, I'd be asking if it was time to reduce the amount of supplements so you don't risk ever getting your potassium level too high because THAT is what destroys our kidneys.

C and I are always banging on our team members to get copies of our lab results. As I mentioned below, it's not just that the # is in the normal range, it's about is it slowly rising or slowly falling? It's not just do I have trouble, it's am I headed towards trouble.

Hopefully, I explained myself better this time!

Claire
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1COUNTRY_GAL
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7/20/12 11:49 P

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My Lab results from my latest fasting blood labs,I did not see Potassium Blood Level Claire?
Do you see it somewhere here?

Done 6/27/12

Sodium 141
Potassium 4.0
Chloride 101
CO2 31
Anion Gap 13
Creatinine 0.46
Bun 15
Bun/CR Ratio 32
Glucose 107
Calcium 9.0
Total Protein 7.0
Albumin 3.9
Globulin 3.1
ALB/GLOB Ratio 1.3
Bilirubin, TOT 0.5
ALT 13ALK PHOS 60
AST 18
Cholesterol 244
Triglycerides 175
HDL-C 47
LDL-C 170

GFR,EST 60

TSH 3rd GEN 2.23

INR Coagulation 3.1
I am on Warafin,blood thinner


Edited by: 1COUNTRY_GAL at: 7/20/2012 (23:53)
-:¦:- ♥ •*´Diana¨`*• ♥ -:¦:- ♥`*• ♥ ¦:- •*´¨`*• ♥ :¦:- ♥
"God grant me the Serenity to accept the things I cannot change,
Courage to change
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And the Wisdom to know the difference."

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1COUNTRY_GAL
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7/20/12 11:40 P

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Thank you C,Claire and Darlene,
I take a Rx of Lasik for my CHF,to keep fluid from building up around my heart and also told to take a Potassium Rx,because,Lasixs Rx can be very harsh on our organs and strips many nutrients our bodies need.I really don't know how well a RX potassium works with the Lasix,but I am told to take it and I comply for now.

-:¦:- ♥ •*´Diana¨`*• ♥ -:¦:- ♥`*• ♥ ¦:- •*´¨`*• ♥ :¦:- ♥
"God grant me the Serenity to accept the things I cannot change,
Courage to change
the things I can,
And the Wisdom to know the difference."

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CBEVNOW
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7/20/12 5:29 P

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Some good advice here ladies. When i first was told i had CKD. my Potassium was very low, and i was put on Potassium for about 3 months, than taken off. So maybe its due to Diana heart condition, but i to am curious since your heart is a muscle, and two much or two little can affect it.
I also like aakp American Association of Kidney Patients, this group was started by Kidney Patients, for Kidney Patients. I also like DaVita. Com. -- Nat. Kidney Organazion There are some others i can give you if you want them.
Each person with CKD is different and has different needs as to what there blood work says. Always get a copy of your blood work. emoticonemoticon
C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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CLAIRE_LEFT_SP
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7/18/12 1:55 P

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Look through the "Information: do not post in this forum" forum.
emoticon
There are many threads that discuss what the major eat/do not eat foods are. (disclaimer: only a nephrologist or renal dietician can sculpt a diet just for your situation, so this information represents general guidelines). Some threads also cover the different blood tests used to track the progress of our disease and what they mean.

I use aakp.org (American Assoc of Kidney Patients) and DaVita.com (a leading dialysis provider) for most of my kidney research. aakp.org offers nutrition guides that list the nutrient content of most foods so you can balance your meal plans to meet protein, potassium and phosphorus daily targets (they are the primary nutrients that can damage your kidneys.). The nutrition guide can be mailed to you in booklet form or downloaded as a PDF file.

I'd be interested in hearing what your potassium blood level was on your last round of lab tests. That you are taking potassium in any form is concerning to me. If you don't already, start asking your doc for a copy of your lab test results. Modifying your diet and /or meds to keep your blood levels in normal ranges is very important. I also compare my results over time. Because my tests may all show normal ranges - but they might be slowly getting higher or lower witinh the normal range. That trending change causes me to start paying more attention to that nutrient so it does fall out of that normal range.

Claire
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Those who think they have no time for a healthy lifestyle will sooner or later will have to find time for illness.


DARLENEK04
Posts: 26,333
7/16/12 7:43 P

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I would not be rushed into anything Diana, I get a lot of information from the kidney foundation
which I will go look up the web address and post it for you....but I can tell you in my
situation, my primary care says he sees no signs of CKD at all, but the nephrologist says
something different so it is a constant battle.

I looked up the foods which are supposedly detrimental to a kidney patient and try to avoid
them.........on the other hand, I added a cup of cranberry juice every morning, and I drink a
minimum of 12 cups of water daily.....cut soda out permanently, and cut my coffee to 1 cup
a morning.....soda is extremely detrimental to a kidney patient..

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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1COUNTRY_GAL
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7/16/12 6:44 P

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Thank you Caroline and Darlene,my Cardiologist cares only about my heart,as my family doctor,they don't care about my organs they may damage in the process.It's a horrible catch 22 I am in right now.I will look into a CKD diet,I am assuming this would be a good Heart Healthy Diet and if I do become a diabetic;my numbers are close,my doctor suggested I follow a Diabetic diet as well.
I sure have some serious food planning to do and much to learn.Thank you both for being so supportive and share so much information with me,you are a lifesavers.

Is there a Food plan listed on the team? Also do you have a specific site you prefer to look at online for the most comprehensive up to date information on dealing with Kidney disease and keeping Kidney's healthy?

In your experience and knowledge,what is your thoughts on why my Kidney's are showing the 60 GFR? I beleive my last tests have showed the same,will have to dig them up.I take 40mg.of RX Lasixs,RX Potassium,Heart RX's,Coreg and Lisinipril,Klonapin for sleep,and warafin RX,what RX do you think is most problematic that can typically cause the CKD?
emoticonemoticonemoticon

Edited by: 1COUNTRY_GAL at: 7/16/2012 (18:45)
-:¦:- ♥ •*´Diana¨`*• ♥ -:¦:- ♥`*• ♥ ¦:- •*´¨`*• ♥ :¦:- ♥
"God grant me the Serenity to accept the things I cannot change,
Courage to change
the things I can,
And the Wisdom to know the difference."

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DARLENEK04
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7/16/12 5:56 P

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Diana,

I would advise you to find a good Nephrologist and have him recommend a dietician
who specializes in kidney diets....

Darlene

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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CBEVNOW
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7/16/12 6:04 A

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Diana a GFR of 60-89 is considered 2nd stage, and dont let any one tell you that is mild, but a DR. will tell you this. Any level is not good for CKD. The faster you know what your GFR is the sooner you can start working to save your Kidneys, and diet is a big help in slowing down CKD. It can never be cured, some people say they have gone into remission, but it cannot be cured.
Another thing most Dr. (family Dr) dont know enough about CKD to help you with a diet. So you have to learn a lot. A cardiologist might be more concerned about diet. I hope things work out for you. Keep us informed.emoticon
C

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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1COUNTRY_GAL
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7/7/12 3:53 A

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I am new to the team and just got my blood work done and read this article and I know so little,I am overwhelmed trying to understand all that you posted and understand my numbers.I thank you kindly for all this information,the concern I have is my Creatinine is .46 low and I am concerned and am waiting to go over my labs with my family doctor and I am sure will follow with seeing my heart doctor,Cardiologist.
According to what the lab has posted is my GFR, 60 chronic Kidney disease if found over a 3 month period.I am concerned and not sure what the numbers are from the last visit,I am afraid to know.Thank you again and comments before I go to the Doctor to discuss this?
Diana

-:¦:- ♥ •*´Diana¨`*• ♥ -:¦:- ♥`*• ♥ ¦:- •*´¨`*• ♥ :¦:- ♥
"God grant me the Serenity to accept the things I cannot change,
Courage to change
the things I can,
And the Wisdom to know the difference."

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ROSES17
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6/30/12 1:03 P

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Great article. Thanks for the info.

Lottie
Eastern North Carolina


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CLAIRE_LEFT_SP
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6/29/12 1:57 A

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It's a great article, except for telling us if our eGFR is below **30** we need to see a nephrologist.

Claire
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WENDYJM4
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6/28/12 10:45 P

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Great info again jean, some of these I have not even heard of but the ones I have at least I can understand them better now.

Wendy
South Australia

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CBEVNOW
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6/28/12 7:10 P

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A great article Jen, lots of good information we can understand.

Cemoticonemoticon

Im starting to take control of my life today. I will take care of me, love my self., be good to my self, I am strong, i can do this.


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DARLENEK04
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6/28/12 1:51 P

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Very helpful article Jean...thanks for posting.....



Darlene

If you always do what you've always done,
You'll always be who you've always been!!!!!!

"Courage doesn't always roar. Sometimes courage
is the quiet voice at the
end of the day saying "I
will try again tomorrow!"

Mary Anne Radmacher

Darlene
PS:

A good laugh and a long sleep are the best cures in the doctor's book.

- Irish Proverb


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LIFE-FAITH
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From the NKD
People who develop chronic kidney disease may have some or all of the following tests and measurements. If you have kidney disease ask your doctor which tests you will have and how often they will be done. Speak to your doctor about your results. If your numbers are not in the normal range, ask how to improve them.

Serum Creatinine: Creatinine is a waste product in your blood that comes from muscle activity. It is normally removed from your blood by your kidneys, but when kidney function slows down, the creatinine level rises. Your doctor should use the results of your serum creatinine test to calculate your GFR.

Glomerular Filtration Rate (GFR): Your GFR tells how much kidney function you have. It may be estimated from your blood level of creatinine. If your GFR falls below 30 you will need to see a kidney disease specialist (called a nephrologist), Your kidney doctor will speak to you about treatments for kidney failure like dialysis or kidney transplant. A GFR below 15 indicates that you need to start one of these treatments.

Blood Urea Nitrogen (BUN): Urea nitrogen is a normal waste product in your blood that comes from the breakdown of protein from the foods you eat and from your body metabolism. It is normally removed from your blood by your kidneys, but when kidney function slows down, the BUN level rises. BUN can also rise if you eat more protein, and it can fall if you eat less protein.

Urine Protein: When your kidneys are damaged, protein leaks into your urine. A simple test can be done to detect protein in your urine. Persistent protein in the urine is an early sign of chronic kidney disease.

Microalbuminuria: This is a sensitive test that can detect a small amount of protein in the urine.

Urine Creatinine: This test estimates the concentration of your urine and helps to give an accurate protein result. Protein-to-Creatinine Ratio: This estimates the amount of protein you excrete in your urine in a day and avoids the need to collect a 24-hour sample of your urine.

Serum Albumin: Albumin is a type of body protein made from the protein you eat each day. A low level of albumin in your blood may be caused by not getting enough protein or calories from your diet. A low level of albumin may lead to health problems such as difficulty fighting off infections. Ask your dietitian how to get the right amount of protein and calories from your diet.

nPNA: Your nPNA (normalized protein nitrogen appearance) is a test that may tell if you are eating enough protein. This measurement comes from lab studies that include a urine collection and blood work. Your dietitian may ask for an accurate food record to go with this test.

Subjective Global Assessment (SGA): Your dietitian may use SGA to help check for signs of nutrition problems. The dietitian will ask you some questions about your daily diet and check your weight and the fat and muscle stores in your face, hands, arms, shoulders and legs. Ask your dietitian about your score on the SGA. If your score is too low, ask how to improve it.

Hemoglobin: Hemoglobin is the part of red blood cells that carries oxygen from your lungs to all parts of your body. Your hemoglobin level tells your doctor if you have anemia, which makes you feel tired and have little energy. If you have anemia, you may need treatment with iron supplements and a hormone called erythropoietin (EPO). The goal of anemia treatment is to reach and maintain a hemoglobin level of at least 11 to 12.

Hematocrit: Your hematocrit is a measure of the red blood cells your body is making. A low hematocrit can mean you have anemia and need treatment with iron and EPO. You will feel less tired and have more energy when your hematocrit reaches at least 33 to 36 percent.

TSAT and Serum Ferritin: Your TSAT (pronounced tee-sat) and serum ferritin (pronounced ferry-tin) are measures of iron in your body. Your TSAT should be above 20 percent and your serum ferritin should be above 100. This will help you build red blood cells. Your doctor will recommend iron supplements when needed to reach your target levels.

Parathyroid Hormone (PTH): High levels of parathyroid hormone (PTH) may result from a poor balance of calcium and phosphorus in your body. This can cause bone disease. Ask your doctor if your PTH level is in the right range. Your doctor may order a special prescription form of vitamin D to help lower your PTH. Caution: Do not take over-the-counter vitamin D unless ordered by your doctor.

Calcium: Calcium is a mineral that is important for strong bones. Ask your doctor what your calcium level should be. To help balance the amount of calcium in your blood, your doctor may ask you to take calcium supplements and a special prescription form of vitamin D. Take only the supplements and medications recommended by your doctor.

Phosphorus: A high phosphorus level can lead to weak bones. Ask your doctor what your phosphorus level should be. If your level is too high, your doctor may ask you to reduce your intake of foods that are high in phosphorus and take a type of medication called a phosphate binder with your meals and snacks.

Potassium: Potassium is a mineral in your blood that helps your heart and muscles work properly. A potassium level that is too high or too low may weaken muscles and change your heartbeat. Whether you need to change the amount of high- potassium foods in your diet depends on your stage of kidney disease. Ask your doctor what your potassium level should be. Your dietitian can help you plan your diet to get the right amount of potassium.

Body Weight: Maintaining a healthy weight is important to your overall health. If you are losing weight without even trying, you may not be getting the right nutrition to stay healthy. Your dietitian can suggest how to safely add extra calories to your diet if needed. On the other hand, if you are slowly gaining too much weight, you may need to reduce calories and increase your activity level. A sudden weight gain can also be a problem. If it is accompanied by swelling, shortness of breath and a rise in blood pressure, it may be a sign of too much fluid in your body. Speak to your doctor if your weight changes noticeably.

Blood Pressure: Ask your doctor what your blood pressure should be. If your blood pressure is high, make sure to follow all the steps in your prescribed treatment, which may include taking high blood pressure medications, cutting down on the amount of salt in your diet, losing excess weight and following a regular exercise program.

Total Cholesterol: Cholesterol is a fat-like substance found in your blood. A high cholesterol level may increase your chance of having heart and circulation problems. For many patients, a good level for total cholesterol is below 200. If your cholesterol level is too high, your doctor may ask you to make some changes in your diet and increase your activity level. In some cases, medications are also used.

HDL Cholesterol: HDL cholesterol is a type of "good" cholesterol that protects your heart. For many patients, the target level for HDL cholesterol is above 40.

LDL Cholesterol: LDL cholesterol is a type of "bad" cholesterol. A high LDL level may increase your chance of having heart and circulation problems. For many patients, the target level for LDL cholesterol is below 100. If your LDL level is too high, your doctor may ask you to make some changes in your diet and increase your activity level.

Triglyceride: Triglyceride is a type of fat found in your blood. A high triglyceride level along with high levels of total and LDL cholesterol may increase your chance of heart and circulation problems.

You can see the entire article here:
www.kidney.org/kidneydisease/understanding
labvalues.cfm


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