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FANCYQTR's Photo FANCYQTR Posts: 5,891
3/5/13 6:22 P

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I just opened this topic. The county/state programs are different everywhere, but I agree that they should not be taking so long to get you into treatment. I was on a state program for the indigent and when they diagnosed my cancer it took 3 weeks to have me in surgery. They waited about a month to put the port in and I started chemo a month and a half after surgery. They were only waiting until I had healed from the surgery.


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MOM2ACAT's Photo MOM2ACAT SparkPoints: (164,848)
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1/12/13 2:21 P

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Pain can be managed by medication, and in some cases, physical therapy. Pain issues can be treated by an oncologist, but my oncologist referred me to a pain specialist. The pain from my bone mets is treated with medication, and I also get injections for pain in my hips, lower back and left shoulder.

I am on SSDI, but there is a 24 month waiting period for Medicare. I don't know why that is, but that is just the way it works. Until the Medicare kicked in, I had to continue the insurance I had through work with COBRA.

I had to see a surgeon for a consult before I had my port put in, but the surgery to have it put in was scheduled for the following week. You shouldn't have to wait that long, especially since it's a fairly quick and simple procedure.


My name is Shari; I have been a Sparker since July 2006, and living with Stage IV breast cancer since 2007.

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SNUZSUZ's Photo SNUZSUZ Posts: 15,589
1/11/13 7:03 P

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Good luck! I hope it all works out for you:)

Sue (snoozy suzy)
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1/11/13 1:24 P

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Even easier than that, just to give my eyes a little break from staring at the screen on my phone, I'll call my worker. That way i can multi-task by sitting on hold and chopping up all the series i bought last night. Thank for your words o wisdom my dear.

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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SNUZSUZ's Photo SNUZSUZ Posts: 15,589
1/11/13 12:47 P

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You could look into it. You should be able to get SSDI, which is disability insurance. I think you have to be older for SSI and it takes 5 months. SSDI will automatically give you Medicaid, I believe. I hope I'm not telling you wrong, but you can google it and find out:)

Sue (snoozy suzy)
PST. Carmichael, California
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1/11/13 10:28 A

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"Arrowcare is a federally-funded program for qualifying residents of San Bernard County, California". wwwArrowCare.org .. It covers a little more than the standard county issued Medical. I have applied for ssd, but do not have enough points earned, but have been presumptively approved for it and am about to receive my first ssi check in the next day or two. I am only 37(actually broke out the calculator yesterday at the Dr office to realize my age) so Medicare is not an option. But Medicaid? I am not sure if it is one or not.

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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SNUZSUZ's Photo SNUZSUZ Posts: 15,589
1/11/13 7:48 A

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Have you applied for Federal Medicaid or Disability? That is what I have now and they are much better at getting things approved and the cancer center I go to is pretty great! You should look into that right away if you aren't working or decide not to work while you go through your treatment. With a cancer diagnosis, you should get it right away.

Sue (snoozy suzy)
PST. Carmichael, California
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1/11/13 7:41 A

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Ya i have something the y call Arrowcare . Its county insurance. But it basically runs thru one specific hospital only atm from what i gather. I guess i screwed up when i got the letter that said for me to deal with my new primary care physician for sicknesses , my migraine, whatever pain and other health issues i am having. And that Arrowhead hospital would deal with Treating my cancer. But he put in my refills for pain management, cause according to him i should have only been issued that much morphine if i was in a hospital. He did order me something for pain, i just have to wait for it to get here to find out what. If it isn't remotely close to what i had Im going straight to e.r. to get my good stuff back. Go figure. I thought it was gonna be a cool option, having this Dr only 20 miles away instead of 80 miles.

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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SNUZSUZ's Photo SNUZSUZ Posts: 15,589
1/11/13 7:24 A

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I definitely agree with Amy! If you can't talk to your doctor, you need to get another one! I know there are a lot of tests they have to do before they can treat you though. They need to find out everything about your cancer before so they can choose the right treatment, how often, and what amount. But I feel that the sooner they get started with the treatment the sooner they can start getting rid of it. It shouldn't take months to start treatment! I only had county so it did take months, but I know others that had private insurance and it only took a couple of weeks.

Sue (snoozy suzy)
PST. Carmichael, California
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ASTORRES1's Photo ASTORRES1 SparkPoints: (76,926)
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1/11/13 7:13 A

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Very good questions. If your oncologist is not helping with the whole picture from pain to final treatment maybe he needs to send you to someone for pain management. I think if possible a second opinion. If you do not feel like your doctor is HEARING you he may not be the right one for you. You need to be able to trust your medical team.

Amy

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1/11/13 5:15 A

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So i need know ...
1. What is pain management?
2 why have a consultation about my chemically port? Whatsthe problem? Am i just suppose to suffer forever?
3. How do i get the drs to all be honest with me?
4. How much longer before theyvactually start doing something for me? Rather than procrastinating and treating me like the crash test dummy with more lame tests and making me a pin cushion

We all have what it takes within ourselves to accomplish absolutely anything and everything imaginable in this world. We just need to make up our minds to just do it! Not one single thing in this world is impossible. We can do it!


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